Re: [QUAD-L] Groin rash

[Cviewer62]

See a doctor, There are creams that you need a prescription for. It is  
treatable. I have had it too. 
 
 
 
 
 
 
In a message dated 10/19/2016 2:54:58 P.M. Eastern Daylight Time,  
lissw...@hotmail.com writes:

Hello everyone,

I hardly ever write here but I read the  emails frequently. This time I 
need help though.
I've had a terrible rash  in my groin/inner thigh area for about 2 months 
now. I have tried different  ointments, corn starch,
Chamomile and nothing works. I'm 10 years post  injury and this has never 
happened to me before. I have no feeling there  but
when I'm being cleaned my body get pain reactions, strong spasms,  chills 
and my face gets really hot.
Anything someone could recommend? Do I  need to see a doctor?

Thanks in advance and best regards to  all.

 

From: g...@eskimo.com
To: quad-list@eskimo.com
Date: Tue, 18 Oct 2016  16:47:43 -0700
Subject: [QUAD-L] Internet

I've been having very  bad internet problems, so I had them come out. I've 
been paying for fast cable  internet. I found out the modem / router they 
put in a long time ago can't  handle those speeds. So Its been slower than it 
should be... Good news is, our  area is one of the first with Gigablast. 
1gbps. And its less than I pay now.  Can't wait.  Greg

=

Re: [QUAD-L] Sore near my tailbone, got to stay off, need advice.

[Cviewer62]

I too had a pressure sore and the wound Doc said to keep  off it. I spent 6 
months in bed and only got up once a week to go to  the wound Doc. It 
finally did heal and I am back in my chair with a Roho cushion  all the time.  
Be 
sure and eat plenty of protein. I did not want to stay in  bed either BUT 
the sore did heal,   Rose
 
 
 
In a message dated 9/21/2016 6:43:58 P.M. Eastern Daylight Time,  
curlyle...@verizon.net writes:

 
Hi,
i have a sore starting  near my tailbone thats having trouble healing 
because im always on it.
My wound doc says i have  to relive the pressure at times by shifting my 
hips side to side.
Even when im sleeping on  my back i have to do that.
He said about a wedge. I  looked online but i think before i order one.
Can you guys please give  me some advice on what you use or used.
Thanks  alot.

[QUAD-L] seat cushions and pressure sores

[Cviewer62]

Has anyone have problems with pressure sores and sliding forward in  their 
chair?
I recently got a Roho Hybrid Elite seat cushion.  For years I have been 
using a regular Roho cushion with no problems . The new  cushion keeps me 
sitting straighter. I didn't realize that I was slouching or  leaning to one 
side 
or another., but now I even feel I am  sitting taller.
I have had a Roho for more than 30 years, I never  had a pressure sore 
while using it For a month or so I used a foam cushion and  got a pressure  
sore.  It took me 6 months in bed but I did get rid of  it. Now I am back on my 
Roho and thought I was doing fine. I have no  pressure sores but feel I am 
doing better with the Elite  cushion.
 When I had a sore I had to stay in bed and keep off my  butt. I went to 
the wound center every week, then home and back to bed for  6 months before it 
was healed. Once I was back on my Roho I got my life back and  was able to 
get out of the house.
Think positive .,, Rose
 

Re: [QUAD-L] Protein

[Cviewer62]

Bobbie, Glad to hear that you went to the wound center for  your pressure 
sore That is something that you do not want to get worse. Call  your Dr. or 
the staff at the wound center to find out what strength you should  take for 
your Vitamin. C and Zinc and how often you should take them. Also if  you 
should take them with meals or not. Next time you go back ask if a nurse  will 
write down the directions for you.  I hope that you will heal quickly  and 
not have to be in bed for 6 months as I was before my sore was healed. Best  
wishes, Rose
 
 
In a message dated 1/28/2016 9:03:01 P.M. Eastern Standard Time,  
bobbiehumphre...@gmail.com writes:

What do  you guys eat for protein when you have a wound?

I have a stage 3  between my A-hole and  vagina ... strange place. On me 
it's very bony.  

Just got back from the wound center. My Doc wants me on vitamin C and  zinc 
but I don't know how many mgs.
How many have you guys taken?  
Bobbie

Smile Everyday

Re: [QUAD-L] New wound

[Cviewer62]

Bobbie, Where is your wound? Have you had a pressure sore in the same spot  
before? I had a pressure wound on my butt and was in bed for 6 months, 
before it  healed.  I don't want another. I sit on a Roho all the time and try 
to  sleep on one side or the other. Do you have your skin checked often? Keep 
us  posted of your condition. Thanks, Rose
 
 
In a message dated 1/7/2016 10:20:50 P.M. Eastern Standard Time,  
bobbiehumphre...@gmail.com writes:

I got a  new wound, over night.
Bamb! Just like that.
It's the size of a nickel  and the depth in a female thumb deep.

My wound Doc is packing it with  Aquacel AG
Has anybody ever used this stuff?

It has silver in it.  It's about 1/4" wide and comes in a roll and you cut 
as much as you  need.

I found spray normal saline to clean the wound.

I'm going  to get a alternating pressure mattress topper for my bed. I want 
4" or  more.
Anybody know of a good one?

Help! I need you guys on this  one.
Bobbie 

Smile  Everyday

Re: [QUAD-L] Fwd: The Comfort Company Adjuster Vicair Cushion vs. Roho Wheelc...

[Cviewer62]

Larry, Have you tried  this cushion?
 
 
In a message dated 12/27/2015 8:05:09 P.M. Eastern Standard Time,  
lwillis82...@gmail.com writes:


You guys know anything about this cushion?
Vicair by comfort company.
Larry Willis  
Retired and proud of it




Begin forwarded message:



From: _lwillis821@yahoo.com_ (mailto:lwillis...@yahoo.com) 
Date:  December 27, 2015 at 8:00:42 PM EST
To: "_lwillis82153@gmail.com_ (mailto:lwillis82...@gmail.com) " 
<_lwillis82153@gmail.com_ (mailto:lwillis82...@gmail.com) >
Subject:  The Comfort Company Adjuster Vicair Cushion vs. Roho Wheelchair  
Cushion!




Check out this video on  YouTube:

http://youtu.be/vEz86ggv8pw


Sent  from my  iPad


=

Re: [QUAD-L] Itchig Head

[Cviewer62]

I took Nexium for a short time until I found out it was making me itchy.  
Everything  When  that I could feel itched...even my eyebrows.  Maybe your 
problem is as simple as a new drug that is causing the problem.
 
 
In a message dated 12/26/2015 12:16:51 P.M. Eastern Standard Time,  
ladyno...@aol.com writes:

Greg, I also suffer  from itchy scalp. I went to the dermatologist and he 
gave me a shampoo to use  three times a week, but it does not stop my head 
from itchy. It itches in the  same spots every time. Sometimes it is so bad I 
have to take a Benadryl. I'm  convinced it's something neurological because 
sometimes even under my arms, my  chest and the top of my back itches very 
bad. I am a C4 quad so if anything  below that point is itching I wouldn't 
know. I cannot reach the top of my head  so I have to have someone else 
scratch me. It's so annoying

Have a Blessed Day,  Naomi


-Original  Message-
From: wheelchair 
To: wheelchair  ; lwillis82153 
;  quad-list 
Sent: Mon, Dec 21, 2015 8:33  pm
Subject: Re: [QUAD-L] Itchig Head


 
Craig Hospital's Hotline   800-247-0257  24 hours a  day.
 
Best Wishes
 
 
In a message dated 12/21/2015 7:29:45 P.M. Central Standard Time, 
_wheelchair@aol.com_ (mailto:wheelch...@aol.com)  writes:

Have you considered calling Craig Hospital's Hotline for SCI and ask a  
nurse.  Its free and you will be working with SCI specialist.  Its  a toll-free 
number and free.
 
