for some mutual uplift?
Blessings,
Susan F. Zimmerman
-Original Message-
From: bkbarney via CMLHope <cmlhope@googlegroups.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Wed, Aug 26, 2015 8:35 pm
Subject: Re: [CMLHope] New results
Dear Marcie, and Susan,
Thanks for th
: 'Susan Zimmerman' via CMLHope cmlhope@googlegroups.com
To: cmlhope cmlhope@googlegroups.com
Sent: Mon, Aug 24, 2015 11:37 pm
Subject: Re: [CMLHope] New results
Dear Beth, I feel terrible about your lymphedema and certainly understand the
misery when people stare and are rude. Please remember
-Original Message-
From: Joyce Mesnarich joy...@htc.net javascript:
To: cmlhope cml...@googlegroups.com javascript:
Sent: Sat, Jul 25, 2015 12:35 pm
Subject: Re: [CMLHope] New results
Thanks Beth,
I think these TKIs are so new that they do not fully know all the side
effects
...
Beth 18's Marty..
-Original Message-
From: Marty Gartenberg wa2...@gmail.com
To: cmlhope cmlhope@googlegroups.com
Sent: Tue, Aug 25, 2015 8:06 am
Subject: Re: [CMLHope] New results
Dear Beth and Joyce,
Sometimes things may not go as planned but sometimes they do go
Subject: Re: [CMLHope] New results
Dear Beth and Joyce,
Sometimes things may not go as planned but sometimes they do go as planned.
This is what life is all about. I know what the both of you are going through,
and it does
To: cmlhope cmlhope@googlegroups.com
Sent: Sat, Jul 25, 2015 12:35 pm
Subject: Re: [CMLHope] New results
Thanks Beth,
I think these TKIs are so new that they do not fully know all the side
effects, and especially not the long term ones. We are confident in his
doctor and he is watching it closely
-Original Message-
From: Joyce Mesnarich joy...@htc.net
To: cmlhope cmlhope@googlegroups.com
Sent: Sat, Jul 25, 2015 12:35 pm
Subject: Re: [CMLHope] New results
Thanks Beth,
I think these TKIs are so new that they do not fully know all the side
effects, and especially not the long
@googlegroups.com
Sent: Sat, Jul 25, 2015 12:35 pm
Subject: Re: [CMLHope] New results
Thanks Beth,
I think these TKIs are so new that they do not fully know all the side effects,
and especially not the long term ones. We are confident in his doctor and he
is watching it closely. Have you reached
.
Marcie
-Original Message-
From: bkbarney via CMLHope cmlhope@googlegroups.com
To: cmlhope cmlhope@googlegroups.com
Sent: Mon, Aug 24, 2015 12:23 pm
Subject: Re: [CMLHope] New results
Dear Joyce,
Thanks so much for your reply. I apologize for not responding sooner. I have
keeping you in my thoughts and prayers.
Marcie
-Original Message-
From: bkbarney via CMLHope cmlhope@googlegroups.com
To: cmlhope cmlhope@googlegroups.com
Sent: Mon, Aug 24, 2015 12:23 pm
Subject: Re: [CMLHope] New results
Dear Joyce,
Thanks so much for your reply. I
that might work better for me. I miss everyone and send love and 18's to all
of you..big group hug!!!
Beth
-Original Message-
From: Joyce Mesnarich joy...@htc.net
To: cmlhope cmlhope@googlegroups.com
Sent: Sat, Jul 25, 2015 12:35 pm
Subject: Re: [CMLHope] New results
Susan,
Thanks for your reply. It is encouraging to know that you, too, had rising
liver numbers and that they subsequently went down. That is what we are hoping
and praying for. Hope your BCR/ABL numbers are good.
God bless and keep you,
Joyce in IL
--
--
[CMLHope]
A
will steady. Best wishes to both of you.
