RE: [QUAD-L] Sweating in the chair

2009-08-30 Thread Daniel Espinoza
That's the medication I'm using it now and it works great, before I was on
Neurontin and that would knock me out almost. Now that I'm on Lyrica I don't
have to deal with all of the side effects and it works great for me. I first
started taking it at Craig Hospital and haven't thought about switching it
since. I take it twice a day once at 9 AM and once at 8 PM.

 

Daniel Espinoza 26/m/California

 

Occupation before accident - Network engineer / SR. Network security
engineer What happened:

I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a
Quadriplegic http://en.wikipedia.org/wiki/Quadriplegia .

I had a Traumatic_brain_injury
http://en.wikipedia.org/wiki/Traumatic_brain_injury  from blood going to
my brain from my spinal cord, but its getting better with time.

I am off a ventilator http://en.wikipedia.org/wiki/Ventilator  woohoo
however only half of my diaphragm
http://en.wikipedia.org/wiki/Thoracic_diaphragm  works right now due to
an asymmetric spinal cord injury
http://en.wikipedia.org/wiki/Spinal_cord_injury .

 

http://www.thespinalcordinjured.net http://spinalcordinjured.net/ 

http://www.myspace.com/dannylnx

 

From: John S. [mailto:alcibiat...@yahoo.com] 
Sent: Saturday, August 29, 2009 1:38 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] Sweating in the chair

 

I have heard several people including myself talk about profuse sweating and
shaking when getting in the chair. I have taken so many pain meds to control
it but never resulting in more than a few hours of relief. I just began
taking a strong dose of Lyrica and it seems to be the key for me. I'm
backing down the narcotics and it has only been a week but DAMN. I take 1 in
the morning and I don't sweat or feel the presure that starts AD. I have not
had a day without sweating and shaking for over nine years. I feel like I
might have a life again. (knock on wood) 
We are all different and I know many of us have problems that it won't help.
I will let y'all know if it stops working. It has been so long since I have
felt this good. I want to goto the park and watch lovers and throw stale
bread at the birds again. (I feel like I could really nail one, maybe even a
lover.)

I really wish you all the very best,
john

 

 



[QUAD-L] frustrations with Medi-Cal and Medicare

2009-08-30 Thread Daniel Espinoza
 

I seriously don't understand how you guys live off this, I get 1400 a month
and then I have to pay about 1100 for my share of cost. Luckily I'm not
going to get kicked out for not paying rent but I am supposed to and that's
beside the point. It gives me $300 for rent, food, utilities, and any
medical supplies not covered. I think it's really screwed up, I'm going to
call them on Monday and try to figure this stuff out but before I do that I
would really like to know what you guys think? It's almost like I have no
choice but to live in a nursing home, which I would imagine would cost more
than what they give me a month. I live in Southern California so maybe that
has something to do with my frustrations because everything seems to be a
lot more expensive here than elsewhere. I really don't want to move because
all of my family lives here, and they take care of me when my caregivers
don't.

Thanks in advance for any advice you guys have for me. I've been a quad for
a little over three years now so I really don't understand the ins and outs
of all of this just quite yet..

 

Daniel Espinoza 26/m/California

 

Occupation before accident - Network engineer / SR. Network security
engineer What happened:

I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a
Quadriplegic http://en.wikipedia.org/wiki/Quadriplegia .

I had a Traumatic_brain_injury
http://en.wikipedia.org/wiki/Traumatic_brain_injury  from blood going to
my brain from my spinal cord, but its getting better with time.

I am off a ventilator http://en.wikipedia.org/wiki/Ventilator  woohoo
however only half of my diaphragm
http://en.wikipedia.org/wiki/Thoracic_diaphragm  works right now due to
an asymmetric spinal cord injury
http://en.wikipedia.org/wiki/Spinal_cord_injury .

 

http://www.thespinalcordinjured.net http://spinalcordinjured.net/ 

http://www.myspace.com/dannylnx

 



Re: [QUAD-L] Sweating in the chair

2009-08-30 Thread Fragile
Danny and John,

What dosage of Lyrica do you take?

On Sun, Aug 30, 2009 at 3:34 AM, Daniel Espinoza
static...@roadrunner.comwrote:

  That's the medication I'm using it now and it works great, before I was
 on Neurontin and that would knock me out almost. Now that I'm on Lyrica I
 don't have to deal with all of the side effects and it works great for me. I
 first started taking it at Craig Hospital and haven't thought about
 switching it since. I take it twice a day once at 9 AM and once at 8 PM.