 
Best Wishes
 
 
In a message dated 12/21/2015 5:08:16 P.M. Central Standard Time, 
_lwillis82153@gmail.com_ (mailto:lwillis82...@gmail.com)   writes:

Sounds very much like allergy. Try some Benadryl. If that  doesn't help, 
try Claritin, etc. Do you take Percocet? It sometimes  causes itching. Good 
luck, my friend. Larry

-- Forwarded  message --
From: greg <_greg@eskimo.com_ (mailto:g...@eskimo.com) >
Date: Monday, December 21,  2015
Subject: [QUAD-L] Itchig Head
To: _quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) 


My head use to itch so  bad, lots of flakes. I used Crisco or Coconut oil, 
and it helped lots. But  lately my head itches so bad, no flakes, and 
nothing helps. I'm up all  night trying to scratch my scalp. Like bugs, but 
nothings there.  Dermatologist gave me samples of itch free shampoos, but said 
everything  looks fine. I do not think the cold weather is causing it. Never 
has  before. My face too, it's like I have loose hairs tickling my  face.

Can allergies cause that? My left eye is watering bad for 3  days now. I 
flushed it with Visine, and a saline wash, and nothing. The  outside edge gets 
crusty, goopy, and feels like I may have scratched it  rubbing it so much.

Sounds like another doc check up,  Greg

[QUAD-L] something else

[Cviewer62]

I fell out of my wheelchair on Sunday. No blood, No skin  breaks. My 
husband came home about 1/2 an hour later and put me back in the  chair. Monday 
I 
had swelling on my knee and a lot of black and blue so we went  to the 
hospital and found out my leg is broken just below the knee and above a  rod 
that 
was put in years ago. They ( the Doctors) could not operate or put a  cast 
on it so I have some kind of immobilizer that is soft with velcro straps.  
Then they said to get a leg extender for my chair.  Of course none of the  
supply places have them in stock. We did rent a chair with a leg extension but 
 it did not work out because the chair had ridged arm rest and the 
extension did  not come up high enough and the other foot rest was too long. I 
am a 
T9 Para  that could stand a pivot. Now I cannot stand as I cannot put weight 
on my left  foot  as it has to be elevated all the time until it heals (2-3 
months). My  husband found a left leg extension for my chair on ebay and 
ordered it. The  problem is that the extension is in Calif. and we are on the 
east coast. I don't  know how long it will take to get here. Meanwhile he 
has to transfer me without  my foot touching the floor. So far we put pillows 
on the floor and a plastic bag  so my foot will slide but I am afraid my leg 
will twist and cause more problems  or is the pillows and plastic a good 
idea? For an extension now he has made a  wooden frame, covered with towels 
and ties my leg on it to keep it from sliding  off.It is big and awkward and 
scary to use. I hate to think of just staying in  bed until this leg heals as 
I worry about pressure sores. When I am in bed I  have a regular mattress 
but when in my chair I have a Roho but I am waiting  for a replacement on 
that.I sent my old Roho back to the factory and they  called and said it 
could not be repaired. The company I bought it from has  changed hands and the 
sales rep. is on vacation.
I asked the Dr. about the swelling on my leg, black and blue  etc. and he 
told me it will look worse before it gets better.
Hope all of us have a Merry Christmas and a Healthy New Year.  Thanks for 
letting me vent. Rose

[QUAD-L] quad list

[Cviewer62]

Hi, I haven't received any postings from the quad list in the last few  
days. I hope I have not been dropped.  Rose

[QUAD-L] ROHO

[Cviewer62]

 

 
Hi all,  Has anyone bought a roho seat cushion on line? Does Medicare  
cover the cost?  My seat cushion has a leak and I need a new one asap.  I am 
sitting on a solid foam cushion now and I am afraid of developing  another 
pressure sore. The last sore meant 6 months in bed before it finally  
healed.   Thanks,  Rose

Re: [QUAD-L] Ditroplan

[Cviewer62]

I have been on ditropan or the generic for more than 30 years...no  
problems. It still works.I have not had any signs of dementia or other  
problems.  
Rose
 
 
In a message dated 11/4/2015 5:08:13 P.M. Eastern Standard Time,  
e...@teamjeved.com writes:

 My big worry now about Ditropan is recent research showing  it increases 
risk of developing  dementia/Alzheimer's/cognitive health problems. I've  
been taking it for a decade. I was also a long-term  regular user of Benadryl 
for chronic allergies.  Benadryl was identified in that same research as  
another high risk factor.  


All of this becomes  super scary for me, because Alzheimer's runs and  
family. My father is in the late stages of the  disease.


At 48, I have to be  focusing on preventative measures.  with 30 years  of 
quadriplegia under my belt I can't assume I'll be  dead before I get into my 
60s and 70s when Alzheimer's  risk is increasingly common.


I've asked my  urologist for alternatives to Ditropan. he says there are  
some but he has to research them – – that was months  ago.


Have any of you  been on a similar drug that was as effective  as Ditropan? 


Thanks  everybody


Ed




Ed  Tessier 
Mobile: (909)  994-5900

Jeved Management,  Inc. 

On Mon, Nov 2, 2015 at 5:06 AM, Larry  Willis <_lwillis82153@gmail.com_ 
(http://i.link-url.io/?r=MTAwMA0KDQoNCjExMDAwMDAwMDBhY2U2OA0KbWFpbHRvOmx3aWxsaXM
4MjE1M0BnbWFpbC5jb20NCnRydWUNCnF1YWQtbGlzdEBlc2tpbW8uY29t) > wrote:

It  doesn't give me dreams, but the dry mouth is terrible. But it's  a 
trade off - dry mouth or cold sweats. The sweats just kill me.  Can't win.  
 


-- Forwarded message  --
From: greg <_greg@eskimo.com_ 
(http://i.link-url.io/?r=MTAwMA0KDQoNCjExMDAwMDAwMDBhY2U2OA0KbWFpbHRvOmdyZWdAZXNraW1vLmNvbQ0KdHJ1ZQ0KcXVhZC1saXN0QGVza2ltb
y5jb20=) >
Date: Sunday, November  1, 2015
Subject: [QUAD-L] Ditroplan
To: _quad-list@eskimo.com_ 
(http://i.link-url.io/?r=MTAwMA0KDQoNCjExMDAwMDAwMDBhY2U2OA0KbWFpbHRvOnF1YWQtbGlzdEBlc2tpbW8uY29tDQp0cnVlDQpxdWFkLWxpc3RAZXNr
aW1vLmNvbQ==) 


I took  Ditropan for awhile, but it gave me very weird dreams, almost  
panic dreams. I'd wake up startled out of breath.
I had to  stop. Plus a very dry mouth.
Greg


> I take 20  mg ditropan in the morning, then cath at about 7am and  10
> pm. I try to balance fluid intake with that  routine.

Re: [QUAD-L] Skin

[Cviewer62]

Hi Zoo, I too had a pressure sore on my tailbone. It was stage 4, I use  
DIMETHICONE SKIN PROTECTANT.when my skin is dry and cracked. The visiting 
nurse  first used it on me, I cannot find it locally but I can get it on line.  
It  works well. 
Have you tried Butt Paste? The wound center used that on me and it worked  
well. I got it at a local drug store. It is not prescription.
Hope this helps. Rose
 
 
n a message dated 9/25/2015 2:42:48 P.M. Eastern Daylight Time,  
zoocr...@windstream.net writes:
 
 
Many years ago I had a stage 3 pressure sore on my  tailbone. After it 
healed I got something (I thought it was a vitamin A type  ointment/cream) that 
helped toughen the skin. Dermatologist had no idea and  said he didn’t  
think it would have been Vit A.  
Long story short, I have 2 places (1 on each side just  below rear) that 
break down, crack or rub raw from my shower  chair. 
Do any of you know of something to help toughen the  skin? 
Nicki

Re: [QUAD-L] Bowel Blockage

[Cviewer62]

Drinking more water helps a lot. It coats the intestines so the stool  can 
move easier. Yes, I know it sounds like something for a UTI but it really  
helps with constipation.  Rose 
 
