Re: [QUAD-L] Supra Pubic Change
I'm trying to find another catheter my doctor doesn't like the silicone catheter I've been using. My UTI's are better, but they are so stiff. He says could be some of my problems when changing it and stuff. So, are the silver coated better and less stiff? Gina Greg [EMAIL PROTECTED] wrote: How many of you that use a Foley catheter use the silver coated ones I use the Bardex IC (Infection Control) 16fr. It says it has a silver coating. I tried the Latex clear one, but it was so stiff, I was sweating within minutes. Greg
RE: [QUAD-L] Supra Pubic Change
I've been tryin to find out what their exactly made of. Can u help me ? I've
found out their good bout keepin UTI's down..
Gina
Greg [EMAIL PROTECTED] wrote:
v\:* {behavior:url(#default#VML);} o\:* {behavior:url(#default#VML);}
w\:* {behavior:url(#default#VML);} .shape {behavior:url(#default#VML);}
st1\:*{behavior:url(#default#ieooui) }I think the silver ones
are much better, certainly much softer. No way can I use those hard silicone
ones. I start sweating the second they are inserted.
Greg
-
From: gina [mailto:[EMAIL PROTECTED]
Sent: Friday, August 15, 2008 10:48 AM
To: Greg; quad-list
Subject: Re: [QUAD-L] Supra Pubic Change
I'm trying to find another catheter my doctor doesn't like the silicone
catheter I've been using. My UTI's are better, but they are so stiff. He says
could be some of my problems when changing it and stuff.
So, are the silver coated better and less stiff?
Gina
Greg [EMAIL PROTECTED] wrote:
How many of you that use a Foley catheter use the silver coated ones
I use the Bardex IC (Infection Control) 16fr. It says it has a silver coating.
I tried the Latex clear one, but it was so stiff, I was sweating within
minutes.
Greg
[QUAD-L] Have ya'll seen this?
In activeforever.com Its a Endres Akkulift Auto Bath Lift. It looks cool they have different types, but was wondering if anyone has used one... it's a bath chair for bathtubs that lifts up and down in a bathtub.. Gina
Re: FW: [QUAD-L] Getting Supra Pubic in 3 weeks
I use a silicone, because I found out I'm allergic to latex. I have alot less problems with silicone, but with what you described I might be allergic to the silicone, but not as bad as latex I know of no other catheters that I can use. Does your insurance pay for the Saline solution? I use a 24 french and 10cc or I should say thats what the doctor uses.,.I get him to change it once a month if I go much longer than that it feels like he's ripping out my guts.. what do ya'll irrigate with? Gina Quadius [EMAIL PROTECTED] wrote: The main reason I asked about the type of catheter is because I discovered about 10 years ago that I am allergic to the silicone products. I first noticed it when I had a silicone trach to which my skin became adhered. Ear nose and throat had to rip the trach right out of my neck and finally got them to agree to do reconstructive surgery about five or six years later. When I have a silicone catheter in my body, my bladder spasms profusely, I feel like I have a terrible UTI, the stoma tries to adhered itself to the catheter, and there are excessive amounts of calcification on the end of the catheter when it is removed. I now only use latex catheters with a little bit of silicone coating. According to my care providers, this is an abnormal allergy, but I thought I'd let you know about it since you're, seems to close around your catheter. Quadius On 4/15/08, Merrill Burghardt [EMAIL PROTECTED] wrote: I use 10 cc's of natural saline. I daily apply triple action antibiotic gel, but when the SP is first installed it will generally leak for a few days. The type used is a 24 French. Mine was a headache for several days. I even thought it was a mistake but it was worth it. Merrill - From: Quadius [mailto:[EMAIL PROTECTED] Sent: Tuesday, April 15, 2008 12:39 PM To: gina Cc: quad-list Subject: Re: [QUAD-L] Getting Supra Pubic in 3 weeks Gina, How much sailing are you putting into the bulb? I used to have a problem with the SP leaking if I put in 5 cc, but I now put in anywhere from eight to 10 cc. What type of catheter are you using, i.e. silicone or latex? Quadius On 4/15/08, gina [EMAIL PROTECTED] wrote: Hi, I've had a SP for about 3yrs now and it is better. I get mine changed every month the only problems I really have with mine is it leaks some but when I get it changed it hurts some because my body heals so fast that it tries to heal itself around the catheter and I get alot of calcium built up around the end of it. But I am glad I did it the UTI's are alot less. And it is great to have that area down below free... I hope it all goes well with yours... Gina
RE: [QUAD-L] Getting Supra Pubic in 3 weeks
Hi,
I've had a SP for about 3yrs now and it is better. I get mine changed every
month the only problems I really have with mine is it leaks some but when I get
it changed it hurts some because my body heals so fast that it tries to heal
itself around the catheter and I get alot of calcium built up around the end of
it. But I am glad I did it the UTI's are alot less. And it is great to have
that area down below free... I hope it all goes well with yours...
Gina
Tim Syfert [EMAIL PROTECTED] wrote:
Thanks Merrill for your SP input.
Tim
http://THEQUADLINK.COM
Merrill Burghardt [EMAIL PROTECTED] wrote:
v\:* {behavior:url(#default#VML);} o\:* {behavior:url(#default#VML);}
w\:* {behavior:url(#default#VML);} .shape {behavior:url(#default#VML);}
st1\:*{behavior:url(#default#ieooui) }My SP is 15 years post
injury. The doctors always tried talking me into switching but it was just to
strange to me. Now I am part of the club, Best thing Ive ever done. In the
last two years I might have had three small UIS, where in Texas there would be
three every four months.
I have it changed every six months, clean daily with natural saline solution
then apply small film of triple action antibiotic ointment. SP + H2O=0 UTIs.
When one is suspected I push fluids which generally clears it up. If still
suspected I am successful with UTI Clear and Colloidal Meso Silver for four
days.
Be sure to tape and lock SP secirly to your leg, and leave a small loop
between sight and tape. The lock last for about a week. Do you know how your
urethra is closed to prevent Willy leaking? Some people say just introducing
the SP to the body invites bacteria. I do not know because I am opposite.
Finally, one for the good guy. Feels great to be writing this.
Merrill
-
From: Tim Syfert [mailto:[EMAIL PROTECTED]
Sent: Saturday, April 12, 2008 8:00 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] Getting Supra Pubic in 3 weeks
Every once in awhile the top of Willy's head would get a little raw because
of being wrapped up in a Texas cath so much of the time so it will be nice to
'free Willy' and get rid of his sausage costume.
Tim
http://THEQUADLINK.COM
John S. [EMAIL PROTECTED] wrote:
Sorry to loose you from the Texas club, Tim. I hope you do well with
your choice.
john
- Original Message
From: Tim Syfert [EMAIL PROTECTED]
To: quad-list@eskimo.com
Sent: Saturday, April 12, 2008 9:36:38 PM
Subject: [QUAD-L] Getting Supra Pubic in 3 weeks
After 35 years of using external caths, I'll be getting a supra pubic in 3
weeks because my bladder just hasn't been draining well in awhile now. Those of
you with SP's, do you have any advice, tips, input, etc. for this soon to be SP
rookie?
Thanks,
Tim
http://THEQUADLINK.COM
__
Do You Yahoo!?
Tired of spam? Yahoo! Mail has the best spam protection around
http://mail.yahoo.com
__
Do You Yahoo!?
Tired of spam? Yahoo! Mail has the best spam protection around
http://mail.yahoo.com
__
Do You Yahoo!?
Tired of spam? Yahoo! Mail has the best spam protection around
http://mail.yahoo.com
Re: [QUAD-L] low BP....
Yes, I have Low Low Blood Pressure.. My doctor makes me go see him every month to keep a checkon it.Ive had it as low as 68/42.. highest I can get it without having A.D. is 102/78 and remember pain meds will lower your blood pressure too I take midrodrine 5mg 3 times a day...Also the doctor suggested to intake a lil extra salt it will help just becareful cause to much will cause more swelling/ bloating. Gina Quadius [EMAIL PROTECTED] wrote: I also have a problem with chronic low blood pressure. If I know I'm going to be traveling somewhere and I need to eat before I leave (have difficulty with hypoglycemia) I take ephedrine. I don't like to use it too often because it causes my heart to beat excessively. Once I am adjusted to being in the chair, sometimes can take an hour or two depending on how much I have eaten, I don't have too much difficulty, even without ephedrine. Talk to your doctor if you're concerned about low blood pressure. Quadius On 3/31/08, t crook [EMAIL PROTECTED] wrote: Do any of you take meds for low blood pressure? Thanks- Tim c5-c6, 19 1/2 yrs. post Here are some links to check out if you are bored. my UPDATED quad site www.geocities.com/onemofortom jewelry site http://www.whoopiekat.com/ our NEW MySpace site http://www.myspace.com/whoopiekatjewelry YouTube videos http://www.youtube.com/user/whoopiekatjewelry - Like movies? Here's a limited-time offer: Blockbuster Total Access for one month at no cost.