 Daniel Espinoza 26/m/California



 Occupation before accident - Network engineer / SR. Network security
 engineer What happened:

 I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a
 Quadriplegic http://en.wikipedia.org/wiki/Quadriplegia.

 I had a 
 Traumatic_brain_injuryhttp://en.wikipedia.org/wiki/Traumatic_brain_injuryfrom
  blood going to my brain from my spinal cord, but its getting better
 with time.

 I am off a ventilator http://en.wikipedia.org/wiki/Ventilator woohoo
 however only half of my 
 diaphragmhttp://en.wikipedia.org/wiki/Thoracic_diaphragmworks right now 
 due to an asymmetric spinal
 cord injury http://en.wikipedia.org/wiki/Spinal_cord_injury.



 http://www.thespinalcordinjured.net http://spinalcordinjured.net/

 http://www.myspace.com/dannylnx



 *From:* John S. [mailto:alcibiat...@yahoo.com]
 *Sent:* Saturday, August 29, 2009 1:38 PM
 *To:* quad-list@eskimo.com
 *Subject:* Re: [QUAD-L] Sweating in the chair



 I have heard several people including myself talk about profuse sweating
 and shaking when getting in the chair. I have taken so many pain meds to
 control it but never resulting in more than a few hours of relief. I just
 began taking a strong dose of Lyrica and it seems to be the key for me. I'm
 backing down the narcotics and it has only been a week but DAMN. I take 1 in
 the morning and I don't sweat or feel the presure that starts AD. I have not
 had a day without sweating and shaking for over nine years. I feel like I
 might have a life again. (knock on wood)
 We are all different and I know many of us have problems that it won't
 help. I will let y'all know if it stops working. It has been so long since I
 have felt this good. I want to goto the park and watch lovers and throw
 stale bread at the birds again. (I feel like I could really nail one, maybe
 even a lover.)

 I really wish you all the very best,
 john







[QUAD-L] Keith in NJ

2009-08-30 Thread Lori Michaelson
 Anyone heard from Keith in NJ?

Keith - if you're lurking..please write me.  Can't find your email right
now.

-- 
Lori
Age - 45
C4/5 complete quad, nearly 30 years post
Tucson, AZ


Re: [QUAD-L] pressure wound....need help

2009-08-30 Thread John S.
In responce to the sore; I strongly feel every quad should be on a low air loss 
mattress. Four unversities have tested them and concluded that it is the only 
proactive surface for healing and preventing sores. Call Hill-Rom and ask if 
they have a nurse in your area. The trick to getting the mattress seems to be 
in the paperwork.  I had a stage 4 wound that healed up in 2 months and I still 
got in the chair 1 out of three days. There are no pressure points on a low air 
loss mattress and the constant air keeps the wound dryer but not too dry. Your 
bodies natural bacteria can work faster to heal the wounds. If your wound is 
filled with necrotic tissue, maggots can clean it out faster and more 
effectivly than any other debrieding action. When the wound is clean it will 
heal without involving a doctor. 
My nurse would put some Amish super honey in the wound when it needed it. (it 
has a name but I cannot remember it to save my life) It is called Royal Jelly. 
I have been getting bee stings for my knees hips and spine for about 3 months. 
I don't feel it but it costs $5 for 10 stings and I buy honey when I go. When 
my skin starts to get red areas I have my aid rub honey onto it gently until it 
is absorbed. Mollasses (sp) is suppose to work, as is processed sugar. The idea 
is it grows good bacteria faster by bringing oxygen and nutrients into the 
wound  
We all have osteo-arthritis. Our bones are chalk-like and cartilage is a joke. 
New quads should take Glucosamine-condroitin tablets from the begining.  
The trick to healing a wound quickly is to get rid of the dead tissue without 
destroying the good bacteria. Never let anyone use Hydrogen Peroxide or 
anti-bacterial cream or ointment. These products kill the good bacteria with 
the bad and in most cases the bad bacteria will get back in the wound and set 
you back months. 
Nurses, Doctors, and aids often carry bacteria from one patient to the next. Do 
not feel bad about asking them to wash their hands and use sterile gloves to 
examine your wound.
If I was using the wound vac, I am sure I would want royal jelly in the wound 
to add oxygen and proteins needed for healing. The idea that a wound will heal 
fast in an occlusive environment does not make much sense when we have all seen 
cuts heal fast when left open and no pressure, such as graph sites on top of 
thighs. Those heal very fast with a mere piece of gause to promote a scab. 
Royal Jelly helps speed healing and reduce scars. Wound vacs seem to be counter 
to what we know about healing. If a wound is producing a lot of puss and 
drainage maybe the bad bacteria and dead tissue have not been cleaned out.
Take probiotics now. These also help wounds heal faster. 
If you think I'm wrong then simply don't do any of these tips. My stage 4 wound 
healed in 8 weeks and I still got in my chair every 3rd day. Now I am under the 
radar to keep my low air loss mattress. 
I know many of you will get flaps and the doctors will buy new hottubs with the 
money they make on it. 
If you take large doses of probiotics and clean your wounds gently and use 
Royal Jelly you should see improvment in days. You can use the vac but I think 
it will heal faster if you simply minimize pressure on it. I appologize for 
rambing but I had a wound specialist that turned my stage 2 wound into a stage 
4 and wanted to do flap surgery. I had to return to my GP to get the low air 
loss mattress. He has only seen pictures of the wound as it healed. When your 
wound doctor says those mattresses are expensive, ask how much he makes for the 
visits and surgery? 
If your life is centered on healing your sores then what do you rank your 
quality of life at? I've been to two wound doctors and both were like going 
back in time. The same treatments as they have used since WW2. They can use 
stem cells now. Why don't they talk about it? Do you think a person that wasn't 
handicapped would consider what you are going through as acceptable 
treatment? We are treated as though we are all the same. I have talked to quads 
that have spent over a year in bed. I cannot do that. I don't have a great life 
but what I have requires me to go out of this place. 
I wish you a speedy healing process no matter what you choose to do. 
 Sorry if I ran on too much,