 
In a message dated 6/22/2015 5:52:43 P.M. Eastern Daylight Time,  
ddh...@sbcglobal.net writes:

 
Once I got Constipated or had blockage and my doctor ordered some  liquid ( 
I can't remember the name ) but me and wife were laughing because it  
looked  just like the plastic containers that car oil comes in---you know  the 
plastic type with the little neck and pour spout most auto stores sell???  
anyway if anyone or your doc or pharmacist knows what it isit was good  
stuff. Sorry I can't remember it has been a few years ago, but I have never  
seen any meds that looked like an oil container. Dan **





 
 
On Monday, June 22, 2015 4:17 PM, William  Lang III blan...@icloud.com 
wrote:




 
Hello everyone,  


Thank you for your replies. I have taken Miralax,  Senna tea, milk of 
Magnesia, prune juice etc. My Difficulty is caused by the  amount of opiates I 
am 
taking for pain. Right now my regimen includes:


Miralax (double doses when I am constipated as  now)
Bisacodyl • Magic  Bullet and pill form
Over-the-counter stool softeners
 green tea


No results this morning, So I had an enema (three  bags) with minimal 
results (no stool, just brown water). I had an x-ray done  and it just showed a 
lot of stool but no blockage. is it possible that my  lower bowel doesn’t 
work anymore? Has anyone lost their ability to pass  stool?




it’s getting to the point where I am no fun  anymore. (A little CSN  lyric).


10 days and counting








c cC COn Jun 22, 2015, at 4:02 PM, Dollbug  _dollbug314@yahoo.com_ 
(mailto:dollbug...@yahoo.com)   wrote:
 
 


 
 
Hi Bill,


Have you tried Activia (or other probiotic) yogurt,  probiotic pills, bran, 
prune juice, triskets or any of the fiber  bars ? If you haven't you may 
want to try a combination of any of  these.  


Good  luck! 





 
 
On Sunday, June 21, 2015 12:56 PM, William Lang III _blang33@icloud.com_ 
(mailto:blan...@icloud.com)  wrote:



Quad Buddies,

Having trouble with SEVERE  constipation. Blocked up real bad this time, 
enemas don't seem to work.  Getting to the point where AD is an issue. Really 
want a top down  solution. Took Citrate of Magnesia did not help.

Anything I can take to guarantee to make me go?

X-ray showed no blockage just a  lot of stool.

Stopped up in  NJ

Bill Lang via IPAD HD

Re: [QUAD-L] Cruise

[Cviewer62]

yes yes yes do it!
 
 
In a message dated 6/4/2015 8:40:48 P.M. Eastern Daylight Time,  
toby.aus...@yahoo.com writes:

That's  the spirit!!


_Sent from Yahoo Mail for iPad_ (https://yho.com/footer0) 


At  Jun 4, 2015, 7:15:14 PM, Larry Willis wrote:  
A  huge thank you to all my peeps for your input. I believe it's 100% go  
for it! Now gotta grow the onions to act on it!

Larry  Willis
Retired and proud of it

Re: [QUAD-L] Sore on rear end.

[Cviewer62]

I too had a pressure sore in the same place. I had to go to  the wound 
center every week they would  check it and  change the  dressing.  I had to 
keep 
off it by staying in bed most of the day...for 6  months. Also eat plenty 
of protein, meat, eggs, almonds (any nuts) and drink  water. It was awful but 
yes, it finally cleared up. I sit on a Roho to avoid any  more sores and it 
has been over a year since I have any problems.   Rose
 
 
In a message dated 5/17/2015 5:09:43 P.M. Eastern Daylight Time,  
curlyle...@verizon.net writes:

 
I got a sore close to my  tailbone.
My nurse says cover it with gauze and  put silverdine on it everyday. Which 
i have.


What do you guys do when you get  them?.
I use like an egg crate foam on my  chair and can lift myself at times up 
on my elbows.
Dont know why i got a breakdown.
Give me some info please.

Re: [QUAD-L] Weather

[Cviewer62]

I am in Rhode Island . It is very cold The temp this morning was 4 now it  
is up to 18. All week it is supposed to be below freezing. I hate the  cold. 
 Rose
 
 
In a message dated 2/24/2015 2:55:23 P.M. Eastern Standard Time,  
diannal...@aol.com writes:

me too. cleveland ohio. coldest feb on record.  another no school day. not 
because of snow...the temps.

I am here  in Kentucky, a good old SOUTHERN state. We have had over 15 
inches of snow  on the ground for ten days now with single digit temps almost 
every night.  Not supposed to get above freezing until next Saturday. I have 
cabin fever  something fierce! 

Larry Willis  
Retired and proud of it 






-Original  Message-
From: Larry Willis lwillis82...@gmail.com
To:  quad-list quad-list@eskimo.com
Sent: Tue, Feb 24, 2015 1:47  pm
Subject: Fwd: [QUAD-L] Weather


 
I am here in Kentucky, a good old SOUTHERN state. We have had over 15  
inches of snow on the ground for ten days now with single digit temps almost  
every night. Not supposed to get above freezing until next Saturday. I have  
cabin fever something fierce! 

Larry Willis  
Retired and proud of it 




Begin forwarded message: 



Resent-From: _quad-list@eskimo.com_ (mailto:quad-list@eskimo.com)   
From: RONALD L PRACHT  _r.pracht@sbcglobal.net_ 
(mailto:r.pra...@sbcglobal.net)  
Date: February 24,  2015 at 12:03:03 PM EST 
To: Quad-list Post  _quad-list@eskimo.com_ (mailto:quad-list@eskimo.com)  
Subject: Re:  [QUAD-L] Weather 
Reply-To: RONALD L PRACHT  _r.pracht@sbcglobal.net_ 
(mailto:r.pra...@sbcglobal.net)  





 
You do what you have to. I wear a sweater, and a hoody with the  hood 
pulled up in the house. I have an oil filled heater in my room. At  night 
sometimes I do little pushups to get blood circulating more. I would  like to 
be in 
Arizona , but don't know anybody there. 


Ron  




 
 
On Tuesday, February 24, 2015 10:43 AM,  greg _greg@eskimo.com_ 
(mailto:g...@eskimo.com)  wrote:



I see the weather report on the news and think,  man all those poor quads 
in those cold areas. Like half the states under 32  degrees. We in the Phx 
area are about 65 and cloudy this last week. A few  days of 70s coming up, 
then more clouds. At t least we are above freezing.  Even at 67 yesterday, I 
was so cold, then that makes me so stiff and sore. I  have to go out today and 
I'm not looking forward to it. I know this is a  common topic, but this is 
such a cold winter across the country. You guys  below zero, wow. 
Stay warm, Greg  

Re: [QUAD-L] Poop again...of course.

[Cviewer62]

Talk to your doctor and see if you can get a generic drug. I have  found 
the generic work just as well. It is funny now but when I was on Nexium  for a 
very short while and it made me very itchy. It was very embarrassing,  
everything itched  even my eyebrows.  Rose
 
 
In a message dated 1/30/2015 8:35:03 P.M. Eastern Standard Time,  
lwillis82...@gmail.com writes:

Question:  Any of you peeps use or tried Miralax? Does it  help, is it 
reliable? Any accidents? Time to vent -- had my pain pill  prescription filled 
yesterday, 90 pills. The price? Almost $1200! I just about  fell out. There 
are a few words for this, none of which are adequate. Immoral,  unethical, 
sinful, greedy, vile, heartless, disgusting, and a long list that I  shall not 
say. My nexium is nearly as bad. I canceled it. What in God's name  are 
people supposed to do?

Sent from my  iPad

Re: [QUAD-L] Adaptive clothing Websites

[Cviewer62]

Another place for clothes is:  _www.adaptationsbyadrian.com_ 
(http://www.adaptationsbyadrian.com)  They  have great jeans for sitting. Rose
 
 
In a message dated 1/21/2015 3:28:35 P.M. Eastern Standard Time,  
donpric...@yahoo.com writes:

 
Thanks. Great suggestion.


