Re: [QUAD-L] Neurontin

[Eric Olson]

  
  
Sometimes I take temazepam for sleep.  Same family as valium so
thanks for the info

On 1/2/2016 10:22 PM, Robert Vogel
  wrote:


  
  Hi
Greg,
  

  I am in my 30th year as a
  T10 complete para. I get bad neuropathic leg pain, like icy
  hot pain.
  It comes and goes, seems to
  be worse in cold weather, also worse if I am getting sick, or
  getting
  a UTI.
  

  I take 200 mg of
  neurontin-gabapentin three times a day.  My PM (spinal
  cord injury doc) doc 
  says I can take at least
  three times that much, but 200 mg seems to help just a bit and
  I don’t want
  to take more because I’ve
  heard it can cause weakness in limbs.  I’ve also read/heard it
  is VERY difficult
  to get off of, as in as
  difficult as it is to stop taking valium (diazapam) because it
  replaces the same
  substance in the brain
  (gaba) and it takes the brain a long time to start making it
  again.
  

  This makes sense because I
  also take 10mg of valium at night to stop leg spasticity when
  I’m trying to
  sleep.  The neuropathic
  icy/burning goes away when the valium kicks in—but taking more
  valium would
  set off a chain reaction of
  tolerance so I stay away from taking any additional valium
  and/or gabapentin.
  

  Bob V
  


  
On Jan 2, 2016, at 5:31 PM, greg  wrote:

I did and Lyrica, didn't help much.
  My only relief is sun or sun lamp. Not the sun box for
  Seasonal Affective Disorder. It's got to be the heat lamp
  kind.
  Only relief I get.
  
  Greg
  
  
  
  What will I be doing?  Continuing my search for relief
  from my neuropathic
  pain.  In my case, an intense feeling of cold.  Have any
  of you taken
  neurontin-gabapentin
  

  


  


  
 
	
		
			
		
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Re: [QUAD-L] Neurontin

[Eric Olson]

Could you elaborate on the acupuncture?  I've wanted to try it but I'm a 
C3 so I couldn't get on a table


On 1/2/2016 8:19 PM, Gail Overton wrote:

Don't take gabapentin. Totally reduces any motor function you may have and the 
withdrawal is horrible. Physical therapy, acupuncture, and massage is only cure 
for nerve pain.

-Original Message-
From: greg [mailto:g...@eskimo.com]
Sent: Saturday, January 02, 2016 6:32 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Neurontin

I did and Lyrica, didn't help much.
My only relief is sun or sun lamp. Not the sun box for Seasonal Affective 
Disorder. It's got to be the heat lamp kind.
Only relief I get.

Greg



What will I be doing?  Continuing my search for relief from my neuropathic 
pain.  In my case, an intense feeling of cold.  Have any of you taken 
neurontin-gabapentin





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Re: [QUAD-L] Neurontin

[Eric Olson]

Yes we suffer the same cold affliction.  Nothing like the sun. Thanks 
for your input


On 1/2/2016 7:31 PM, greg wrote:

I did and Lyrica, didn't help much.
My only relief is sun or sun lamp. Not the sun box for Seasonal Affective 
Disorder. It's got to be the heat lamp kind.
Only relief I get.

Greg



What will I be doing?  Continuing my search for relief from my neuropathic
pain.  In my case, an intense feeling of cold.  Have any of you taken
neurontin-gabapentin





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[QUAD-L] Neurontin

[greg]

I did and Lyrica, didn't help much.
My only relief is sun or sun lamp. Not the sun box for Seasonal Affective 
Disorder. It's got to be the heat lamp kind.
Only relief I get.

Greg



What will I be doing?  Continuing my search for relief from my neuropathic
pain.  In my case, an intense feeling of cold.  Have any of you taken
neurontin-gabapentin

RE: [QUAD-L] Neurontin

[Gail Overton]

Don't take gabapentin. Totally reduces any motor function you may have and the 
withdrawal is horrible. Physical therapy, acupuncture, and massage is only cure 
for nerve pain.

-Original Message-
From: greg [mailto:g...@eskimo.com] 
Sent: Saturday, January 02, 2016 6:32 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Neurontin

I did and Lyrica, didn't help much.
My only relief is sun or sun lamp. Not the sun box for Seasonal Affective 
Disorder. It's got to be the heat lamp kind.
Only relief I get.

Greg



What will I be doing?  Continuing my search for relief from my neuropathic 
pain.  In my case, an intense feeling of cold.  Have any of you taken 
neurontin-gabapentin

Re: [QUAD-L] Neurontin

[Robert Vogel]

Hi Greg,

I am in my 30th year as a T10 complete para. I get bad neuropathic leg pain, 
like icy hot pain.
It comes and goes, seems to be worse in cold weather, also worse if I am 
getting sick, or getting
a UTI.

I take 200 mg of neurontin-gabapentin three times a day.  My PM (spinal cord 
injury doc) doc 
says I can take at least three times that much, but 200 mg seems to help just a 
bit and I don’t want
to take more because I’ve heard it can cause weakness in limbs.  I’ve also 
read/heard it is VERY difficult
to get off of, as in as difficult as it is to stop taking valium (diazapam) 
because it replaces the same
substance in the brain (gaba) and it takes the brain a long time to start 
making it again.

This makes sense because I also take 10mg of valium at night to stop leg 
spasticity when I’m trying to
sleep.  The neuropathic icy/burning goes away when the valium kicks in—but 
taking more valium would
set off a chain reaction of tolerance so I stay away from taking any additional 
valium and/or gabapentin.

Bob V

> On Jan 2, 2016, at 5:31 PM, greg  wrote:
> 
> I did and Lyrica, didn't help much.
> My only relief is sun or sun lamp. Not the sun box for Seasonal Affective 
> Disorder. It's got to be the heat lamp kind.
> Only relief I get.
> 
> Greg
> 
> 
> 
> What will I be doing?  Continuing my search for relief from my neuropathic
> pain.  In my case, an intense feeling of cold.  Have any of you taken
> neurontin-gabapentin
> 

Re: [QUAD-L] Neurontin

[Gmail]

I take neurontin and get a massage twice a month.
I'd love to get off it. But I need to sleep, really sleep I take extra ones ... 
and I'm OUT.

Smile Everyday

> On Jan 2, 2016, at 9:19 PM, Gail Overton <ga...@pennwell.com> wrote:
> 
> Don't take gabapentin. Totally reduces any motor function you may have and 
> the withdrawal is horrible. Physical therapy, acupuncture, and massage is 
> only cure for nerve pain.
> 
> -Original Message-
> From: greg [mailto:g...@eskimo.com] 
> Sent: Saturday, January 02, 2016 6:32 PM
> To: quad-list@eskimo.com
> Subject: [QUAD-L] Neurontin
> 
> I did and Lyrica, didn't help much.
> My only relief is sun or sun lamp. Not the sun box for Seasonal Affective 
> Disorder. It's got to be the heat lamp kind.
> Only relief I get.
> 
> Greg
> 
> 
> 
> What will I be doing?  Continuing my search for relief from my neuropathic 
> pain.  In my case, an intense feeling of cold.  Have any of you taken 
> neurontin-gabapentin
> 

Re: FW: [QUAD-L] neurontin

[LadyNotes]

Merrill,
 
Yes, it is the same procedure with the Baclofen pump.  It  is refilled once 
every six months, and adjusted as needed.  But of course  it's filled with 
Baclofen instead of morphine.  

Naomi


C4-incomplete, quadriplegic since July 2005
due to Transverse  Myelitis



**Wondering what's for Dinner Tonight? Get new twists on family 
favorites at AOL Food.  
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Re: FW: [QUAD-L] neurontin

[Lori Michaelson]

Like Corie Jones ... I have tried everything but the pump without relief.
And I have decided that I am not going to let another doctor messed around
with my spinal cord anymore since the current pain than I have is probably
directly related from the shunt surgery I had in 1995.  I ended up having
three surgeries that summer.  The pain did not start until two years after
the surgery but it is difficult to explain why that is the culprit.
Like Stacy ... keeping busy and/or sleeping are the only two things that
help my pain.

Lori Michaelson
Age - 43
C4/5 complete quad, 28 years post
Tucson, AZ



On Mon, May 19, 2008 at 11:49 AM, Stacy Harim [EMAIL PROTECTED]
wrote:

  I am in serious pain now from my back.  I don't know if you know but I
 had 3 spinal surgeries last summer b/c i got osteomyelitis in my spinal
 column.  A screw has popped through a vertebrea and has rubbed the one above
 it to a point that part of that bone is gone as well.  I am getting another
 surgery to get more rods but I have to wait for the doctor to view the ct
 scan that i sent to set up the surgery.

 Anyhow I am in extreme pain that medicine is not helping.  I personally
 manage pain pretty well by keeping myself busy.  It's hard to fight through
 but I also have to live.  I have a hard time meditating as well because of
 so many personal problems so I understand that is why I just keep myself
 busy to keep my mind off of it.

 Stacy

  - Original Message 
 From: KK [EMAIL PROTECTED]
 To: Stacy Harim [EMAIL PROTECTED]; [EMAIL PROTECTED];
 [EMAIL PROTECTED]; quad-list@eskimo.com
 Sent: Monday, May 19, 2008 2:39:32 PM
 Subject: Re: FW: [QUAD-L] neurontin

   Stacy, don't you have to be in control of the pain before it starts
 getting bad?

