Re: [QUAD-L] introductions
Nice to have you on the list jessica, or maybe it's nice to meet you again. TBI with an SCI makes it hard to remember, but I'm glad you're joining us, again. john c-5 31post Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more.
Re: [QUAD-L] Homeless dumping paraplegic
I sent that to my representative and congratulated him on ending the wasteful spending for all those leeches without insurance. My rep makes hitler look like a liberal. john -Original Message- From: [EMAIL PROTECTED] To: Quad-list@eskimo.com Sent: Sat, 10 Feb 2007 7:26 PM Subject: [QUAD-L] Homeless dumping paraplegic This is really cruel! http://www.msnbc.msn.com/id/17062674 Mark Jackson Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more.
Re: [QUAD-L] How Do You Read Books?
I'm sorry I respomnded so slowly. Sleeping a lot. Thank you all very much john -Original Message- From: [EMAIL PROTECTED] To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Sat, 10 Feb 2007 8:08 PM Subject: Re: [QUAD-L] How Do You Read Books? Hi All, I am not sure if my emails are going through in response to this thread, but I sent along two links to sites where you can read books on your computer. One is www.knowledgerush.com and the other is www.pagebypage.com. Let me know if this works, if it goes through, if anybody gets this... Thanks, Belle David K. Kelmer [EMAIL PROTECTED] wrote: Hi John, This Site provides free downloads of talking books through the Texas Talking Book Program. http://unabridged.lib.overdrive.com/D3B4303C-4616-4022-A806-379E6C7AA1ED/10/92/en/Default.htm Contact them to see what you can do to get eligible. I hope this helps. Stay strong. With Love, CtrlAltDel aka Dave C4/5 Complete - 30 Years Post Texas, USA [EMAIL PROTECTED] wrote: Naomi is right and has hit a sore point with me. Yea, I can move both arms but my hands do not possess the dexterity needed to read and flip pages in most books with any degree of comfort. I fumble through books I have to read but I haven't read a book for fun in years. The books on tape is ok if you like that. I do not. I can't just flip to a page, it is a struggle and I think something should be done. I have read where some books may be made available on cd. I have not seen any books on cd unless someone is reading to me again. I have a distinct feeling that most books being printed today are being printed from cd's and electronic media. I just don't know who to contact. I would so love to read a book for entertainment purposes again. On my last trip to the library I looked for some filthy paperback novels and couldn't even find one on tape. I have this feeling that the solution to my problem is going to cost me money. john -Original Message- From: [EMAIL PROTECTED] To: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Fri, 2 Feb 2007 9:42 PM Subject: Re: [QUAD-L] How Do You Read Books? You might try a mouthstick to turn the pages on your book stand but that has pitfalls also. A company also makes an automatic page turner but I have not had experience with it. The library of congress has a program of books on tapes but it is antiquated as they are updating their technology and trying pilot programs. My local library has started offering books that you can download on the Web. Its catalog could be better but it gives me more options. Check with your library. I recently completed Shadow Divers my robertkurson and enjoyed it very much. It is a true story is about a German U-boat laying off the coast of New Jersey. Have you read anything good lately? Dan T. [EMAIL PROTECTED] wrote: I am having a dilemma. I was an avid book reader before I became a quadriplegic due to Transverse Myelitis. Now I am in a dilemma as to how do I manage to read a book. I have a book stand, but it is virtually impossible for me to turn the pages. I have looked on the Internet for page turners, but I haven't found any that are suitable for my need. This is really driving me crazy, especially since there are so many things I need to read. I would like to know how anyone else manage to read a book. For novels, I get books on tape, if they're available, but some things I need to read, do not come on a tape. I would appreciate any suggestions. Naomi Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more. Never miss an email again! Yahoo! Toolbar alerts you the instant new Mail arrives. Check it out. Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more.
Re: [QUAD-L] Vista Dragon NaturallySpeaking 8
Hi Naomi, How much RAM do you have? Is it is 64 bit and what brand? Mine is a Hewlett-Packard with 1 MB and it will need another and my brother said Dragon said they could not promise Vista would work with Dragon 9. That is what his computer guy for his business told him they said. I guess my brother said he could add 1 MB of RAM. I could not really find a number to call other than a number on the Nuance web site. They seem to suggest Dragon 9.5 professional version which is not out. I wish I knew how soon as my brother wants to take my bedroom computer to work on. He needs to set up the laptop to use instead. I'm glad you say it works with Dragon 9 , but I don't like to buy upgrades because it is so confusing for me to install. I always do it wrong unless my computer friend from Hallmark is available, because I always do something wrong. I need to find out what kind of Hewlett-Packard I have as my brother has it. Thank you for the information and please send me your MG, brand and if you have 64-bit. Dana
Fwd: [QUAD-L] Vista Dragon NaturallySpeaking 8
Hi Naomi, How much RAM do you have? Is it is 64 bit and what brand? Mine is a Hewlett-Packard with 1 MB and it will need another and my brother said Dragon said they could not promise Vista would work with Dragon 9. That is what his computer guy for his business told him they said. I guess my brother said he could add 1 MB of RAM. I could not really find a number to call other than a number on the Nuance web site. They seem to suggest Dragon 9.5 professional version which is not out. I wish I knew how soon as my brother wants to take my bedroom computer to work on. He needs to set up the laptop to use instead. I'm glad you say it works with Dragon 9 , but I don't like to buy upgrades because it is so confusing for me to install. I always do it wrong unless my computer friend from Hallmark is available, because I always do something wrong. I need to find out what kind of Hewlett-Packard I have as my brother has it. Thank you for the information and please send me your MG, brand and if you have 64-bit. Dana I try to install Dragon 9.00 on my laptop and my laptop did not have enough RAM and the Pentium processor wasn't fast enough to run it. I had 8.0 on their and that worked fine. I bought a new laptop and installed 9.0 on it and it works fine. Naomi C-4 quad since July 2, 2005 Transverse Myelitis ---BeginMessage--- I try to install Dragon 9.00 on my laptop and my laptop did not have enough RAM and the Pentium processor wasn't fast enough to run it. I had 8.0 on their and that worked fine. I bought a new laptop and installed 9.0 on it and it works fine. Naomi C-4 quad since July 2, 2005 Transverse Myelitis ---End Message---
Re: [QUAD-L] severe chills
In a message dated 2/10/07 6:49:15 PM, [EMAIL PROTECTED] writes: Belle, Its not uncommon for the body to react that way during the healing and rebuilding process. Spinal Trauma is really a strange thing. For some it may take 3-5 years after the trauma. For others it continues beyond that time. At the end of last year, our country had 98 accredited systems of care in 38 of our 50 states. That means that alot of people with SCI and neuro conditions must travel great distance to receive the best care. And that is truly sad, as you may live in one of those areas, without. I only ask you to seek those medical personal who are accredited in SCI training and certification. This would include doctors, Uros, OT/PT and service providers. Some is better than none. Your body and the signals it generates should be reviewed by those in the know. Best Wishes W I am a C4-5 complete since July 31, 05. I know I don't have a UTI, nor am I sick in any other manner. What I would like to know, is if anybody else suffers from extreme chills radiating from the core of the body with no apparent cause or solution. The heat at 76+ degrees and multiple layers including hat and scarf do not help. I am currently staying at an extended care facility where they do not allow us to use heating pads, hot water bottles, or electric blankets. I try to drink as much hot tea and coffee as I can throughout the day in hopes to do some warming from the inside out, also to no avail.