One correction: I said Rolli was a Danish company but  they're actually 
German.


Don.


 
  

 From: Gail Holmes  fgdhol...@cox.net
To:  Don Price donpric...@yahoo.com 
Cc: Quad-list Post  quad-list@eskimo.com 
Sent: Wednesday, January 21, 2015 1:16  PM
Subject: Re: [QUAD-L]  Adaptive clothing Websites



 
Another good resource for pants and  jeans for sitting is:


USA Jeans


_www.wheelchairjeans.com_ (http://www.wheelchairjeans.com/) 


Money back  guarantee:
 
Call Darlene  at _918-770-8820_ ()  or toll free  at _800-935-5170_ ()  to 
order or to ask a question.


Glenn has ordered jeans and  khakis  here for years.
Gail  






Sent from my iPhone

On Jan 21, 2015, at 1:03 PM, Don  Price _donprice63@yahoo.com_ 
(mailto:donpric...@yahoo.com)   wrote:



Hello  All,


I recently found an  adaptive clothing website called Adaptations by 
Adrian. I haven't used their  clothing and I'm not affiliated with them in any 
way; I just wanted to pass  along the info to the group.
_www.adaptationsbyadrian.com_ (http://www.adaptationsbyadrian.com/) 



I  HAVE used the Rolli jeans, made by a Danish company:
_www.rollimoden.de_ (http://www.rollimoden.de/) 


There's  a great guide to adaptive clothing resources (18 of them!) found  
here:
http://www.usatechguide.org/techguide.php?vmode=1catid=599

Don.

[QUAD-L] air pump

[Cviewer62]

Hi all, I recently bought the Roho LTV seat cushion. The  cushion is  fine 
but the air pump does not work. I use my regular Roho cushion air  pump and 
that works. Does anyone else have a problem with the LTV pump?  I  did not 
want to spend the money to send it back  (the pump, not the  cushion) so I 
just use my other pump.
The LTV cushion works great when you want to transfer to a fixed,  
stationary seat and then go back to a regular Roho. 
I am glad the air pump works on both the regular as well as the LTV seat  
cushion. Rose

Re: [QUAD-L] transfer into the front seat of a vehicle

[Cviewer62]

I transfer into the drivers seat  into my Dodge Caravan.  After I  use the 
ramp to get into the van the  seat slides back and then swivels and  I can 
transfer into the seat, swivel back, slide the seat forward  and  drive with 
hand controls. My wheelchair stays in the van so I can use it. With  the 
F150 truck, what do you do with your chair?   Rose
 
 
In a message dated 11/18/2014 9:13:36 A.M. Eastern Standard Time,  
wheelch...@aol.com writes:

powered transfer seats have been around for decades, for passenger  seating.
I see them being used in some Taxi Cabs in Chicago.
 
Best Wishes
 
 
 
In a message dated 11/18/2014 8:09:54 A.M. Central Standard Time,  
swl...@gmail.com writes:

 
might be a long shot, but has anybody here used a vehicle turning seat  to 
get into a the front seat of a vehicle?  Looking at something called  
Freedom Sciences Model 3100, but would need to be for the passenger  side.

Here's a video,
https://www.youtube.com/watch?v=J2bR54o55js

[QUAD-L] quad list

[Cviewer62]

Hi, What happened ? I am no longer on the quad lis. Is it  something with 
AOL? Rose

Re: [QUAD-L] Peristeen

[Cviewer62]

Bob, How often do you use Peristeen?
 
 
In a message dated 7/27/2014 10:04:11 P.M. Eastern Daylight Time,  
rhvsh...@mac.com writes:

Hi Meredith,  


Here is an article I wrote for New  Mobility magazine about the Peristeen 
system.  http://www.newmobility.com/2014/04/peristeen-for-bowel-management/


As a survey of one, I've been using  Peristeen since November 2013.  As 
far as the A.D. issue, I'm a T10  para
so I'm just below the cutoff for  A.D., but it is a very good question and 
one I would discuss with your  doctor. 


The way you go about getting it is to  either ask your doctor and/or nurse 
practicioner about it or write an  email 
to the folks at Peristeen, made by  Coloplast:  
_us-peristeen@coloplast.com_ (mailto:us-perist...@coloplast.com)   Or call Rita 
Ward at Coloplast at:
(612) 337-7856


The entire system is small and fits  into a bag the size of shaving kit 
and/or small woman's purse.  I travel  with my
Peristeen system, it fits easily into  my suitcase and/or carry on bag on a 
plane.


It is designed to be used while  sitting upright--on the toilet.  I use the 
system while sitting on a  standard commode.
I have full use of my hands and  arms--I find it very easy to use.  Setting 
up the system from the box  takes about a 
minute.  It takes about another  minute and a half to fill up the water bag 
with tap water, attach the rectal  catheter.
The next step is inserting the  catheter, filling up the catheter balloon 
and adding water to the colon via  squeezing
a a rubber hand pump.  On  average the entire process--filling the water 
bag with water through pumping  water into
the colon (bowel)--takes me about 4-5  minutes.  Once water is in the 
colon, the catheter is removed and it is a  matter of
sitting and waiting--I find it a good  time to catch up on reading or 
listening to my favorite podcasts.  Time  to empty
the colon (bowel) varies from about  20 minutes to 40 minutes.  For me it 
takes 30 minutes, like clockwork.  Everybody
is different, for some reason I find  I empty in three waves about 
10-minutes apart.  It still amazes me how  much
comes out--at least 3-4 times more  than I've ever managed to empty with 
digital stim, suppositories, or  using 
standard enemas.


Again in my survey of one I give  the system a 10.  Since starting using 
Peristeen in November I have had  zero 
accidents and (despite risking  Murphy's law) for the first time since I 
was injured 29 1/2 years ago, I don't  think or
worry about bowel accidents.  I  also feel much better.  As I wrote earlier 
today, I recently had my  yearly KUB 
(kidney, ureter, bowel) X-ray to  check for kidney stones.  Over the past 
decade or so these X-rays always  included
a statement by the radiologist that  said something like difficult to see 
because of stool, meaning I was full  of
s#%t.  My urology nurse  practicioner showed me my current X-ray and 
compared it to a previous X-ray  and said
you can see that you have much less  stool in this X-ray.  In my old 
X-rays it was easy to see that  my  entire colon
(bowel) was full, even though I had  done a bowel program the morning of 
the X-ray.  In the current X-ray it  is easy to 
see that the 2nd half of my bowel  (1/2 of my transverse colon and my 
entire descending colon=2 1/2 feet of  colon) is
empty.  


Probably way more than you wanted to  know but really important to me.


Bob V



 
On Jul 27, 2014, at 12:02 PM, _jume@comcast.net_ 
(mailto:jume9...@comcast.net)  wrote:



 
How do you go about getting the  Peristeen?  Do you have to sit on a toilet 
to use it? How difficult is  it? I had another evacuation machine (P.I.E.) 
a while back that was just  huge and difficult. It also caused me to have 
A.D. I have seen the video but  I would love some personal reviews.



Meredith







 

From:  Bob Vogel _rhvshark@mac.com_ (mailto:rhvsh...@mac.com) 
To: Bill  Lang _blang33@verizon.net_ (mailto:blan...@verizon.net) 
Cc:  quad-list _quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) 
Sent:  Saturday, July 26, 2014 12:43:54 PM
Subject: Re: [QUAD-L]  Peristeen


Hi Bill,


Thanks for the kudos.  I've been using the Peristeen  system since November 
2013.  It has changed
my life!  No more  accidents, plus I feel much better.  I had an KUB 
(checking for stones  in kidney,
ureters,  bladder) X-ray and my Dr. compared it to my  previous ones--in 
every previous X-ray there
was a notation much of area  is occluded by stool.  In this X-ray the 
entire 2nd half of my large  investing
(bowel) was empty.  Before Peristeen I was literally full  of s#%t.


