My son has the same side effects as you... But now the side effects are more "soft" after he started to work out regularly and takes green tea 3 times a day ( it seems that the green tea helps to clean the body from the toxins). He also takes 1 capsule of garlic in the morning and 600 mg of gleevec during the lunch. Keep going. Ricardo
On 4/16/09, bikercub <[email protected]> wrote: > > > I was diagnosed with CML in May of 1992. I've been on Gleevec going > on my 7th year. I was on Interferon for 10 years before that. I > still have some effects of the Interferon, but I think most of my side > effects are from the Gleevec and was wondering how many others out > there have these. > > I know there are newer drugs available, but Gleevec seems to be > working for me and I don't want to mess with that! > > I've always ran on the "warm" side, but really feel warm all the time > now. I still have night sweats (which was one of the things that took > me to the doctor 17 years ago!). > > Sometimes I think that my co-workers feel that I am taking advantage > of having a day off in the middle of the week to "rest". I still work > full time and have pretty much since this all started. I also "look > healthy" so I think that may throw them off! > > I've read a lot of posts and read about various side effects, but most > of those posts were a couple years back....unless I'm looking in the > wrong place???? Is it because most people are starting on the newer > drugs for CML now? I'm actually wanting to know how people who have > been on Gleevec for a few years are feeling. > > So here is my list of problems: > Fatigue, especially if I do too much > Day and night sweats > Muscle cramps, especially at night in the calves and arch of foot > Frequent Diarrhea > Some edema > Nausea on rare occassions > > So, am I crazy? Or are you guys out there dealing with these too? If > so, how often? > > Thanks > > > > > --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
