Re: [Felvtalk] Interferon And Other Medicine Questions
I had my cat on Interferon, LTCI, and Pred. He was given the death sentence by a University Vet, sent home to die. That was over a year ago. He is now FeLV negative, which we were told it was in his bone marrow. We are working on research and trials of different meds for anemia. The high dosage of pred is not a permenant solution. We have spent over $20,000 so far, but it has been worth every penny!! We have hope that through our research the help of specialists, we can help other cats with this dreaded disease! Sent from my iPhone On Nov 24, 2009, at 10:27 AM, Ashley Vanover ashley.vano...@gmail.com wrote: Hi Crystal, I just started my cat on Interferon a few weeks ago. He is in the last stages of FeLV (it's in his bone marrow and he has non regenerative anemia), and I think I've seen some improvements in him. Nothing dramatic, but if it can help a cat that was given less than 3 weeks to live, it might very well help your kitten. My vet ordered mine from Road Runner pharmacy in Arizona. I think it was around $37 for what I *think* was 30ml (I can check tonight when I get home). The $37 included shipping (it was overnighted and packed in ice) and the pharmacy even threw in some cat toys, which I thought was very sweet. My program for Kong is 1ml per day for seven days, and then off seven days. So the bottle, while not exactly cheap, will last for a while. Good luck, Ashley ___ Felvtalk mailing list Felvtalk@felineleukemia.org http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org ___ Felvtalk mailing list Felvtalk@felineleukemia.org http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org
Re: [Felvtalk] Interferon And Other Medicine Questions
Do you have a website or something detailing your research, testing data, etc.? What trials for anemia are you involved with? Is your cat on any medications now? Was your cat on Interferon alpha or FOI? If on alpha, was he at the usual 30 unit dosage? How many LTCI shots did he have before turning negative? Thanks, Gary Hotmail Junk wrote: I had my cat on Interferon, LTCI, and Pred. He was given the death sentence by a University Vet, sent home to die. That was over a year ago. He is now FeLV negative, which we were told it was in his bone marrow. We are working on research and trials of different meds for anemia. The high dosage of pred is not a permenant solution. We have spent over $20,000 so far, but it has been worth every penny!! We have hope that through our research the help of specialists, we can help other cats with this dreaded disease! Sent from my iPhone On Nov 24, 2009, at 10:27 AM, Ashley Vanover ashley.vano...@gmail.com wrote: ___ Felvtalk mailing list Felvtalk@felineleukemia.org http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org
Re: [Felvtalk] Interferon And Other Medicine Questions
I would be grateful for any more information you could provide as your cat's situation sounds so much like my little Kong's. Bless you for being willing to spend so much money on searching for treatment. It is people like you who are going to make a difference and help us all find new and successful treatments for our babies. --Ashley ___ Felvtalk mailing list Felvtalk@felineleukemia.org http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org
[Felvtalk] Emergency in Albuquerque--please cross-post
Hideyo Yamamoto, a former longstanding and incredibly hard-working member of the list, has today sent word of an emergency situation in Albuquerque, NM: a close friend of Hideyo's, and fellow cat rescuer, has passed away suddenly and tragically at age 50, leaving behind 150 cats she took care of that now need homes. I believe Hideyo and the rescue group this person worked with have been able to temporarily place 30 since yesterday, leaving approx 120 to place. The cats are in good health, but there are some semi-ferals. If you or anyone you know can help, please contact Hideyo directly: email: hideyo.yamam...@msn.com cell phone: 505-227-6293 If possible, she prefers that people contact her by cell phone as she's not able to check her computer often. Thanks very much. Kerry MacKenzie ___ Felvtalk mailing list Felvtalk@felineleukemia.org http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org
Re: [Felvtalk] WBC/RBC/platelet count decreasing
to Amy - i took Neupogen myself (had perpherial T Cell Lymphoma)when took first chemo. it brought my white count back up. i was on 4 chemicals including prednisone and my white count dipped way low. then when my red count dropped to 3.4, they put me on Procrit. it brought my count up, but not for long. then we went to 3 units of blood, but it did not work either.then was off everything for 6 or 8 months and went into remission on my own.so you need to keep trying, looking for an answer. got o go now, ew Harley is helping me type. Hotmail Junk cstet...@hotmail.com wrote: We did LTCI and Interferon at the same time. As of today, Gray Kitty is now FeLV negative. We now deal with anemia and he is on a high dosage of Prednisolone. Through intensive research, we are going to try a new drug we are hoping will cure the anemia. The high dosage of Pred does bring his numbers high again, however, has other side effects with long term use. Sent from my iPhone On Nov 24, 2009, at 6:37 PM, Amy awilkin...