There was a person on the list that had a syrinx, but sadly, she passed away. She had a shunt put in that let the fluid in the syrinx drain continuously into her stomach. Since you're doing research anyway, perhaps do some research on a shunt. Neither is a no joke surgery. Are you sure your digestive issues are from the syrinx and not something more common like IBS?
On Mon, Oct 9, 2023 at 1:08 PM Val Cleroux <vcler...@rogers.com> wrote: > Hi everyone: > > I am a C3/4 quad from a motor vehicle accident in 2000. I have a syrinx > which is a cyst that fills up with cerebral fluid and stretches down the > spine. This cyst affects how the messages are sent from the brain to the > organs in order to make them work properly. So far it has affected my > digestive system and I am very limited as to what I can eat. > > My surgeon is suggesting an ileostomy and I am now researching to see if > this would be beneficial or not? Is there anyone out there that has an > ileostomy that I could speak with? > > Thanks in advance for anyone that can help me with information so that I > can make my decision which a yes of a no? > > Val Cleroux > www.whyped.ca > "Communication is the key to success" > >