 I have so much noise going on in my head, it has never been quiet enough to
 meditate.  Constant ocean roar in both ears.




-- 
Lori
C4/5 complete quad, 27 years post
Tucson, AZ

Re: [QUAD-L] neurontin

[LadyNotes]

Rob,
 
I understand exactly what you mean about the pain.  I am  in excruciating 
pain, 24/7 also, given it a thought of taking the cowardly way  out.  It's 
terrible when you have no quality of life.  I currently  take 400 mg of Lyrica 
twice 
daily, 60 mg of Cymbalta, once a day, Vicodin three  times a day, and 50 mcg 
Fentanyl patch every three days.  This still  doesn't control the pain.  I had 
considered titrating off all my  medication, but the withdrawal is a bitch!  
I don't know what to do.   I am so stressed out from the pain that I have 
started clenching my jaw and  grinding my teeth.  My dentist ground my teeth 
down 
to relieve some of the  pressure.  The pain makes me totally exhausted.  I 
will be contacting  my doctor this afternoon about pain management.  I am 
desperate.  

Naomi


C4-incomplete, quadriplegic since July 2005
due to Transverse  Myelitis



**Wondering what's for Dinner Tonight? Get new twists on family 
favorites at AOL Food.  
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Re: FW: [QUAD-L] neurontin

[LadyNotes]

Merrill,
 
Is the morphine in the form of a pill, a pump or a patch?  

Naomi


C4-incomplete, quadriplegic since July 2005
due to Transverse  Myelitis



**Wondering what's for Dinner Tonight? Get new twists on family 
favorites at AOL Food.  
(http://food.aol.com/dinner-tonight?NCID=aolfod000301)

Re: FW: [QUAD-L] neurontin

[Stacy Harim]

I've tried morphine and dilatid(sp?).  Neither have worked.  Not even for my 
back where the screw has moved its way through the vertebrae. I have also tried 
oxycodone.  I do take 50mg of cymbalta but that was prescribed when I was going 
through all of the spinal surgeries and got really depressed about it in the 
hospital.  I gave up on all pain meds except for the lyrica.
One thing you all in pain might want to ask about is methadone.  It does 
something with the nerve endings to relieve pain.  It's much less of mg. for 
pain.  I did take it at one time but when my spasms got really bad, I had to 
quit it to take diazipam because it lowers your heart rate. I got it through my 
pain doctor.  It did really work and I am considering taking it again because I 
no longer take the diazipam since my spasms are much better since I got my 
spinal surgery. 
It's something I would consider if your pain is that bad.  It worked for me and 
my pain at one time was out of control.  Since I have been taking lyrica, its' 
been much better but since my back is in so much pain I am going to talk to my 
doc about the methadone again.  I think it makes a difference.
I'm sorry to hear about your pain.  I took a health psychology class and we 
learned about managing pain and it personally helped me learn how to manage 
it.  There are things you can do to help take your mind off of it.  In some 
ways its kind of like medatation by thinking of other things in a nice quiet 
setting that relax you.  I'm sure most of you in a lot of pain have tried 
everything you can think of but just letting you know some of the things that 
help me.
Good luck,
Stacy


- Original Message 
From: [EMAIL PROTECTED] [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Monday, May 19, 2008 11:51:06 AM
Subject: Re: FW: [QUAD-L] neurontin

Merrill,
 
Is the morphine in the form of a pill, a pump or a patch? 
 
Naomi
C4-incomplete, quadriplegic since July 2005
due to Transverse Myelitis






Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL 
Food.


  

Re: FW: [QUAD-L] neurontin

[KK]

Stacy, don't you have to be in control of the pain before it starts getting bad?

I have so much noise going on in my head, it has never been quiet enough to 
meditate.  Constant ocean roar in both ears. 

Re: FW: [QUAD-L] neurontin

[Stacy Harim]

I am in serious pain now from my back.  I don't know if you know but I had 3 
spinal surgeries last summer b/c i got osteomyelitis in my spinal column.  A 
screw has popped through a vertebrea and has rubbed the one above it to a point 
that part of that bone is gone as well.  I am getting another surgery to get 
more rods but I have to wait for the doctor to view the ct scan that i sent to 
set up the surgery.
Anyhow I am in extreme pain that medicine is not helping.  I personally manage 
pain pretty well by keeping myself busy.  It's hard to fight through but I also 
have to live.  I have a hard time meditating as well because of so many 
personal problems so I understand that is why I just keep myself busy to keep 
my mind off of it.
Stacy


- Original Message 
From: KK [EMAIL PROTECTED]
To: Stacy Harim [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; 
quad-list@eskimo.com
Sent: Monday, May 19, 2008 2:39:32 PM
Subject: Re: FW: [QUAD-L] neurontin


Stacy, don't you have to be in control of the pain before it starts getting bad?

I have so much noise going on in my head, it has never been quiet enough to 
meditate.  Constant ocean roar in both ears. 



  

RE: FW: [QUAD-L] neurontin

[Mark Jackson]

Stacy, you might be a good candidate for a pain pump which is surgically
implanted in your spinal column or cord but I'm not sure which and it's much
easier on you because it goes straight tov the sorce and requires smaller
doses because of this.
You should ask your doctor because I've heard it's changed peoples lives for
the better if it works.
I've tried to get one but since they've cut medicaid to the bare roots
there's very little covered any more.
That doesn't mean you can't though, it differs state by state I think and if
you're on Medicare I know it's covered.
 
 

Mark Jackson

   RollinOn

 


   _  

From: Stacy Harim [mailto:[EMAIL PROTECTED] 
Sent: Monday, May 19, 2008 12:02 PM
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com
Subject: Re: FW: [QUAD-L] neurontin


I've tried morphine and dilatid(sp?).  Neither have worked.  Not even for my
back where the screw has moved its way through the vertebrae. I have also
tried oxycodone.  I do take 50mg of cymbalta but that was prescribed when I
was going through all of the spinal surgeries and got really depressed about
it in the hospital.  I gave up on all pain meds except for the lyrica.
 
One thing you all in pain might want to ask about is methadone.  It does
something with the nerve endings to relieve pain.  It's much less of mg. for
pain.  I did take it at one time but when my spasms got really bad, I had to
quit it to take diazipam because it lowers your heart rate. I got it through
my pain doctor.  It did really work and I am considering taking it again
because I no longer take the diazipam since my spasms are much better since
I got my spinal surgery. 
 
It's something I would consider if your pain is that bad.  It worked for me
and my pain at one time was out of control.  Since I have been taking
lyrica, its' been much better but since my back is in so much pain I am
going to talk to my doc about the methadone again.  I think it makes a
difference.
 
I'm sorry to hear about your pain.  I took a health psychology class and we
learned about managing pain and it personally helped me learn how to manage
it.  There are things you can do to help take your mind off of it.  In some
ways its kind of like medatation by thinking of other things in a nice quiet
setting that relax you.  I'm sure most of you in a lot of pain have tried
everything you can think of but just letting you know some of the things
that help me.
 
Good luck,
Stacy


- Original Message 
From: [EMAIL PROTECTED] [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Monday, May 19, 2008 11:51:06 AM
Subject: Re: FW: [QUAD-L] neurontin


Merrill,
 
Is the morphine in the form of a pill, a pump or a patch? 
 
Naomi
C4-incomplete, quadriplegic since July 2005
due to Transverse Myelitis




   _  

Wondering what's for Dinner Tonight? HYPERLINK
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7:44 AM
 

Re: FW: [QUAD-L] neurontin

[John S.]

I'm not sure I can give decent advice about pain. Whatever seems great at 
first, always fades away. Sometimes I feel as if I have pain under control, but 
most of the time, it has me by the short hairs. 
I sure hope and pray caging your spine helps, Stacy. You might live in a state 
that didn't spend it's Medicaid allotment to expand it's jail capacity. I wish 
I could remember where everyone is from, but I feel like I'm doing well 
remembering my address on days like today. (please, don't everybody write and 
tell me where they live.)
Have you ever tried a pot cookie or brownie? Some herbal remedies work pretty 
well. It's no St John's Wort, but it won't aggravate any dry skin issues, 
either. Don't even bother with marijuana pills. They won't stay lit.

Best wishes 
john




- Original Message 
From: Mark Jackson [EMAIL PROTECTED]
To: Stacy Harim [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; 
quad-list@eskimo.com
Sent: Monday, May 19, 2008 3:44:02 PM
Subject: RE: FW: [QUAD-L] neurontin

 
Stacy, you might be a good candidate for a pain pump which 
is surgically implanted in your spinal column or cord but I'm not sure which 
and 
it's much easier on you because it goes straight tov the sorce and requires 
smaller doses because of this.
You should ask your doctor because I've heard it's changed 
peoples lives for the better if it works.
I've tried to get one but since they've cut medicaid to the 
bare roots there's very little covered any more.
That doesn't mean you can't though, it differs state by 
state I think and if you're on Medicare I know it's covered.
 