@yahoo.com wrote: Hi Lance, Thanks for all the info. I'm familiar with LTCI but not as much with some of the others you mention. I definitely plan to ask the internal med at Cornell to look into these. We are definitely considering LTCI but the pred is the sticky part. Neither one of us want to take him off of the pred for something that has no research backing up that it works. She read all the research and had several others review it. They all agreed the science sounds reasonable but there are just so many problems with the paper. I have yet to read it myself but plan to. That is probably the one option I'm leaning towards. I also heard Neupogen mentioned somewhere and plan to ask her about that one. Amy --- On Mon, 11/23/09, Lance lini...@fastmail.fm wrote: From: Lance lini...@fastmail.fm Subject: Re: [Felvtalk] WBC/RBC/platelet count decreasing To: felvtalk@felineleukemia.org Date: Monday, November 23, 2009, 11:08 PM Hi Amy, I'm sorry to hear about Wolfie. I don't have most of my email handy, so I can't look back at what you've written. Have you tried Transfer Factor? What about Liquid DMG? These are affordable supplements, and they *seem* to have helped in the case of my FeLV+ girl, Ember. DMG especially *seems* to have little possibility of any negative consequences. When I've seen wbc issues in Ember, I've *seemingly* reversed some losses with these supplements. Please note how I use the word *seem*. Neupogen might be an option. It's something I'm keeping in mind, but I don't know much about it, other than it helps with wbc generation. I believe some folks have used ImmunoRegulin in similar situations to yours and had good results. Maybe the archives will shed some light on that. And I could be wrong, but I seem to remember Epogen helping in non-regen anemia, though that makes absolutely no sense. Again, the archives will hopefully help. LTCI might help with wbc generation. I'm seeing lots of mention of it on the list, but I'm very leery of it. We FeLV+ caregivers are so eager for anything that might help, but the marketing Immulan has engaged in has been questionable. Of course, that doesn't mean that it doesn't help, but the company haven't done enough proper tests to provide real reassurance that their product works. It's good that we're getting anecdotal evidence on the list, but that only goes so far. Finally, I wonder if Pet Tinic might not help the rbc that Wolfie is able to produce. It's really just nutrients and nothing terribly unusual... mainly iron, I think. Obviously, when it comes to any of these options, please consult your vet. My hopes and prayers for Wolfie's health, and for your ability to find something that might help his blood counts. Lance On Mon, 23 Nov 2009 19:01 -0800, Amy awilkin...@yahoo.com wrote: I've posted before about my cat Wolfie. He's 7 years old and has been losing weight for the past 4 years. His HCT is also down (currently 25). We've treated for hemobart and retested and he's now negative (was positive before). He has started gaining weight and has put on a pound but I'm sure the leukemia is in his bone marrow. He's been tested and has non-regenerative anemia. He's been stable for a few months but his WBC, RBC, and platelet counts are all gradually declining. I was expecting him to crash when I got the confirmation of non-regenerative anemia but he's holding his own. I was told he's probably making red blood cells in his liver or spleen, just no longer in the bone marrow. Has anybody ever had luck with LTCI or any of the other things mentioned once it has gotten to this point? I've done all sorts of testing for digestive issues, lymphoma, IBD, etc. We have
Re: [Felvtalk] Nibbler Has Gone On - Please Add To CLS
I feel so fortunate, I have not lost any of my babies since last February. Even my 2 positives are doing so well. I feel God has truly blessed me and hope for the rest of this year and the next, He blesses all of you also. It would be great to read only good posts on the site. dorlis LauraM hingebacktorto...@yahoo.com wrote: Crystal, I'm so sorry about Nibbler. I lost Duncan last summer, Charlotte in April and Chutney a few weeks ago. Chutney's passing was a shock because we didn't know he was positive. He had tested negative just 6 weeks before he died, but then his sister Bridget tested positive, so I know that's what killed Chutney. I dropped off some info on LTCI at my vet's office today, and I'm hoping we can start Bridget on it soon. Maybe, just maybe, she'll have a chance at a somewhat normal life. I'm willing to try anything. Laura --- On Wed, 11/25/09, Crystal Proper crystal_pro...@yahoo.com wrote: From: Crystal Proper crystal_pro...@yahoo.com Subject: Re: [Felvtalk] Nibbler Has Gone On - Please Add To CLS To: felvtalk@felineleukemia.org Date: Wednesday, November 25, 2009, 8:59 PM Thank you everyone. You all are truly very wonderful and caring people. Nibbler made it to 16 weeks. He took a turn for the worse a couple days ago. Fortunately, he was purring and happy and we got to hold him as he went. I know he is in a better place even though this is the worst broken heart I have ever had. Nibbler is now in Heaven. ___ Felvtalk mailing list Felvtalk@felineleukemia.org http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org ___ Felvtalk mailing list Felvtalk@felineleukemia.org http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org ___ Felvtalk mailing list Felvtalk@felineleukemia.org http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org
Re: [Felvtalk] Scratchy meow