[QUAD-L] Does anyone have hip problems
I was asked yesterday if I ever dislocated my hip. I told them not that I knew, but my hip does pop sometimes, so we continued talking about it and they told me that I have a dislocated hip but its not bad yet, but I could never use a standing thingy, because if I did it would dislocate it. I wasn't planning on using one anyway, but I was glad that they told me. I was just wondering if anyone else has been told that their hip was dislocated or that their muscles or ligaments wasn't holding their hip in anymore and what can you do about it? Gina
Re: [QUAD-L] Supra-Pubic Sizes
Hi, I use a 24 french supra pubic too my urologist picked it because I had so
many probelems w/ my catheter before, he said it wouldn't clog as easy, but I
also use a silicone instead of latex i still get some uti's but not like before
at all..
gina
Liz Treston [EMAIL PROTECTED] wrote:
v\:* {behavior:url(#default#VML);} o\:* {behavior:url(#default#VML);}
w\:* {behavior:url(#default#VML);} .shape {behavior:url(#default#VML);}
st1\:*{behavior:url(#default#ieooui) }
Merrill, you have had the same cath in for over a year?
-
From: Merrill Burghardt [mailto:[EMAIL PROTECTED]
Sent: Sunday, February 17, 2008 5:34 PM
To: quad-list@eskimo.com
Subject: 1FW: [QUAD-L] Supra-Pubic Sizes
!4! I use the 24 French also but I am having a talk soon. The 14 Fr doesnt
leek or clog? Do most people change this monthly?
With the condom cath I had UTIs near bi-monthly. Since the SP I had one in
the year since having the SP.
Merrill
-
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]
Sent: Sunday, February 17, 2008 11:24 AM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] Supra-Pubic Sizes
the Fr stands for French and is in millimeters which, in reality means
'circumference' as opposed to the way we Americans usually measure such things
by diameter. therefore 21 Fr = 7mm diameter (=0.27 inches).
az dave
In a message dated 2/17/2008 8:45:14 A.M. US Mountain Standard Time, [EMAIL
PROTECTED] writes:
Hi, I use a number 24 frenchin over 8 years it has only clogged 3
times. I'm not sure how the number size works... Is the lower number or
higher the smallest?
Dan H.
Dan [EMAIL PROTECTED] wrote:
14 french. They are not supposed to hurt. I would get on your urologists
case about this.
Dan
At 09:26 PM 2/16/2008 -0800, Merrill Burghardt said something that elicited my
response:
. What size Supra Pubic do people use? I realize this may come off as a
personnel question Mine still bleeds and hurts bad post April and I started to
wonder.
Merrill
Dave Visit My Home Page
-
Delicious ideas to please the pickiest eaters. Watch the video on AOL Living.
Re: [QUAD-L] Supra-Pubic Sizes
Dan,
the 24 is bigger so it won't clog as easy and the silicone is better for me
cause i found i was allergic to the latex, also it seems easier to irrigate
when you need to, but it is stiffer than the latex one. Ive had less utis since.
gina
Danny Hearn [EMAIL PROTECTED] wrote:
Gina, did the 24 french help reduce your UTIS or using the Silicone??? I
have never tried silicone, only the latex but I have pretty much UTI trouble.
Thanks, Dan
gina [EMAIL PROTECTED] wrote:
Hi, I use a 24 french supra pubic too my urologist picked it because I had so
many probelems w/ my catheter before, he said it wouldn't clog as easy, but I
also use a silicone instead of latex i still get some uti's but not like before
at all..
gina
Liz Treston [EMAIL PROTECTED] wrote:
v\:* {behavior:url(#default#VML);} o\:* {behavior:url(#default#VML);}
w\:* {behavior:url(#default#VML);} .shape {behavior:url(#default#VML);}
st1\:*{behavior:url(#default#ieooui) }
Merrill, you have had the same cath in for over a year?
-
From: Merrill Burghardt [mailto:[EMAIL PROTECTED]
Sent: Sunday, February 17, 2008 5:34 PM
To: quad-list@eskimo.com
Subject: 1FW: [QUAD-L] Supra-Pubic Sizes
!4! I use the 24 French also but I am having a talk soon. The 14 Fr doesnt
leek or clog? Do most people change this monthly?
With the condom cath I had UTIs near bi-monthly. Since the SP I had one in
the year since having the SP.
Merrill
-
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]
Sent: Sunday, February 17, 2008 11:24 AM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] Supra-Pubic Sizes
the Fr stands for French and is in millimeters which, in reality means
'circumference' as opposed to the way we Americans usually measure such things
by diameter. therefore 21 Fr = 7mm diameter (=0.27 inches).
az dave
In a message dated 2/17/2008 8:45:14 A.M. US Mountain Standard Time, [EMAIL
PROTECTED] writes:
Hi, I use a number 24 frenchin over 8 years it has only clogged 3
times. I'm not sure how the number size works... Is the lower number or
higher the smallest?
Dan H.
Dan [EMAIL PROTECTED] wrote:
14 french. They are not supposed to hurt. I would get on your urologists
case about this.
Dan
At 09:26 PM 2/16/2008 -0800, Merrill Burghardt said something that elicited my
response:
. What size Supra Pubic do people use? I realize this may come off as a
personnel question Mine still bleeds and hurts bad post April and I started to
wonder.
Merrill
Dave Visit My Home Page
-
Delicious ideas to please the pickiest eaters. Watch the video on AOL Living.
Re: [QUAD-L] Supra-Pubic Sizes
Merrill, i use a 24fr thats silicone mine still bleeds and hurts some when my urologists changes it he's tried everything but alot of the problem is because it is healing around the tube, guess i'm to healthy. gina Merrill Burghardt [EMAIL PROTECTED] wrote: . What size Supra Pubic do people use? I realize this may come off as a personnel question Mine still bleeds and hurts bad post April and I started to wonder. Merrill
[QUAD-L] I have a few questions for ya'll
Well, first question, I'm going to try and buy a house, I live in texas, so I know each state is different. I've been told about ADAPT, I have CBA which will help w/ modifications, I've been told to to look at sale by owner or foreclosure houses, my credit is pretty good think I can get a house Loan,but I need more information on other programs that might help, I can't do H.U.D., because which brings me to the next question I want me and my boyfriend to get this house together it will have to be mainly in my name because I have the best credit between us and figure we could get more help, because I'm disabled. Might as well use it, right, since we can change it yet. But back to the question, will I lose my benefits? if so how much of them? or I know some people have gotten married how much benefits did you lose when you got married? And do you lose your social sercurity? Hmm not sure if I'm asking enough or telling enough to ya'll to get the answers I need if need more I can tell or I know can ask more later, right? Thanks ya'll, Gina
Fwd: Re: [QUAD-L] Leg fracture
Note: forwarded message attached.---BeginMessage--- If your bones are straight then they probably won't do surgery after 7 wks, but depending you might need more calcium and time it took me from december to august to heal my first break of the tibia/fibia which was broken through both, but the second time I broke them they were only fractured a lil lower (it took from june till september to heal) but they healed inside -out instead of outside- in, believe me at first it didn't seem they were healing at first. Sometimes the growing bone process just takes more time just becareful of how much calcium, because I was getting more calcium deposit in my bladder also get some sun on it the vitamin D from the sun helps too it did me at least. I know everyones different. or take calcium w/ D. But remember it takes us more time to heal than the average person especially bones. So, don't get to discouraged, it will heal just in its own time. Gina Bill Jenkins [EMAIL PROTECTED] wrote: 7 weeks may be too long to corrwct it without surgery. Good luck. Hope you can get it repaired. Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL Red ship crashes into blue ship - sailors marooned. - Original Message - From: Richard Kratt To: Quadlist Sent: Saturday, September 29, 2007 9:19 PM Subject: [QUAD-L] Leg fracture I wonder if anybody out there has had experience with a spiral fracture of the tibia/fibia? I broke mine about seven weeks ago and there's been no sign of healing. No attempt by orthopedics was made to reduce the fracture and x-rays taken just last week have shown no bone growth and the separation of the bones is still the same. I've been pushing for some sort of surgery, but haven't had much success. What's been your experiences? Richard, C 3/4, 65 post 14 1/2 ---End Message---
Re: [QUAD-L] About Apple Cider Vinegar and All the Health Benefits
I've used it and it also helps UTI'S. What it does is bring up your PH something which kills the bacteria cause some bacteria can't live when your PH goes up. It also helps if you take it when you start getting sick, whether the stomach flu or a cold. The organic apple cider vinager. I was told is the best though. Gina [EMAIL PROTECTED] wrote: I have always promoted its use. For additional info, check out a very old book called New England Folk Medicine Best Wishes In a message dated 9/17/2007 12:06:53 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: Do any on the list ever use or try Apple Cider Vinegar ? I have been trying to read and find out more about all the fantastic health benefits they claim it has. For example it is supposed to make your body acid/alkaline be normal as it should be. Cure Arthiritis and Even be just as effective on regulating Diabetes as metphormin or some other diabetes pills. They claim it clears up Yeast Infections, Helps weight loss and a lot more...If any of you take it or have tried it...Let us know what you think. It sounds very interesting. Note---( This is not White Vinegar that is used for cleaning germs and so on. ) Dan H. - See what's new at AOL.com and Make AOL Your Homepage.