Bob V


On Jul 26, 2014, at 12:10 PM, Bill Lang wrote:


 Thank you Bob.
 Great article.
 
 I  am waiting on CPC codes for Medicare. Should be coming soon. I am 
expecting  to do training within 3 weeks.
 
 Sent from my iPad
  
 On Jul 25, 2014, at 13:32, Bob Vogel _rhvshark@mac.com_ 
(mailto:rhvsh...@mac.com)  wrote:
  
 Hi Billy,
 
 Here is an column I wrote  about it in 

Re: [QUAD-L] Shoulder

[Cviewer62]

Quadius, When I go to bed at night I use a bean bag (heated in the  
microwave for 45 seconds) on my shoulder, I also use another on my back/ hip  
area. 
They both help me sleep better. I also use a shoulder one during the day  
when it is painful.  A friend made the bean bags for me and they are  great 
and easy to handle. ,   A cortizone shot might work, ask your  Dr. if an 
injection will help bring down the inflamation. I hope this helps.  Rose
 
 
 
In a message dated 5/8/2014 9:53:08 P.M. Eastern Daylight Time,  
quad...@gmail.com writes:
 
I'm probably going to be way off base, but I am unable to move my  arms and 
I find the best solution is to use armrest which support the arm and  
shoulder. I still have shoulder pain, but if I have the proper amount of air  
in 
my cushioned and I'm sitting in the appropriate spot in my chair, the pain  
is minimal.

I know it's more difficult when you drive chair with your  hand, so I don't 
really have an answer there.

A lot of my shoulder pain  is because I have to have the back of my chair 
slightly reclined, because I  get a tremendous amount of bladder pain if I 
sit upright. I feel for you and I  hope you're able to get some sort of relief 
which also improves your quality  of life.
Quadius



On Sat, May 3, 2014 at 4:57 PM, greg _greg@eskimo.com_ 
(mailto:g...@eskimo.com)  wrote:


After going to my  doc and seeing a PT, they think my shoulder pain is 
mostly from being a quad  for 32 years and my muscles are just no longer able 
to 
hold my shoulders in  place. Since being a C/4-5 quad my shoulders have 
always been pretty week.  Soon after my  injury my muscles no longer would hold 
my shoulder  blades in the correct place. They almost touch each other and 
my right  shoulder hangs much lower than my left one. The PT is going to 
look for a  shoulder compression brace. Some days it can hurt so bad I can't 
hardly move  my arm. 
(#%@*  Greg

Re: [QUAD-L] feeling like a bourden

[Cviewer62]

Nadean, People just don't know what they should say or do around you ( or  
us ). After many years I found out you just have to always say THANKS for  
every little thing that anyone does for you. I know it is hard but don't  
complainno one wants to be near a complainer but they do like to be 
thanked.  I have been in a chair for more than 33 years, if someone asks if 
they 
can help,  I will either say no thank you now but maybe later or give them 
some little  task, please get me a drink of water and always say thank you.Yes, 
life is hard,  but be glad of all the things you do haveincluding being 
able to be on this  quad list to vent your problems. I hope this helps, Rose
 
 
In a message dated 4/26/2014 6:10:27 P.M. Eastern Daylight Time,  
nadea...@gmail.com writes:

does anyone feel like everyone even your own family dosent want  to be 
around or hurry up and leave because u need help. im so  alone

Re: [QUAD-L] Jim Lubin on youtube

[Cviewer62]

You are a great guy Jim. Keep up the good work, Rose
 
 
In a message dated 4/22/2014 3:49:33 P.M. Eastern Daylight Time,  
ddh...@sbcglobal.net writes:

 
True- Jim is an inspiration, God has used him in amazing ways..I'm  still 
computer illiterate compared to him, lol. He has accomplished a lot for  a 
total Quad and vent dependant. Thanks for the websites ! Dan  H**



 
 

From: shirley bell  sbell...@cox.net
To:  RONALD L PRACHT r.pra...@sbcglobal.net 
Cc: quad-list@eskimo.com 
Sent: Tuesday, April 22, 2014 1:57  PM
Subject: Re: [QUAD-L] Jim  Lubin on youtube


  
 
Nice, to meet Jim! 
Best,
Shirley Bell
 

-  Original Message - 
From:  _RONALD L  PRACHT_ (mailto:r.pra...@sbcglobal.net)  
To:  _quad-list@eskimo.com_ (mailto:quad-list@eskimo.com)  
Sent:  Tuesday, April 22, 2014 2:01 PM
Subject:  [QUAD-L] Jim Lubin on youtube



https://www.youtube.com/watch?v=zvsnCpXpook




Not sure if this link works, but it was a cool old video with jim on  it.


Ron

Re: [QUAD-L] Fwd: Roho

[Cviewer62]

I have had a Roho for years. I am on my 4th now or maybe even more. This  
laest cushion has a weird cover, one of the cells keeps popping out of the 
front  opening of the cover, Does anyone else have this problem? Can I just 
put a  safety pin in it or sew it up or what? Rose
 
 
In a message dated 4/23/2014 10:20:00 A.M. Eastern Daylight Time,  
wheelch...@aol.com writes:

Thanks Tom!  Glad to read that you are still  around and reading the 
messages.  Keep up the great work you are doing  for this community !
 
Best Wishes
 
 
In a message dated 4/23/2014 9:10:38 A.M. Central Daylight Time,  
t...@roho.com writes:

Here is the link to the page on the ROHO website  containing both written 
and video instruction on cushion set up and  adjustment, including specific 
instruction guides for the QUADTRO SELECT  product. 

http://www.therohogroup.com/proper_adjustment.jsp  

Bobby - if you need any additional and  / or direct support from ROHO in 
terms of getting your ROHO cushion set up  properly, please contact me 
directly. 

Thank you! 

Tom 

Tom  Borcherding
ROHO Inc.
100 N. Florida Ave.
Belleville, IL 62221  USA
t...@roho.com
_www.therohogroup.com_ (mip://01db1448/www.therohogroup.com) 
1-618-277-9173, ext. 2006
toll-free  1-800-851-3449
mobile 314-378-0051 


From:  Larry Willis  lwillis82...@gmail.com   To:  quad-list@eskimo.com,  
 Date:  04/23/2014 06:08 AM   Subject:  [QUAD-L] Fwd:  Roho
 




The bar lets you control air pressure in different  parts of the cushion. 
You push the air around in the cushion then lock it  there with the slider.

-- Forwarded message  --
From: Gmail _bobbiehumphreys7@gmail.com_ 
(mailto:bobbiehumphre...@gmail.com) 
Date: Tuesday, April 22, 2014
Subject: Roho
To: Don  Price _donprice63@yahoo.com_ (mailto:donpric...@yahoo.com) 
Cc: RONALD  L PRACHT _r.pracht@sbcglobal.net_ 
(mailto:r.pra...@sbcglobal.net) , _quad-list@eskimo.com_ 
(mailto:quad-list@eskimo.com)   
_quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) 


I have a Roho cushion that had a  type of slide bar in the front that is 
green on one end and red on the  other. Dose anybody know what it is called 
and how to use that slide  bar? 
Everyday w put air in it and let some out by  tuning the Conner nozzle. 
Bobbie 

Smile  Everyday 

On Apr 22, 2014, at 3:02 PM, Don Price  donpric...@yahoo.com wrote:

I also used a Jay gel cushion my first 25 years before  I got my first 
pressure sore. I then switched to a Roho air cushion and  haven't had any skin 
issues since.  

The Jay cushion is more stable but it amplifies any  bumps, such as 
sidewalk cracks, as you roll over them. The Roho is less  stable for transfers 
but 
much more forgiving and cushy over bumps. Another  interesting thing about 
air cushions is how they are affected by elevation;  when I drive from 
Phoenix to Flagstaff--an increase in elevation of about  6,000 ft--I have to 
let 
air out of my cushion or it becomes too hard. There  are pros and cons for 
each type of cushion. 