 
Mark 
Jackson 
   RollinOn
 



 From: Stacy Harim 
[mailto:[EMAIL PROTECTED] 
Sent: Monday, May 19, 2008 12:02 
PM
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; 
quad-list@eskimo.com
Subject: Re: FW: [QUAD-L] 
neurontin


I've 
tried morphine and dilatid(sp?).  Neither have worked.  Not even for 
my back where the screw has moved its way through the vertebrae. I have also 
tried oxycodone.  I do take 50mg of cymbalta but that was prescribed when I 
was going through all of the spinal surgeries and got really depressed about it 
in the hospital.  I gave up on all pain meds except for the lyrica.
 
One 
thing you all in pain might want to ask about is methadone.  It does 
something with the nerve endings to relieve pain.  It's much less of mg. 
for pain.  I did take it at one time but when my spasms got really bad, I 
had to quit it to take diazipam because it lowers your heart rate. I got it 
through my pain doctor.  It did really work and I am considering taking it 
again because I no longer take the diazipam since my spasms are much better 
since I got my spinal surgery. 
 
It's 
something I would consider if your pain is that bad.  It worked for me and 
my pain at one time was out of control.  Since I have been taking lyrica, 
its' been much better but since my back is in so much pain I am going to talk 
to 
my doc about the methadone again.  I think it makes a difference.
 
I'm 
sorry to hear about your pain.  I took a health psychology class and we 
learned about managing pain and it personally helped me learn how to manage 
it.  There are things you can do to help take your mind off of it.  In 
some ways its kind of like medatation by thinking of other things in a nice 
quiet setting that relax you.  I'm sure most of you in a lot of pain have 
tried everything you can think of but just letting you know some of the things 
that help me.
 
Good 
luck,
Stacy


- 
Original Message 
From: [EMAIL PROTECTED] 
[EMAIL PROTECTED]
To: [EMAIL PROTECTED]; 
quad-list@eskimo.com
Sent: Monday, May 19, 2008 11:51:06 AM
Subject: Re: 
FW: [QUAD-L] neurontin

Merrill,
 
Is the morphine in the form of a pill, a pump or a patch? 
 
Naomi
C4-incomplete, quadriplegic since July 2005
due to 
Transverse Myelitis






 Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL 
Food.


No virus found in this incoming message.
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AVG.
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5/19/2008 7:44 AM


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Checked by AVG.
Version: 7.5.524 / Virus Database: 269.23.21/1454 - Release Date: 5/19/2008 
7:44 AM


  

Re: FW: [QUAD-L] neurontin

[LadyNotes]

Stacy,
 
Thank you very much for your advice on pain management.   I have tried 
meditation method, which was suggested by my psychiatrist, when I  was in the 
hospital.  It's extremely difficult for me to concentrate.   Even when it is 
perfectly quiet in the room, it is extremely noisy and busy in  my head.  I 
also have 
a difficult time with prayer for the same  reason.  When I was on the 
steroids, it was even worse.
 
Naomi

C4-incomplete, quadriplegic since July 2005
due to Transverse  Myelitis



**Wondering what's for Dinner Tonight? Get new twists on family 
favorites at AOL Food.  
(http://food.aol.com/dinner-tonight?NCID=aolfod000301)

Re: FW: [QUAD-L] neurontin

[LadyNotes]

Mark,
 
I have a Baclofen pump, which is surgically implanted.   Have you ever heard 
of anyone receiving pain medication through their Baclofen  pump?  

Naomi


C4-incomplete, quadriplegic since July 2005
due to Transverse  Myelitis



**Wondering what's for Dinner Tonight? Get new twists on family 
favorites at AOL Food.  
(http://food.aol.com/dinner-tonight?NCID=aolfod000301)

Re: FW: [QUAD-L] neurontin

[KK]

Yes any drug that can enter you spinal cord can be put in there.  Heard of 
someone who had a mix of drugs in theres.

Re: FW: [QUAD-L] neurontin

[Stacy Harim]

I was hoping with you being in a similiar situation. I came down with ADEM 
suddenly memorial weekend 2001.  A lot of my pain is due to paralysis but there 
is so much more going on in my body that even the doctors can't get a grip 
on.  I have a busy head as well.  It's very hard to concentrate with a lot of 
problems and frustrations.  Maybe you can find out some about methadone.  Like 
I said, it helped me emensly.  It's worth finding out more about it.
Stacy



- Original Message 
From: [EMAIL PROTECTED] [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Monday, May 19, 2008 5:49:53 PM
Subject: Re: FW: [QUAD-L] neurontin

Stacy,
 
Thank you very much for your advice on pain management.  I have tried 
meditation method, which was suggested by my psychiatrist, when I was in the 
hospital.  It's extremely difficult for me to concentrate.  Even when it is 
perfectly quiet in the room, it is extremely noisy and busy in my head.  I also 
have a difficult time with prayer for the same reason.  When I was on the 
steroids, it was even worse.
 
Naomi
C4-incomplete, quadriplegic since July 2005
due to Transverse Myelitis






Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL 
Food.


  

Re: FW: [QUAD-L] neurontin

[Stacy Harim]

I considered a baclofen pump.  WE thought it was a pressure sore making me have 
so many spasms but it turned out to be the osteomyelitis.  Anyhow if the spasms 
weren't to get any better, I wanted the pump.  My pain specialist puts them in 
and then the spasticity clinic maintains them.  My pain doc said that he could 
put the pain meds in as well instead of having to take them orally.
Stacy



- Original Message 
From: [EMAIL PROTECTED] [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Monday, May 19, 2008 5:52:50 PM
Subject: Re: FW: [QUAD-L] neurontin

Mark,
 
I have a Baclofen pump, which is surgically implanted.  Have you ever heard of 
anyone receiving pain medication through their Baclofen pump? 
 
Naomi
C4-incomplete, quadriplegic since July 2005
due to Transverse Myelitis






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Food.


  

Re: FW: [QUAD-L] neurontin

[Stacy Harim]

I am considering it if I dont get relief from this next surgery.  I'm just 
freaking out because more rods.  At least 3 more levels.  They are already from 
T7 all the way into my pelvis so now we are talking about T 4.  I'm so 
nervous.  I was a quad and got better and now I feel like I am going 
backwards.  It's hard to know you are going to lose it instead of just losing 
it without knowing.  I am so afraid of losing idenpendence.  I know a lot of 
you have caregivers but I honestly cant stand anyone around me for very long 
every day.  They have to come at least for 5 hours because they come from 30 to 
40 miles away.  They also have a habit of not showing up and that freaks me 
out.  I can't imagine getting stuck either in my bed or in my chair.
Anyhow I jumped off subject.  I will definatly look into it if I don't get 
relief but I think I will since I had relief when I first had this fusion.  I 
only hurt if I did too much.  Now everything is too much but I still keep 
getting up because I don't want to have to lay in bed all day and let my life 
go by on me.  I do what I can as carefully as I can for now.
Thanks for the advice,
Stacy


- Original Message 
From: Mark Jackson [EMAIL PROTECTED]
To: Stacy Harim [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; 
quad-list@eskimo.com
Sent: Monday, May 19, 2008 3:44:02 PM
Subject: RE: FW: [QUAD-L] neurontin


Stacy, you might be a good candidate for a pain pump which is surgically 
implanted in your spinal column or cord but I'm not sure which and it's much 
easier on you because it goes straight tov the sorce and requires smaller doses 
because of this.
You should ask your doctor because I've heard it's changed peoples lives for 
the better if it works.
I've tried to get one but since they've cut medicaid to the bare roots there's 
very little covered any more.
That doesn't mean you can't though, it differs state by state I think and if 
you're on Medicare I know it's covered.
 
 
Mark Jackson 
   RollinOn
 



From: Stacy Harim [mailto:[EMAIL PROTECTED] 
Sent: Monday, May 19, 2008 12:02 PM
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com
Subject: Re: FW: [QUAD-L] neurontin


I've tried morphine and dilatid(sp?).  Neither have worked.  Not even for my 
back where the screw has moved its way through the vertebrae. I have also tried 
oxycodone.  I do take 50mg of cymbalta but that was prescribed when I was going 
through all of the spinal surgeries and got really depressed about it in the 
hospital.  I gave up on all pain meds except for the lyrica.
 
One thing you all in pain might want to ask about is methadone.  It does 
something with the nerve endings to relieve pain.  It's much less of mg. for 
pain.  I did take it at one time but when my spasms got really bad, I had to 
quit it to take diazipam because it lowers your heart rate. I got it through my 
pain doctor.  It did really work and I am considering taking it again because I 
no longer take the diazipam since my spasms are much better since I got my 
spinal surgery. 
 
It's something I would consider if your pain is that bad.  It worked for me and 
my pain at one time was out of control.  Since I have been taking lyrica, its' 
been much better but since my back is in so much pain I am going to talk to my 
doc about the methadone again.  I think it makes a difference.
 
I'm sorry to hear about your pain.  I took a health psychology class and we 
learned about managing pain and it personally helped me learn how to manage 
it.  There are things you can do to help take your mind off of it.  In some 
ways its kind of like medatation by thinking of other things in a nice quiet 
setting that relax you.  I'm sure most of you in a lot of pain have tried 
everything you can think of but just letting you know some of the things that 
help me.
 
