Sorry, I just saw this email from months ago. Have you made a decision on what to do?
My late best friend had her ileostomy after years of incontinence, occasional impactions, and discomfort with every bowel movement. She hated the idea of the colostomy bag, so she resisted her doctor's advice for years. When she finally just had to have the procedure, she was really astonished. The care of the bag was an annoyance, and she was very insecure about its impact on her sex life (fortunately, on this latter issue, her FWB was very accepting of it), But otherwise, it was such a relief she wished she had done it years earlier. She had much less pain, much less disruption, and regained all of those hours she lost to bowel care. Until I found the peristeen bowel irrigation system, my next option was going to be an ileostomy. My friend's experience greatly reduced my resistance to the procedure. if that's what's needed someday, I've made my peace with it. Ed ________________________________ From: Val Cleroux <vcler...@rogers.com> Sent: Monday, October 9, 2023 11:08 AM To: Quad List <quad-list@eskimo.com> Subject: [QUAD-L] Ileostomy Hi everyone: I am a C3/4 quad from a motor vehicle accident in 2000. I have a syrinx which is a cyst that fills up with cerebral fluid and stretches down the spine. This cyst affects how the messages are sent from the brain to the organs in order to make them work properly. So far it has affected my digestive system and I am very limited as to what I can eat. My surgeon is suggesting an ileostomy and I am now researching to see if this would be beneficial or not? Is there anyone out there that has an ileostomy that I could speak with? Thanks in advance for anyone that can help me with information so that I can make my decision which a yes of a no? Val Cleroux www.whyped.ca "Communication is the key to success"