RE: [QUAD-L] Idiot Test
mine said i was a farmer guess i could pull a tiller from the back of my
chair..lol
Danny Hearn [EMAIL PROTECTED] wrote: Mine said I was a Lazy Couch Potato
Bum...LOL I think I'm more of a powerchair bum tho ;-)
Dan
Tim Syfert [EMAIL PROTECTED] wrote:
YepLOL. Tim
RollinOn [EMAIL PROTECTED] wrote:
v\:* {behavior:url(#default#VML);} o\:* {behavior:url(#default#VML);}
w\:* {behavior:url(#default#VML);} .shape {behavior:url(#default#VML);}
st1\:*{behavior:url(#default#ieooui) }Just like Politicians do,
now I finally understand how they think lol!
Mark Jackson
RollinOn
-
From: Tim Syfert [mailto:[EMAIL PROTECTED]
Sent: Thursday, March 22, 2007 3:07 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] Idiot Test
I just randomly chose without putting much thought into it because it was
simple and quicker to do regardless of what anyone would think about my
choices, and came up a POLITICIAN. Hmm...
Tim
The QUAD LINK
David K. Kelmer [EMAIL PROTECTED] wrote:
Hi Mark,
I'm a Idiot Philosopher, too. I think...therefore I'm Sam... :-)
With Love,
CtrlAltDel aka Dave
C4/5 Complete - 30 Years Post
Texas, USA
RollinOn [EMAIL PROTECTED] wrote:
Im a Philosopher and found that many quads end up with this answer.
Mark Jackson
RollinOn
--
No virus found in this outgoing message.
Checked by AVG Free Edition.
Version: 7.5.446 / Virus Database: 268.18.16/729 - Release Date: 3/21/2007 7:52
AM
-
It's here! Your new message!
Get new email alerts with the free Yahoo! Toolbar.
--
No virus found in this incoming message.
Checked by AVG Free Edition.
Version: 7.5.446 / Virus Database: 268.18.17/730 - Release Date: 3/22/2007 7:44
AM
--
No virus found in this outgoing message.
Checked by AVG Free Edition.
Version: 7.5.446 / Virus Database: 268.18.17/730 - Release Date: 3/22/2007 7:44
AM
-
Don't pick lemons.
See all the new 2007 cars at Yahoo! Autos.
Re: [QUAD-L] severe chills
Have you checked your blood pressure? I know when mine gets really low. Mine runs real low anyway usually 80/60, but when it gets lower I get chills, my doctor gave me midrodrine it highers the blood pressure. gina LTeasley [EMAIL PROTECTED] wrote: Hi Everybody, I am a C4-5 complete since July 31, 05. I know I don't have a UTI, nor am I sick in any other manner. What I would like to know, is if anybody else suffers from extreme chills radiating from the core of the body with no apparent cause or solution. The heat at 76+ degrees and multiple layers including hat and scarf do not help. I am currently staying at an extended care facility where they do not allow us to use heating pads, hot water bottles, or electric blankets. I try to drink as much hot tea and coffee as I can throughout the day in hopes to do some warming from the inside out, also to no avail. Any ideas or solutions would be most appreciated. Journey well through life, Belle - Never miss an email again! Yahoo! Toolbar alerts you the instant new Mail arrives. Check it out.
Re: [QUAD-L] Supra Pubic
Hi ya'll, I have an SP too. And I have that problem about the catheter coming out on the change dates my doctor does( Usually every 4 weeks oronce a month) because what is happening is your body is growing around the catheter trying to close the hole or you can say the body is attaching itself to the hose its trying to heal itself. And it will bleed some especially when you rip it out. but if you dont stop bleeding you need to go to the hospital, but usually it will only bleeda lil bit. It's easy to put back in because you reopened the hole again.I see my urologist on the 16th. Hope this helps.. Gina Dan [EMAIL PROTECTED] wrote: Hey Quadius,My problem is the opposite. The new cath slides in real easy but getting the old one out is the problem. Funny but I'm also seeing my urologist this month, on the 30th. I too shall report my results.Dan VAt 01:08 PM 11/13/2006 -0800, B. Kimberlin \(Quadius\) said something that elicited my response: Dan,Over the last six months I have had difficulty getting my catheter into my super pubic, once I even had to go down to a 20 French for a few weeks. Right now I am still using a 22 and it does require me to twirl it as well as putting a little more force behind it than we used to have to use. I will be talking with my urologist on the 29th, so perhaps I can get back with you after that appointment. I have a cystoscopy scheduled to remove some of the bladder stones I have developed over the last few years.QuadiusDan [EMAIL PROTECTED] wrote: Hey Gang, I've had a SP for 2 years now. I change the cath (18 French) every 3 weeks. Lately, it is becoming more and more difficult to remove the old cath. I always make sure the balloon is completely deflated and If it doesn't slide out easily, like it used to, I have my aide give it a twirl. Well, last night nothing worked and my aide was afraid to pull too hard so I said give it to me and I yanked it out. It bled some but the new one coated with KY Jelly slipped right in. My question to you fellow SP users is what do you think is going on? Why is it getting more and more difficult to remove the old cath and still so easy to insert the new one? Dan VCheck out the all-new Yahoo! Mail beta - Fire up a more powerful email and get things done faster.
Re: [QUAD-L] she left
I'm so sorry Jim to hear about your wife leaving, like wheelchair said there is a positive note your son is still there and your daughter is pretty close so she can come visit and see you often. I'm also sorry to hear about your agency and caregiver. I hope it works out. You are in my prayers and thoughts. Even if she doesn't want counseling maybe just you and your kids can go. I am sorry Jim, Gina[EMAIL PROTECTED] wrote:She left. What a shame, Jim. I can't begin to feel your pain and loss, but on a positive note... water always seeks its own level. Granted, it may take some time, but your life and water will both seektheir own levels. If you are part of an independent living center in your area, make them aware of your situation. Know that 911 exists for your survival if necessary. I don't know if you have any church members in your area that you can rely on if necessary or in emergency. But its nice to know your options. If counseling is still available for you, consider it. Remember, you still have a 23 year old son at home. Best Wishes WIn a message dated 10/10/2006 9:18:58 A.M. Central Daylight Time, [EMAIL PROTECTED] writes:Well, it finally happened. My wife informed me about a month and a half ago that she was leaving and taking my 15 soon-to-be 16-year-old daughter with her. On October 1st she took off and only time will tell what's going to happen. I'm still in my house with my 23-year-old son and my wife and daughter are renting a house about 16 miles away. She does not know what she is going to do in terms of divorcing or not but she's told her best friend that she needs some time away. She has refused to take the family to any counseling since my injury in 2000 and she refuses to go to any type of marriage counseling together or alone. She made this decision all on her own without talking to me, her best friend, sister or mother. It was not a real big surprise to me because I knew something was up but still it is not something that I was looking forward to.I was in the process of changing caregiving agencies because the one I am with is having trouble staffing me. Interim Health Care told my told the social worker that they could take my case and at the very last moment they changed their mind so I'm still with my old agency and my evening caregiver has already got a different job so now after Wednesday evening I do not know what's going to happen. More news at 10 I guess.
Re: [QUAD-L] Today is our 14th wedding anniversary
hi, congrats gina[EMAIL PROTECTED] wrote: Hi All, I was married in my mom's back yard 14 years ago. And 24 years ago tomorrow Pete and I meet in a bar. You never know where you'll meet the love of your life! Have a great day everyone. Bobbie Pete
RE: [QUAD-L] super pubic ?
I too have a supra pubic best advice I can give you would be to talk with your urologist, see what he might suggest. I don't think it would bother it, but I would still talk with your doctor.I am glad I got a supra pubic it has made my life easier. ginaKK [EMAIL PROTECTED] wrote: Julie, the incision is made at the pubic bone. Does your binder cover that area also?I have had mine for 2 years this month. It has been wonderful. All-new Yahoo! Mail - Fire up a more powerful email and get things done faster.