Good luck,
Stacy


- Original Message 
From: [EMAIL PROTECTED] [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Monday, May 19, 2008 11:51:06 AM
Subject: Re: FW: [QUAD-L] neurontin

Merrill,
 
Is the morphine in the form of a pill, a pump or a patch? 
 
Naomi
C4-incomplete, quadriplegic since July 2005
due to Transverse Myelitis






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Re: FW: [QUAD-L] neurontin

[Stacy Harim]

Thanks John,
I live in MD.  they aren't spending crap on jails here.  My brother is in 
prison and he says its terrible.  We have overcrowding and understaffing and 
they just shut down a prison so those prisoners went to the others in the 
state.  It's a nightmare.
I know weed helps but it has a poor effect on me now that I am a bit older.  It 
makes me want to eat and sleep.  I live alone so I cant be that lazy and I 
don't want to gain weight.  Plus I can't afford it.  Its a good idea though.
Stacy


- Original Message 
From: John S. [EMAIL PROTECTED]
To: quad-list@eskimo.com
Sent: Monday, May 19, 2008 4:36:37 PM
Subject: Re: FW: [QUAD-L] neurontin


I'm not sure I can give decent advice about pain. Whatever seems great at 
first, always fades away. Sometimes I feel as if I have pain under control, but 
most of the time, it has me by the short hairs. 
I sure hope and pray caging your spine helps, Stacy. You might live in a state 
that didn't spend it's Medicaid allotment to expand it's jail capacity. I wish 
I could remember where everyone is from, but I feel like I'm doing well 
remembering my address on days like today. (please, don't everybody write and 
tell me where they live.)
Have you ever tried a pot cookie or brownie? Some herbal remedies work pretty 
well. It's no St John's Wort, but it won't aggravate any dry skin issues, 
either. Don't even bother with marijuana pills. They won't stay lit.

Best wishes 
john




- Original Message 
From: Mark Jackson [EMAIL PROTECTED]
To: Stacy Harim [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; 
quad-list@eskimo.com
Sent: Monday, May 19, 2008 3:44:02 PM
Subject: RE: FW: [QUAD-L] neurontin


Stacy, you might be a good candidate for a pain pump which is surgically 
implanted in your spinal column or cord but I'm not sure which and it's much 
easier on you because it goes straight tov the sorce and requires smaller doses 
because of this.
You should ask your doctor because I've heard it's changed peoples lives for 
the better if it works.
I've tried to get one but since they've cut medicaid to the bare roots there's 
very little covered any more.
That doesn't mean you can't though, it differs state by state I think and if 
you're on Medicare I know it's covered.
 
 
Mark Jackson 
   RollinOn
 



From: Stacy Harim [mailto:[EMAIL PROTECTED] 
Sent: Monday, May 19, 2008 12:02 PM
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com
Subject: Re: FW: [QUAD-L] neurontin


I've tried morphine and dilatid(sp?).  Neither have worked.  Not even for my 
back where the screw has moved its way through the vertebrae. I have also tried 
oxycodone.  I do take 50mg of cymbalta but that was prescribed when I was going 
through all of the spinal surgeries and got really depressed about it in the 
hospital.  I gave up on all pain meds except for the lyrica.
 
One thing you all in pain might want to ask about is methadone.  It does 
something with the nerve endings to relieve pain.  It's much less of mg. for 
pain.  I did take it at one time but when my spasms got really bad, I had to 
quit it to take diazipam because it lowers your heart rate. I got it through my 
pain doctor.  It did really work and I am considering taking it again because I 
no longer take the diazipam since my spasms are much better since I got my 
spinal surgery. 
 
It's something I would consider if your pain is that bad.  It worked for me and 
my pain at one time was out of control.  Since I have been taking lyrica, its' 
been much better but since my back is in so much pain I am going to talk to my 
doc about the methadone again.  I think it makes a difference.
 
I'm sorry to hear about your pain.  I took a health psychology class and we 
learned about managing pain and it personally helped me learn how to manage 
it.  There are things you can do to help take your mind off of it.  In some 
ways its kind of like medatation by thinking of other things in a nice quiet 
setting that relax you.  I'm sure most of you in a lot of pain have tried 
everything you can think of but just letting you know some of the things that 
help me.
 
Good luck,
Stacy


- Original Message 
From: [EMAIL PROTECTED] [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Monday, May 19, 2008 11:51:06 AM
Subject: Re: FW: [QUAD-L] neurontin

Merrill,
 
Is the morphine in the form of a pill, a pump or a patch? 
 
Naomi
C4-incomplete, quadriplegic since July 2005
due to Transverse Myelitis






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FW: [QUAD-L] neurontin

[Merrill]

I know this drug is helping people as is its other name by Gabapantin.  I
also know that it is hard on the kidneys.  What I do not understand is why
doctors prefer it rather than say time released morphine which granted is
addictive but whatever works you are going to use.  Neurontin did not appear
to work for me but I stopped taking after the required dose was high, like 4
4x a day.

 

Luckily I get the morphine which works 60mg X 2 daily.

 

Merrill

  _  

From: KK [mailto:[EMAIL PROTECTED] 
Sent: Saturday, May 17, 2008 1:19 PM
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Subject: Re: [QUAD-L] neurontin

 

It is the dry mouth caused by the drug.  It is so bad my teeth stick to my
lips.  GROSS!

KK

 

  _  

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Re: [QUAD-L] neurontin

[Fragile]

Taking the generic (thanks Medicaid)  for severe pain that is pure
Hell.  Tried it before at 900mg, no relief.  New Pain Doc wants me to
try 1800mg.

 Medicaid won't cover Lyrica, tried it once at 75mg 3x per day
(samples from Doc), no relief.  Even Morphine does nothing.

Today at 300 mg neurontin 2x per day.  Been building up for 3 weeks.
All it does is make me sleep.  To the point where I wish I wouldn't
wake up.

On 5/16/08, KK [EMAIL PROTECTED] wrote:
 Why are you taking it? Are you on the generic or name brand?  There is a big
 difference in reaction time in the  two.

 I started taking it for nerve pain.  When I started having seizures, doc
 just upped my dose.  Seems everytime I try to get off it, the pain sets in
 again.

 Currently taking it for both pain  seizures.

 The dry mouth is the pits.  Be sure  brush your teeth often.  It can cause
 your teeth to rot out.

 KK

Re: [QUAD-L] neurontin

[LadyNotes]

Is the teeth rotting just for Neurontin or for all  pregabalins?  

Naomi


C4-incomplete, quadriplegic since July 2005
due to Transverse  Myelitis



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Re: [QUAD-L] neurontin

[KK]

It is the dry mouth caused by the drug.  It is so bad my teeth stick to my 
lips.  GROSS!

KK






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Fwd: [QUAD-L] neurontin

[LadyOnWheels725]

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---BeginMessage---
Hi everyone.
I was on a huge doses  of neurontin  for 7 years and for a year on lyrica.   
I think The  Nerontin helped my pain more but it did destroy my teeth and 
gums.  I had  pain in my teeth that showed no problem by x-ray.  Shortly after 
I 
was  having abscesses in 4 different areas and teeth.  After rounds of  
penicillin  They tried to remove them and it was hell !  I had  neuropathy  
through 
out my body and my mouth was the same---it would not be  sedated.
The short  of  it,  I went to surgery, went to sleep and 
all were removed.   They let me stay on  a morphine pump for 3 days for pain. 
 I do not  have the same relief as a majority of people do to medications.  I 
do not  get to sleep, float or talk creatively.  
I think I was  cheated,, I  would have loved to be loopy.
Kathy
 



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---End Message---

Fwd: [QUAD-L] neurontin

[LadyOnWheels725]

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---BeginMessage---
Hi everyone.
I was on a huge doses  of neurontin  for 7 years and for a year on lyrica.   
I think The  Nerontin helped my pain more but it did destroy my teeth and 
gums.  I had  pain in my teeth that showed no problem by x-ray.  Shortly after 
I 
was  having abscesses in 4 different areas and teeth.  After rounds of  
penicillin  They tried to remove them and it was hell !  I had  neuropathy  
through 
out my body and my mouth was the same---it would not be  sedated.
The short  of  it,  I went to surgery, went to sleep and 
all were removed.   They let me stay on  a morphine pump for 3 days for pain. 
 I do not  have the same relief as a majority of people do to medications.  I 
do not  get to sleep, float or talk creatively.  
I think I was  cheated,, I  would have loved to be loopy.
Kathy
 



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---End Message---

Re: [QUAD-L] neurontin

[MikeyBird3]

It helps me.  I take 400mg in the morning and 400mg at bedtime.   It doesn't 
make me sleepy.
 
 
In a message dated 5/16/2008 11:13:31 A.M. Eastern Daylight Time,  
[EMAIL PROTECTED] writes:

Does  anybody take Neurontin?  I just started at 300mg per day, will 
eventually  build up to 1800mg per day.  300mg is making me extremely sleepy 
and  
fatigued.  Wondering if the symptoms will eventually go away?

Bill
C6 Incomplete since 7/20/68
Age 57
Leesburg,  FL
Very funny, Scotty. Now beam up my  clothes.





