Re: [CML] Gleevec

[Rob]

It would be good if you could see a CML expert at M.D. Anderson or other major CML centers. Because there are so many new drugs there are fewer and fewer patients going the BMT route. BMT's are sometimes an effective treatment method but you have to be careful with what the word "cure" means regarding BMT's. Many patients have serious complications from BMT's and there is also a high mortality rate. If they succeed with the BMT it does not mean they are forever free from CML because there can be relapse at any point 1, 5, 10, 15, 20 years later. We have some in this group who relapsed as long as 15 years or more after having a BMT and are now undergoing treatment with Gleevec and other drugs.   Rob   ----- Original Message ----- From: andrea silveira To: CML@yahoogroups.com Sent: Saturday, November 05, 2005 1:10 PM Subject: Re: [CML] Gleevec Hello Dave   Just wanted to see how you were doing after 5 years of Gleevec.  I am 24 years old and DX 2 years ago.  I am not in remission, my BCR is still high, but lowering every three months.  I have gotten several options from doctors and I get different answers all the time.  My doctor that was taking care of me since I was DX told me to stay on Gleevec, It was working and I was getting better slowly. He moved out of State.  My new Doctor says I should do the Bone Marrow Transplant, becasue there is no other cure.  I have seen 2 other doctors since then.  One says wait and the other one says I have to take a gamble and so I should do the Transplant.  So know Im getting advice from other people that are in my shoes. Please help --- [EMAIL PROTECTED] wrote: > Hi Sandy, >  >  > I have been on Gleevec for over 5 years and doing > just fine. Was in one of  > the first studies before Gleevec was O.K'd be the > FDA.  I had a BMB in  Oct of > this year and everything checked out O.K >   > Dave Greenberg > Springfield, MO. >             __________________________________ Yahoo! FareChase: Search multiple travel sites in one click. http://farechase.yahoo.com New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: cml@yahoogroups.com Subscribe:  [EMAIL PROTECTED] Unsubscribe:  [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED]  CML Group Web Site http://groups.yahoo.com/group/CML YAHOO! GROUPS LINKS  Visit your group "CML" on the web.    To unsubscribe from this group, send an email to:  [EMAIL PROTECTED]    Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.