Re: [QUAD-L] RE-The sediment in my urine
I was told that some of that sediment depending on the stuff you are seeing might also be your bladder lining. My doctor also said that it is normal to see some sediment the reason is its going through a tube and we pay more attention to our urine then when we did when we were able bodied. Also just in case as we always have some good bacteria in our body that is why we have to pay greater attention not to take to many antibiotics because we are getting rid of the good bacteria as well as the bad, so be careful and make sure that you have the symptoms of a U.T.I. ginakaye allard [EMAIL PROTECTED] wrote: Ok, this is new and fascinating to me. I have always wondered what the white stuff is composed of. I have always had some sort of sediment off and on and really want to know what it is. I got something called hyper calcemia when I was in the hospital probably 1 month or less after my injury. I puked nonstop. They said it was from calcium leeching into my system. It was treated (with a daily injection that also made me puke) and went away...? It makes sense that this would also happen over time, though. Well hopefully carbonated drinks does not include sparkling water. It's got to be all the crap in soda that can have this effect. But about the sediment being possibly calcium...I so wish I had a lab at home.-k On 9/18/06, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: At a certain point, I believe all of us quads start to decalcify. That is, our bones leech calcium out of our systems. This shows up as that crudy sediment. By the way, Carbonated drinks are documented to accelerrate this propblem in normal people. Most juices are very high in sugar and I try to avoid gaining weight as my quadgut already makes me appear fat. I use an external condom and rarely get a bladder infection.I do still get periods when my urine is high in sediment and the sediment is almost 95% calcium. I haven't been catheterized since 2000. I know thats no help to the ladies. The persistant irrigation with vinegar and sterile water is the smart move. When done daily thereslittle chance to start growing anything serious. It is important to check for cyctitis and stones as well as bladder cancer. I hate going for tests too. I wish you all the very best, john In a message dated 9/16/2006 8:51:41 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: Whatever is in your urine, comes from what you eat, drink or how your body is processing.. or not processing. Change some of your habits and see what happens in 7 days. Vinegar in your diet, won't hurt and just might help. W In a message dated 9/16/2006 7:14:40 P.M. Central Daylight Time, [EMAIL PROTECTED] writes:Dilllon, I had to have a suprapubic put in about 10 1/2 years ago and have had relatively no problems, until recently. I also suffer from intermittent sediment problems, but now I use a 22 and it does help significantly. There is some smell occasionally, but this is usually when I have drank too many Mountain Dew's (yes I know they're terrible for me). The major problem I have experienced recently is that my stoma seems to have constricted a little over the last year and I am now having some difficulty getting the 22 in. May eventually have to go back down to a 20 until I can have my urologist take a look at what the problem is right now. -- "Polite conversation is rarely either."-Fran Lebowitz
Re: [QUAD-L] The sediment in my urine
if you can get your doctor to change the catheter to a silicone instead of latex that could be the problem. just a suggestion it has helped me big time. ginaDillon Ewa [EMAIL PROTECTED] wrote:Hello everyone, I need your help. For the past two years I have suffered from alot of sediment in my urine. I have tried flushing the Foley, taking tablets of vitamin C, cut out calcium and have drunk lots of water but my problem still persists.My Foley has clogged more times than I can count and I am tired of being soaked with urine. Is there any advice or suggestions any of you could offer me such as diets, drugs or anything that has benefited any of you with similar problems. I would be most appreciative.ThanksDillon
Re: [QUAD-L] Surgery Date
hey Amye , hope to hear how it went and hope you are doing good and hope you recover quickly and to keep us updated if itsworthgetting the pump. I hope itworks for you. gina t crook [EMAIL PROTECTED] wrote:Hey Lil'-I hopeall went well; and I wish you a speedy recovery!Timwww.whoopiekatjewelry.com ~LittleQuad~ [EMAIL PROTECTED] wrote:Well the date I've been waiting for!!! My surgery is scheduled for Sept. 11 @ 7am, which means I have to be there at 5am! For those of you who know me, it must be important if I'm getting out of bed by 10am!!! I will take my great Ipod and jam away while they cut and stick me! hahaIf you didn't know about it, it is a baclofen pump I'm having put in my left side below ribs. Only place it can go actually! The doctor laughed when he looked at my small frame...This will reduce my involuntary spasms hopefully to zero! Which will give me a much smoother and calmer day and especially night. My girl Velevet is tired of getting a knee in the head!I will be released from the hospital the same day, so no flowers to be sent there! As always call my cell, the house is forwarded to it now anyway! hahaTalk to you soon... Want to be your own boss? Learn how on Yahoo! Small Business. Want to be your own boss? Learn how on Yahoo! Small Business. Want to be your own boss? Learn how on Yahoo! Small Business.
Re: [QUAD-L] 9/11
hi mark, I want to congratulate you on your 7th year. And how great your day is going even thoughthe twoanirversaries you are having to look back on. You are an admirable guy I know your children look up to and I know so many others do, as do I. For being optimistic and proving nothing can stop you no matter what the obstacle. You haveinspiredme alot over the years thatIve known you. And give a moment of silence and prayer to those who passed on this day, to the family members and those who helped on this day 5 yrs ago. ginaRollinOn [EMAIL PROTECTED] wrote: Today I get to look back on 2 anniversaries. The first is obviously the darkest day in American history andI remember it well. It seems every generation haswitnessed one. Looking backI can't wait until they bring Bin Laden to justice and I hope it's soon. The second anniversary is my 7th yearbeing a quad. this morning I got to wake up and talk to my son before he went to school about his birthday party he's having tomorrow, my aid came in and got me up and I ate some toast and my daughter called to borrow some cash and no problem and I went to my office and started doing my job and now have some free time to read some e-mail and talk to friends before I get back to work. Sothanks to everyoneon this list for all your help because I'm having a great dayand man have we all came a long way!Mark Jackson [EMAIL PROTECTED]Subscribe to RollinOn Powered bygroups.yahoo.com
Re: [QUAD-L] Can You Read This?
yep, i can read it guess I have a strange mind too. Guess I'm part of the 55 group woohoo. ginaChet Smith [EMAIL PROTECTED] wrote: fi yuo cna raed tihs, yuo hvae a sgtrane mnid, too. Cna yuo raed tihs? Olny 55 plepoe tuo fo 100 anc. i cdnuolt blveiee taht I cluod aulaclty uesdnatnrd waht I was rdanieg. The phaonmneal pweor of the hmuan mnid, aoccdrnig to a rscheearch at Cmabrigde Uinervtisy, it dseno't mtaetr in waht oerdr the ltteres in a wrod are, the olny iproamtnt tihng is taht the frsit and lsat ltteer be in the rghit pclae. The rset can be a taotl mses and you can sitll raed it whotuit a pboerlm. Tihs is bcuseae the huamn mnid deos not raed ervey lteter by istlef, but the wrod as a wlohe. Azanmig huh? yaeh and I awlyas tghuhot slpeling was ipmorantt! if you can raed tihs forwrad it. ONLY FORWARD IF YOU CAN READ THIS Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min.