Re: [QUAD-L] Stuntman's Birthday?
Da Bears are a young team fortunetly. This was Grosemans first full year, hopefully this embarrasement will motivate him into greatness. The offense needs to learn how to be more agressive, and the Defense needs more red meat. Maybe after the hibernation season??? Stunt On 2/10/07, David K. Kelmer [EMAIL PROTECTED] wrote: Hi Tim, You don't have to tell me about trying to get caught-up on e-mails, I'm lucky to get through 20 a day. With 6 days to look back on the SB I'd say the Colts should have been able to score more, but the Bears hung in there and kept it from being a 'blow-out.' Ya gotta give 'em that! With Love, CtrlAltDel aka Dave C4/5 Complete - 30 Years Post Texas, USA Tim Thompson [EMAIL PROTECTED] wrote: Thanks, I'm way behind on my e-mails, just now recovering from a cath pull induced UTI. Looking fwd to Da Bears ride the Colts in the Superbow!. GO BEARS! Stunt On 1/29/07, David K. Kelmer [EMAIL PROTECTED] wrote: Hi Stuntman, If I recall correctly you have a birthday coming up. If I'm correct I want to wish you a very Happy Birthday. If I'm not I will just wish you a very Happy Day! With Love, CtrlAltDel aka Dave C4/5 Complete - 30 Years Post Texas, USA
[QUAD-L] Stuntman's Bare Bears
Unfortunately, professional football is not that forgiving. Many of the Bear players will be free agents this year and may not stay with Chicago in their quest for another successful year. Money is everything in sports these days when you consider those old players who are badly injuried without money. Wilbur Marshall, just may be one of those who played and is now poor. Who Knows W In a message dated 2/11/07 10:06:29 AM, [EMAIL PROTECTED] writes: Da Bears are a young team fortunetly. This was Grosemans first full year, hopefully this embarrasement will motivate him into greatness. The offense needs to learn how to be more agressive, and the Defense needs more red meat. Maybe after the hibernation season??? Stunt
Re: [QUAD-L] How Do You Read Books?
Hey, All you need is the INTERNET! Read over 10,000 books on line or download them: http://books.mirror.org/gb.home.html http://www.promo.net/pg/ http://onlinebooks.library.upenn.edu/ http://googleblog.blogspot.com/2005/11/preserving-public-domain-books.html http://www.iam.unibe.ch/~ducasse/FreeBooks.html http://www.kellscraft.com/textcontents.html http://www.pagebypagebooks.com/title.html Stunt On 2/10/07, KK [EMAIL PROTECTED] wrote: BOO-HOO!!! I have a Mac without windows. Guess I'll just have to wait for the digital. KK
Re: [QUAD-L] Stuntman's Bare Bears
You know what guys, The Bears did a great job this year they have nothing to hang their heads about. Hopefully Grossman will be back the rest of the players. They were fun to watch this year this season will hopefully give them even more confidence for next year. Go Bears! Liudaf
Re: [QUAD-L] Stuntman's Birthday?
By the way, Happy Birthday Stunt! Lindaf
Re: [QUAD-L] Homeless dumping paraplegic
Unexcusable! I'll bet they don't dump illegal immigrant paras... LA's medical services (including Medicade) is going broke providing manditory care for illegals. But the Politicaly Correct crowd refuse to acknowledge the consequences we pay for their feel good agenda's. I've been writing letter after letter, but my Representative is outnumbered. God help us if billary gets her way. Health care services will go broke and we'll be left out in the cold. I for 1 am doing much better service wise now than 6 yrs ago. Stunt On 2/10/07, RollinOn [EMAIL PROTECTED] wrote: This is really cruel! http://www.msnbc.msn.com/id/17062674 Mark Jackson
Re: [QUAD-L] Shivering
Nope! I won't go there. You really left yourself open for a mind in the gutter to formulate a response that might be X rated. Stunt On 2/10/07, Nichole Rohling [EMAIL PROTECTED] wrote: I'M THINKING PAIN - EVEN THE PULLING OF A PUBIC HAIR WILL CAUSE ME TO HAVE CHILLS. MAYBE THE POSITION CAIUSES DISCOMFORT SOMEWHERE RESULTING IN PAIN. GOOD LUCK TROUBLESHOOTING - Original Message - From: Merrill Burghardt To: quad-list@eskimo.com Sent: Saturday, February 10, 2007 6:51 PM Subject: [QUAD-L] Shivering Thanks for the good responses regarding my night long shivering after I have been in bed a half hour or more. The hours of shivering are not cold related, but the ideas of an infection some place are interesting. As long as I stay sitting the shivers do not begin. As long as I continue to stay in bed supine and flat, the shivering will not start again unless I sit up for several hours. As directed by several list members I saw a doctor. Urine and blood tests were negative. I have taken to sleeping in my chair sitting, or to sleep in bed at 30 degrees or more to avoid the night long ordeal awake shivering uncontrollable for fours. So, still not to rule out an infection yet, but I am still requesting ideas or someone else who has done this. The members contributing on this list have more savvy, experience, and knowledge than most doctors I've worked with in my years as a c/5 quadriplegic.
Re: [QUAD-L] introductions
Welcome back! Stunt On 2/10/07, Jessica Ann Gordon [EMAIL PROTECTED] wrote: hi all! my name is jessica. i'm new to the list -- kinda. i was a subscriber a few years back but had technical difficulties. s, i'm back! i'm a c6/c7 quad due to a car accident 7 years ago. i'm 26 years old and live in maine with my boyfriend and our great dane and 2 kitties. look fwd to future correspondence! =jessica
Re: [QUAD-L] Shivering
Could it be your muscles twitching after sitting in one position for a certain amount of time? Maybe try to change our position more often. Dan T. Merrill Burghardt [EMAIL PROTECTED] wrote: @font-face { font-family: Comic Sans MS; } @page Section1 {size: 8.5in 11.0in; margin: 1.0in 1.25in 1.0in 1.25in; } P.MsoNormal { FONT-SIZE: 12pt; MARGIN: 0in 0in 0pt; FONT-FAMILY: Times New Roman } LI.MsoNormal { FONT-SIZE: 12pt; MARGIN: 0in 0in 0pt; FONT-FAMILY: Times New Roman } DIV.MsoNormal { FONT-SIZE: 12pt; MARGIN: 0in 0in 0pt; FONT-FAMILY: Times New Roman } P.MsoEnvelopeReturn { FONT-SIZE: 9pt; MARGIN: 0in 0in 0pt; FONT-STYLE: italic; FONT-FAMILY: Arial } LI.MsoEnvelopeReturn { FONT-SIZE: 9pt; MARGIN: 0in 0in 0pt; FONT-STYLE: italic; FONT-FAMILY: Arial } DIV.MsoEnvelopeReturn { FONT-SIZE: 9pt; MARGIN: 0in 0in 0pt; FONT-STYLE: italic; FONT-FAMILY: Arial } A:link { COLOR: blue; TEXT-DECORATION: underline } SPAN.MsoHyperlink { COLOR: blue; TEXT-DECORATION: underline } A:visited { COLOR: purple; TEXT-DECORATION: underline } SPAN.MsoHyperlinkFollowed { COLOR: purple; TEXT-DECORATION: underline } SPAN.EmailStyle18 { COLOR: windowtext; FONT-FAMILY: Arial; mso-style-type: personal-compose } DIV.Section1 { page: Section1 }Thanks for the good responses regarding my night long shivering after I have been in bed a half hour or more. The hours of shivering are not cold related, but the ideas of an infection some place are interesting. As long as I stay sitting the shivers do not begin. As long as I continue to stay in bed supine and flat, the shivering will not start again unless I sit up for several hours. As directed by several list members I saw a doctor. Urine and blood tests were negative. I have taken to sleeping in my chair sitting, or to sleep in bed at 30 degrees or more to avoid the night long ordeal awake shivering uncontrollable for fours. So, still not to rule out an infection yet, but I am still requesting ideas or someone else who has done this. The members contributing on this list have more savvy, experience, and knowledge than most doctors Ive worked with in my years as a c/5 quadriplegic.