FYI, the Roho President monitors this list for any  issues and feedback 
regarding their products. I think that is really cool  and very proactive on 
Roho's part. We, the end users, really know how well  the product works better 
than anyone. 

Don. 




On Tuesday, April 22, 2014 10:05 AM, Gmail  bobbiehumphre...@gmail.com 
wrote: 
I used gel my first 25 years then developed pressure  sores after a 
ryzodomy then I HAD to go to Roho to sit on AND sleep  on. 
Bobbie 

Smile  Everyday 

On Apr 22, 2014,  at 12:45 PM, RONALD L PRACHT r.pra...@sbcglobal.net  
wrote:

I guess Ive been  lucky pressure sore wise. I have been using a jay 2 gel 
since day 1 16 years  ago and Im on my fourth one. Rohos aren't dummy proof. 
You have to  constantly be aware of the air pressure. I also cant stand how 
they are to  transfer out of. That was the reason I picked a gel, they have 
a transfer  section in the front. Any therapist will tell you though if you 
have been  using a certain style cushion for years without 
incident..don't  change it. 




This  e-mail contains information and/or documents from The ROHO Group, 
Inc. Any  files transmitted with it are confidential and intended solely for 
the use  of the individual or entity to which they are addressed. If you have  
received this email in error please notify the system manager. This message 
 contains confidential information and is intended only for the individual  
named. If you are not the named addressee you should not disseminate,  
distribute or copy this e-mail. Please notify the sender immediately by  e-mail 
if you have received this e-mail by mistake and delete this e-mail  from 
your system. If you are not the intended recipient you are notified  that 
disclosing, copying, distributing or taking any action in reliance on  the 
contents of this information is strictly  prohibited.

Re: [QUAD-L] Promising SCI Research

[Cviewer62]

OK, Where is the line to sign up? Count me in. Rose
 
 
In a message dated 4/8/2014 2:27:13 P.M. Eastern Daylight Time,  
donpric...@yahoo.com writes:

 
(CNN) -- At her research lab at the University of  Louisville, 
neuroscientist Susan Harkema turned her back to her study subject  to check a 
reading on 
a computer screen.
Hey Susie, look at this, the patient called out to  her. I can move my 
toe!
 
Startled, Harkema spun around. The purpose of her  study, which involves 
sending electrical stimulation to broken spinal cords,  was to learn more 
about nerve pathways, not to actually make patients  move.
 
That must be an involuntary spasm, she thought. She  asked the patient, Rob 
Summers, to lie down and close his eyes and follow her  commands.
Move your left toe, she said to him -- and he did.  Move your right 
toe, she asked -- and he did.
Paralyzed teen walks at graduation
 
Holy s***! she yelled out loud.


_[continued  in link]_ 
(http://www.cnn.com/2014/04/08/health/paralysis-breakthrough-spinal-cord/index.html?hpt=hp_t2)
 

 
http://www.cnn.com/2014/04/08/health/paralysis-breakthrough-spinal-cord/inde
x.html?hpt=hp_t2

Re: [QUAD-L] Sore

[Cviewer62]

The VAC works for most sores but not on the butt from my experience...it  
made my sore worse.
 
 
In a message dated 3/18/2014 8:24:24 A.M. Eastern Daylight Time,  
wheelch...@aol.com writes:

Hiya Gus.  You can't acquire a wound vac machine.  You  must rent it with a 
doctor's order. Only those who specialize in wound care  and certified on 
the equipment can use it.
Wound Vac equipment, does very well in removing infections while  it closes 
the wound.
I don't know about the protocol in Mexico.
 
Best Wishes
 
 
In a message dated 3/17/2014 10:59:37 P.M. Central Daylight Time,  
gus...@hotmail.com writes:

Hi  all,

I have a sore in my buttock from 2 years ago but not closed,  recently 
acquired a roho cushion for help me.

I hear of the VAC  system.

What think about this?

I'm live in México, can anyone  help me to acquire it?

I'd like someone help me with  suggestiones.

Thanks

Enviado desde mi  iPod

[QUAD-L] trips

[Cviewer62]

Hi, Has anyone been on a trip to Europe? We are going on a cruise. I have  
been on a cruise ship before and the staff and accommodations were 
wonderful. I  had no problem getting around, the cabin was large and all 
doorways 
were plenty  big enough for my chair.  I am wondering about when we dock, are 
streets  all cobblestones and how about attractions? We are going to the 
Baltic so will  stop in Copenhagen and St. Petersburg among other places. I 
just 
want to know  what difficulties I might run into. Thanks in advance for any 
help.   Rose

Re: [QUAD-L] exercise question

[Cviewer62]

Hi Larry,  My OT has me doing some exercises during the day for my  
shoulder...swing my arm pendulum style ( swinging slowly back and forth )  
about 3 
sets of 5 several times a day. also and this seems to help the  most is 
while in bed raise your arm up past your ear without bending the  elbow. This 
is 
easier while laying down because gravity helps. I try to do these  every 
day but mostly it is several times a week except for the ones while lying  
down. Rose
 
 
In a message dated 3/16/2014 10:37:45 P.M. Eastern Daylight Time,  
lwillis82...@gmail.com writes:

How many  of you guys have a daily exercise routine? I know I should, but I 
don't. I'm  just wondering if it would help my sore shoulder joints. If you 
have one, what  do you do?
Larry 

Re: [QUAD-L] Cushion

[Cviewer62]

I have had good luck with a RO-HO for over 30 years.   Rose
 
 
In a message dated 2/11/2014 6:49:28 P.M. Eastern Standard Time,  
gus...@hotmail.com writes:

Hi  all,

I'm a quad C5 for 8 years.

I need a cushion because I've  pression sore.

Can you tell me what is the best  cushion?

Thanks.

Enviado desde mi  iPod

Re: [QUAD-L] Days in bed 2013

[Cviewer62]

I had a wound vac for my butt sore. It made my sore worse. I  ended up 
staying in bed for 6 months before it finally healed
 
 
In a message dated 1/28/2014 6:16:13 P.M. Eastern Standard Time,  
g...@eskimo.com writes:

I asked about the Wound Vac for my butt  sore. My doc said he has not had 
alot of success with the Vac on butt  wounds.
Greg



 you should be able to go  out patient and get the wound vacuum and
 have a visiting nurse  take care of it. I got mine  while

Re: [QUAD-L] Shin sore?

[Cviewer62]

could be just dry skin. A little cream put on twice a day ( morning and at  
bedtime) may cure your shins as it did my feet.  I  use  Eucerine (sp) or 
Hydrocerin.Rose
 
 
In a message dated 1/27/2014 12:07:52 P.M. Eastern Standard Time,  
todd.daughe...@gmail.com writes:

I am C-6 and do nothing in my daily activities that touches my  shins, but 
have noticed on both some sores that scab over but never really  heal.  Has 
anyone experienced anything like this?  


Todd 

Re: [QUAD-L] Misc.

[Cviewer62]

 
Same place I had my sore. The wound vac. made it worse. The  only way to 
heal it is to keep off it completely. It took me 6  months but it did heal. I 
would go to the wound clinic once a week. It was so  slow but it worked. I 
still keep off it when I can, but now that it is healed I  am up most of the 
day and I use a roho in my chair all the time. The clinic  always said to 
eat lots of protein. I tried not to eat big meals and I did loose  weight and 
when hungry I ate a few almonds.  I hope this helps.   Rose
 

 
In a message dated 1/22/2014 8:29:27 P.M. Eastern Standard Time,  
lwillis...@yahoo.com writes:

I made the  comment several months ago that Jim Lubin was a hell of a man. 
I think my  point is proven. Jim, I wish I had half your willpower and  
strength.
Regarding a wound vac, they work great if you can keep them  sealed. I have 
a sore on my tailbone that won't heal. It's right at the top of  my butt 
crack though, and it's just impossible to seal across the valley. All  
suggestions welcome.