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[QUAD-L] neurontin

[Fragile]

Does anybody take Neurontin?  I just started at 300mg per day, will
eventually build up to 1800mg per day.  300mg is making me extremely sleepy
and fatigued.  Wondering if the symptoms will eventually go away?

Re: [QUAD-L] neurontin

[Tod E. Santee]

I think dosing and reaction to neurontin is *very* much related to each 
person's own metabolism and body chemistry... moreso than some other common 
drugs.  One of the more common problems I've heard from both quads and 
able-bodied people is a tendancy toward some weight gain.  (A factor I 
completely forgot to take into account when I asked about diets the other day.)

I *was* taking 300mg/3x/day from '97 up until September.  It helped without 
making me sleepy even though I took it with baclofen, valium and either 
hydrocodone or hydromorphone. 

Since my hospitalization in August, I, too, had my dosages pushed up.  Now it's 
900mg/3x/day in additioon to all the others.  Still no sleepiness.  However, I 
(my body)have always been very resistant to these types of meds.  My mother is 
the oppposite... half a dose of most OTC non-drowsy allergy pills put her to 
sleep for obver 2 hours!

Trial and error and make sure your doc knows if/when the drowsiness outweighs 
the benefits expected.

Good luck  hang in there!

Best regards,
--Tod


 Fragile [EMAIL PROTECTED] wrote: 
 Does anybody take Neurontin?  I just started at 300mg per day, will
 eventually build up to 1800mg per day.  300mg is making me extremely sleepy
 and fatigued.  Wondering if the symptoms will eventually go away?

Re: [QUAD-L] neurontin

[Robert Brennan]

I take it,still suffer excruciating pain 24/7.
Sometimes wonder,if  i was a coward  take the easy way out.
That's not my go.
  Rob.


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Re: [QUAD-L] neurontin

[KK]

Why are you taking it? Are you on the generic or name brand?  There is a big 
difference in reaction time in the  two.

I started taking it for nerve pain.  When I started having seizures, doc just 
upped my dose.  Seems everytime I try to get off it, the pain sets in again.  

Currently taking it for both pain  seizures.

The dry mouth is the pits.  Be sure  brush your teeth often.  It can cause 
your teeth to rot out.

KK

Re: [QUAD-L] neurontin

[Stacy Harim]

I took neurontin for about 5 years and oxycodone.  I now only take lyrica.  
Smaller pills and less mg.  I like it a whole lot more and less side effects.  
I also had a really hard time coming off of neurontin, especially really bad 
headaches.
Stacy


- Original Message 
From: Fragile [EMAIL PROTECTED]
To: quad-list@eskimo.com
Sent: Friday, May 16, 2008 11:13:04 AM
Subject: [QUAD-L] neurontin

Does anybody take Neurontin?  I just started at 300mg per day, will eventually 
build up to 1800mg per day.  300mg is making me extremely sleepy and fatigued.  
Wondering if the symptoms will eventually go away?



  

[QUAD-L] Neurontin

[rawilson7]

Wind changing over to Lyrica how did you do this? It is my understanding 
that the two drugs cannot be taken together. I have cut way back on Neurontin 
and the pain level went through the roof.Austin

Re: [QUAD-L] Neurontin

[KK Batte]

What I did (for the month I tried it) was go down on Neurontin   
start the Lyrica at the same time.


Went to Neurologist today.  He is not changing something that works  
(Neurontin) for pain  seizures to something new that has the same  
side effect (dry mouth).

Re: [QUAD-L] neurontin

[Stacy Harim]

My pain level is actually so much better with lyrica. I was taking 
sooo much neurontin and methadone. I am now off of the methadone 
completely. I did go through a few weeks of headaches after getting off of 
the neurontin but not that they are over, it's worth it,

Stacy

  - Original Message - 
  From: Brien 
  To: quad-list@eskimo.com 
  Cc: quadlist Quad-List 
  Sent: Thursday, March 09, 2006 3:55 
  PM
  Subject: Re: [QUAD-L] neurontin
  Lyrica is the newest drug for neuropathic pain. It has 
  worked better for me than neurontin ever did! 
  
  best,
  
  Brien
  
  On Mar 9, 2006, at 12:42 PM, Sue Lindequist wrote:
  Has anyone found a naturalalternative to 
neurontin ? I am having serious side effects from it, eg. gall stones, 
nausea and weight loss.Aloha, Cathy from kauaii 


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[QUAD-L] neurontin

[Sue Lindequist]

Has anyone found a naturalalternative to neurontin ? I am having serious side effects from it, eg. gall stones, nausea and weight loss.Aloha, Cathy from kauaii
		Yahoo! Mail
Bring photos to life! New PhotoMail  makes sharing a breeze. 

Re: [QUAD-L] neurontin

[Brien]

Lyrica  is the newest drug for neuropathic pain. It has worked better for me than neurontin ever  did!best,BrienOn Mar 9, 2006, at 12:42 PM, Sue Lindequist wrote:Has anyone found a natural alternative to neurontin ? I am having serious side effects from it, eg. gall stones, nausea and weight loss.Aloha, Cathy from kauaii 		Yahoo! Mail Bring photos to life! New PhotoMail  makes sharing a breeze.

[QUAD-L] neurontin and lyrica

[Stacy Harim]

Has anyone had any headaches after getting off of neurontin and taking 
lyrica?

Stacy

Re: [QUAD-L] neurontin and lyrica

[Fragile]

I've recently tried both, still on the Lyrica. Neither caused a headache, just an upset stomach and extreme drowsiness. Neither relieved any of my pain.On 2/23/06, 
Stacy Harim [EMAIL PROTECTED] wrote:







Has anyone had any headaches after getting off of neurontin and taking 
lyrica?

Stacy

Re: [QUAD-L] neurontin and lyrica

[Stacy Harim]

I'm just wondering if the headaches are from not taking the neurontin since 
I have taken it so long. I did go off of it slowly but I've had a 
consistant headache for about a week.

Stacy

  - Original Message - 
  From: Fragile 
  To: quad-list@eskimo.com 
  Sent: Thursday, February 23, 2006 9:00 
  AM
  Subject: Re: [QUAD-L] neurontin and 
  lyrica
  I've recently tried both, still on the Lyrica. Neither 
  caused a headache, just an upset stomach and extreme drowsiness. Neither 
  relieved any of my pain.
  On 2/23/06, Stacy 
  Harim [EMAIL PROTECTED] 
  wrote: 
  
Has anyone had any headaches after getting off of neurontin and taking 
lyrica?

Stacy

Re: [QUAD-L] neurontin and lyrica

[Fragile]

I didn't take very much neurontin, 900 mg per day for about two weeks. I quit taking it cold turkey without any withdrawal effects. Since you took it for a long time, I wouldn't doubt it if that's what's causing your headache, but I'm certainly no expert.
On 2/23/06, Stacy Harim [EMAIL PROTECTED] wrote:








I'm just wondering if the headaches are from not taking the neurontin since 
I have taken it so long. I did go off of it slowly but I've had a 
consistant headache for about a week.

Stacy

  - Original Message - 
  From: 
Fragile 
  To: 
quad-list@eskimo.com 
  Sent: Thursday, February 23, 2006 9:00 
  AM
  Subject: Re: [QUAD-L] neurontin and 
  lyrica
  I've recently tried both, still on the Lyrica. Neither 
  caused a headache, just an upset stomach and extreme drowsiness. Neither 
  relieved any of my pain.
  On 2/23/06, Stacy 
  Harim [EMAIL PROTECTED] 
  wrote: 
  
Has anyone had any headaches after getting off of neurontin and taking 
lyrica?

Stacy

Re: [QUAD-L] neurontin and lyrica

[~LittleQuad~]

it is, i had them about 2weeks, was 2700mg a day... if doesn't subside go tto doc...Stacy Harim [EMAIL PROTECTED] wrote:I'm just wondering if the headaches are from not taking the neurontin since I have taken it so long. I did go off of it slowly but I've had a consistant headache for about a week.Stacy- Original Message -   From: Fra!
 gile
   To: quad-list@eskimo.com   Sent: Thursday, February 23, 2006 9:00 AM  Subject: Re: [QUAD-L] neurontin and lyrica  I've recently tried both, still on the Lyrica. Neither caused a headache, just an upset stomach and extreme drowsiness. Neither relieved any of my pain.  On 2/23/06, Stacy Harim [EMAIL PROTECTED] wrote: Has anyone had any headaches after getting off of neurontin and taking lyrica?   
 Stacy

Re: [QUAD-L] neurontin and lyrica

[~LittleQuad~]

i'm on 150mg and it's not doing much, regulating it maybe  fixing to drop it alsoFragile [EMAIL PROTECTED] wrote:  I've recently tried both, still on the Lyrica. Neither caused a headache, just an upset stomach and extreme drowsiness. Neither relieved any of my pain.  On 2/23/06, Stacy Harim [EMAIL PROTECTED] wrote:Has anyone had any headaches after getting off of neurontin and taking lyrica?Stacy  

Re: [QUAD-L] neurontin and lyrica

[Silas]

Lordy lordy Stacy, 
1200 3 times a day, were you able to function? 