Re: [QUAD-L] severe chills
I feel very cold off and on. I layer my clothing and use a hat like you do. I also use a high tight turtleneck. They seem to help me. I think it helps keep the heat in. Get warm... Dan T. LTeasley [EMAIL PROTECTED] wrote:Hi Everybody, I am a C4-5 complete since July 31, 05. I know I don't have a UTI, nor am I sick in any other manner. What I would like to know, is if anybody else suffers from extreme chills radiating from the core of the body with no apparent cause or solution. The heat at 76+ degrees and multiple layers including hat and scarf do not help. I am currently staying at an extended care facility where they do not allow us to use heating pads, hot water bottles, or electric blankets. I try to drink as much hot tea and coffee as I can throughout the day in hopes to do some warming from the inside out, also to no avail. Any ideas or solutions would be most appreciated. Journey well through life, Belle - Never miss an email again! Yahoo! Toolbar alerts you the instant new Mail arrives. Check it out.
[QUAD-L] NEAT STORY
I WAS IN REHAB WITH THE MAN WHO WROTE THIS - SOMEONE HAD TOLD ME HE PASSED AWAY - OBVIOUSLEY NOT http://www.newsok.com/article/3011570/?template=home/main .
Re: [QUAD-L] Stuntman's Bare Bears
There are a lot more players coming up from reform schools and being released from prisons. Shoot, a few are going to even graduate college and start getting arrested for doing the stuff they were always let off on. I know it isn't nice to generalize, but I'm in Cincinnati. The Bengals don't only play football, they keep the police busy. If you go through the NFL you will find that one player in three has been arrested in the last 4 years and 1 out of every 5 of those committed a feloney. The NFL doesn't even want to talk about the ones that aren't paying child support. On that remark, the ABA doesn't want people asking about lawyers and judges that don't pay child support. john -Original Message- From: [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Sun, 11 Feb 2007 11:14 AM Subject: [QUAD-L] Stuntman's Bare Bears Unfortunately, professional football is not that forgiving. Many of the Bear players will be free agents this year and may not stay with Chicago in their quest for another successful year. Money is everything in sports these days when you consider those old players who are badly injuried without money. Wilbur Marshall, just may be one of those who played and is now poor. Who Knows W In a message dated 2/11/07 10:06:29 AM, [EMAIL PROTECTED] writes: Da Bears are a young team fortunetly. This was Grosemans first full year, hopefully this embarrasement will motivate him into greatness. The offense needs to learn how to be more agressive, and the Defense needs more red meat. Maybe after the hibernation season??? Stunt Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more.
Re: [QUAD-L] Quads and Hospitals
You can request a patient advocate, if need be. That makes them listen to the patient, so I've been told. RONALD L PRACHT [EMAIL PROTECTED] wrote:Hey yall, I was in the hospital getting my colonoscopy 2 years ago and the iv they put in me caused me to go into dysreflexia. I watched my blood pressure go up on the machine right b4 my eyes. I was scared as hell and neither the people prepping me for the colonoscopy or my mother believed anything was wrong. It was a very scary momment for me because they were putting me asleep. With the grace of god I made it through, but Im kinda bitter because noone ever believes anything I say when I go in the hospital. Ron c7 St Louis - Be a PS3 game guru. Get your game face on with the latest PS3 news and previews at Yahoo! Games.
Re: [QUAD-L] Stuntman's Bare Bears
did i hear say GO COLTS!
Re: [QUAD-L] severe chills
If you have a cervical break then in most cases your hypothalmus gland has stopped functioning properly. This gland controls your body's ability to maintain a steady temperature. That is why you get cold fast and easily, as well as overheat quickly. With time, you should become better at dealing with it. I haven't asked any doctor's if there is a med that could help. Like most of you, I adjust my bed and take a benadryl to help sleep. I'm more comfortable with warm temps. Cold actually hurts and shivering is the worst. Normal people will shiver when their body temp changes faster than one tenth of a degree in ten minutes. I don't know the rule for quads but I know if I get cold and warm up to fast, I'll chill. Here is my big suggestion. Try elevating your feet before getting into bed. If you've had your legs down a long time then blood has pooled there and lowered in temp. When you return to bed that blood moves back up and alters the temp throughout your body. good luck john -Original Message- From: [EMAIL PROTECTED] To: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Sun, 11 Feb 2007 1:03 PM Subject: Re: [QUAD-L] severe chills I feel very cold off and on. I layer my clothing and use a hat like you do. I also use a high tight turtleneck. They seem to help me. I think it helps keep the heat in. Get warm... Dan T. LTeasley [EMAIL PROTECTED] wrote: Hi Everybody, I am a C4-5 complete since July 31, 05. I know I don't have a UTI, nor am I sick in any other manner. What I would like to know, is if anybody else suffers from extreme chills radiating from the core of the body with no apparent cause or solution. The heat at 76+ degrees and multiple layers including hat and scarf do not help. I am currently staying at an extended care facility where they do not allow us to use heating pads, hot water bottles, or electric blankets. I try to drink as much hot tea and coffee as I can throughout the day in hopes to do some warming from the inside out, also to no avail. Any ideas or solutions would be most appreciated. Journey well through life, Belle Never miss an email again! Yahoo! Toolbar alerts you the instant new Mail arrives. Check it out. Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more.
