Thanks Amy:
It caught me off guard for a minute when I first saw it. But I realized it
was a scam.
Sheila
On Sat, Jul 18, 2020 at 5:10 AM wrote:
> cmlhope@googlegroups.com
> <https://groups.google.com/forum/?utm_source=digest_medium=email#!forum/cmlhope/topics>
> Google
&g
Marty, I am glad to hear that. I was worrying over ya'll earlier today.
My brother is still in Hudson (up above Tampa about 30 or 40 miles. I
worry about him, but he is suppose to be going to a friend's home that is
safer than his doublewide. Glad ya'll left.
SuzieQ
On Sat, Sep 9, 2017 at
Thank you, Marty. Will get one in the mail.
Suzieq
On Mon, Jun 30, 2014 at 5:13 AM, cmlhope@googlegroups.com wrote:
Today's topic summary
Group: http://groups.google.com/group/cmlhope/topics
- Millie #146ec439deb8c263_group_thread_0 [3 Updates]
Millie
Millie: I sent Jeanie an email message and am hoping she gets it. I saw
that she lives in Florida, I think and I thought she lived in Arizona. Hah!
Shows just how much I know. Anyway, I asked where she lived at down there
as my mom is on the Gulf Coast and I was just down there in February for
My take on the stopping of the drugs after being negative for several
years, I think that is up to the person and their doctor. I, personally,
did not feel comfortable in completely quitting Gleevec after being on
400mgs. since February 2004. What I did ask my Doctor was if we could
lower the
Hello fellow CML'ers:
I get the posts just fine, just not as often as before.
I'm glad to see all y'all seem to be doing good..enjoying your summer.
We are so hot and dry here, it's unreal. I am expecting Governor Nixon to
start talking about conserving our water usage. It's getting
anymore and my face would be blotchy. I'm sure
this has to do with the medicine as I never had a problem tanning
prior to the gleevec. This will be my first summer coming up being on
sprycel so I'm not sure what to expect.
Sheila
On Jan 26, 1:09 pm, margoo...@aol.com wrote:
Hi Greenie:
I can
On Mon, Jan 3, 2011 at 4:18 AM,
cmlhope+nore...@googlegroups.comcmlhope%2bnore...@googlegroups.com
wrote:
Today's Topic Summary
Group: http://groups.google.com/group/cmlhope/topics
- Price of Gleevec keeps going up #12d4b630902dd510_group_thread_0 [2
Updates]
Topic: Price of
it go right
ahead :)
On Jul 1, 1:06 pm, educatorsusan educatorsu...@aol.com wrote:
Dear Everyone:
I need a little help here. I responded to Sheila privately to spare
her anything embarrassing. However, she was VERY aggressive and I
HAVE NEVER been treated like this before. I
in on this. He
thinks it could be a cure, so we'll see. If there is anyway you could
get up to see him I would highly advise it, you won't be sorry. I
have his number if interested, just let me know! Take care!
Sheila Hoffman
dsh...@midwaynet.net
On Jun 23, 10:30 am, myvet...@aol.com wrote:
Hi
Hi Greenie, I retain A LOT of water due to gleevec, my doc~ Dr. Talpaz
from the University of Michigan says I'm retaining about 30 ~ 40
(which is VERY depressing)pounds of water weight. He gave me a
prescription for water pills back in October and needless to say it
has not helped at all. I see
and so do I, but I just
don't know if that really is the right decision and that's where I
need some help here! Anyone's opinion would be greatly appreciated.
Thanks!
Sheila
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[CMLHope]
A support group of http://cmlhope.com
HEY GREENIE! I LIVE IN DEMOTTE, IN. NOT TOO FAR FROM HOBART. THE
WINTERS REALLY ARE TERRIBLE HERE, AS A MATTER OF FACT I'M SITTING HERE
AT WORK FREEZING!
TAKE CARE, SHEILA
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[CMLHope]
A support group of http://cmlhope.com
had any and if I get
them they come and go and are usually short lived and mild. Good luck
to Randy and take care of yourselves.
