almost exactly my list...
Patrick


--- On Wed, 4/15/09, bikercub <[email protected]> wrote:

> From: bikercub <[email protected]>
> Subject: [CMLHope] Gleevec Side Effects
> To: "CMLHope" <[email protected]>
> Date: Wednesday, April 15, 2009, 11:54 PM
> I was diagnosed with CML in May of 1992.  I've been on
> Gleevec going
> on my 7th year.  I was on Interferon for 10 years before
> that.  I
> still have some effects of the Interferon, but I think most
> of my side
> effects are from the Gleevec and was wondering how many
> others out
> there have these.
> 
> I know there are newer drugs available, but Gleevec seems
> to be
> working for me and I don't want to mess with that!
> 
> I've always ran on the "warm" side, but
> really feel warm all the time
> now.  I still have night sweats (which was one of the
> things that took
> me to the doctor 17 years ago!).
> 
> Sometimes I think that my co-workers feel that I am taking
> advantage
> of having a day off in the middle of the week to
> "rest".  I still work
> full time and have pretty much since this all started.  I
> also "look
> healthy" so I think that may throw them off!
> 
> I've read a lot of posts and read about various side
> effects, but most
> of those posts were a couple years back....unless I'm
> looking in the
> wrong place????  Is it because most people are starting on
> the newer
> drugs for CML now?  I'm actually wanting to know how
> people who have
> been on Gleevec for a few years are feeling.
> 
> So here is my list of problems:
> Fatigue, especially if I do too much
> Day and night sweats
> Muscle cramps, especially at night in the calves and arch
> of foot
> Frequent Diarrhea
> Some edema
> Nausea on rare occassions
> 
> So, am I crazy?  Or are you guys out there dealing with
> these too?  If
> so, how often?
> 
> Thanks
> 
> 
> 

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