john




From: Steve Crowder dangerwo...@san.rr.com
To: Paul Jacobson pjacob...@san.rr.com; Lori Michaelson 
lorilivin...@gmail.com; quad-list@eskimo.com
Sent: Sunday, August 30, 2009 12:41:55 AM
Subject: Re: [QUAD-L] pressure woundneed help


Hello Paul. I'm on the vac right now. I really don't know much about it, but 
I'll try to explain it. The purpose of it is to suck out all the blood and 
debris and nasty stuff and keep it healthy and clean and open. It is supposed 
to be very good for promoting healing and prepare you for eventually doing a 
flap, which somehow allows the wound to heal. I really don't know much about 
it. It's all the way over my 

RE: [QUAD-L] pressure wound....need help

2009-08-30 Thread Mike Murach
Actually a wound vac worked extremely well for me.  I was pleasantly shocked
how quickly I fully healed.  ALTHOUGH, the wound was on my stomach
(therefore, no daily pressure).

Mike~ 

 

Please check out my paintings at:

  www.MurGallery.com

 

-Original Message-
From: John S. [mailto:alcibiat...@yahoo.com] 
Sent: Sunday, August 30, 2009 4:40 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] pressure woundneed help

 

In responce to the sore; I strongly feel every quad should be on a low air
loss mattress. Four unversities have tested them and concluded that it is
the only proactive surface for healing and preventing sores. Call Hill-Rom
and ask if they have a nurse in your area. The trick to getting the mattress
seems to be in the paperwork.  I had a stage 4 wound that healed up in 2
months and I still got in the chair 1 out of three days. There are no
pressure points on a low air loss mattress and the constant air keeps the
wound dryer but not too dry. Your bodies natural bacteria can work faster to
heal the wounds. If your wound is filled with necrotic tissue, maggots can
clean it out faster and more effectivly than any other debrieding action.
When the wound is clean it will heal without involving a doctor. 

My nurse would put some Amish super honey in the wound when it needed it.
(it has a name but I cannot remember it to save my life) It is called Royal
Jelly. 

I have been getting bee stings for my knees hips and spine for about 3
months. I don't feel it but it costs $5 for 10 stings and I buy honey when I
go. When my skin starts to get red areas I have my aid rub honey onto it
gently until it is absorbed. Mollasses (sp) is suppose to work, as is
processed sugar. The idea is it grows good bacteria faster by bringing
oxygen and nutrients into the wound  

We all have osteo-arthritis. Our bones are chalk-like and cartilage is a
joke. New quads should take Glucosamine-condroitin tablets from the
begining.  
The trick to healing a wound quickly is to get rid of the dead tissue
without destroying the good bacteria. Never let anyone use Hydrogen Peroxide
or anti-bacterial cream or ointment. These products kill the good bacteria
with the bad and in most cases the bad bacteria will get back in the wound
and set you back months. 

Nurses, Doctors, and aids often carry bacteria from one patient to the next.
Do not feel bad about asking them to wash their hands and use sterile gloves
to examine your wound.