Silas 

  - Original Message - 
  From: 
  Stacy Harim 
  To: Quad-list post ; ~LittleQuad~ 
  
  Sent: Thursday, February 23, 2006 10:55 
  AM
  Subject: Re: [QUAD-L] neurontin and 
  lyrica
  
  
  I was taking 1200 3x a day. Thanks. I now know. They 
  are awful. I have had 2 migranes and the rest consistant all day 
  headaches. Thanks for letting me know what the cause was. I told 
  my doc about them and he thinks it’s a combination of stress and the spasms 
  I've been having. He says they shoot up through your back up into your 
  head but I've had terrible spasms like this before.
  
  Stacy
  
- Original Message - 
From: ~LittleQuad~ 
To: Stacy Harim ; Quad-list post 
Sent: Thursday, February 23, 2006 12:18 
PM
Subject: Re: [QUAD-L] neurontin and 
lyrica

it is, i had them about 2weeks, was 2700mg a day... if 
doesn't subside go tto doc...Stacy Harim [EMAIL PROTECTED] 
wrote: 

  

  
  
  I'm just wondering if the headaches are from not taking the neurontin 
  since I have taken it so long. I did go off of it slowly but I've 
  had a consistant headache for about a week.
  
  Stacy
  
- Original Message - 
From: Fragile 

To: quad-list@eskimo.com 
Sent: Thursday, February 23, 2006 
9:00 AM
Subject: Re: [QUAD-L] neurontin and 
lyrica
I've recently tried both, still on the Lyrica. 
Neither caused a headache, just an upset stomach and extreme 
drowsiness. Neither relieved any of my pain.
On 2/23/06, Stacy 
Harim [EMAIL PROTECTED] 
wrote: 

  Has anyone had any headaches after getting off of neurontin and 
  taking lyrica?
  
  Stacy

Re: [QUAD-L] neurontin alternative

[Liz]

wow, that's alot of drugs.
- Original Message -
From: Dana Miller [EMAIL PROTECTED]
To: quad-list@eskimo.com
Sent: Saturday, March 26, 2005 6:34 PM
Subject: Re: [QUAD-L] neurontin alternative


 I have taken Methadone for 'several' years after my doc took me off of
 perkacet.  I take 2 pills 3 times a day along with half an Aquabid.  It is
 my understanding the aquabid 'boosts' the methadone just a little. (?)  I
do
 not get a buzz like I did with perkacet--actually I just felt 'warmer' for
a
 couple of hours.  I also take 2 ultracet 4 times a day, alternating it
with
 the meth.  I feel no high from  either drug and if I stick pretty close
to
 schedule, the pain is managed.   Sometimes I will take an extra dose of
 ultracet.

 I have not tried going off the neurontin since starting the meth.  After
the
 bad experiance with the gabitril, I am hesitant.
 take care,

 Dana
 [EMAIL PROTECTED]
 - Original Message -
 From: Brian Stocker [EMAIL PROTECTED]
 To: quad-list@eskimo.com
 Cc: quad-list@eskimo.com
 Sent: Friday, March 25, 2005 1:26 PM
 Subject: Re: [QUAD-L] neurontin alternative


  Stacy Harim wrote:
 
  I'm telling ya.  My pain specialist has me on 15mg of methadone a
  day.  that's not very much as all.  Huge improvement.  It affects the
  nerve endings to keep the pain away.  I was taking 20mg a day and
  asked to go down.  I still have slight pain but nothing like before.
 
  Stacy
 
  I am also enjoying being free of neurontin, gabatril, etc thru the use
  of methadose (a better name to call it since methadone is always
  connected to junkies.  I take 10 mg 2x/day and am pain free in many
  respects, including neuro pain.
 
  Does anybody get a buzz when taking the meth?  supposedly  it does  not
  get one high
 
  happyeaster,
 
  brian
 

Re: [QUAD-L] neurontin alternative

[Dana Miller]

Which explains my high tolerance to drugs--at least the pain and 'valium' 
types!  :)  The last time I was in the hospital for a skin flap, nmy veins 
were non-existant, so they decided to put a main line in.  The problem, I 
was already in the big sand filled air bed and the docs did not want me 
taken out of it.  S, they tried putting a board under my upper body to 
get it in the proper position to do the needle pushing.  The local did not 
work.  She tried 5 times to get it in my left collar bone area!  Then 2 
times on the right side and once for my jugular!!  By that time I was 
screaming and crying like crazy!  She finally gave up and just walked away. 
A male doc walked by and got involved.  He knew I was not in the physically 
correct position--I needed my whole body to be flat.  They gave me a 
washcloth to wipe/hide my face and pushed the big bed back up to my room. 
The nurses were shocked at the state I was in.

Finally the docs relented and that afternoon they came to tell me they were 
going to try again!  I went nuts!  They put me on a gurney and down I went. 
They assured me it would not hurt this time.  Yeah right!  I laid in the OR 
holding room for quite a while.  Then they did find a vien in my hand to put 
an IV in for some sort of medicine so I would not 'feel' anything.  It took 
5 syringes full of whatever it was before I was numb!  I'm sure my 
adreniline had something to do with it.  And I did not feel a thing!  I 
gabbered constantly tho.  They finally said that if I have any more 
surgeries to just have them automatically put a main line in.  It probably 
will not happen, but I sure willmake some noise about it!  When they say on 
the scale of one to ten with ten being the highest pain--I think I hit a 20!
I puffed up swollen all around my neck and shoulders and ached if someone 
touched those areas for quite a while. 
take care,

Dana
[EMAIL PROTECTED]
- Original Message - 
From: Liz [EMAIL PROTECTED]
To: Dana Miller [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Sunday, March 27, 2005 9:37 AM
Subject: Re: [QUAD-L] neurontin alternative


wow, that's alot of drugs.
- Original Message -
From: Dana Miller [EMAIL PROTECTED]
To: quad-list@eskimo.com
Sent: Saturday, March 26, 2005 6:34 PM
Subject: Re: [QUAD-L] neurontin alternative

I have taken Methadone for 'several' years after my doc took me off of
perkacet.  I take 2 pills 3 times a day along with half an Aquabid.  It 
is
my understanding the aquabid 'boosts' the methadone just a little. (?)  I
do
not get a buzz like I did with perkacet--actually I just felt 'warmer' 
for
a
couple of hours.  I also take 2 ultracet 4 times a day, alternating it
with
the meth.  I feel no high from  either drug and if I stick pretty close
to
schedule, the pain is managed.   Sometimes I will take an extra dose of
ultracet.
I have not tried going off the neurontin since starting the meth.  After
the
bad experiance with the gabitril, I am hesitant.
take care,
Dana
[EMAIL PROTECTED]
- Original Message -
From: Brian Stocker [EMAIL PROTECTED]
To: quad-list@eskimo.com
Cc: quad-list@eskimo.com
Sent: Friday, March 25, 2005 1:26 PM
Subject: Re: [QUAD-L] neurontin alternative
 Stacy Harim wrote:

 I'm telling ya.  My pain specialist has me on 15mg of methadone a
 day.  that's not very much as all.  Huge improvement.  It affects the
 nerve endings to keep the pain away.  I was taking 20mg a day and
 asked to go down.  I still have slight pain but nothing like before.

 Stacy

 I am also enjoying being free of neurontin, gabatril, etc thru the use
 of methadose (a better name to call it since methadone is always
 connected to junkies.  I take 10 mg 2x/day and am pain free in many
 respects, including neuro pain.

 Does anybody get a buzz when taking the meth?  supposedly  it does  not
 get one high

 happyeaster,

 brian

Re: [QUAD-L] neurontin alternative

[Dana Miller]

I have taken Methadone for 'several' years after my doc took me off of 
perkacet.  I take 2 pills 3 times a day along with half an Aquabid.  It is 
my understanding the aquabid 'boosts' the methadone just a little. (?)  I do 
not get a buzz like I did with perkacet--actually I just felt 'warmer' for a 
couple of hours.  I also take 2 ultracet 4 times a day, alternating it with 
the meth.  I feel no high from  either drug and if I stick pretty close to 
schedule, the pain is managed.   Sometimes I will take an extra dose of 
ultracet.

I have not tried going off the neurontin since starting the meth.  After the 
bad experiance with the gabitril, I am hesitant. 
take care,

Dana
[EMAIL PROTECTED]
- Original Message - 
From: Brian Stocker [EMAIL PROTECTED]
To: quad-list@eskimo.com
Cc: quad-list@eskimo.com
Sent: Friday, March 25, 2005 1:26 PM
Subject: Re: [QUAD-L] neurontin alternative


Stacy Harim wrote:
I'm telling ya.  My pain specialist has me on 15mg of methadone a
day.  that's not very much as all.  Huge improvement.  It affects the
nerve endings to keep the pain away.  I was taking 20mg a day and
asked to go down.  I still have slight pain but nothing like before.
Stacy
I am also enjoying being free of neurontin, gabatril, etc thru the use
of methadose (a better name to call it since methadone is always
connected to junkies.  I take 10 mg 2x/day and am pain free in many
respects, including neuro pain.
Does anybody get a buzz when taking the meth?  supposedly  it does  not
get one high
happyeaster,
brian

Re: [QUAD-L] neurontin alternative

[Brian Stocker]

Stacy Harim wrote:

  
  

  
  I'm telling ya. My pain specialist has me on 15mg of methadone
a day. that's not very much as all. Huge improvement. It affects the
nerve endings to keep the pain away. I was taking 20mg a day and asked
to go down. I still have slight pain but nothing like before.
  