Hello Anna, you are so right, pay attention . that is most important. half of the world's problems could be averted if only people paid attention to others and listened to what they are trying to communicate to us. Anna Waltman anna.walt...@gmail.com wrote: Hi Tracy, My vocal 1 1/2 year old positive female, Sylvia, sometimes changes her voice when she's not feeling well. It drops into a lower register and gets scratchy, like she has laryngitis. She's spayed. Most of the time she's got a fairly melodic, medium-pitched meow-- that scratchy voice is what originally led me to take her to the vet, who tested her for FLV (her third time being tested)...and she came up positive. Since then, she's only had that voice change one time, and it was when she caught a cold from my other (so far negative) kitten, Beatrice. She recovered quickly and the meow went back to normal. Cats have a million different ways of communicating with us; this is just one way Sylvia tells me she's feeling unwell. She also follows me around more often, begging for attention, and gets irritable with Beatrice (hisses, etc). So pay attention to your girl-- if she's still scratchy as she comes out of heat, pay close attention to her and take her to the vet if something doesn't seem right. Follow your instincts and pay close attention to hers. You'll get wonderful advice on this forum. They're a wealth of information and have been incredibly helpful to me. All my best to you and your kittycat! Cheers, Anna -- Message: 5 Date: Tue, 24 Nov 2009 16:36:55 -0500 From: Tracy McLendon tracymclen...@gmail.com Subject: [Felvtalk] scratchy meow To: felvtalk@felineleukemia.org Message-ID: d7ffb22e0911241336n54701704pcd43673aa9165...@mail.gmail.com Content-Type: text/plain; charset=ISO-8859-1 Hello! I am new here! I have a 1 1/2 year old blind FLV cat. Two days ago, she started to have an odd scratchy sounding meow. She also went into heat about the same time. She is eating and playing normally. Her meow just suddenly changed and sounds raspy, almost like a parrot. This is my first experience with a FLV cat. She is not on any type of vitamins, she is just like all the other cats, until she started with this weird meow. When she went in originally for her eye enucleation, the vet just said she would be more susceptible to infections and that she would not live long. Can someone help me? Any other signs I should look for? She seems normal otherwise but I am such a hyphochondriac for myself and my animals! I just want to know if anyone else has experienced meow changes Thanks in advance! -- Tracy -- ___ Felvtalk mailing list Felvtalk@felineleukemia.org http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org ___ Felvtalk mailing list Felvtalk@felineleukemia.org http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org
Re: [Felvtalk] Interferon And Other Medicine Questions
There has been no rhyme or reason as to why Gray Kitty has been through so much. He is such a fighter! We hope to use any succesful treatment we find, to share and educate. We work on the anemia right now and am going to try a new drug that has less side effects than the current high dosage of Pred he is on. Feel free to contact me anytime! Keep me updated on how your baby is doing! Sent from my iPhone On Nov 29, 2009, at 10:48 AM, Ashley Vanover ashley.vano...@gmail.com wrote: I would be grateful for any more information you could provide as your cat's situation sounds so much like my little Kong's. Bless you for being willing to spend so much money on searching for treatment. It is people like you who are going to make a difference and help us all find new and successful treatments for our babies. --Ashley ___ Felvtalk mailing list Felvtalk@felineleukemia.org http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org ___ Felvtalk mailing list Felvtalk@felineleukemia.org http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org
Re: [Felvtalk] Interferon And Other Medicine Questions
Gary, At the moment all our data and graphing is on excel spreadsheets that we email weekly to the specialist I Michigan. Between he and our family vet, we adjust the pred dosage. We are currently reviewing some new meds with less side effects, for his anemia. He was on the interferon, one week on, one week off for many months, as well as weekly LTCI injections for many months. We did not follow the standard protocol. it has been about 3-4 months that he has been negative and is only on pred at the moment. We test him monthly for FeLV now. Sent from my iPhone On Nov 29, 2009, at 9:30 AM, Gary gcru...@centurytel.net wrote: Do you have a website or something detailing your research, testing data, etc.? What trials for anemia are you involved with? Is your cat on any medications now? Was your cat on Interferon alpha or FOI? If on alpha, was he at the usual 30 unit dosage? How many LTCI shots did he have before turning negative? Thanks, Gary Hotmail Junk wrote: I had my cat on Interferon, LTCI, and Pred. He was given the death sentence by a University Vet, sent home to die. That was over a year ago. He is now FeLV negative, which we were told it was in his bone marrow. We are working on research and trials of different meds for anemia. The high dosage of pred is not a permenant solution. We have spent over $20,000 so far, but it has been worth every penny!! We have hope that through our research the help of specialists, we can help other cats with this dreaded disease! Sent from my iPhone On Nov 24, 2009, at 10:27 AM, Ashley Vanover ashley.vano...@gmail.com wrote: ___ Felvtalk mailing list Felvtalk@felineleukemia.org http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org ___ Felvtalk mailing list Felvtalk@felineleukemia.org http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org