Marcie
-Original Message-
From: Joyce Mesnarich joy...@htc.net
To: cmlhope cmlhope@googlegroups.com
Sent: Wed, Jul 22, 2015 12:16 pm
Subject: [CMLHope] New results
Hello everyone. I have not had time to contribute for awhile. But I
people. I hope your husband's liver calms
down. I will keep my fingers crossed. 18's Beth
-Original Message-
From: Joyce Mesnarich joy...@htc.net
To: cmlhope cmlhope@googlegroups.com
Sent: Fri, Jul 24, 2015 7:50 pm
Subject: Re: [CMLHope] New results
Jeanie,
I know you have been
To: cmlhope cmlhope@googlegroups.com
Sent: Wed, Jul 22, 2015 12:16 pm
Subject: [CMLHope] New results
Hello everyone. I have not had time to contribute for awhile. But I
must let
you all know the results of my husband's PCR at his last visit to Dr
Talpaz. He
was taken off Sprycel due
@googlegroups.com
Sent: Wed, Jul 22, 2015 12:16 pm
Subject: [CMLHope] New results
Hello everyone. I have not had time to contribute for awhile. But I must
let
you all know the results of my husband's PCR at his last visit to Dr
Talpaz. He
was taken off Sprycel due to pleural effusion and we were
Almost undetectable after only 8 months - that's wonderful! I would gladly
put up with the rash if I had those those results.
I got the Tasigna rash about one year after starting Tasigna. The
dermatologist was clueless (I dunno, must be the medication).
Anyways, those nasty pimples wandered in
I was diagnosed in jan 2015 and put on tasigna, my numbers are great as was the
last bone marrow test. The ph chromosome was almost undectable!
Yes I know all of this great news and I am glad, however the 'rash' side effect
has me a virtual prisoner! My face, neck chest hands and feet are a
Hi Kate and welcome. Rash is a bad side effect. Glad you are doing so good on
tasigna. I didn't. Dropped my counts too low and quit working for me but
many patients do good on it. This rash will go away hopefully soon. Use
creams until you find one that helps. Good luck.
My Motto:
...@htc.net
To: cmlhope cmlhope@googlegroups.com
Sent: Wed, Jul 22, 2015 12:16 pm
Subject: [CMLHope] New results
Hello everyone. I have not had time to contribute for awhile. But I
must let
you all know the results of my husband's PCR at his last visit to Dr
Talpaz. He
was taken off
-Original Message-
From: Joyce Mesnarich joy...@htc.net
To: cmlhope cmlhope@googlegroups.com
Sent: Fri, Jul 24, 2015 7:50 pm
Subject: Re: [CMLHope] New results
Jeanie,
I know you have been dealing with that pain for a long time. Medicine has come
so far and yet the Good Lord holds some
are all!
18's Beth
-Original Message-
From: Peter pksch...@gmail.com
To: CMLHope cmlhope@googlegroups.com
Cc: candles cand...@originalsbykate.com
Sent: Fri, Jul 24, 2015 2:39 pm
Subject: Re: [CMLHope] New results
Almost undetectable after only 8 months - that's wonderful! I would
Sent: Wed, Jul 22, 2015 12:16 pm
Subject: [CMLHope] New results
Hello everyone. I have not had time to contribute for awhile. But I must
let
you all know the results of my husband's PCR at his last visit to Dr Talpaz.
He
was taken off Sprycel due to pleural effusion and we were hoping his
Hi Beth and good to hear from you. How are you? I am in my 7th month of
ponatinib.Dried my skin out and my hair is still falling out but put my
blood back where it needs to be.
Heart attacks and blood clots are some of the side effects. Sad but that's
what we hAve to live with on
Subject: [CMLHope] New results
Hello everyone. I have not had time to contribute for awhile. But I must
let
you all know the results of my husband's PCR at his last visit to Dr Talpaz.
He
was taken off Sprycel due to pleural effusion and we were hoping his
undetectable would hold
Hello everyone. I have not had time to contribute for awhile. But I must let
you all know the results of my husband's PCR at his last visit to Dr Talpaz.