If I was using the wound vac, I am sure I would want royal jelly in the
wound to add oxygen and proteins needed for healing. The idea that a wound
will heal fast in an occlusive environment does not make much sense when we
have all seen cuts heal fast when left open and no pressure, such as graph
sites on top of thighs. Those heal very fast with a mere piece of gause to
promote a scab. Royal Jelly helps speed healing and reduce scars. Wound vacs
seem to be counter to what we know about healing. If a wound is producing a
lot of puss and drainage maybe the bad bacteria and dead tissue have not
been cleaned out.

Take probiotics now. These also help wounds heal faster. 

If you think I'm wrong then simply don't do any of these tips. My stage 4
wound healed in 8 weeks and I still got in my chair every 3rd day. Now I am
under the radar to keep my low air loss mattress. 

I know many of you will get flaps and the doctors will buy new hottubs with
the money they make on it. 

If you take large doses of probiotics and clean your wounds gently and use
Royal Jelly you should see improvment in days. You can use the vac but I
think it will heal faster if you simply minimize pressure on it. I
appologize for rambing but I had a wound specialist that turned my stage 2
wound into a stage 4 and wanted to do flap surgery. I had to return to my GP
to get the low air loss mattress. He has only seen pictures of the wound as
it healed. When your wound doctor says those mattresses are expensive, ask
how much he makes for the visits and surgery? 

If your life is centered on healing your sores then what do you rank your
quality of life at? I've been to two wound doctors and both were like going
back in time. The same treatments as they have used since WW2. They can use
stem cells now. Why don't they talk about it? Do you think a person that
wasn't handicapped would consider what you are going through as acceptable
treatment? We are treated as though we are all the same. I have talked to
quads that have spent over a year in bed. I cannot do that. I don't have a
great life but what I have requires me to go out of this place. 

I wish you a speedy healing process no matter what you choose to do. 

 Sorry if I ran on too much,

 

john

 

  _  

From: Steve Crowder dangerwo...@san.rr.com
To: Paul Jacobson pjacob...@san.rr.com; Lori Michaelson
lorilivin...@gmail.com; quad-list@eskimo.com
Sent: Sunday, August 30, 2009 12:41:55 AM
Subject: Re: [QUAD-L] pressure woundneed help

Hello Paul. I'm on the vac 

Re: [QUAD-L] Sweating in the chair

2009-08-30 Thread John S.
150 mg each morning

john





From: Fragile swl...@gmail.com
To: quad-list@eskimo.com
Sent: Sunday, August 30, 2009 1:58:30 PM
Subject: Re: [QUAD-L] Sweating in the chair

Danny and John,

What dosage of Lyrica do you take?


On Sun, Aug 30, 2009 at 3:34 AM, Daniel Espinoza static...@roadrunner.com 
wrote:

That's the medication I'm using it now and it works great, before I was on 
Neurontin and that would knock me out almost. Now that I'm on Lyrica I don't 
have to deal with all of the side effects and it works great for me. I first 
started taking it at Craig Hospital and haven't thought about switching it 
since. I take it twice a day once at 9 AM and once at 8 PM.
 
Daniel Espinoza 26/m/California
 
Occupation before accident - Network engineer / SR. Network security engineer 
What happened:
I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a 
Quadriplegic.
I had a Traumatic_brain_injury from blood going to my brain from my spinal 
cord, but its getting better with time.
I am off a ventilator woohoo however only half of my diaphragm works right 
now due to an asymmetric spinal cord injury.
 
http://spinalcordinjured.net/
http://www.myspace.com/dannylnx
 
From:John S. [mailto:alcibiat...@yahoo.com] 
Sent: Saturday, August 29, 2009 1:38 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] Sweating in the chair
 
I have heard several people including myself talk about profuse sweating and 
shaking when getting in the chair. I have taken so many pain meds to control 
it but never resulting in more than a few hours of relief. I just began taking 
a strong dose of Lyrica and it seems to be the key for me. I'm backing down 
the narcotics and it has only been a week but DAMN. I take 1 in the morning 
and I don't sweat or feel the presure that starts AD. I have not had a day 
without sweating and shaking for over nine years. I feel like I might have a 
life again. (knock on wood) 
We are all different and I know many of us have problems that it won't help. I 
will let y'all know if it stops working. It has been so long since I have felt 
this good. I want to goto the park and watch lovers and throw stale bread at 
the birds again. (I feel like I could really nail one, maybe even a lover.)

I really wish you all the very best,
john
 
 



  

RE: [QUAD-L] frustrations with Medi-Cal and Medicare

2009-08-30 Thread Steve Oldaker
Danny,

 

If you have not already done so, I strongly suggest checking out the
information at the site below.

