Hi, which chromosome 9 problem did he have? I have deletion of Chromsome 9 and it is all gone, thanks to gleevec. In fact, I am PCR negative most of the time. I would recommend you to wait for gleevec to work a little longer. Before the chromosome 9 gave a poor diagnosis, but now with gleevec its otherwise.
Susanna -- [EMAIL PROTECTED] wrote: > Hi Dave, > > My husband was DX in August of this year. The first > Dr. put him on Gleevec to see if would help. When we > went to CTH his new Dr. did blood test and stated > that his BCR was almost back to normal, and thought > that it would be okay if he stayed since his body > accepted it so well and not worrie about having to > do a bone marrow. One month later, during his rutine > visit, the Dr. let us know that my husband has some > chromozone 9 and that the Gleevece would not work to > well within time his body would start to dislike it. > Dr. thought that it is time to start looking for a > doner before he that starts to happen. Did your Dr. > say anything about your chomozones at all? If not > ask your Dr. if that has anything to say. My husband > and i have three very young children,so wee decided > that with how far they have come with technology, > medicine and everything in between it is very well > worth trying the bone marrow transplant. His only > brother has been tested and we now know that he is > not a match. His Dr. is checking the data base for a > doner next week. Initally my husband wanted to stay > on the Gleevec and that he would not ever consider a > Transplant. I told him that we may want and plan on > thing, but God is the olny on that know what is in > store for him and he willm make that disision, > ----- Original Message ----- > From: andrea silveira > To: [email protected] > Sent: Saturday, November 05, 2005 11:10 AM > Subject: Re: [CML] Gleevec > > > Hello Dave > Just wanted to see how you were doing after 5 > years > of Gleevec. I am 24 years old and DX 2 years ago. > I > am not in remission, my BCR is still high, but > lowering every three months. I have gotten > several > options from doctors and I get different answers > all > the time. My doctor that was taking care of me > since > I was DX told me to stay on Gleevec, It was > working > and I was getting better slowly. He moved out of > State. My new Doctor says I should do the Bone > Marrow > Transplant, becasue there is no other cure. I > have > seen 2 other doctors since then. One says wait > and > the other one says I have to take a gamble and so > I > should do the Transplant. So know Im getting > advice > from other people that are in my shoes. Please > help > > > --- [EMAIL PROTECTED] wrote: > > > Hi Sandy, > > > > > > I have been on Gleevec for over 5 years and > doing > > just fine. Was in one of > > the first studies before Gleevec was O.K'd be > the > > FDA. I had a BMB in Oct of > > this year and everything checked out O.K > > > > Dave Greenberg > > Springfield, MO. > > > > > > > __________________________________ > Yahoo! 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