I also have a hard time losing weight. I gained quite a bit when I first started gleevec at 600 mg, the side effects were worse than they are now and was taking 8 potassium pills a day with the dirutics for the edema. Lost some weight when my dose was reduced to 400 mg and now take 4 postassium pills a day. I've been the same weight pretty much for the past 4 or 5 years, which is still too much weight!
Yes, diarrhea is better than the constipation, and I guess it would be described more like very loose stool than diarrhea. I also have gas more than I used to. It's nice to know that I am not "faking it"! I used to be a person who wouldn't even take an aspirin for a headache until it got really bad and now I take so many medications/supplements/vitamins, some because of the side effects. Thanks for all the responses! On Apr 16, 4:48 am, "Jody Capik" <[email protected]> wrote: > one more side effect...I have a really hard time losing weight! > > Jody > > > > -----Original Message----- > From: [email protected] [mailto:[email protected]] On Behalf > > Of [email protected] > Sent: Thursday, April 16, 2009 12:34 AM > To: [email protected] > Subject: [CMLHope] Re: Gleevec Side Effects > > almost exactly my list... > Patrick > > --- On Wed, 4/15/09, bikercub <[email protected]> wrote: > > > From: bikercub <[email protected]> > > Subject: [CMLHope] Gleevec Side Effects > > To: "CMLHope" <[email protected]> > > Date: Wednesday, April 15, 2009, 11:54 PM > > I was diagnosed with CML in May of 1992. I've been on > > Gleevec going > > on my 7th year. I was on Interferon for 10 years before > > that. I > > still have some effects of the Interferon, but I think most > > of my side > > effects are from the Gleevec and was wondering how many > > others out > > there have these. > > > I know there are newer drugs available, but Gleevec seems > > to be > > working for me and I don't want to mess with that! > > > I've always ran on the "warm" side, but > > really feel warm all the time > > now. I still have night sweats (which was one of the > > things that took > > me to the doctor 17 years ago!). > > > Sometimes I think that my co-workers feel that I am taking > > advantage > > of having a day off in the middle of the week to > > "rest". I still work > > full time and have pretty much since this all started. I > > also "look > > healthy" so I think that may throw them off! > > > I've read a lot of posts and read about various side > > effects, but most > > of those posts were a couple years back....unless I'm > > looking in the > > wrong place???? Is it because most people are starting on > > the newer > > drugs for CML now? I'm actually wanting to know how > > people who have > > been on Gleevec for a few years are feeling. > > > So here is my list of problems: > > Fatigue, especially if I do too much > > Day and night sweats > > Muscle cramps, especially at night in the calves and arch > > of foot > > Frequent Diarrhea > > Some edema > > Nausea on rare occassions > > > So, am I crazy? Or are you guys out there dealing with > > these too? If > > so, how often? > > > Thanks- Hide quoted text - > > - Show quoted text - --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