 

http://www.dds.ca.gov/waiver/home.cfm

 

If you have already applied and have been turned down for some reason, there
may be steps you can take that will make you eligible.

 

Steve - C4, 21 years

 

From: Daniel Espinoza [mailto:da...@thespinalcordinjured.net] 
Sent: Sunday, August 30, 2009 6:06 AM
To: quad-list@eskimo.com
Subject: [QUAD-L] frustrations with Medi-Cal and Medicare

 

 

I seriously don't understand how you guys live off this, I get 1400 a month
and then I have to pay about 1100 for my share of cost. Luckily I'm not
going to get kicked out for not paying rent but I am supposed to and that's
beside the point. It gives me $300 for rent, food, utilities, and any
medical supplies not covered. I think it's really screwed up, I'm going to
call them on Monday and try to figure this stuff out but before I do that I
would really like to know what you guys think? It's almost like I have no
choice but to live in a nursing home, which I would imagine would cost more
than what they give me a month. I live in Southern California so maybe that
has something to do with my frustrations because everything seems to be a
lot more expensive here than elsewhere. I really don't want to move because
all of my family lives here, and they take care of me when my caregivers
don't.

Thanks in advance for any advice you guys have for me. I've been a quad for
a little over three years now so I really don't understand the ins and outs
of all of this just quite yet..

 

Daniel Espinoza 26/m/California

 

Occupation before accident - Network engineer / SR. Network security
engineer What happened:

I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a
Quadriplegic http://en.wikipedia.org/wiki/Quadriplegia .

I had a Traumatic_brain_injury
http://en.wikipedia.org/wiki/Traumatic_brain_injury  from blood going to
my brain from my spinal cord, but its getting better with time.

I am off a ventilator http://en.wikipedia.org/wiki/Ventilator  woohoo
however only half of my diaphragm
http://en.wikipedia.org/wiki/Thoracic_diaphragm  works right now due to
an asymmetric spinal cord injury
http://en.wikipedia.org/wiki/Spinal_cord_injury .

 

http://www.thespinalcordinjured.net http://spinalcordinjured.net/ 

http://www.myspace.com/dannylnx

 



[QUAD-L]

2009-08-30 Thread Eric W Rudd
Guilt (Hold Down)

I went to sleep last night wondering how I'd feel
If I woke up tomorrow and you were almost healed.
If you could use your hands, what would you use them for?
Would it be to strangle me?
Because you just can't...

Hold down, why don't you just be the wave that washes over me?
Hold down, why can't I just be the one that carries all of you?

And I can see it in your eyes.

I'll rest my head tonight, thoughts I can't reveal.
The shame inside of me, the fate they've tried to seal.
If you could use your hands, what would you use them for?
Would it be to strangle me, or just try to ignore,
The fact that they don't care, why they stop and stare?
Why they put you in that dusty dirty chair?
Everyday is hard, hard for you to survive.
While we maintain this materialistic paradise.

Hold down, why don't you just be the wave that washes over me?
Hold down, why can't I just be the one that carries all of you?

And I see you fall. (And I see you fall.)
And it feels like I'm already there.
And it feels like you're already there.

You might carry me (You might carry me.)on through.

Hold down, why don't you just be the wave that washes over me?
Hold down, why can't I just be the one that carries all of you?

And I went to sleep last night wondering how I'd feel.
When the world just came.
And I went to sleep last night wondering how I'd feel.
When you were falling down.
And I went to sleep last night wondering how I'd feel,
When the world just came falling down.
And I went to sleep last night, last night, last night.
Falling down.

credit fingertight

Eric W Rudd
c5sc...@gmail.com




Re: [QUAD-L]

2009-08-30 Thread Eric W Rudd
hey tony...goin thru some tracks  pretty sure its ur voicebehind blue 
eyes??

Eric W Rudd
c5sc...@gmail.com



  - Original Message - 
  From: Eric W Rudd 
  To: quad-list@eskimo.com 
  Sent: Sunday, August 30, 2009 9:20 PM
  Subject: [QUAD-L] 


  Guilt (Hold Down)

  I went to sleep last night wondering how I'd feel
  If I woke up tomorrow and you were almost healed.
  If you could use your hands, what would you use them for?
  Would it be to strangle me?
  Because you just can't...

  Hold down, why don't you just be the wave that washes over me?
  Hold down, why can't I just be the one that carries all of you?

  And I can see it in your eyes.