Re: [QUAD-L] RE: Assistance for a mobility van
that's a good one..lol ~LittleQuad~ [EMAIL PROTECTED] wrote: ha i love itBill_J [EMAIL PROTECTED] wrote: I once put on dark glasses and carried a tin cup. I went as a blind man. Someone asked what happened to my legs and I yelled, "WHAT? MY LEGS ARE GONE?" A little humor, folks.Bill age 56C6 Incomplete since 7/20/68Leesburg, FLOn the other hand, you have different fingers.- Original Message - From: Paul Jacobson To: dennis espinoza (by way of Jim Lubin [EMAIL PROTECTED]) ; quad-list@eskimo.com Sent: Sunday, September 10, 2006 3:22 PM Subject: Re: [QUAD-L] RE: Assistance for a mobility vanHello Folks,Anyone have any creative ideas for a Halloween wheelchair costume.Thanks! Paul c5/6- Original Message - From: dennis espinoza (by way of Jim Lubin [EMAIL PROTECTED]) To: quad-list@eskimo.com Sent: Sunday, September 10, 2006 9:38 AM Subject: [QUAD-L] RE: Assistance for a mobility van hello, well we are looking for a used van, "not for him to drive" but to take him to his therapy and to the doctor when needed , or to the park when he needs to get out. This is the hardest thing that anyone should have to go through as you all know. I cry everyday for him, but im just so glad he is still alive. He was involved in a 2 car accident in which he broke his neck in two areas C1-C2 and C6-C7.. he was in ICU for two months on a ventilator, they fused his neck all the way from C7 to the base of his head.. we sent him to Craig Hospital in Denver Colorado, where he got the best quality care available. They weened him off the vent, no more treich. and re-did his fused neck and took the hardware out down to C-5 , he has alot more neck movement nowHe has movement with his right arm and can work his power chair with a joy stick and feed himself at times. He is getting some feeling down his left arm now. His spirit is high and he is a fighter. thank god. we pray everyday for him.. we are saving money and having garage sales as fundraisers. but i was curious if maybe there was any foundations that help out with this sort of thing? i read all your post and have learned somethings and am very very glad i found you.. thank you and god bless dennis [EMAIL PROTECTED] From: [EMAIL PROTECTED] To: [EMAIL PROTECTED], quad-list@eskimo.com, [EMAIL PROTECTED] Subject: Assistance for a mobility van Date: Thu, 7 Sep 2006 20:55:00 EDT Hold your horses, Partner! You just might be buying the horses before you've seen the cart, kart or van. With a post injury of only 6 months, he is more interested in regaining his strength, stamina and his confidence. I'd wait atleast 3 years before you decide on a new van that may cost in excess of $43,000 dollars. Now if you are merely looking for a used transporter to haul him to physical therapy... that is one thing. But if you want to place him in the driver's seat at 6 months post-injury, I ask that you reconsider... at this time. Voc Rehab is one agency. But they won't consider him... or her for atleast 2 years post. Voc Rehab pays for the modifications, but not the base van. Tell us a little about your son and how he was injured. We will then have alot more credible info for you. Best Wishes W In a message dated 9/7/2006 4:14:12 PM Central Daylight Time, [EMAIL PROTECTED] writes:hi everyone, my son has just recently got out of the rehabilitation hospital. He had a brake at c1-c2, c6-c7... they said he is more a c5-c6 complete .. his injury was in march 06. he is 23.. I have a question about mobility vans and if there is any type of help or grants that someone could get to assist financially for a van. we dont have the money to buy one outright at this time and its hard to see him staying home all the time. i am so full of questions. this is an elite group we joined. thank you very much for any info provided dennis [EMAIL PROTECTED]
Re: [QUAD-L] I have pneumonia
I'm glad you got to see your Primary and so glad your feeling better. ginaRiver Wolfe [EMAIL PROTECTED] wrote: Hi everyone,I saw my Primary today and she suggested steam twice a day, percussion (which we're doing) and she gave me an inhaler to expand my bronchial tubes.Funny I remember that commercial for the medicine Mucinex. I hate that commercial, the one with the mucous blobs moving into your lungs and then being evicted by the medicine.EWWw... ;-))Thanks Again, I'm definitely feeling better today. RiverOn Sep 11, 2006, at 4:09 PM, Danny Hearn wrote: Thank you Dave, yes I do think that was the name , Its funny in these modern times it's hard to remember the names of so many products available. Dan"David K. Kelmer" [EMAIL PROTECTED] wrote: Hi Danny,It's called Mucinex, but I'm not sure if you can get it with just an expectorant in it. I advise talking to the Pharmacist.With Love, CtrlAltDel aka DaveC4/5 Complete - 30 Years PostTexas, USADanny Hearn [EMAIL PROTECTED] wrote: I was in walgreens the other day and they had a product that the saleslady said was getting popular..It say's it helps rid the body of mucus and flem.I can't remember the name but i think it was mucusbegone or mucusrid anyway if you go to a walgreens i'm sure you can find it.at the walgreens near me they had it back in drug section plus up front near the checkout lines. good luck. DanRiver Wolfe [EMAIL PROTECTED] wrote: Hi everyone,I have a mild case of pneumonia. I had excruciating lung pain and fever Thur night, took tylenol and celebrex and that helped alot. My Dr. sent me to the ER Fri.they saw a small infection in lower right lung lobe. Gave me antibiotics and cough syrup. Problem is I have no cough. Any suggestions as to how to getthis stuff up and out of my lungs?I see my primary Dr. today.Thanks,River
Re: [QUAD-L] Surgery Date
Good luck. I hope everything goes good for your surgery and recovery. You'll be in my thoughts and Prayers Gina ~LittleQuad~ [EMAIL PROTECTED] wrote:Well the date I've been waiting for!!! My surgery is scheduled for Sept. 11 @ 7am, which means I have to be there at 5am! For those of you who know me, it must be important if I'm getting out of bed by 10am!!! I will take my great Ipod and jam away while they cut and stick me! hahaIf you didn't know about it, it is a baclofen pump I'm having put in my left side below ribs. Only place it can go actually! The doctor laughed when he looked at my small frame...This will reduce my involuntary spasms hopefully to zero! Which will give me a much smoother and calmer day and especially night. My girl Velevet is tired of getting a knee in the head!I will be released from the hospital the same day, so no flowers to be sent there! As always call my cell, the house is forwarded to it now anyway! hahaTalk to you soon...
Re: [QUAD-L] follow-up on transportation issues
That's great Austin.. Congrats.. Hope it keeps going good..[EMAIL PROTECTED] wrote:Congratulations Austin! You won this battle. Next one may be the war! Just make sure that you are not being set up and do your homework. Best Wishes WIn a message dated 8/21/2006 2:28:20 PM Central Daylight Time, [EMAIL PROTECTED] writes:I thought I would give a follow-up to the group on my transportation problem. I faxed and the governor and the Transportation Department. My first telephone call from the Department of Transportation informed me that I could access my pharmacy, dentist and eye doctor and all of this would be considered medical trips. I told the nice man I was talking with that decision was still unacceptable. I told him that my doctors determined that social interaction outside the home was absolutely necessary to maintain good mental health and he also determined that a person must eat as a medical necessity. That was on Friday and today I got a call telling me that I have been approved for public transportation.I have been asked to consider running for an at large city Council seat. The person pushing this has begun soliciting people to do the legwork and get the necessary petitions to save me the filing fee.And I requested all of the paperwork required to operate a public utility here. Now if I can find a grant source I might just do it.if I knew a lot about computers and such I would create a web site and try to contact everyone in my state that has had similar problems.I just found me a new hobby of making interesting workdays for community transport here.Hope everyone is having a terrific day. Austin
Re: [QUAD-L] question
I have they were eithernot working or just made me more depressed. But at the time I took them I had just had my accident don't figure I'd be depressed like a pill would fix it right? GinaWilliam Willis [EMAIL PROTECTED] wrote: Do any of you guys take anti-depressants and do they work? Larry
Re: [QUAD-L] Hemorrhoids
if it is hemmorrhoids..ive had them before andmy aide had used preperation H on her finger instead of the kyandit helped considerably and then when finished just leave a lil in. drink more water.. water helps your bowels move too. i hope this helpsginaPaul Jacobson [EMAIL PROTECTED] wrote: Hi...anyone dealing or have dealt with this. I think I have them...noticed blood in my bowel program.Hope everyone is well.Paul c5/6 Injured 11/05/03 San Diego, CA
Re: [QUAD-L] heritage
Hey Dan, But they say acat has 9 lives...lol ginaDanny Hearn [EMAIL PROTECTED] wrote: Well if not a quad.. unknown if disabled, WHY would a person spend so much time on THE QUAD LIST? That would be like one of us joining the BLIND list LOL I realize W has a great sense of humor , but many of us just DON"T GET ITperhaps we never will LOL Oh well, I guess i'll shut up.cause I heard curiosity killed the cat. Dan[EMAIL PROTECTED] wrote:In a message dated 7/31/2006 8:29:50 PM Central Daylight Time, [EMAIL PROTECTED] writes:HE'LL NEVER TELL,,,GIVE THAT ONE UP :-)Di knows me like a book, lol (a very funny book) (just ignore the cover) W
Re: [QUAD-L] Re: Angelique and Sandy