Re: [QUAD-L] severe chills
i am ALWAYS cold. i hate it and feel like no one understands how frustrating it can be. i know heating pads can be dangerous but it's worth the risk to me! an awesome alternative though, can be found here: http://grampasgarden.com/product_hot_cold_natural_therapy.asp they sell microwavable blankets, neck wraps, socks, mittens, scarves, headbands, etc. i have the body shawl and it warms me right up. if i'm extra cold i'll put it on my head. looks funny but does the trick. i highly recommend these products and they seem like the perfect solution for u in a care facility -- just need your own microwave! careful to feel for hot spots though before putting it anywhere w/out sensation -- i have burned myself badly after too much time in the microwave. jessica On Feb 11, 2007, at 1:03 PM, Dan Tessiatore wrote: I feel very cold off and on. I layer my clothing and use a hat like you do. I also use a high tight turtleneck. They seem to help me. I think it helps keep the heat in. Get warm... Dan T. LTeasley [EMAIL PROTECTED] wrote: Hi Everybody, I am a C4-5 complete since July 31, 05. I know I don't have a UTI, nor am I sick in any other manner. What I would like to know, is if anybody else suffers from extreme chills radiating from the core of the body with no apparent cause or solution. The heat at 76+ degrees and multiple layers including hat and scarf do not help. I am currently staying at an extended care facility where they do not allow us to use heating pads, hot water bottles, or electric blankets. I try to drink as much hot tea and coffee as I can throughout the day in hopes to do some warming from the inside out, also to no avail. Any ideas or solutions would be most appreciated. Journey well through life, Belle Never miss an email again! Yahoo! Toolbar alerts you the instant new Mail arrives. Check it out.
RE: [QUAD-L] severe chills
I often feel like I have ice water for blood so what I do is put on a fleece tabogan and use a microwavable neck wrap until I feel warm and I use an electric blanket in bed. But there's no real cure for it and hydracodone seems to help also. Good luck, Mark Jackson - Original Message - From: LTeasley To: quad-list@eskimo.com Sent: 2/10/2007 6:49:02 PM Subject: [QUAD-L] severe chills Hi Everybody, I am a C4-5 complete since July 31, 05. I know I don't have a UTI, nor am I sick in any other manner. What I would like to know, is if anybody else suffers from extreme chills radiating from the core of the body with no apparent cause or solution. The heat at 76+ degrees and multiple layers including hat and scarf do not help. I am currently staying at an extended care facility where they do not allow us to use heating pads, hot water bottles, or electric blankets. I try to drink as much hot tea and coffee as I can throughout the day in hopes to do some warming from the inside out, also to no avail. Any ideas or solutions would be most appreciated. Journey well through life, Belle Never miss an email again! Yahoo! Toolbar alerts you the instant new Mail arrives. Check it out.
RE: [QUAD-L] Shivering
I am confused. Suggesting a pulled pubic hair is gutter minded? Wow! Thanks to everyone taking time to help trouble shoot this issue. Merrill -Original Message- From: Tim Thompson [mailto:[EMAIL PROTECTED] Sent: Sunday, February 11, 2007 9:20 AM To: Nichole Rohling Cc: Quadlist Subject: Re: [QUAD-L] Shivering Nope! I won't go there. You really left yourself open for a mind in the gutter to formulate a response that might be X rated. Stunt On 2/10/07, Nichole Rohling [EMAIL PROTECTED] wrote: I'M THINKING PAIN - EVEN THE PULLING OF A PUBIC HAIR WILL CAUSE ME TO HAVE CHILLS. MAYBE THE POSITION CAIUSES DISCOMFORT SOMEWHERE RESULTING IN PAIN. GOOD LUCK TROUBLESHOOTING - Original Message - From: Merrill Burghardt To: quad-list@eskimo.com Sent: Saturday, February 10, 2007 6:51 PM Subject: [QUAD-L] Shivering Thanks for the good responses regarding my night long shivering after I have been in bed a half hour or more. The hours of shivering are not cold related, but the ideas of an infection some place are interesting. As long as I stay sitting the shivers do not begin. As long as I continue to stay in bed supine and flat, the shivering will not start again unless I sit up for several hours. As directed by several list members I saw a doctor. Urine and blood tests were negative. I have taken to sleeping in my chair sitting, or to sleep in bed at 30 degrees or more to avoid the night long ordeal awake shivering uncontrollable for fours. So, still not to rule out an infection yet, but I am still requesting ideas or someone else who has done this. The members contributing on this list have more savvy, experience, and knowledge than most doctors I've worked with in my years as a c/5 quadriplegic.
[QUAD-L] Subscribing
I'm in the middle of changing my e-mail address because I finally have dsl! Now I subscribed to the list with my new address but haven't had any mail show up from the list yet. How long does it take for my new address to start getting e-mail from the list? Mark Jackson
[QUAD-L] this is crazy
Hi everyone this is crazy, everyone here is talking about being cold. I FEEL ON FIRE 95% of the time so I sleep with a fan on my face. Explain that one?? Hec
Re: [QUAD-L] this is crazy
i'm jealous. i'd way rather be hot than cold -- but as the saying goes -- the grass is always greener... jessica On Feb 11, 2007, at 4:54 PM, [EMAIL PROTECTED] wrote: Hi everyone this is crazy, everyone here is talking about being cold. I FEEL ON FIRE 95% of the time so I sleep with a fan on my face. Explain that one?? Hec
RE: [QUAD-L] Subscribing
should b instant Eric W Rudd [EMAIL PROTECTED]
Re: [QUAD-L] severe chills
Have you checked your blood pressure? I know when mine gets really low. Mine runs real low anyway usually 80/60, but when it gets lower I get chills, my doctor gave me midrodrine it highers the blood pressure. gina LTeasley [EMAIL PROTECTED] wrote: Hi Everybody, I am a C4-5 complete since July 31, 05. I know I don't have a UTI, nor am I sick in any other manner. What I would like to know, is if anybody else suffers from extreme chills radiating from the core of the body with no apparent cause or solution. The heat at 76+ degrees and multiple layers including hat and scarf do not help. I am currently staying at an extended care facility where they do not allow us to use heating pads, hot water bottles, or electric blankets. I try to drink as much hot tea and coffee as I can throughout the day in hopes to do some warming from the inside out, also to no avail. Any ideas or solutions would be most appreciated. Journey well through life, Belle - Never miss an email again! Yahoo! Toolbar alerts you the instant new Mail arrives. Check it out.
RE: [QUAD-L] severe chills
In a reply to you I forgot to mention that drinking water ALL DAY does help along with reclining if possible for an hour or two before going to bed. Also once in bed stay sitting up to sleep. Sometimes I will sleep sitting up most of the night. If long enough sitting I am able to lie flat and sleep again. If I have not sat up long enough the shivering begins. Merrill C/5 _ From: LTeasley [mailto:[EMAIL PROTECTED] Sent: Saturday, February 10, 2007 4:49 PM To: quad-list@eskimo.com Subject: [QUAD-L] severe chills Hi Everybody, I am a C4-5 complete since July 31, 05. I know I don't have a UTI, nor am I sick in any other manner. What I would like to know, is if anybody else suffers from extreme chills radiating from the core of the body with no apparent cause or solution. The heat at 76+ degrees and multiple layers including hat and scarf do not help. I am currently staying at an extended care facility where they do not allow us to use heating pads, hot water bottles, or electric blankets. I try to drink as much hot tea and coffee as I can throughout the day in hopes to do some warming from the inside out, also to no avail. Any ideas or solutions would be most appreciated. Journey well through life, Belle _ Never http://us.rd.yahoo.com/evt=49938/*http:/tools.search.yahoo.com/toolbar/feat ures/mail/ miss an email again! Yahoo! Toolbar alerts you the instant new Mail arrives. Check it out.