  I'll rest my head tonight, thoughts I can't reveal.
  The shame inside of me, the fate they've tried to seal.
  If you could use your hands, what would you use them for?
  Would it be to strangle me, or just try to ignore,
  The fact that they don't care, why they stop and stare?
  Why they put you in that dusty dirty chair?
  Everyday is hard, hard for you to survive.
  While we maintain this materialistic paradise.

  Hold down, why don't you just be the wave that washes over me?
  Hold down, why can't I just be the one that carries all of you?

  And I see you fall. (And I see you fall.)
  And it feels like I'm already there.
  And it feels like you're already there.

  You might carry me (You might carry me.)on through.

  Hold down, why don't you just be the wave that washes over me?
  Hold down, why can't I just be the one that carries all of you?

  And I went to sleep last night wondering how I'd feel.
  When the world just came.
  And I went to sleep last night wondering how I'd feel.
  When you were falling down.
  And I went to sleep last night wondering how I'd feel,
  When the world just came falling down.
  And I went to sleep last night, last night, last night.
  Falling down.

  credit fingertight

  Eric W Rudd
  c5sc...@gmail.com


   

[QUAD-L] hello quad-l...breaker, breaker....gotta copy?

2009-08-30 Thread Eric W Rudd


[QUAD-L] FYI

2009-08-30 Thread Eric W Rudd
never assume i want credit 4 these lyrics just tryin 2 reach those who would 
say what, me listen to that shit...lol, u know who u are

Eric W Rudd
c5sc...@gmail.com




Re: [QUAD-L] frustrations with Medi-Cal and Medicare

2009-08-30 Thread John S.
Dan, it is how they keep us and our issues out of the way. I don't know about 
the others. Here in Ohio the ILC is almost down to an answering machine. 
Without money our influence in politics is file 13 letters. 
I dont mind doing stuff I can get under the table pay for. If I lost my waiver 
I'd be in a nursing home in a heart beat. I do taxes for tips at a couple local 
churches and family members. 
i try to keep costs down. I track what I spend on everything. 1100 is your 
share? I pay 35% for rent waiver picks up almost all other medical expenses. I 
put the money from undertable income on debit cards. $50 a month for 
transportation. I just budget it so I have a few hundred for gifts and cards. 
That $1100 share is a budget buster. I got to admit I have made money by 
begging. Maybe your family would back you if you learned to trade options. I 
know there are a few members of the group that dont just play in the fantasy 
contests for stocks.  i wish you luck.

john.    




From: Daniel Espinoza da...@thespinalcordinjured.net
To: quad-list@eskimo.com
Sent: Sunday, August 30, 2009 6:05:53 AM
Subject: [QUAD-L] frustrations with Medi-Cal and Medicare


 
I seriously don't understand how you guys live off this, I get 1400 a month and 
then I have to pay about 1100 for my share of cost. Luckily I'm not going to 
get kicked out for not paying rent but I am supposed to and that's beside the 
point. It gives me $300 for rent, food, utilities, and any medical supplies not 
covered. I think it's really screwed up, I'm going to call them on Monday and 
try to figure this stuff out but before I do that I would really like to know 
what you guys think? It's almost like I have no choice but to live in a nursing 
home, which I would imagine would cost more than what they give me a month. I 
live in Southern California so maybe that has something to do with my 
frustrations because everything seems to be a lot more expensive here than 
elsewhere. I really don't want to move because all of my family lives here, and 
they take care of me when my caregivers don't.
Thanks in advance for any advice you guys have for me. I've been a quad for a 
little over three years now so I really don't understand the ins and outs of 
all of this just quite yet….
 
Daniel Espinoza 26/m/California
 
Occupation before accident - Network engineer / SR. Network security engineer 
What happened:
I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a 
Quadriplegic.
I had a Traumatic_brain_injury from blood going to my brain from my spinal 
cord, but its getting better with time.
I am off a ventilator woohoo however only half of my diaphragm works right 
now due to an asymmetric spinal cord injury.
 
http://spinalcordinjured.net/
http://www.myspace.com/dannylnx


  

[QUAD-L]

2009-08-30 Thread Eric W Rudd
As I sit here and slowly close my eyes
I take another deep breath
And feel the wind pass through my body
I'm the one in your soul
Reflecting inner light
Protect the ones who hold you
Cradling your inner child

I need serenity
In a place where I can hide
I need serenity
Nothing changes, days go by

Where do we go when we just don't know
And how do we relight the flame when it's cold
Why do we dream when our thoughts mean nothing
And when will we learn to control

Tragic visions slowly stole my life
Tore away everything
Cheating me out of my time
I'm the one who loves you
No matter wrong or right
And every day I hold you
I hold you with my inner child

I need serenity
In a place where I can hide
I need serenity
Nothing changes, days go by