Like they say there are 2 things that are usually not good to discuss religion and politics, there is just to much controversy about it...but SEX is okay coz most people like it and want it.. Even if some are deprived..like me.. Gina( there are other things but that came to mind first) Danny Hearn [EMAIL PROTECTED] wrote: ALAN AND THE SAME TO YOU AND ANGIE..THIS IS NOT AN ATHIEST ROOM, PLEASE QUIT PUSHING YOUR UNBELIEF IN GOD IN HERE, I FOR ONE KNOW THERE IS A GOD, BUT I'M NOT FORCING YOU TO READ ABOUT IT ON THE QUAD LIST CONTINUALLY THANK YOU BOTH DANALAN LABARR [EMAIL PROTECTED] wrote: i am not the born againer. so don't be asking or explaining religion to me. i am like angie. i did my time when i was young and i have my very own religion now. it has a congregation of one.alan- Original Message - From: [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Wednesday, July 26, 2006 4:57 PM Subject: Re: [QUAD-L] Re: Angelique and Sandy"born again" to me means "please forgive all my previous sins - I REALLY want to go to heaven - not hell, or jail, and I certainly don't want anybody getting even for what I did" wow - I guess I am born again too. O'C In a message dated 7/26/2006 1:30:06 P.M. US Mountain Standard Time, [EMAIL PROTECTED] writes: Just explain that you can't be born again because born again christians get e/thing they want and your spine won't heal no matter what you believe or what BS healer you go to. I can't be born again because I believe in what jesus said about rich folks. Frankly the born again thing always comes across to me like the pyramid scheeme of christian cults. Beware false prophetsCareful of groups that already know who is going to heaven and hell and why.john In a message dated 7/25/2006 7:42:38 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: i loved "dark shadows". i was a teenager from the farmlands and foothills of nj. stop laughing. i loved vampires and particularl barnabus collins.i am totally with you on the religious issue. one of my sons has a very hard time with me as he is born again.the voice activated works really well with you or you with it or together. ok, Angie.alan Dave www.daveoconnell.com c3-inc-1967
Re: [QUAD-L] I Wonder Why
I'm with W whether we are talkin how to poopor not to poop, or whats at Walmart or whatever.We all have advice and opinions whether good or bad its all informative. What might be bad for one person might help someone else. So lets just keep the advice and opinions coming. Gina"David K. Kelmer" [EMAIL PROTECTED] wrote:Hi Wheels,Hey, I resemble that remark! Better'Zorro' than 'Zero', eh?With Love, CtrlAltDel aka DaveC4/5 Complete - 30 Years PostTexas, USA[EMAIL PROTECTED] wrote:This forum is and will remain an open forum, inspite of people like me and my brother from a different mother, (Dave) lol.Your feelings on stem cell are good and should be discussed. Dave, on the other hand, seems to like that cartoon that dresses up like "Zorro" cutting prices daily.Bring on the politics, religion and the color of your last bowel movement. We all have much to learn..from others. WIn a message dated 7/18/2006 4:43:53 PM Central Daylight Time, [EMAIL PROTECTED] writes:Dave, you said "For the sake of peace on the List, we have put the issue to rest in our posts for now". Maybe you can explain that. What "peace"? And who are "we"? Personally I would rather talk about stem cells and other issues pertinent to quads than Walmart. Maybe I'm at the wrong place. Tell me and I will leave. Sorry if I offended anyone by talking about something I thought was important to us. Sandy
Re: FW: Re: [QUAD-L] Pain test
I got a whole 4...lol And I to guessed at a few also hmm these TESTS are not esteem builders are they...lolRollinOn [EMAIL PROTECTED] wrote: I got 3 but I guessed a couple.Mark---Original Message--- From: William Willis Date: 07/19/06 15:11:12 To: quad-list@eskimo.com Subject: FW: Re: [QUAD-L] Pain testHooo boy! I got exactly one -- the last one!From: "David K. Kelmer" [EMAIL PROTECTED] To: RollinOn [EMAIL PROTECTED], Quad-List quad-list@eskimo.com Subject: Re: [QUAD-L] Pain test Date: Wed, 19 Jul 2006 11:06:28 -0700 (PDT) This bad?:) MEYour Score You scored 3 correct out of 10. You're off to a great start at learning in-depth information about this important health topic! With Love,CtrlAltDel aka Dave C4/5 Complete - 30 Years Post Texas, USA RollinOn [EMAIL PROTECTED] wrote: FLAVOR00-NONE---4.0;Here's a test to see how well you know your pain medications.http://pain.healthcentersonline.com/quizzes/painmedicationsquiz.cfm?qid=30general=nl_pain I didn't do very well myself. Mark.
[QUAD-L] Big favor and question-----please
I was asked to speak in front of our transportation board which is Metro. Which does not only our transportation but fixes our sidewalks which are also horrible here . Which is Houston, Tx. It's for everyone here in our Apartment Complex ( it's for the Elderly and Disabled.) I've never done well speaking in front of a group of people, but I know this will help us alot. I will only have 3 minutes to speak so I have to get to the point fast.I only haveto do this this thursday.I just found out today (which is Tuesday)My Question is How do I begin my speech and how do I get over the nervousness? I'd appreciate any input or any kind of help I can getThank you in advanced I know all ya'll have good heads on ya'lls shoulders... Gina
Re: [QUAD-L] I Wonder Why-starts in the ER
My opinion might not count for much. I feel I'm a pretty positive person and I don't want to pop anyones bubble, but with all the red tape that it takes or is going to take for the US to let stem cells no matter how they get them to operate on us...I do hope they do, but unless you are newly hurt I'm not sure its going to be worth the extensive therapy one would have to endure to walk again, only for the fact Ive heard that astronauts have to have alot of therapy depending on the length of time they spend in spacelike I think it was for 6 mos in space they had to have 2 yrs of therapy,because like us they arent using their legs, Ive been paralyzed for almost 7yrs and as Mark said " i have more important thing to focus on" I have a 16 yr old to raise and her future and to be there however I can for my family. I do hope one day they find a cure, I'm not saying that, but there is life after the chair or in the chair. However that is said..And I'mhappy for I went from a nusing home to my own apartment to getting my daughter back things can be good. As was said try to be positive... negativity doesnt get you very far..Don't thinkof the cup Half full or Half empty be thankful you have a cup. Gina[EMAIL PROTECTED] wrote: Someone (stranger) at my accident scene said, "Well, you're sure screwed now buddy." I had no idea what he was talking about. My brother broke his neck ten years earlier, and was not paralyzed (happens about 5% of the time)- so I knew what was in store for me. My doc - same doc as my brother - said, "No, yours is different." I thought, OK I can do 'different.' Well, this is different ok. He got pissed at people telling him how lucky he was as he lay on a Stryker frame for 6 weeks growing bones. Now he pretty much agrees with that comment. I also realize how lucky I am as a partially paralyzed C3 - this list has taught me a few things about paralysis. I had a lot of false-positive things said to me but about 2 months in to my rehab, they sent in Dr. Hatchet who informed me they were going to give up on my walking skills and concentrate on getting me functional in a chrome Cadillac. Ugly but necessary - tough love I guess you call it. Nat many people in the know spent a lot of time telling me I'd be walking again. I'm sure WE will find a procedure to alleviate thecurrent pathetic attempts at repairing nerve damage, however I don't think we'll see a major breakthrough in the next 10 years. 15 or 20 maybe - there's a lot of politicking that needs doing 1st. My hope rides with a foreign country that doesn't have the political stem cell barriers to break that WE do here. You can bet that when that happens, WE will be first to help ride the wave, loudly beating our drums, and wherever I am, I'll have a BIG smile.DaveIn a message dated 7/17/2006 2:18:41 P.M. US Mountain Standard Time, [EMAIL PROTECTED] writes: Have you noticed that since day one, in the ER, those around you try to be very positive regarding your injury and one's future. Doctors rarely say anything and work behind the scenes surfacing every once in awhile to let you know that THEY are still alive and breathing. From the ER to CCU to ICU to resident recovery those working with you are so positive always stopping short that you will be walking out of THEIR hospital and may have little need for Rehab. Always Positive. When you are ready to be discharged from the hospital and ready for Rehab, they tell you to be posit vie and do the best you can. Be positive. Always be Positive. Then you get to rehab and meet several others who are just like you... or it looks that way. The rehab hospitals always seem to have those cheerleader OT and PTs that try to make the most out of any success you produce and they tell you to be positive. After 3 months of rehab you are toss'd to the curb and often ordered to perform outpatient therapy and remain positive.Then comes along Superman and tells you to be positive.After hearing all of this for so long, one actually starts to believe it. Waiting for the Cure which seems just out of reach. Oh, and remain positive.We still have so much to learn, and learn and learn, while the masses keep pushing and trying to remain positive. I honestly believe that it will happen in the next 20 years, but then again, I'm positive. Good results can not be announced to the masses until successes happen more than once, or twice.But it will happen in your lifetime.Simple repairs in the beginning and more complex repairs as we learn.There was a time in medicine that a new born baby weighing less than 7 lbs had little change for survival. Today, there are babies being born prematurely at less than One Pound that have survived and grown up to be normal healthy humans.Let's continue to be positive and support those with the responsibility to research and provide positive results.Best Wishes W n a message dated 7/17/2006 3:58:00 PM
Re: [QUAD-L] For Those Who Live DownUnder!