  Stacy
  

I am also enjoying being free of neurontin, gabatril, etc thru the use
of methadose (a better name to call it since methadone is always
connected to junkies. I take 10 mg 2x/day and am pain free in many
respects, including neuro pain. 

Does anybody get a buzz when taking the meth? supposedly it does not
get one high

happyeaster,

brian

Re: [QUAD-L] neurontin alternative

[Quietstream25322]

 How do you take it  is it pill or capsual form or does it have 
to be injected ? Dan

Re: [QUAD-L] neurontin alternative

[Stacy Harim]

It doesn't get me high at all. The dose is just too low. I do 
still take neurontin as well. I still suffer from some pain. I was 
told that since my injury is so incomplete that is why I am in so much pain and 
have so much spasticity. 

Stacy

  - Original Message - 
  From: Brian Stocker 
  To: quad-list@eskimo.com 
  Cc: quad-list@eskimo.com 
  Sent: Friday, March 25, 2005 2:26 
PM
  Subject: Re: [QUAD-L] neurontin 
  alternative
  Stacy Harim wrote:
  

I'm telling ya. My pain specialist has me on 15mg of methadone a 
day. that's not very much as all. Huge improvement. It 
affects the nerve endings to keep the pain away. I was taking 20mg a 
day and asked to go down. I still have slight pain but nothing like 
before.

StacyI am also enjoying being free of neurontin, 
  gabatril, etc thru the use of methadose (a better name to call it since 
  methadone is always connected to junkies. I take 10 mg 2x/day and am 
  pain free in many respects, including neuro pain. Does anybody 
  get a buzz when taking the meth? supposedly it does not get 
  one highhappyeaster,brian

Re: [QUAD-L] neurontin alternative

[David K. Kelmer]

Hi Stacy,

I'd wake-up and want to eat. I put on weight and almost stopped working out completely, and that was when I started weaning myself off it. At least the pain lets me stay awake and doesn't put weight on me! 

With Love,
CtrlAltDel aka DaveC4/5 Complete - 28 Years PostTexas, USA Stacy Harim [EMAIL PROTECTED] wrote:





Hey Dave,

It had the same effect on me plus I put on weight. My doctor was a bit upset I quit taking it but did absolutely nothing for the pain. I take a low dose of methadone and I love it. It's only 15mg a day. The spasticity decreased and everything.

Stacy

- Original Message - 
From: David K. Kelmer 
To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; quad-list@eskimo.com 
Sent: Tuesday, March 08, 2005 11:04 PM
Subject: Re: [QUAD-L] neurontin alternative

Hi Dan,

I started taking Elavil and the longer it was in my system, the later I was getting up in the mornings. I'm usually up at 5:45 A.M. so it was unusual and I stopped using it.

With Love,
CtrlAltDel aka DaveC4/5 Complete - 28 Years PostTexas, USA[EMAIL PROTECTED] wrote:


My Doc told me I need to try neurotin or elavil--- I tried elavil 3 days and slept good 1st night then had some indigestion next 2 nights not sure if the elavil caused it and had a lot of the pain i'm trying to get rid of 3rd night..Does anyone know if these meds take a while to begin working ? 

Re: [QUAD-L] neurontin alternative

[Stacy Harim]

I'm telling ya. My pain specialist has me on 15mg of methadone a 
day. that's not very much as all. Huge improvement. It affects 
the nerve endings to keep the pain away. I was taking 20mg a day and asked 
to go down. I still have slight pain but nothing like before.

Stacy

  - Original Message - 
  From: David K. Kelmer 
  To: Stacy Harim ; [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; quad-list@eskimo.com 
  Sent: Thursday, March 24, 2005 7:29 
  PM
  Subject: Re: [QUAD-L] neurontin 
  alternative
  
  Hi Stacy,
  
  I'd wake-up and want to eat. I put on weight and almost stopped 
  working out completely, and that was when I started weaning myself off 
  it. At least the pain lets me stay awake and doesn't put weight on 
  me! 
  
  With Love,
  CtrlAltDel aka DaveC4/5 Complete - 28 Years PostTexas, USA 
  Stacy Harim [EMAIL PROTECTED] 
  wrote:
  




Hey Dave,

It had the same effect on me plus I put on weight. My doctor was 
a bit upset I quit taking it but did absolutely nothing for the pain. 
I take a low dose of methadone and I love it. It's only 15mg a 
day. The spasticity decreased and everything.

Stacy

  - Original Message - 
  From: David K. Kelmer 
  To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; quad-list@eskimo.com 
  Sent: Tuesday, March 08, 2005 11:04 
  PM
  Subject: Re: [QUAD-L] neurontin 
  alternative
  
  Hi Dan,
  
  I started taking Elavil and the longer it was in my system, the later 
  I was getting up in the mornings. I'm usually up at 5:45 A.M. so it 
  was unusual and I stopped using it.
  
  With Love,
  CtrlAltDel aka DaveC4/5 Complete - 28 Years PostTexas, 
  USA[EMAIL PROTECTED] 
  wrote:
  

My Doc told me I need to try neurotin or elavil--- I tried 
elavil 3 days and slept good 1st night then had some indigestion next 
2 nights not sure if the elavil caused it and had a lot of the 
pain i'm trying to get rid of 3rd night..Does anyone know if these 
meds take a while to begin working ? 

Re: [QUAD-L] neurontin alternative

[Stacy Harim]

Hey Dave,

It had the same effect on me plus I put on weight. My doctor was a 
bit upset I quit taking it but did absolutely nothing for the pain. I take 
a low dose of methadone and I love it. It's only 15mg a day. The 
spasticity decreased and everything.

Stacy

  - Original Message - 
  From: David K. Kelmer 
  To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; quad-list@eskimo.com 
  Sent: Tuesday, March 08, 2005 11:04 
  PM
  Subject: Re: [QUAD-L] neurontin 
  alternative
  
  Hi Dan,
  
  I started taking Elavil and the longer it was in my system, the later I 
  was getting up in the mornings. I'm usually up at 5:45 A.M. so it was 
  unusual and I stopped using it.
  
  With Love,
  CtrlAltDel aka DaveC4/5 Complete - 28 Years PostTexas, 
  USA[EMAIL PROTECTED] 
  wrote:
  

My Doc told me I need to try neurotin or elavil--- I tried elavil 
3 days and slept good 1st night then had some indigestion next 2 
nights not sure if the elavil caused it and had a lot of the pain i'm trying 
to get rid of 3rd night..Does anyone know if these meds take a while to 
begin working ? 

Re: [QUAD-L] neurontin alternative

[Smurfonwheels]

In a message dated 07/03/2005 20:21:45 GMT Standard Time, 
[EMAIL PROTECTED] writes:

  My Doc told me I need to try neurotin or elavil--- I tried elavil 3 
  days and slept good 1st night then had some indigestion next 2 nights 
  not sure if the elavil caused it and had a lot of the pain i'm trying to get 
  rid of 3rd night..Does anyone know if these meds take a while to begin 
  working ? 

Hi,

I use to take Neurontin, and if I remember rightly they did take a while to 
kick in. I did find I had a huge weight gain when I went on it as one of 
the side effects. I don't mean to put a downer on things, it's just always 
best to know the good and the bad!

Take care,

Love Smurf xxx

[QUAD-L] neurontin alternative and randeom abdominal pain

[Lori Michaelson]

Well, it's been 10 yrs since I began Elavil but I'd remember if it bothered me.

I'm lucky in that aspect to have a somewhat iron stomach. Aspirin bothers many tummies - not mine. Antibiodics bother many ... not mine. Different foods bother many ... not me.

All you can do is experiment to SEE if, in fact, it IS Elavil. And you know my opinion on Neurontin.. one has to increase it exponentially to experience relief. No difference to me and taking huge doses and more all the time is uncool w/ me. Then a year to get off it!

I'm experiencing bad torso pain and abdominal pain/aching overnight and off/on during the day. BAD!

Now I don't know if it's my infection or spinal. I give up! Frustrating!

Lori
C4/5 complete, 25 yrs post

---Original Message---


From: [EMAIL PROTECTED]
Date: 03/07/05 13:21:41
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Subject: Re: [QUAD-L] neurontin alternative

My Doc told me I need to try neurotin or elavil--- I tried elavil 3 days and slept good 1st night then had some indigestion next 2 nights not sure if the elavil caused it and had a lot of the pain i'm trying to get rid of 3rd night..Does anyone know if these meds take a while to begin working ? 