He was taken off Sprycel due to pleural effusion and we were hoping his
undetectable would holdbut it did not. He was subsequently
] New results
Hello everyone. I have not had time to contribute for awhile. But I must let
you all know the results of my husband's PCR at his last visit to Dr Talpaz. He
was taken off Sprycel due to pleural effusion and we were hoping his
undetectable would holdbut it did not. He
Mesnarich joy...@htc.net
To: cmlhope cmlhope@googlegroups.com
Sent: Wed, Jul 22, 2015 12:16 pm
Subject: [CMLHope] New results
Hello everyone. I have not had time to contribute for awhile. But I must
let
you all know the results of my husband's PCR at his last visit to Dr Talpaz.
He
Hi Marcie,
I know that your feeling bummed out but you shouldn't worry about it
because most lab results have a certain tolerance in their reports.
Want some advice? Just sit back and try to enjoy your life because there is
nothing that you can do about it. Just think about something, what would
for your greetings on FB
Hugs
Giora
-Original Message-
From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com]
Sent: Saturday, October 11, 2014 1:25 AM
To: cmlhope@googlegroups.com
Subject: [CMLHope] New Results
Hi Friends,
Just got my 3 month bcr-abl results. After 6 months
Thanks for your inspirational words Marty! I agree, I had a rough time six
months ago and a short hospital stay. My health turned around and im loving
every day I feel good. Im going to truly live every minute of my life... I
don't know what tomorrow brings but I'm living with faith and much
' via CMLHope cmlhope@googlegroups.com
To: cmlhope cmlhope@googlegroups.com
Sent: Fri, Oct 10, 2014 6:30 pm
Subject: [CMLHope] New Results
Hi Friends,
De
Just got my 3 month bcr-abl results. After 6 months of undetected, this test
came back as weak positive. Not much in terms of amount
Dear Marty, you always have words of wisdom for us. Of course this is only a
blip and thankfully there is so much available to us CMLers today.
Now we need to pray for your transplant to come through. Everyone of us would
just love to hear that news because you are very dear to us.
18s
-Original Message-
From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com]
Sent: Saturday, October 11, 2014 1:25 AM
To: cmlhope@googlegroups.com
Subject: [CMLHope] New Results
Hi Friends,
Just got my 3 month bcr-abl results. After 6 months of undetected, this test
came
Subject: [CMLHope] New Results
Hi Friends,
De
Just got my 3 month bcr-abl results. After 6 months of undetected, this test
came back as weak positive. Not much in terms of amount but I'm bummed that
I
didn't remain undetected.
So I'm wondering if anyone else has received a weak positive. I'm
Always nice to hear good news. Suzieq, you didn't tell me about the
no-see-m's, they are eating me alive. So, we are going to move in you during
the summer months here. I used to own a horse and we can go riding..Thanks
let me know when we can fly in.greenie
In a message dated
: [CMLHope] New Results
Suzieq:
Congratulations!! I'm at trace amounts only detected and hope my
tests next week will be like yours. Keep inspiring us to stay positive
and thanks for sharing your news.
Marcie
Baltimore
Sent from my iPhone
On Jul 21, 2011, at 10:37 PM, bkbar...@aol.com wrote
Hi everybody:
Just wanted to report that my new BCR-ABL results came today. Not
Detected it says all across the board!!! YAHOO This is the 3rd
time in a row! I did a little dance and cried a wee bit up at the
end of the drive after getting it out of the mailbox. I know my
neighbors
Suzieq..fabulous news..thanks for sharing. I would cry too!! Beth
--
[CMLHope]
A support group of http://cmlhope.com
-
You received this message because you are subscribed to the Google Groups
CMLHope group.
To post to this group, send email
Suzieq:
Congratulations!! I'm at trace amounts only detected and hope my
tests next week will be like yours. Keep inspiring us to stay positive
and thanks for sharing your news.
Marcie
Baltimore
Sent from my iPhone
On Jul 21, 2011, at 10:37 PM, bkbar...@aol.com wrote:
Suzieq..fabulous
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