Well down here in Southeast Texas its 93 , but they say it feels 102 and they arent wrong about thatits HOT butwhats new about that rightlol gina[EMAIL PROTECTED] wrote: From: [EMAIL PROTECTED]Date: Sun, 16 Jul 2006 11:54:33 EDTSubject: For Those Who Live DownUnder!To: [EMAIL PROTECTED]For all of those who live downunder and having their annual winter, we are having some Hot Weather in North America. To demonstrate our temps, everyone is encourage to list the temps in their living areas. Chicago 95 but going to 100 todayW
Re: [QUAD-L] EVERYONE I'M A DUDE NOT A GIRL
We won't hold being a guy against you..LMAO...Gladto know that you knowwhat you are though..LOL..j/k Being a girl isn't all bad there are some advantages to being one. I've been one for 35 yrs.Gina "David K. Kelmer" [EMAIL PROTECTED] wrote:Just for the record...me either! LMAO With Love, CtrlAltDel aka DaveC4/5 Complete - 30 Years PostTexas, USA ~LittleQuad~ [EMAIL PROTECTED] wrote: LMAOit wasn't me for the record!!Zeraw [EMAIL PROTECTED] wrote: there are a couple out here asking me for a date !!! calling me girl friend!!- Original Message - From: ~LittleQuad~ To: Zeraw ; quad-list@eskimo.com Sent: Thursday, June 29, 2006 11:15 AM Subject: Re: [QUAD-L] EVERYONE I'M A DUDE NOT A GIRL well who DIDN'T know that???Zeraw [EMAIL PROTECTED] wrote: FOR THE RECORD !! i am a guy Bill Kress T-10 T-11 21 YEARS POST I AM 43 YEARS OLD Z Why expect the worst when it will probably never happen? Wipe those gloomy thoughts from your mind and focus on what's going right instead. Havingf a positive outlook can change the outcome in so many ways.
Re: [QUAD-L] Who lives where?
I live in Southeast Texas near Galveston. Gina[EMAIL PROTECTED] wrote: Hi All, I was wondering if anybody from this list lives near me. I'm in Parsippany New Jersey, 10 miles from Kessler Institute. Where do you all live any way? Bobbie Why expect the worst when it will probably never happen? Wipe those gloomy thoughts from your mind and focus on what's going right instead. Havingf a positive outlook can change the outcome in so many ways.
Re: [QUAD-L] I'm kinda new here
Well, I'd love to know WHY...Wheel Gina[EMAIL PROTECTED] wrote:In a message dated 6/7/2006 9:30:47 PM Central Daylight Time, [EMAIL PROTECTED] writes: W" is not a quad ? hmm then what are u W" ? lol DanI'm not a quadette either. Working with quads from all different backgrounds and who became quadsby different causes, provides me with a unique perspective, I hope.Do you know that most quad women are absolutely beautiful, while that is not necessarily the case with quad guys.. Know why? W Why expect the worst when it will probably never happen? Wipe those gloomy thoughts from your mind and focus on what's going right instead. Havingf a positive outlook can change the outcome in so many ways.
Re: Fw: [QUAD-L] LOSING the Quad Gut!!!!!!!!!
I was 205 at 5'6. I'm now down to 135. I've kept my weight down for 2 yrs now.At first, skip breakfast and eat soup and salads for lunch and dinner, then my mom told me about the Atkins Diet. I didn't go totally by it but did cut the bread n pasta n potatoes n most carbs. I did eat a Hamburger I would just take off the top bread or bottom depending on which one had all the stuff on it. I started eating breakfast i'd have a hard boiled egg and bacon or scrambled egg and sausage. When I wanted to eat something sweet I would just eat a lil at that time that way you don't over gorge yourself, because if you try to wait you want it more an more. I also, drink diet drinks orI'll eat sugar free cookies or sugar freecandy. And drink alot of water.You need to try not to make your body think your dieting. I'm a c6c7 quad so I am able to push my self in a manual which I used until I got my power chair, but I still try to use it a couple of days a week. I still feel like I have a quad gut, except when I'm laying flat on the bed. I know it's just from sitting wrong that I don't have back support.GinaDanny Hearn [EMAIL PROTECTED] wrote: Yep Jim.. I was 5-11 weighed 205 pounds...after accident I went down to 160 pounds, now about 8.8 years post injury I'm 220 pounds. Dan[EMAIL PROTECTED] wrote:I was 270+ when I was injured and lost 40 pounds in rehab and then within two years I gained 60 back and then I lost my 60+ pounds because I was on the Atkins diet but then I wanted to change my diet a little bit so I started to eat more foods with carbohydrates and now I have gained at least 20+ pounds back and I'm in the process of trying to lose it again.Jim Why expect the worst when it will probably never happen? Wipe those gloomy thoughts from your mind and focus on what's going right instead. Havingf a positive outlook can change the outcome in so many ways.
Re: [QUAD-L] Need Answers
Hi Steph,It is very much worth getting out of a nursing home I was in one for 5 yrs. I now have my daughter and my own apartment. I've been out of a Nursing Home myself for 2 yrs. now. Mark is right you are going to need to be very patient and you will need to cross every T and dot every I. I know myself that section 8 housing is always overloaded but still put in a application. Also check into Subsidized apartments they go by your income if that is 1 of your problems. I don't know if these are in Florida but here is there website and they might be able to help a lil but there are some other kinds of apartments like this. www.accessiblespace.org. Check to see if Florida has CBA ( community based alternatives ) they help w/ prescriptions and modifications and other thi! ngs. It's easier and faster to get on while you are in a nursing home so try to get it before you get out. Look into Home Health Agencies for Providers and Nurses. I wish you all theprayers, luck, andpatience its going to take, but it is so worth the independence you do get back. Gina QuadPirate [EMAIL PROTECTED] wrote: Hey Steph, BTW it took me several months to do this so be patient and cover all your bases. Family played a big part along with some good friends and I don't know your situation as f! ar as how much assistance you need daily like bathing, BP, eating, cleaning etc but you can ask for an extra bedroom for a live in which helps because they get free rent on top of payin exchange for assisting you, this works well for me but you must trust this person with your life as you know. There are grants for adaptive equipment out there too for lifts or bath modifications so be looking into that too. The people at the ILC's or your ADAPT contact should know also.Mark---Original Message--- From: S. Dial Date: 03/20/06 17:52:16 To: quad-list@eskimo.com Subject: [QUAD-L] Need AnswersHey Everyone,As you all may or may not know I've been living in a nursing home for 4 years and when I first got on this list many here encouraged me to think about getting out of it.But, at the time, I wasn't ready. Well, call it an itch, call it craziness but I'm longing to be out in the world again but need advice - is it worth attempting? Where should I begin my journey?I live in rural North Florida near Jacksonville and know that Sec 8 housing there is backlogged, but maybe I can try? I'm not a SCI and don't qualify for the BSCIP programs. Give me pointers, ladies and gentlemen, please? :o)Steph Why expect the worst when it will probably never happen? Wipe those gloomy thoughts from your mind and focus on what's going right instead. Havingf a positive outlook can change the outcome in so many ways.
Re: [QUAD-L] Waxing for women
hey girl, no I don't wax, but I get my aide to help shave me..it seems to be faster. Waxing seems to take to long or seemed to b4 my accident haven'ttried it since. I'd like to know to if anyone has done it sci and if its better at home or salon.[EMAIL PROTECTED] wrote:Hell no! lol I might not be able to feel my legs but I'm still not that brave to try waxing them!! lol Joking aside where I've got the rsd it isn't an option for me, although even if it was I still wouldn't have the gutts to do it! lolSorry girlies!! Love Smurf xxxIn a message dated 24/01/2006 17:11:36 GMT Standard Time, [EMAIL PROTECTED] writes:Hey gals do any of you wax? if so,at home or salon? Thanks... lq Why expect the worst when it will probably never happen? Wipe those gloomy thoughts from your mind and focus on what's going right instead. Havingf a positive outlook can change the outcome in so many ways.
Re: [QUAD-L] night time wear?
I usually wear just a camisole top theirprettier than a tshirt and not as long. ginaandrea murray [EMAIL PROTECTED] wrote:Believe it or not I wear t-shirts to bed.the ones that fit all. Its not binding and it easy for my cath. and they are a little sexier too.Wheelchair Warrior[EMAIL PROTECTED] wrote: T-shirtJim Yahoo! FareChase - Search multiple travel sites in one click. Why expect the worst when it will probably never happen? Wipe those gloomy thoughts from your mind and focus on what's going right instead. Havingf a positive outlook can change the outcome in so many ways.