Sent from my  iPad

Re: [QUAD-L] Re: quad site

[Cviewer62]

To loose weight just eat less. It is the amount you eat that  causes weight 
gain. Omit the extra helping. Eat at the table with friends or  family, you 
will enjoy the meal and not realize you are eating less.   Rose
 
 
In a message dated 1/18/2014 4:25:40 P.M. Eastern Standard Time,  
bobbiehumphre...@gmail.com writes:

I've BEEN on a very low carb diet for 1 1/2 years and haven't lost an  
inch. 
What exactly are you not eating?Bobbie 

Smile  Everyday

On Jan 18, 2014, at 1:27 AM, Dana Wray _daanoo@aol.com_ 
(mailto:daa...@aol.com)  wrote:




Hi Patricia,
Congratulations, way to go!
 Dana

Sent from my iPhone

On Jan 17, 2014, at 5:08 PM, Patricia Brown-Tulee _plbis@yahoo.com_ 
(mailto:pl...@yahoo.com)  wrote:




 
I've lost 3 inches on my stomach living very low carb for 6  months, 
patience is hard though

 
Patricia L.
_PLBis@yahoo.com_ (mailto:pl...@yahoo.com) 



while adding years to your life, add life to your years



 
On Friday, January 17, 2014 11:22 AM,  Nan _nlg52352@yahoo.com_ 
(mailto:nlg52...@yahoo.com)   wrote:


 
 
 
I've had bronchitis and haven't been online.  Actually,  haven't done much 
of anything ... starting to feel human again!  Thank God.






 
On Thursday, January 16, 2014 6:58  PM, KK Batte _kkbatte@outlook.com_ 
(mailto:kkba...@outlook.com)  wrote:


   
 
Sorry guys but I got sick with flu type illness  Christmas.  Finish the 
antibiotics tomorrow  still not  better.  GRRR!!

KKB


  

 Date: Thu, 16 Jan 2014 11:24:16 -0800
From: _scamper2695@att.net_ (mailto:scamper2...@att.net) 
Subject: Re: [QUAD-L] Re: quad site
To: _wheelchair@aol.com_ (mailto:wheelch...@aol.com) ; _Gah17582@aol.com_ 
(mailto:gah17...@aol.com) 
CC: _quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) 

Their  either out and about or frozen in snow with no internet or just to 
cold to  get out of a nice warm bed





 
  

 From: _wheelchair@aol.com_ (mailto:wheelch...@aol.com)  
_wheelchair@aol.com_ (mailto:wheelch...@aol.com) 
To: _Gah17582@aol.com_ (mailto:gah17...@aol.com)  
Cc: _quad-list@eskimo.com_ (mailto:quad-list@eskimo.com)  
Sent: Thursday,  January 16, 2014 10:17 AM
Subject: [QUAD-L] Re: quad site



 
Not much happening here Glenn.  I suppose that summer came early  this year 
and everyone is out n about trying to improve their  suntans.  Hope you are 
ok.
Best Wishes
 
 
In a message dated 1/16/2014 12:12:28 P.M. Central Standard Time, 
_Gah17582@aol.com_ (mailto:gah17...@aol.com)  writes:

Hey Wheels,
 
Has the quad site have many posts over the past 2 weeks?
 
I'm not getting anything.  Isn't there a way to look at  archives?
 
Thanks,

Glenn Henry





































=

Re: [QUAD-L] Wound centers

[Cviewer62]

Mostly it is important to keep off the pressure sore  COMPLETELY. Not just 
an hour here and there also eat lots of proteinnuts are  a good snacking 
food for extra protein. Good Luck, it took 6 months but mine  finally 
healed. Rose
 
 
In a message dated 1/16/2014 10:31:50 P.M. Eastern Standard Time,  
bobbiehumphre...@gmail.com writes:

Hi  All,
I'm going to a new wound center (new to  me) and was wondering if there are 
any do's  don'ts when I go? This  center is also one of the top burn units 
in New Jersey.
I've had a stage 2  sore on my Ishium for over 3 months. Sometimes it Ozzis 
clear then it bleeds.  I know that bleeding is a good sign.
I got this sore September 25th after  siting in a brand new chair for about 
5-6 weeks. I we extremely active in this  new chair because I was so 
very comfortable. I've only been up out of bed  once since the above date.
On top of my mattress I lay on a Roho mattress  which has served me well 
(over 15 years) but now I believe it is time for an  alternating pressure pad 
with pump to put on top of my mattress. I've been  doing quite a bit of 
research on different brands and styles. Does anybody  have any recommendations 
or something to stay away from?
Bobbie ~ starting  to go a little nuts here

Smile  Everyday

Re: [QUAD-L] Check out these Wheelblades

[Cviewer62]

Yes, It would be nice to wheel across the sandy beach. Rose
 
 
In a message dated 1/4/2014 5:47:25 P.M. Eastern Standard Time,  
sbell...@cox.net writes:

I need  something that will help get through sand on beach. not a beach 
chair. any  ideas? maybe these wheelblades would help?
Best,
Shirley  Bell

www.ShirleyBellDesigns.com
- Original Message -  
From: Gmail bobbiehumphre...@gmail.com
To:  quad-list@eskimo.com
Sent: Saturday, January 04, 2014 4:52  PM
Subject: [QUAD-L] Check out these Wheelblades


  http://wheel-life.org/wheelblades-offer-winter-mobility-wheelchair/

  I saw these on line and absolutely LOVE them!Bobbie


 Smile Everyday
  

Re: [QUAD-L] Very, very cold tonight

[Cviewer62]

Here in R.I. we did not get quite as much snow but we certainly have  the 
cold temps. Right now the temperature. is 6.  Rose
 
 
In a message dated 1/3/2014 6:23:42 P.M. Eastern Standard Time,  
poaj...@sbcglobal.net writes:

I was  thinking of you guys in the northeast this morning looking at the
weather.  Just keep warm, and leaves the roads to the rest of the idiots who
think  they HAVE TO be somewhere even in a snowstorm. 

-Original  Message-
From: Gmail [mailto:bobbiehumphre...@gmail.com] 
Sent:  Friday, January 03, 2014 1:47 PM
To:  quad-list@eskimo.com
Subject: [QUAD-L] Very, very cold  tonight

Hi All,
Here in Northern New  Jersey we got 8 inches of snow overnight today's
high is 15 and tonight  it's going to be -11 Bobbie 

Smile  Everyday

[QUAD-L] (no subject)

[Cviewer62]

Subject: BUDWEISER Commercials
To: 





 
 
 
 
I'm sure you've  seen these before, but they're so well worth watching 
again, particularly as a  full package! 
 
 
 
 




 
 
 

 
 
 
 
 
 
 
BUDWEISER  Commercials


 
 
 
 

 





 
I had forgotten how wonderful these Budweiser  commercials are and how they 
just make you feel good.  Enjoy!




 
Just a great collection of super  commercials. 




 
_www.youtube.com/embed/g77TQx2ZvE0?feature=player_detailpage_ 
(http://www.youtube.com/embed/g77TQx2ZvE0?feature=player_detailpage) 







 


 
 

Re: [QUAD-L] Posts?

[Cviewer62]

I do not have a SP, I have a Foley. Wed. my primary Dr. sent  me to the 
hospital. I came out of the hospital today. Not a great way to spend  
Thanksgiving. I had chills, fever, and was vomiting. After many tests it was  
found 
out that I had a UTI. It took that long to get the  culture results from the 
lab as I had more than 1 infections. I did not know  that you would vomit 
from a UTI. Now I have to be sure and drink lots of water  to keep hydrated.  
One sign that I did not pay any attention to was that my  urine stunk. So to 
all of you be sure and pay attention to your body. Not  feeling if your 
urine burns is not the only way to tell if you have a UTI. Be  sure and drink 
and also get plenty of rest. 
Best Wishes,  Rose
 
 
In a message dated 11/29/2013 9:05:28 A.M. Eastern Standard Time,  
wheelch...@aol.com writes:

Now that is strange as SP are suppose to reduce or eliminate  infections.   
Standing therapy helps to empty the bladder and  reduces the chance of 
infections, as urine doesn't pool when standing.   An acidic bladder also helps 
to reduce the chance of infections.
Best Wishes
 
 
In a message dated 11/29/2013 7:38:48 A.M. Central Standard Time,  
gentr...@yahoo.com writes:

Thanks. :) He does/is. He has a suprapubic cath so infections are too  
common. Hoping he can eventually go back to a condom cath---less infection  and 
maybe this terrible and constant burning since 2006 will stop. It rules  our 
life.