Sheila
38 yrs old
dxed 8/3/05
800 mgs gleevec
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[CMLHope]
A support group of http://cmlhope.com
have been anemic. I was just wondering if
this was a side effect or what since I'm on a higher dose? I also
suffer with neutropina and average a neulasta shot about once every 5 ~
6 weeks.
Thanks!
Sheila
38 yrs old
dxed 8/3/05
800 mgs gleevec
Last FISH (5 weeks ago) 3.8%
down from 68% in May
Rob:
I have a new e-mail account and will be losing my
hotmail.com fidnet.com accounts shortly. How do we change to my new
address or do you do it on your end? Just let me know what to do on my end so
that I continue to get the posts. I guess since I set it up originally on my
Rob:
I have a new e-mail account and will be losing my
hotmail.com fidnet.com accounts shortly. How do we change to my new
address or do you do it on your end? Just let me know what to do on my end so
that I continue to get the posts. I guess since I set it up originally on my
For my piece of mind, I would get another opinion before going through a
transplant. Dr.Hannah Khoury (my first hem/onc. at Siteman whom I dearly
loved) told me that most bone marrow transplants only had a 20% to 25% cure
rate and that's with a perfect match. He said that they only do those
Thanks, Mike. I had forgotten all about Google (smile). Must be the
Gleevec Fog, huh? What a wealth of information I found. This support
group really is a God-send and my thanks to the person who founded it.
Keep Looking Up,
Suzieq
To: CMLHope
Subject: [CMLHope] Re: New Doctor
Good Day to all: I just learned that I've been shifted once again to a new
doctor within my group where I go at the Sitemen Cancer Center in St. Louis.
The one I was seeing is returning to research, I was told. I am scheduled
for next visit on July 10th and am also have BMB done that day,
Since it's been close to two and half years now since that first visit to
the doctor who did the cbc test and called me at home that night and scared
the living day lights out of me by saying something was terribly wrong
because my white cell count was off the page and they were going to have
and I'm not
resistant. Is there anyone out there that has been resistant once
again I feel like I'm the only one going through this, but I know I'm
not! Thanks again for listening.
Sheila
--~--~-~--~~~---~--~~
[CMLHope]
A support group of http://cmlhope.com
Thanks so much for all who responded to my questions. I feel much better
now as I was beginning to worry that something terrible must be wrong, but
also felt that it has to be the spleen as it is exactly same area and same
pain. Sometimes it isn't noticeable and then like the last few days,
anyone out there had this happen but when taken the higher dose
that it helped. Why would I have responded at first then have it take
off again? Am I resistant? HELP!!
Thanks for listening, Sheila
--~--~-~--~~~---~--~~
[CMLHope]
A support group of http
I had a woman who works for Red Cross Blood Drives tell me that drinking tea
(she didn't specify) depletes the red blood cells and causes anemia.
Whether that is true, I don't know. I decided that I would cut back
somewhat as I do struggle with some anemia (it's not too bad) but it hasn't
Hi Pat: I am one of the new ones to the group, only a couple of months
now. It has helped me so much reading these posts from different people
dealing with the same thing I'm dealing with.
I, too, struggled in the beginning two years ago when I first began this
journey with Gleevec. I
I'm so glad to hear that I'm not crazy after all like my husband kept
telling me when I complained of the deep chill all the way to the bone
feelings I kept having it would be over 90 degrees outside. Marcia, I
am beginning with the hotflashes so this ought to be a fun summer. :)
I also
Pete: I am sorry to hear about having the combination of Crones disease
along with CML. One is tough enough to deal with for sure. My dr. told me
that taking the Glucosomine/Chondroitin would take at least nine weeks to
get into your system as it is a type of protien that is slow to absorb.
Hello everyone:
I'm new to this group and am grateful for all the information I'm learning.
I have been on 400mg. of Gleevec since February 2004. It's done it's job and
continues to keep me in remission. Am scheduled for next bmb in July. I am
interested in more information about taking
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