Re: [QUAD-L] this is crazy
I have Multiple Sclerosis. Was told that our temp is regulated by the central nervous system which is where MS does it damage. I have the air conditioner running all year (Houston TX area) plus a fan on the face a fan at my feet. When my body temp gets to 99 I need to take something to reduce the fever.
RE: [QUAD-L] severe chills
My 65 pound Golden Retriever service dog at my side in bed doesn't resolve much but it sure is comforting _ From: Jessica Ann Gordon [mailto:[EMAIL PROTECTED] Sent: Sunday, February 11, 2007 1:23 PM To: quad-list@eskimo.com Subject: Re: [QUAD-L] severe chills i am ALWAYS cold. i hate it and feel like no one understands how frustrating it can be. i know heating pads can be dangerous but it's worth the risk to me! an awesome alternative though, can be found here: http://grampasgarden.com/product_hot_cold_natural_therapy.asp they sell microwavable blankets, neck wraps, socks, mittens, scarves, headbands, etc. i have the body shawl and it warms me right up. if i'm extra cold i'll put it on my head. looks funny but does the trick. i highly recommend these products and they seem like the perfect solution for u in a care facility -- just need your own microwave! careful to feel for hot spots though before putting it anywhere w/out sensation -- i have burned myself badly after too much time in the microwave. jessica On Feb 11, 2007, at 1:03 PM, Dan Tessiatore wrote: I feel very cold off and on. I layer my clothing and use a hat like you do. I also use a high tight turtleneck. They seem to help me. I think it helps keep the heat in. Get warm... Dan T. LTeasley [EMAIL PROTECTED] wrote: Hi Everybody, I am a C4-5 complete since July 31, 05. I know I don't have a UTI, nor am I sick in any other manner. What I would like to know, is if anybody else suffers from extreme chills radiating from the core of the body with no apparent cause or solution. The heat at 76+ degrees and multiple layers including hat and scarf do not help. I am currently staying at an extended care facility where they do not allow us to use heating pads, hot water bottles, or electric blankets. I try to drink as much hot tea and coffee as I can throughout the day in hopes to do some warming from the inside out, also to no avail. Any ideas or solutions would be most appreciated. Journey well through life, Belle _ Never http://us.rd.yahoo.com/evt=49938/*http:/tools.search.yahoo.com/toolbar/feat ures/mail/ miss an email again! Yahoo! Toolbar alerts you the instant new Mail arrives. http://us.rd.yahoo.com/evt=49937/*http:/tools.search.yahoo.com/toolbar/feat ures/mail/ Check it out.
RE: [QUAD-L] severe chills
Guess I started something here. Great idea to be checking blood pressure and to keep some sort of log to help your doctor out. Mine raises to a low AD 130/80 within an hour lying down. BP drops after five hours of shivering. Merrill _ From: gina [mailto:[EMAIL PROTECTED] Sent: Sunday, February 11, 2007 2:20 PM To: LTeasley; quad-list Subject: Re: [QUAD-L] severe chills Have you checked your blood pressure? I know when mine gets really low. Mine runs real low anyway usually 80/60, but when it gets lower I get chills, my doctor gave me midrodrine it highers the blood pressure. gina LTeasley [EMAIL PROTECTED] wrote: Hi Everybody, I am a C4-5 complete since July 31, 05. I know I don't have a UTI, nor am I sick in any other manner. What I would like to know, is if anybody else suffers from extreme chills radiating from the core of the body with no apparent cause or solution. The heat at 76+ degrees and multiple layers including hat and scarf do not help. I am currently staying at an extended care facility where they do not allow us to use heating pads, hot water bottles, or electric blankets. I try to drink as much hot tea and coffee as I can throughout the day in hopes to do some warming from the inside out, also to no avail. Any ideas or solutions would be most appreciated. Journey well through life, Belle _ Never http://us.rd.yahoo.com/evt=49938/*http:/tools.search.yahoo.com/toolbar/feat ures/mail/ miss an email again! Yahoo! Toolbar alerts you the instant new Mail arrives. http://us.rd.yahoo.com/evt=49937/*http:/tools.search.yahoo.com/toolbar/feat ures/mail/ Check it out.
Re: [QUAD-L] severe chills
Hi Belle, I am a C4-5 complete also I use to stay cold all the time, but now I handle the cold much better. Hopefully with time you won't be so cold. I know what you mean about the facility not letting you use a neck warmer or heating pad. I was in a facility for 5 1/2yrs. So I had my Dr write for an order thru PT to let me use one of these warmers, can't remember what they are called, that have a pad, looks like bubble wrap on one side has a little warmer the nurses fills up with water. John's explanation was great. Hopefully your scarf around your neck will help. Sitting in the sun also helps, find a nice sunny window. Lindaf
Re: [QUAD-L] this is crazy
Hec, I know what you are talking about with the feeling of being on fire, the burning sensation. A lot of us have it too, with sitting in the sun, it diffuses that burning sensation not totally but does help. Lindaf - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Sunday, February 11, 2007 3:54:28 PM Subject: [QUAD-L] this is crazy Hi everyone this is crazy, everyone here is talking about being cold. I FEEL ON FIRE 95% of the time so I sleep with a fan on my face. Explain that one?? Hec
[QUAD-L] (no subject)
Hi Everyone First of all--welcome JessicaAs you can tell,,when somebody has a question we share what is going on with us, and sometimes you may hear a solution to your problem. This group is unlike most support groups that you will find . We are committed to being here for each other. Like several of you,,I stay cold and at times I cannot get warm. I feel like I am cold from the inside out. As strange as it sounds My upper body will be cold and my feet will be burning and stinging. My doctor said it was from brain stem and nervous system damage. Kathy
Re: [QUAD-L] Stuntman's Bare Bears
Amen and Amen again. W In a message dated 2/11/07 2:44:12 PM, [EMAIL PROTECTED] writes: There are a lot more players coming up from reform schools and being released from prisons. Shoot, a few are going to even graduate college and start getting arrested for doing the stuff they were always let off on. I know it isn't nice to generalize, but I'm in Cincinnati. The Bengals don't only play football, they keep the police busy. If you go through the NFL you will find that one player in three has been arrested in the last 4 years and 1 out of every 5 of those committed a feloney. The NFL doesn't even want to talk about the ones that aren't paying child support. On that remark, the ABA doesn't want people asking about lawyers and judges that don't pay child support.