Re: [QUAD-L] Fwd: Ingrates
I live here near Houston. I understand how this guy feels. I have felt this way at times. I have friends in Louisiana, so I wanted to help as much as possible myself. I couldn't myself volunteer, but I have helped by giving some money because they said it was needed the most, because we have been flooded here in Houston by Tropical Storms and by Hurricanes ourselves, so we know how it feels to lose our homes and be flooded out. That's why I think Houston opened our arms so much, plus its that southern hospitality... I sit here though and watch the news and see that their are some that are so grateful for what the houstonians have done and feel really proud of the people here in Houston. Then their are some that are so ungrateful a fewexamples: When they were in the astrodome they had to put a curfew on them, because they were coming in all hours of the night. They would say its like a prison, but why would you need to be out at 3 a.m. if you werent cau! sing trouble or getting into trouble,right? They did it to cause a lil less confusion, think about there were thousands of people in one area everyone coming and going it causes confusion. Then I was watching last couple of days now: I know its HOT in Houston and I know it sucks to stand in line for things, I've had to and I know others have, but they are receivingFREE money to help them live on. Couldn't they show some appreciation? All I've heard is they had to stand in line for hours and hours and how hot and tired they are and that they are sent from one place to another, but we can't help that there are so many people the only way to be able to get to everyone is by a line.And we can't help that the funds run out of one place and they need to go to another place. I do feel very sorry for these people who lost everything. They need to understand that these people trying to help them are only human. I hope noone takes what I say wrong like I said i have a ton of sympathy for the Louisianians, I gave what I could and I pray we can keep helping them and they can get home soon. They could show a lil more gratitude though and not all are being that way just some.Sorry so long ya'll and its just a lil view here. GinaOl' Man River [EMAIL PROTECTED] wrote: You know, there have been lots of live and taped reports from these areas and not one supports the claim of this Internet story. Don't you suppose we would have seen and heard a little of this negative attitude on camera if it really existed? Do you suppose all media have been instructed not to publish such reports? Do you suppose they would obey if they WERE asked to suppress such comments? Pretty curious at the least. Ol' Man River [EMAIL PROTECTED] wrote: from another list i'm on..Subject: Katrina Volunteer ~ Another ViewpointTurn The Other Cheek?From a correspondent in Idaho.((This is from a guy here in Houston who went to volunteer his time to help the hurricane victims. It is pretty sad and disappointing to think people could be so ungrateful.))Katrina Volunteer ~ Another ViewpointSO I VOLUNTEERED..I thought I might inform the few friends I have on my recent traumatic experience. I am going to tell it straight, blunt, raw, and I don't give a damn. Long read, I know but please do read!I went to volunteer on Saturday at the George R. Brown convention for two reasons. * I wanted to help people to get a warm fuzzy* Curiosity.I've been watching the new! ! ! s lately and have seen scenes that have made me want to vomit. And, no, it wasn't dead bodies, the city under water, or the sludge everywhere. It was PEOPLEâS BEHAVIOR. The people on TV (99 percent being Black) were DEMANDING help. They were not asking nicely, but demanding as if society owed these people something. Well, the honest truth is WE DON'T.Help should be asked for in a kind manner and then appreciated. This is not what the press (FOX in particular) was showing. What I was seeing was a group of people yelling, demanding, looting, killing, raping, and SHOOTING back at the demanded help! So, I'm thinking this can't possibly be true can it? So I decide to submit to the DEMAND for help out of SHOCK. I couldn't believe this to be true of the majority of the people who are the weakest of society. So I went to volunteer and help folks out and see the truth. So I will tell the following story and you decide.I arrived at the astrodome only t! ! o find ! out that there are too many volunteers and volunteers were needed at the George R. Brown Convention Center. As I was walking up to the Convention Center I noticed a line of cars that wrapped around blocks filled with donations. These were ordinary Houstonians coming with truckloads and trunks full of water, diapers, clothes, blankets, food ~ all types of good stuff. And lots of it was NEW. I felt that warm fuzzy while helping unload these vehicles of these wonderful human beings. I then went inside the building and noticed approximately 100,000 sq. ft. of clothes, shoes,
Re: [QUAD-L] filing papers
Hey Luke you sound like me..lol But I guess since I dont have a filing cabinet I use a bag to put my bills in, because I use online billing I just get the bills to make suretheir right. The other papers are in one of those plastic bins right now. Kind of in order.. Guess you could say I know where they are..lol Sorry couldnt be more help.. Gina[EMAIL PROTECTED] wrote: how do you guys file your papers? every 2 or 3 days my desk is covered with papers, which i just keep putting to the side, neglecting to sort them. luke Why expect the worst when it will probably never happen? Wipe those gloomy thoughts from your mind and focus on what's going right instead. Havingf a positive outlook can change the outcome in so many ways.
Re: [QUAD-L] Banking
I mainly use my Debit Card and do online banking myself, if I have to write a check I do and my handwriting isn't always the same either, but since I dont write many checks soits easy to keep track of the checks that go through. gina QuadPirate [EMAIL PROTECTED] wrote: I was told when I opened my account to buy a rubberstampandjust draw an X with myname beside itgo get an ID made with this on it and then open an account but I only write about 14-18 checks a year, I usually use a debit card and pay all but 1 bill usingon-line banking. Mark But don't lose your stamp! ---Original Message--- From: Shahidul Alam Date: 08/04/05 09:46:43 To: Quad Subject: [QUAD-L] Banking Hey QG, How you all manage your Bank accounts. They need signatures on many things. I can write using an "universal cuff" but the writing is never the same style. Would using a mouthstick help? Now I have to keep money on others (brother) name. I wish, I could keep my money in my own account. Anybody has experience ? Any input will be appreciated. Please take care :-) Shahidul
Re: [QUAD-L] Gut
I wish my stomach would stay as flat as it is when I'm laying down when I'm sitting in the chair. It seems that there is nothing we can do. It seems to me if I could just sit straight up and not squish down and squash all my insides I'd look better and probably breathe better..But how when you have no muscles to hold your upper body up? Gina Greg [EMAIL PROTECTED] wrote: I wish I could get rid of my quad-gut. I'm not overweight, my arms are still pretty skinny, but my gut just hangs out. I look like a Buda. I use a binder, but that doesn't help much. I wonder if one of those muscle stimulators would work. I know it wont help lose weight, but maybe it might help tighten up loose muscles? Anyone try it and or got any other ideas to help? Greg
[QUAD-L] Keep on Going
Keep on Going No matter what the day brings Or what may come along, Just put a smile upon your face, And sing a happy song... No matter what the day brings Or what may lie store, Just fill your heart with hope and peace And happiness galore... No matter what the day brings Or what may be your cares, Just reach to God and He will send An answer to your prayers... No matter what the day brings Or what may touch your soul, Just walk with Jesus all the way And you will reach your goal... And keep on going! Hope C. Oberhelman
Re: [QUAD-L] Accessibility
I just wanted to say to John THEY SAY that's all women do is gripe, whine,bitch and complain. but look what we've accomplishedsometimes that's just what needs to be done.[EMAIL PROTECTED] wrote: John, you have a "Life Mission" to improve the path for others to follow. It should never be a problem but rather a Life's Project. It won't be easy in the beginning, but after the first few lawsuits for noncompliance, you will begin to notice some difference. You must not allow "Stupidity" to continue. 1st, you verbalize. 2nd, youfile a lawsuit. 3rd, you win a few ... you lose a few. If I remember, Johnny AppleSeedhad the same idea and look what happened with him.Best Wishes and verbalize.WIn a message dated 7/28/05 6:52:56 PM, [EMAIL PROTECTED] writes: I hate when a new restaurant is built that it hasn't met any ADA codes because a lawyer said that was just window dressing, yet they still put a blue and white wheelchair access sticker at the entrance with two steps. I hate that the new pala! ce built in Hollywood, opened in 2003 with intense security yet nobody noticed a wheelchair couldn't get in until chris reeves was greeted.I hate when people suddenly notice the graduated slope and lack of steps and say, 'this is nicer.' Most of all, I hate having to gripe, whine, bitch and complain to the point where people think all I do is gripe, whine, bitch and complain.
Re: [QUAD-L] dreams
Dreams are something.I can remember in a dream I had awhile back in this dream I couldnt make up my mind if I was suppose to be in a chair or not ..What I mean is one minute I was in the chair the next minute I was walking up a couple of stairs then I was in my chair again rolling out to my van and getting on the lift..It was a strange dream.. GinaWilliam Willis [EMAIL PROTECTED] wrote: A passing thought -- are you guys disabled in your dreams? Once in a while my dreams keep me seated, but 95% of the time I am healthy and strong. When I awake from a vivid one in the middle of the night, the letdown is pretty rough.
[QUAD-L] i've got a social sercurity question
Hi y'all My question is if you have a child..Mines 14. They told me she could get money from social sercurity money from my disability and if you can how do you go about getting it? My daughter might be coming to live with me for good and the extra money would come in handy. if anyone can help it would be most helpful thank you.. Gina
[QUAD-L] Merry Christmas
MERRY CHRISTMAS Y'ALL AND FOR US TEXAS FOLKS WE HAD A WHITE CHRISTMAS YEEPEE.. WELL HOPE Y'ALL HAVE A GOOD CHRISTMAS.. GINA