All my  best, 
Gentrie  Pool









On Nov 29, 2013, at 7:22 AM, _wheelchair@aol.com_ 
(mailto:wheelch...@aol.com)  wrote:



 
Our best to your husband. and to you.  I hope he is taking  his meds as 
he flushes his kidneys and bladder.
Best Wishes
 
 
In a message dated 11/28/2013 11:18:29 P.M. Central Standard Time, 
_gentrier@yahoo.com_ (mailto:gentr...@yahoo.com)  writes:

My husband (c5/6 since age 17 in 1992) has been fighting a serious  
pseudomonas infection in his bladder for two weeks...(heightening his  central 
neuropathic pain in his bladder which he has had 24/7/365 since  2006.) Been 
very rough and scary. Today was the best day he's had in two  weeks though. :) 

All my  best, 
Gentrie  Pool










=

[QUAD-L] Clothes, mittens etc made for the disabledl

[Cviewer62]

Hi, I thought I would pass on this site for anyone that is  looking for 
adaptive clothing. The site is : _www.adaptationsbyadrian.com_ 
(http://www.adaptationsbyadrian.com) . Their  phone number is: (760 ) -744-3565 
 
. You might want to say you got their name from me.. (not that  it makes 
any difference).Rose
 
 
 
In a message dated 11/21/2013 10:26:07 P.M. Eastern Standard Time,  
bobbiehumphre...@gmail.com writes:

Very interesting, thanks.   Bobbie 




Smile Everyday

On Nov 21, 2013, at 4:25 PM, Todd Daugherty _todd.daugherty@gmail.com_ 
(mailto:todd.daughe...@gmail.com)   wrote:




Here are the regs for employment of workers with disabilities.  I didn't 
realize this existed..  


http://www.dol.gov/whd/regs/compliance/whdfs39.pdf




On Thu, Nov 21, 2013 at 4:17 PM, Aaron Mann _amann72@gmail.com_ 
(mailto:aman...@gmail.com)  wrote:


Well, you've got to look at it from the employers point of  view.  Minimum 
wage is $7.25/hr.  That is for one hour of 100%  of the expected work at 
100% efficiency.  Say you have a cognitive  disability that prevents you from 
being able to reach 100/100, you can  only perform 50% of the expected work 
within an hour at 80%  efficiency.  The employer should be able to say, OK, 
I'll hire you  for $4/hr for 20 hours a week.  To me, this is MUCH better 
than  saying, No, you're not hire able because you will never meet the standard 
 bar.



Make sense?




Aaron Mann

 


On Thu, Nov 21, 2013 at 1:10 PM, RONALD L PRACHT  _r.pracht@sbcglobal.net_ 
(mailto:r.pra...@sbcglobal.net)  wrote:


 
Ive had job offers at the police academy and the organization  I swim for. 
When I asked how much they pay I was told just come in and  start and we 
will discuss it. Somehow I remember that never being the  case b4 I was 
disabled. I was always told a starting wage when I was a  walking man. Even 
sears 
offered me a job without discussion of pay. Oh  well it is what it is.
 
Ron



 
 

From: Todd Daugherty _todd.daugherty@gmail.com_ 
(mailto:todd.daughe...@gmail.com) 
To: quad list _quad-list@eskimo.com_ (mailto:quad-list@eskimo.com)  
Sent: Thursday, November 21, 2013  11:02 AM
Subject:  [QUAD-L] Not so Goodwill



http://www.upworthy.com/words-like-good-and-will-dont-belong-together-if-thi
s-is-the-kind-of-thing-they-do-5

Re: [QUAD-L] Weight and fasting

[Cviewer62]

I have had very good luck with just eating smaller portions.  If I get 
hungry during the day I just snack on a few almonds. Rose
 
 
In a message dated 4/25/2013 9:32:34 P.M. Eastern Daylight Time,  
quad...@gmail.com writes:

Nan, 
I don't think I crafted my response very well. I'm not a  believer in 
fasting too much when it comes to be a quadriplegic. I guess  that's because I 
have had problems with hypoglycemia, so I believe more in  reducing portions 
and trying to minimize meals a day later if I had the larger  than normal 
meals.

Instead of fasting, you might want to think about  doing one of those 
liquid meals like Boost or something like that where you  still get the proper 
amount of protein instead of giving up completely on  eating a certain meal on 
a certain day.

I hope you're able to achieve  some weight loss. Not getting discouraged is 
very important. I have found that  after reducing portions for a while I 
tend not to eat as much as I used to. I  have also found is easier to eat less 
if I use smaller plates. It is  psychological, but it works effectively for 
me.

Interestingly enough, I  was watching a show a couple of months ago where 
the guy was perplexed as to  how the previous owners of his house were able 
to put plates in their  cupboards. He had purchased an extremely old house 
and come to find out people  didn't use large place like we do now 30 or 40 
years ago. Just going out to  eat in many restaurants is difficult if you're 
the type of person who likes to  eat everything on your plate as I was taught 
when I was young. Now I force  myself to quit whenever I get a little 
inkling that I am satisfied. I have  found that after about 10 minutes of 
become 
full and I don't need to beat the  rest of that food. Being an individual 
who is a penny pincher, I still take  home the food, but at least I haven't 
overeating.

Good luck.



On Tue, Apr 23, 2013 at 11:19 PM, Nan _nlg52352@yahoo.com_ 
(mailto:nlg52...@yahoo.com)  wrote:


 
Thanks Quadius. I needed to hear that it really can work! I get  so 
discouraged because I can't see results ... then I give up, again and  again.  
I'll 
go back to limiting those bad carbs again starting in  the morning,


Nan








 
 
  

 From: Quadius  _quadius@gmail.com_ (mailto:quad...@gmail.com) 
To: Larry Willis _lwillis821@yahoo.com_ (mailto:lwillis...@yahoo.com)  
Cc: quad-list _quad-list@eskimo.com_ (mailto:quad-list@eskimo.com)  
Sent: Tuesday, April 23, 2013 6:52  PM
Subject: Re: [QUAD-L]  Weight and fasting





I have been trying to minimize meals off and on for the last  couple of 
years. I have managed to loss a pretty sizable amount, but I still  have my 
mini quad belly. I need to loss a couple of more pounds of my belly  so that my 
bladder doesn't hurt as much when I sit up. I sometimes eat a big  meal for 
a day or two and then try to eat a little bit less the next few  days.

My greatest accomplishments in the weight loss department have  occurred 
when I have been able to minimize my carbs significantly. This  isn't easy for 
us, but it does help a lot. Eating a lot more salad and other  vegetables 
in place of pasta or bread will help you shed the pounds pretty  quickly.

Quadius
PS I'm having some trouble with microphones  again, so there might be a few 
more errors than normal.



On Thu, Apr 18, 2013 at 2:41 PM, _lwillis821@yahoo.com_ 
(mailto:lwillis...@yahoo.com)  wrote:

I  know a lot of us have a problem with quad guts, weight, and digestion.  
I've been watching videos on intermittent fasting and alternate day  
fasting. Many people swear that they lose weight and feel much better  doing 
it. I 
know my belly seems to grow a bit every day. I think I'll give  fasting a 
try. If you have time, check it out on YouTube and share your  thoughts. I do 
know that when I eat a big meal, I suffer for 3 days.  Thanks, Larry

Sent from my  iPad

[QUAD-L] pressure sores

[Cviewer62]

Hi, I have a pressure sore that my husband changes the dressing twice  
daily. The wound ceter says keep it dry and keep off it. Any other ideas?  Rose