RE: [QUAD-L] Vista Dragon NaturallySpeaking 8
Hi Dana. I got my new laptop, is an HP pavilion 2000 -- it comes with Vista, and the new speech recognition program. I don't think I'm going to have any problem with the speech recognition program. I am using Dragon down on the desktop, and responding to you that way, because I don't have Microsoft Outlook installed on the laptop yet. However, I have played with the laptop for a couple of hours, and it is even easier to use than Dragon NaturallySpeaking 9.1. It is quicker than Dragon NaturallySpeaking, and so far I have not been able to find a way to move the mouse without using MouseGrid. Get your laptop back, and try speech recognition. It also has an on-screen keyboard that can be minimized so you don't have to see it, but that you can utilize to spell at any time by just saying press a etc.. I really like that. I'll let you know, as I find more out about this program. Right now, I have two microphone set up, one for the desktop, and one for the laptop. The biggest problem I have had with the laptop so far is that it is supersensitive and wakes up very easily. So I am trying to problem--solve that. Joan :-) _ From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Sunday, February 11, 2007 1:51 AM To: [EMAIL PROTECTED]; quad-list@eskimo.com Subject: Re: [QUAD-L] Vista Dragon NaturallySpeaking 8 Hi Naomi, How much RAM do you have? Is it is 64 bit and what brand? Mine is a Hewlett-Packard with 1 MB and it will need another and my brother said Dragon said they could not promise Vista would work with Dragon 9. That is what his computer guy for his business told him they said. I guess my brother said he could add 1 MB of RAM. I could not really find a number to call other than a number on the Nuance web site. They seem to suggest Dragon 9.5 professional version which is not out. I wish I knew how soon as my brother wants to take my bedroom computer to work on. He needs to set up the laptop to use instead. I'm glad you say it works with Dragon 9 , but I don't like to buy upgrades because it is so confusing for me to install. I always do it wrong unless my computer friend from Hallmark is available, because I always do something wrong. I need to find out what kind of Hewlett-Packard I have as my brother has it. Thank you for the information and please send me your MG, brand and if you have 64-bit. Dana
[QUAD-L] Stevia For UTI's
Sorry about the miss-spelling of this herb/sweetener. Only as I read, this sweetener has UTI reducing effects. My problem was gaining weight. Do the research, perhaps it is a solution for other issues. Merrill
RE: [QUAD-L] Homeless dumping paraplegic
My daughter is not a quad or a paraplegic, but because she has no medical insurance, they asked her to leave the hospital just as soon as she wasn't critical anymore. Their excuse, she should go on a diet and lose weight, and as soon as she left the hospital, she should go to her doctor. Even though two of us told the doctor that she had gained 45 pounds in two weeks, his answer was that diet and exercise would take care of everything. For five days in the hospital, the bill was $21,000. And because she has no insurance, she will be paying this off the rest of her life probably. And the result of her going to a doctor was, he gave her water pills and three weeks later she was down 51 pounds! Guess hospitals are only for the rich and the healthy! Joan ;-) -Original Message- From: Tim Thompson [mailto:[EMAIL PROTECTED] Sent: Sunday, February 11, 2007 9:14 AM To: [EMAIL PROTECTED] Cc: Quad-list Subject: Re: [QUAD-L] Homeless dumping paraplegic Unexcusable! I'll bet they don't dump illegal immigrant paras... LA's medical services (including Medicade) is going broke providing manditory care for illegals. But the Politicaly Correct crowd refuse to acknowledge the consequences we pay for their feel good agenda's. I've been writing letter after letter, but my Representative is outnumbered. God help us if billary gets her way. Health care services will go broke and we'll be left out in the cold. I for 1 am doing much better service wise now than 6 yrs ago. Stunt On 2/10/07, RollinOn [EMAIL PROTECTED] wrote: This is really cruel! http://www.msnbc.msn.com/id/17062674 Mark Jackson
RE: [QUAD-L] this is crazy
It sure seems like most of us share a lot of the same problems. If it's any help, I have found that in the last three or four years I am better at regulating my body temperature. I don't get as cold nearly as much as I used to, but I am often cold when I go to bed and then wake up several hours later roasting. That's when my fan goes on, and then a while later it will have to go off. For those of us who are higher quads, just the lack of ability to move and warm those muscles is a primary reason for the slowness in our responding to temperatures. I absolutely love my wood stove, and the fact that it has a glass window makes it even more appealing. For these last five weeks of bed rest, the thing I miss the most is my wood stove -- of course realistically I miss being up. Joan C4 :-) -Original Message- From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Sunday, February 11, 2007 1:54 PM To: quad-list@eskimo.com Subject: [QUAD-L] this is crazy Hi everyone this is crazy, everyone here is talking about being cold. I FEEL ON FIRE 95% of the time so I sleep with a fan on my face. Explain that one?? Hec
Re: [QUAD-L] this is crazy
Hey everyone, Oh Jessica I so agree with you! I currently live in Minnesota, transplanted from Georgia so I absolutely hate being cold. I was a huge freeze puppy before my accident; honestly I didn't think it could get worse. Boy, was I wrong! There's been talk about the stem cell surgery in China and Portugal with people wanting to get use of their hands back etc. etc., but it's been my hope (if I can ever afford to go) to be able to get rid of my abdominal Binder for blood pressure, stop taking lyrica for nerve pain, and to be able to get rid of the 57 some odd scarves and hats that I own, not to mention the 83 blankets that I own. All that stuff takes up a lot of room in my closet! Thanks so much you guys for all your suggestions; and I plan on doing some shopping at grandpa's garden as soon as I'm discharged from this place. Luckily, it should be the end of this month or early next month! Journey well through life, Belle Jessica Ann Gordon [EMAIL PROTECTED] wrote: i'm jealous. i'd way rather be hot than cold -- but as the saying goes -- the grass is always greener... jessica On Feb 11, 2007, at 4:54 PM, [EMAIL PROTECTED] wrote: Hi everyone this is crazy, everyone here is talking about being cold. I FEEL ON FIRE 95% of the time so I sleep with a fan on my face. Explain that one?? Hec - TV dinner still cooling? Check out Tonight's Picks on Yahoo! TV.
Re: [QUAD-L] severe chills
Hi Gina, Yeah, my baseline is 90/50 and I also take midodrine to control it with a little bit of florinef. If you are able to raise your blood pressure with midodrine, does that help with raising your body temperature as well? That would be great! I'll just be midodrine happy the rest of my life! Usually when my blood pressure dropped below 90/50, I would seriously just want to fall asleep. Journey well through life, Belle gina [EMAIL PROTECTED] wrote: Have you checked your blood pressure? I know when mine gets really low. Mine runs real low anyway usually 80/60, but when it gets lower I get chills, my doctor gave me midrodrine it highers the blood pressure. gina LTeasley [EMAIL PROTECTED] wrote: Hi Everybody, I am a C4-5 complete since July 31, 05. I know I don't have a UTI, nor am I sick in any other manner. What I would like to know, is if anybody else suffers from extreme chills radiating from the core of the body with no apparent cause or solution. The heat at 76+ degrees and multiple layers including hat and scarf do not help. I am currently staying at an extended care facility where they do not allow us to use heating pads, hot water bottles, or electric blankets. I try to drink as much hot tea and coffee as I can throughout the day in hopes to do some warming from the inside out, also to no avail. Any ideas or solutions would be most appreciated. Journey well through life, Belle - Never miss an email again! Yahoo! Toolbar alerts you the instant new Mail arrives. Check it out. - Access over 1 million songs - Yahoo! Music Unlimited.