Re: [QUAD-L] neurontin alternative and randeom abdominal pain

[Dana Miller]

I was put on Neurontin just the opposite.  I started on 3 a day and 
decreased it to 1 a day.  I've been taking it about 8 (?) years.  I tried 
going off it one time and had no problem except after about 10 days those 
electrical shocks thru the body started up again.  I put up with it for 
about another week, then caved in.
I think the Gabitril disagreed with me.  Yesterday I could hardly move 
without experiancing extreme pain.  The abdominal cramps and pain were 
terrible.  I am back on Neurontin again.  I also basically slept thru the 
time my homemaker was here.  She was shredding the last of a huge amount of 
old checks and bank statements and the shredder is not a quiet thing!  I was 
worthless yesterday.  Today I feel a lot better but am sleepy.  I did a 
little bit of email this morning untilabout 12:00, then dozed off for the 
next 2-21/2 hrs.  Now a few hours later, I am sleepy again.  Hope-fully it 
will pass soon. 
take care,

Dana
[EMAIL PROTECTED]
- Original Message - 
From: Lori Michaelson [EMAIL PROTECTED]
To: Quad quad-list@eskimo.com
Sent: Tuesday, March 08, 2005 12:13 PM
Subject: [QUAD-L] neurontin alternative and randeom abdominal pain

Well, it's been 10 yrs since I began Elavil but I'd remember if it bothered
me.
I'm lucky in that aspect to have a somewhat iron stomach.  Aspirin bothers
many tummies - not mine.  Antibiodics bother many ... not mine.  Different
foods bother many ... not me.
All you can do is experiment to SEE if, in fact, it IS Elavil.  And you know
my opinion on Neurontin.. one has to increase it exponentially to experience
relief.  No difference to me and taking huge doses and more all the time is
uncool w/ me.  Then a year to get off it!
I'm experiencing bad torso pain and abdominal pain/aching overnight and
off/on during the day.  BAD!
Now I don't know if it's my infection or spinal.  I give up!  Frustrating!
Lori
C4/5 complete, 25 yrs post
---Original Message---
From: [EMAIL PROTECTED]
Date: 03/07/05 13:21:41
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Subject: Re: [QUAD-L] neurontin alternative
My Doc told me I need to try neurotin or elavil--- I tried elavil 3 days
and slept good 1st night then had some indigestion next 2  nights not sure
if the elavil caused it and had a lot of the pain i'm trying to get rid of
3rd night..Does anyone know if these meds take a while to begin working
?

Re: [QUAD-L] neurontin alternative

[David K. Kelmer]

Hi Dan,

I started taking Elavil and the longer it was in my system, the later I was getting up in the mornings. I'm usually up at 5:45 A.M. so it was unusual and I stopped using it.

With Love,
CtrlAltDel aka DaveC4/5 Complete - 28 Years PostTexas, USA[EMAIL PROTECTED] wrote:


My Doc told me I need to try neurotin or elavil--- I tried elavil 3 days and slept good 1st night then had some indigestion next 2 nights not sure if the elavil caused it and had a lot of the pain i'm trying to get rid of 3rd night..Does anyone know if these meds take a while to begin working ? 

Re: [QUAD-L] neurontin alternative

[Quietstream25322]

My Doc told me I need to try neurotin or elavil--- I tried elavil 3 
days and slept good 1st night then had some indigestion next 2 nights not 
sure if the elavil caused it and had a lot of the pain i'm trying to get rid of 
3rd night..Does anyone know if these meds take a while to begin working ? 

Re: [QUAD-L] neurontin alternative

[Stacy Harim]

Like most meds it has to get into your system to get working. I 
didn't like it but others here swear by it. Give ita chance.

Stacy

  - Original Message - 
  From: [EMAIL PROTECTED] 
  To: [EMAIL PROTECTED] ; quad-list@eskimo.com 
  Sent: Monday, March 07, 2005 3:20 
PM
  Subject: Re: [QUAD-L] neurontin 
  alternative
  
  My Doc told me I need to try neurotin or elavil--- I tried elavil 3 
  days and slept good 1st night then had some indigestion next 2 nights 
  not sure if the elavil caused it and had a lot of the pain i'm trying to get 
  rid of 3rd night..Does anyone know if these meds take a while to begin 
  working ? 

Re: [QUAD-L] neurontin alternative

[Brian Stocker]

QuadPirate wrote:

  
  

  

  

Brian how are these working for you?
I'm on Neurotin and would like an alternative.

Mark

---Original
Message---


From: Brian Stocker
Date:
Monday, February 28, 2005 2:02:08 PM
To: quad-list@eskimo.com
Cc: Quad-list@eskimo.com
Subject:
Re: [QUAD-L] neurontin alternative




My anesthesiologist has changed me from neurontin to Gabatril. He
says that neurontin reduces 10% of your brain function. After all, it
is a newural suppresxant.
 


Check it out, I am pleased and the pills are tiny!

Brian

. 
  
  


  

  
  
  
  
  
  

  


  

  
  
I am unable to really tell, yet.

Stayintouch

Brian

Re: [QUAD-L] neurontin alternative

[QuadPirate]

Brian how are these working for you?
I'm on Neurotin and would like an alternative.

Mark

---Original Message---


From: Brian Stocker
Date: Monday, February 28, 2005 2:02:08 PM
To: quad-list@eskimo.com
Cc: Quad-list@eskimo.com
Subject: Re: [QUAD-L] neurontin alternative
My anesthesiologist has changed me from neurontin to Gabatril. He says that neurontin reduces 10% of your brain function. After all, it is a newural suppresxant. Check it out, I am pleased and the pills are tiny!Brian. 

Re: [QUAD-L] neurontin alternative

[Brian Stocker]

My anesthesiologist has changed me from neurontin to Gabatril.  He says that neurontin reduces 10% of your brain function.  After all, it is a newural suppresxant.
 

Check it out, I am pleased and the pills are tiny!
Brian

Re: [QUAD-L] neurontin alternative

[Fragile]

how effective has Gabatril been for reducing pain?


On Mon, 28 Feb 2005 12:02:08 -0800, Brian Stocker [EMAIL PROTECTED] wrote:
 
 
 My anesthesiologist has changed me from neurontin to Gabatril.  He says that 
 neurontin reduces 10% of your brain function.  After all, it is a newural 
 suppresxant.
 
 

Re: [QUAD-L] NEURONTIN

[Stacy Harim]

I did and also found a lot of people that said it's useful. People 
are jumping on a bandwagon to sue like they due for everyone else. One 
lawyer has a whole list of medicine including paxil for suicidal tendencies. It 
works for me so I am going to stick with it.
Stacy

"People who hate you do not win unless you hate them. Then you destroy 
yourself"

  - Original Message - 
  From: Bryant 
  To: Quad-List submission 
  Sent: Friday, October 08, 2004 8:01 
  AM
  Subject: Re: [QUAD-L] NEURONTIN
  
  
  Please do a Google search for neurontin and read the 
  articles about class actions and other matters pending against the 
  manufacturer over the drug. You may be surprised at the side effects 
  being reported. 
  Jerry
  
- Original Message - 
From: 
Stacy Harim 
To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] 
Cc: [EMAIL PROTECTED] 
Sent: Thursday, October 07, 2004 2:46 
PM
Subject: Re: [QUAD-L] NEURONTIN


It doesn't affect my weight at all and I am on 1200 mg 3x a day. 
Only problem I have is that it makes me drag sometimes. That would be 
the biggest concern when she first starts to take it. It takes time to 
adjust.
Stacy

"People who hate you do not win unless you hate them. Then you destroy 
yourself"

  - Original Message - 
  From: [EMAIL PROTECTED] 
  To: [EMAIL PROTECTED] 
  Cc: [EMAIL PROTECTED] 
  Sent: Thursday, October 07, 2004 
  10:09 AM
  Subject: Re: [QUAD-L] NEURONTIN
  
  
  In a message dated 06/10/2004 22:15:27 GMT Standard Time, [EMAIL PROTECTED] writes:
  
MY CAREGIVER WAS PRESCRIBED 
NEURONTIN AND I KNEW SOME OF YOU TAKE IT. CAN YOU GIVE US ANY INFO 
ON SIDE EFFECTS AND WHAT YOU TAKE IT FOR?

THANKS FOR YOUR HELP
NICKI
C5/6
  
  My biggest side effect from it was weight gain in a big way. 
  I'm still trying to shift the weight after being of the drug since 
  2002!
  
  Love Smurf 
xxx

Re: [QUAD-L] NEURONTIN

[Stacy Harim]

It doesn't affect my weight at all and I am on 1200 mg 3x a day. Only 
problem I have is that it makes me drag sometimes. That would be the 
biggest concern when she first starts to take it. It takes time to 
adjust.
Stacy

"People who hate you do not win unless you hate them. Then you destroy 
yourself"

  - Original Message - 
  From: [EMAIL PROTECTED] 
  To: [EMAIL PROTECTED] 
  Cc: [EMAIL PROTECTED] 
  Sent: Thursday, October 07, 2004 10:09 
  AM
  Subject: Re: [QUAD-L] NEURONTIN
  
  
  In a message dated 06/10/2004 22:15:27 GMT Standard Time, [EMAIL PROTECTED] writes:
  
MY CAREGIVER WAS PRESCRIBED NEURONTIN 
AND I KNEW SOME OF YOU TAKE IT. CAN YOU GIVE US ANY INFO ON SIDE 
EFFECTS AND WHAT YOU TAKE IT FOR?

THANKS FOR YOUR HELP
NICKI
C5/6
  
  My biggest side effect from it was weight gain in a big way. I'm 
  still trying to shift the weight after being of the drug since 2002!
  
  Love Smurf xxx