Where do we go when we just don't know
And how do we relight the flame when it's cold
Why do we dream when our thoughts mean nothing
And when will we learn to control

Where do we go when we just don't know
And how do we relight the flame when it's cold
Why do we dream when our thoughts mean nothing
And when will we learn to control

I need serenity

Eric W Rudd
c5sc...@gmail.com




[QUAD-L]

2009-08-30 Thread Eric W Rudd
It's been a while 
Since I could hold my head up high 
and it's been a while 
Since I first saw you 
It's been a while 
since i could stand on my own two feet again 
and it's been a while 
since i could call you 
But everything I can't remember as fucked up as it may seem 
the consequences that I've rendered 
I've stretched myself beyond my means 

It's been a while 
since i could say that i wasn't addicted and 
It's been a while 
Since I could say I love myself as well and 
It's been a while 
Since I've gone and fucked things up just like i always do 
It's been a while 
But all that shit seems to disappear when i'm with you 
But everything I can't remember as fucked up as it may seem 
the consequences that I've rendered 
I've gone and fucked things up again 

Why must i feel this way? 
just make this go away 
just one more peaceful day 

Its been awhile 
Since I could lok at myself straight 
and it's been awhile 
since i said i'm sorry 
It's been awhile 
Since I've seen the way the candles light your face 
It's been awhile 
But I can still remember just the way you taste 
But everything I can't remember as fucked up as it may seem 
I know it's me i cannot blame this on my father 
he did the best he could for me 

It's been a while 
Since I could hold my head up high 
and it's been a while since i said i'm sorry 


Eric W Rudd
c5sc...@gmail.com




[QUAD-L]

2009-08-30 Thread Eric W Rudd
And you, bring me to my knees again
All the times that I could beg you please, in vain
All the times that I've felt insecure for you
And I leave my burdens at the door

Chorus
But I'm on the outside and I'm looking in
I can see through you, see your true colors
'Cause inside you're ugly, you're ugly like me
I can see through you, see to the real you

All the times, that I felt like this won't end
It's for you
And I taste what I could never have
It was from you
All the times that I've cried
My intentions were full of pride
But I waste more time than anyone

Chorus

All the times that I've cried
All this wasted, it's all inside
And I feel all this pain
I stuffed it down, it's back again
And I lie here in bed
All alone, I can't mend
But I feel, tomorrow will be okay

Eric W Rudd
c5sc...@gmail.com




[QUAD-L]

2009-08-30 Thread Eric W Rudd
Oh momma I'm in fear for my life from the long arm of the law
Lawman has put an end to my running and I'm so far from my home
Oh momma I can hear you crying you're so scared and all alone
Hangman is comin' down from the gallows and I don't have very
long

The jig is up the news is out they've finally found me
The renegade who had it made retrieved for a bounty
Never more to go astray
This will be the end today of the wanted man

Oh momma I've been years on the lam
And had a high price on my head
Lawman said get him dead or alive
Now it's for sure he'll see me dead
Dear momma I can hear you crying
You're so scared and all alone
Hangman is coming down from the gallows
And I don't have very long

The jig is up, the news is out
They finally found me
The renegade who had it made
Retrieved for a bounty
Never more to go astray
The judge will have revenge today
On the wanted man 

Oh Momma, I'm in fear for my life from the long arm of the law
Hangman is coming down from the gallows And I don't have very long

The jig is up, the news is out
They finally found me
The renegade who had it made
Retrieved for a bounty
Never more to go astray
This'll be the end today
Of the wanted man
the wanted man
i don't have long, 
no no
dont let 'em take me
no no

Eric W Rudd
c5sc...@gmail.com




[QUAD-L]

2009-08-30 Thread Eric W Rudd
I met her in a club down in old soho
Where you drink champagne and it tastes just like cherry-cola [lp version:
Coca-cola]
C-o-l-a cola
She walked up to me and she asked me to dance
I asked her her name and in a dark brown voice she said lola
L-o-l-a lola lo-lo-lo-lo lola

Well Im not the worlds most physical guy
But when she squeezed me tight she nearly broke my spine
Oh my lola lo-lo-lo-lo lola
Well Im not dumb but I cant understand
Why she walked like a woman and talked like a man
Oh my lola lo-lo-lo-lo lola lo-lo-lo-lo lola

Well we drank champagne and danced all night
Under electric candlelight
She picked me up and sat me on her knee
And said dear boy wont you come home with me
Well Im not the worlds most passionate guy
But when I looked in her eyes well I almost fell for my lola
Lo-lo-lo-lo lola lo-lo-lo-lo lola
Lola lo-lo-lo-lo lola lo-lo-lo-lo lola