Re: [QUAD-L] severe chills
Hi Linda, I know the little bubble wrap water things are that you're talking about but unfortunately this facility does not have any here. I agree that John's explanation was a really good one; it put things in a little bit different perspective. I've heard from my acupuncturists that drinking ginger tea is really helpful to warm you from the inside out, but I've not had anybody pick some up for me yet. I hope that I too will be able to handle the cold better as I'm further out from injury. Journey well through life, Belle LINDA FERRELL [EMAIL PROTECTED] wrote:DIV { MARGIN: 0px }hi Belle, I am a C4-5 complete also I use to stay cold all the time, but now I handle the cold much better. Hopefully with time you won't be so cold. I know what you mean about the facility not letting you use a neck warmer or heating pad. I was in a facility for 5 1/2yrs. So I had my Dr write for an order thru PT to let me use one of these warmers, can't remember what they are called, that have a pad, looks like bubble wrap on one side has a little warmer the nurses fills up with water. John's explanation was great. Hopefully your scarf around your neck will help. Sitting in the sun also helps, find a nice sunny window. Lindaf - Everyone is raving about the all-new Yahoo! Mail beta.
Re: [QUAD-L] this is crazy
Your hypothalmus gland is wack and in your case, it is making you feel hot. It is not the average, but it is not uncommon. Do bring it up with your doctor even if they can't do anything. maybe someone else has an idea? I'm thinking an ice cold hand towel on the chest and around your neck. john -Original Message- From: [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Sun, 11 Feb 2007 4:54 PM Subject: [QUAD-L] this is crazy Hi everyone this is crazy, everyone here is talking about being cold. I FEEL ON FIRE 95% of the time so I sleep with a fan on my face. Explain that one?? Hec Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more.
[QUAD-L] medical bills could bankrupt all of us.
Hi Joan, You should ask the hospital if they have a charity program. We have filled out applications and had them to write off the entire bill. This was blessing before I was able to get on Medicare and the Medicaid waiver program. The largest bill for me was $160,000. My husband has Medicare only. He can go to any doctor in their clinics and they usually will tell him to fill out a yearly application and they will take his Medicare. Thru the pain clinic they will get his meds that aren't covered by Medicare from the drug companies. This saves about $1000.00 a month. I hope some of this helps. Kathy
Re: [QUAD-L] this is crazy
Have you taken your blood pressure when feeling hot? Sometimes when my hyperreflexia acts up it makes it makes me feel hot. Dan T. [EMAIL PROTECTED] wrote:Your hypothalmus gland is wack and in your case, it is making you feel hot. It is not the average, but it is not uncommon. Do bring it up with your doctor even if they can't do anything. maybe someone else has an idea? I'm thinking an ice cold hand towel on the chest and around your neck. john -Original Message- From: [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Sun, 11 Feb 2007 4:54 PM Subject: [QUAD-L] this is crazy .AOLPlainTextBody { FONT-SIZE: 12px; MARGIN: 0px; COLOR: #000; FONT-FAMILY: Tahoma, Verdana, Arial, Sans-Serif; BACKGROUND-COLOR: #fff } .AOLPlainTextBody PRE { FONT-SIZE: 9pt } .AOLInlineAttachment { MARGIN: 10px } .AOLAttachmentHeader { BORDER-RIGHT: #7da8d4 1px solid; BORDER-TOP: #7da8d4 1px solid; BACKGROUND: #f9f9f9; FONT: 11px arial; BORDER-LEFT: #7da8d4 1px solid; BORDER-BOTTOM: #7da8d4 1px solid } .AOLAttachmentHeader .Title { PADDING-RIGHT: 3px; PADDING-LEFT: 3px; BACKGROUND: #b5ddfa; PADDING-BOTTOM: 3px; FONT: 11px arial; PADDING-TOP: 3px } .AOLAttachmentHeader .FieldLabel { PADDING-RIGHT: 10px; PADDING-LEFT: 9px; BACKGROUND: #f9f9f9; PADDING-BOTTOM: 1px; FONT: 11px arial; COLOR: #00; PADDING-TOP: 1px } .AOLAttachmentHeader .FieldValue { BACKGROUND: #f9f9f9; FONT: 11px arial; COLOR: #00 } .AOLAttachmentHeader A { COLOR: #2864b4; TEXT-DECORATION: none } .AOLImage A { COLOR: #2864b4; TEXT-DECORATION: none } .AOLAttachmentHeader A:hover { COLOR: #2864b4; TEXT-DECORATION: underline } .AOLImage A:hover { COLOR: #2864b4; TEXT-DECORATION: underline } .AOLWebSuiteCompose .AOLPicturesFullSizeLink { OVERFLOW: hidden; WIDTH: 1px; HEIGHT: 1px } .AOLWebSuite .AOLPicturesFullSizeLink { OVERFLOW: hidden; WIDTH: 1px; HEIGHT: 1px } BODY { BORDER-RIGHT: 0px; BORDER-TOP: 0px; FONT-SIZE: 10pt; BORDER-LEFT: 0px; BORDER-BOTTOM: 0px; FONT-FAMILY: Verdana; BACKGROUND-COLOR: white } .AOLWebSuiteCompose P { PADDING-RIGHT: 0px; PADDING-LEFT: 0px; PADDING-BOTTOM: 0px; MARGIN: 0px; PADDING-TOP: 0px } IMG.managedImg { WIDTH: 0px; HEIGHT: 0px } IMG.placeholder { BORDER-RIGHT: #dadad6 1px solid; BORDER-TOP: #dadad6 1px solid; BACKGROUND: #f4f4f4 no-repeat center center; BORDER-LEFT: #dadad6 1px solid; WIDTH: 275px; BORDER-BOTTOM: #dadad6 1px solid; HEIGHT: 206px } Hi everyone this is crazy, everyone here is talking about being cold. I FEEL ON FIRE 95% of the time so I sleep with a fan on my face. Explain that one?? Hec - Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more.
Re: [QUAD-L] this is crazy
It would seem that somewhere there is a hormone produced by the glands under the brain that could be synthesized and used to treat this temp disorder. On a normal day my temp is 96. While I've grown use to dealing with it, I think it would be a leap forward for so many new quads that are struggling. Does aspirin help any? It thins the blood and should help lower blood temp. I have had luck with over the counter drugs and different herbal stuff from GNC. Do beware of over cooling as well as over heating. I don't know much about MS, but I am leary of devices like AC's and heating pads that can overdo the job. john -Original Message- From: [EMAIL PROTECTED] To: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Sun, 11 Feb 2007 5:24 PM Subject: Re: [QUAD-L] this is crazy I have Multiple Sclerosis. Was told that our temp is regulated by the central nervous system which is where MS does it damage. I have the air conditioner running all year (Houston TX area) plus a fan on the face a fan at my feet. When my body temp gets to 99 I need to take something to reduce the fever. Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more.
