Hi, Val....i'm a c-6 level.....and I have had a syrinx for years, it has
caused me increased pain more each year but have no eating or bowel problems,
we use magic bullet suppositories for bowel routines every 3 days. Hope things
work out for you ! Dan H. 26 years post injury.--car accident.
On Friday, December 8, 2023 at 11:43:46 AM CST, Val Cleroux
<vcler...@rogers.com> wrote:
Hi everyone:
I met with a neurosurgeon at St. Michael's Hospital in Toronto and he says that
I have too much steel in my neck to be able to put a shunt. I got 3 inches of
steel down both sides holding my spine between C2-C7 straight. They don't do
steel surgeries anymore as that was 23 years ago.
I researched the syrinx and it says the first thing to deteriorate is my
digestive system, and then after time, the other organs will be affected. I'm
down to eating only liquid foods, they still hurt but not as bad as chunky food.
Thank you everyone for replying to me!
Val Clerouxwww.whyped.ca "Communication is the key to success"
On Thursday, December 7, 2023 at 07:29:43 p.m. EST, Edward Tessier
<e...@artecopartners.com> wrote:
Wow, what a journey Dana
So glad you are still with usFrom: Dana <wraydan...@gmail.com>
Sent: Wednesday, December 6, 2023 10:39 PM
To: Eric Olson <whee...@wi.rr.com>
Cc: Quad List <quad-list@eskimo.com>; Val Cleroux <vcler...@rogers.com>
Subject: Re: [QUAD-L] Ileostomy I had my first Ileo-conduit in 1986 from
bladder cancer. Then In 2014 I kept having UTIs all the time. The kidney doctor
didn’t know how to do the surgery that was needed to make another ileo-conduit.
She wanted to put me on hospice. We started calling every kidney doctor and
that was able to do the surgery. he got me on the table within two weeks. we
had to have a long talk and explain to me 2.out 3 die during the surgery. So I
was a blessed to survive. it took six months to get over the surgery. I was in
the hospital three weeks. I continue to have UTIs and kidney stones. This
allows you to get more bacteria causing kidney stones. I really liked the
information I read on the
On Wed, Oct 11, 2023 at 12:09 PM Eric Olson <whee...@wi.rr.com> wrote:
There was a person on the list that had a syrinx, but sadly, she passed away.
She had a shunt put in that let the fluid in the syrinx drain continuously into
her stomach. Since you're doing research anyway, perhaps do some research on a
shunt. Neither is a no joke surgery. Are you sure your digestive issues are
from the syrinx and not something more common like IBS?
On Mon, Oct 9, 2023 at 1:08 PM Val Cleroux <vcler...@rogers.com> wrote:
Hi everyone:
I am a C3/4 quad from a motor vehicle accident in 2000. I have a syrinx which
is a cyst that fills up with cerebral fluid and stretches down the spine. This
cyst affects how the messages are sent from the brain to the organs in order to
make them work properly. So far it has affected my digestive system and I am
very limited as to what I can eat.
My surgeon is suggesting an ileostomy and I am now researching to see if this
would be beneficial or not? Is there anyone out there that has an ileostomy
that I could speak with?
Thanks in advance for anyone that can help me with information so that I can
make my decision which a yes of a no?
Val Clerouxwww.whyped.ca"Communication is the key to success"