I pushed her away
I walked to the door
I fell to the floor
I got down on my knees
Then I looked at her and she at me

Well thats the way that I want it to stay
And I always want it to be that way for my lola
Lo-lo-lo-lo lola
Girls will be boys and boys will be girls
Its a mixed up muddled up shook up world except for lola
Lo-lo-lo-lo lola

Well I left home just a week before
And Id never ever kissed a woman before
But lola smiled and took me by the hand
And said dear boy Im gonna make you a man

Well Im not the worlds most masculine man
But I know what I am and Im glad Im a man
And so is lola
Lo-lo-lo-lo lola lo-lo-lo-lo lola
Lola lo-lo-lo-lo lola lo-lo-lo-lo lola

Eric W Rudd
c5sc...@gmail.com




RE: [QUAD-L] Sweating in the chair

2009-08-30 Thread Daniel Espinoza
I take 50 mg in the morning at 9 AM, 50 mg at 4 PM and 100 mg at 10 PM

 

Daniel Espinoza 26/m/California

 

Occupation before accident - Network engineer / SR. Network security
engineer What happened:

I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a
http://en.wikipedia.org/wiki/Quadriplegia Quadriplegic.

I had a  http://en.wikipedia.org/wiki/Traumatic_brain_injury
Traumatic_brain_injury from blood going to my brain from my spinal cord, but
its getting better with time.

I am off a  http://en.wikipedia.org/wiki/Ventilator ventilator woohoo
however only half of my  http://en.wikipedia.org/wiki/Thoracic_diaphragm
diaphragm works right now due to an asymmetric
http://en.wikipedia.org/wiki/Spinal_cord_injury spinal cord injury.

 

 http://spinalcordinjured.net/ http://wwwthespinalcordinjured.net

 http://www.myspace.com/dannylnx http://www.myspace.com/dannylnx

 

From: John S. [mailto:alcibiat...@yahoo.com] 
Sent: Sunday, August 30, 2009 3:30 PM
To: Fragile; quad-list@eskimo.com
Subject: Re: [QUAD-L] Sweating in the chair

 

150 mg each morning

 

john

 

  _  

From: Fragile swl...@gmail.com
To: quad-list@eskimo.com
Sent: Sunday, August 30, 2009 1:58:30 PM
Subject: Re: [QUAD-L] Sweating in the chair

Danny and John,

What dosage of Lyrica do you take?

On Sun, Aug 30, 2009 at 3:34 AM, Daniel Espinoza static...@roadrunner.com
wrote:

That's the medication I'm using it now and it works great, before I was on
Neurontin and that would knock me out almost. Now that I'm on Lyrica I don't
have to deal with all of the side effects and it works great for me. I first
started taking it at Craig Hospital and haven't thought about switching it
since. I take it twice a day once at 9 AM and once at 8 PM.

 

Daniel Espinoza 26/m/California

 

Occupation before accident - Network engineer / SR. Network security
engineer What happened:

I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a
Quadriplegic http://en.wikipedia.org/wiki/Quadriplegia .

I had a Traumatic_brain_injury
http://en.wikipedia.org/wiki/Traumatic_brain_injury  from blood going to
my brain from my spinal cord, but its getting better with time.

I am off a ventilator http://en.wikipedia.org/wiki/Ventilator  woohoo
however only half of my diaphragm
http://en.wikipedia.org/wiki/Thoracic_diaphragm  works right now due to
an asymmetric spinal http://en.wikipedia.org/wiki/Spinal_cord_injury  cord
injury.

 

http://spinalcordinjured.net/

http://www.myspace.com/dannylnx

 

From: John S. [mailto:alcibiat...@yahoo.com] 
Sent: Saturday, August 29, 2009 1:38 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] Sweating in the chair

 

I have heard several people including myself talk about profuse sweating and
shaking when getting in the chair. I have taken so many pain meds to control
it but never resulting in more than a few hours of relief. I just began
taking a strong dose of Lyrica and it seems to be the key for me. I'm
backing down the narcotics and it has only been a week but DAMN. I take 1 in
the morning and I don't sweat or feel the presure that starts AD. I have not
had a day without sweating and shaking for over nine years. I feel like I
might have a life again. (knock on wood) 
We are all different and I know many of us have problems that it won't help.
I will let y'all know if it stops working. It has been so long since I have
felt this good. I want to goto the park and watch lovers and throw stale
bread at the birds again. (I feel like I could really nail one, maybe even a
lover.)

I really wish you all the very best,
john