RE: [QUAD-L] this is crazy
Hang in there Joan, staying in bed will pay off. I have been in bed off and on, more recently in bed a lot and I got up for the first day in about 10 days. The doctors suggest getting up once a day for about an hour when I am trying to heal a pressure sore. But I find that my sore is in a crevis of of my skin and getting up and down caused setbacks. Stay strong... Dan T poajoan [EMAIL PROTECTED] wrote: It sure seems like most of us share a lot of the same problems. If it's any help, I have found that in the last three or four years I am better at regulating my body temperature. I don't get as cold nearly as much as I used to, but I am often cold when I go to bed and then wake up several hours later roasting. That's when my fan goes on, and then a while later it will have to go off. For those of us who are higher quads, just the lack of ability to move and warm those muscles is a primary reason for the slowness in our responding to temperatures. I absolutely love my wood stove, and the fact that it has a glass window makes it even more appealing. For these last five weeks of bed rest, the thing I miss the most is my wood stove -- of course realistically I miss being up. Joan C4 :-) -Original Message- From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Sunday, February 11, 2007 1:54 PM To: quad-list@eskimo.com Subject: [QUAD-L] this is crazy Hi everyone this is crazy, everyone here is talking about being cold. I FEEL ON FIRE 95% of the time so I sleep with a fan on my face. Explain that one?? Hec
Re: [QUAD-L] severe chills
Overheating is miserable, but being cold hurts like , you know. Both make it so you can't think straight and it gets hard to be patient and nice to everyone. A few hours of it and I'm not fit for human company. A dog would be nice. john -Original Message- From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] Cc: quad-list@eskimo.com Sent: Sun, 11 Feb 2007 5:33 PM Subject: RE: [QUAD-L] severe chills My 65 pound Golden Retriever “service dog” at my side in bed doesn’t resolve much but it sure is comforting From: Jessica Ann Gordon [mailto:[EMAIL PROTECTED] Sent: Sunday, February 11, 2007 1:23 PM To: quad-list@eskimo.com Subject: Re: [QUAD-L] severe chills i am ALWAYS cold. i hate it and feel like no one understands how frustrating it can be. i know heating pads can be dangerous but it's worth the risk to me! an awesome alternative though, can be found here: http://grampasgarden.com/product_hot_cold_natural_therapy.asp they sell microwavable blankets, neck wraps, socks, mittens, scarves, headbands, etc. i have the body shawl and it warms me right up. if i'm extra cold i'll put it on my head. looks funny but does the trick. i highly recommend these products and they seem like the perfect solution for u in a care facility -- just need your own microwave! careful to feel for hot spots though before putting it anywhere w/out sensation -- i have burned myself badly after too much time in the microwave. jessica On Feb 11, 2007, at 1:03 PM, Dan Tessiatore wrote: I feel very cold off and on. I layer my clothing and use a hat like you do. I also use a high tight turtleneck. They seem to help me. I think it helps keep the heat in. Get warm... Dan T. LTeasley [EMAIL PROTECTED] wrote: Hi Everybody, I am a C4-5 complete since July 31, 05. I know I don't have a UTI, nor am I sick in any other manner. What I would like to know, is if anybody else suffers from extreme chills radiating from the core of the body with no apparent cause or solution. The heat at 76+ degrees and multiple layers including hat and scarf do not help. I am currently staying at an extended care facility where they do not allow us to use heating pads, hot water bottles, or electric blankets. I try to drink as much hot tea and coffee as I can throughout the day in hopes to do some warming from the inside out, also to no avail. Any ideas or solutions would be most appreciated. Journey well through life, Belle Never miss an email again! Yahoo! Toolbar alerts you the instant new Mail arrives. Check it out. Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more.
RE: [QUAD-L] Night Shivering
I think the night shivers are a slight case of Autonomic Disraflexia(sp?) When I get it, once I get moved a bit it goes away. Most of my AD is bladder related, so maybe the SP cath is in a bad position and irritating my bladder. One time I woke up so cold and shivering so bad, I was sure I had a bad UTI. As soon as I got up I went to the ER. My arm was shivering so bad I was jerking as I was driving my chair. My temp was at 94 degrees. The ER line was very long so I went outside to sit in the sun. By the time they called me, I was warming up (it was over 105 out side). AD slows things down and can lower your temp as it raises you blood pressure. It is a dangerous thing. Greg
[QUAD-L] when I get hot...
Hi guys, Well when I get hot it feels good to be in the AC or Fan... I sleep naked (TMI) BUT.. it feels good to sleep that way... just need to keep the ladies off... sigh, high price to paylol Hec
RE: [QUAD-L] Night Shivering
Greg, I agree, the majority of my dysreflexia comes from my bladder. Maybe it's got some mucus or other crap obstructing its somewhat, or possibly kinked were the top of the leg bag is bunched etc. The bowel is also a source of hyperreflexia including flatulence. isn't quadriplegia wonderful? hang in there, Dan T. Greg [EMAIL PROTECTED] wrote: @page Section1 {size: 8.5in 11.0in; margin: 1.0in 1.25in 1.0in 1.25in; } P.MsoNormal { FONT-SIZE: 12pt; MARGIN: 0in 0in 0pt; FONT-FAMILY: Times New Roman } LI.MsoNormal { FONT-SIZE: 12pt; MARGIN: 0in 0in 0pt; FONT-FAMILY: Times New Roman } DIV.MsoNormal { FONT-SIZE: 12pt; MARGIN: 0in 0in 0pt; FONT-FAMILY: Times New Roman } P.MsoEnvelopeReturn { FONT-SIZE: 9pt; MARGIN: 0in 0in 0pt; FONT-STYLE: italic; FONT-FAMILY: Arial } LI.MsoEnvelopeReturn { FONT-SIZE: 9pt; MARGIN: 0in 0in 0pt; FONT-STYLE: italic; FONT-FAMILY: Arial } DIV.MsoEnvelopeReturn { FONT-SIZE: 9pt; MARGIN: 0in 0in 0pt; FONT-STYLE: italic; FONT-FAMILY: Arial } A:link { COLOR: blue; TEXT-DECORATION: underline } SPAN.MsoHyperlink { COLOR: blue; TEXT-DECORATION: underline } A:visited { COLOR: purple; TEXT-DECORATION: underline } SPAN.MsoHyperlinkFollowed { COLOR: purple; TEXT-DECORATION: underline } SPAN.EmailStyle18 { COLOR: windowtext; FONT-FAMILY: Arial; mso-style-type: personal } SPAN.EmailStyle19 { COLOR: navy; FONT-FAMILY: Arial; mso-style-type: personal-reply } DIV.Section1 { page: Section1 }I think the night shivers are a slight case of Autonomic Disraflexia(sp?) When I get it, once I get moved a bit it goes away. Most of my AD is bladder related, so maybe the SP cath is in a bad position and irritating my bladder. One time I woke up so cold and shivering so bad, I was sure I had a bad UTI. As soon as I got up I went to the ER. My arm was shivering so bad I was jerking as I was driving my chair. My temp was at 94 degrees. The ER line was very long so I went outside to sit in the sun. By the time they called me, I was warming up (it was over 105 out side). AD slows things down and can lower your temp as it raises you blood pressure. It is a dangerous thing. Greg ..