it's sooo interesting that we all pretty much have the same side symptoms! I could have written that post from you Suzie...and sometimes when I lie flat on my back, I'll get a muscle cramp there too...or if i do too much with my fingers..will get them there as well...
as far as the weight gain, that was the BEST thing about Interferon! ha...kept the weight off! Gleevec must slow down our metabolism somehow..that's all I can say! ;) I do try to walk alot..and sometimes lift weights..just walked over 3 miles today, and try to do at least 2 miles 5-6 times a week...i stay up til 11 or so at night, and get up at 5:30.....and always seem to have a million things to do..I never nap during the day...but, am always tired..i'm afraid if I nap during the day, I won't sleep well at night... -----Original Message----- From: [email protected] [mailto:[email protected]] On Behalf Of Suzieq Sent: Thursday, April 16, 2009 1:32 PM To: CMLHope Subject: [CMLHope] Re: Gleevec Side Effects Was diagnosed back in Jan. '04....started 400mgs. of Gleevec in Feb. '04 and stayed on it since.......have exact same symptoms...maybe not so severe as in the beginning & the fatigue doesn't hit me like it did, but ever so often now....especially if I overdo the day or night before. Then I am just totally wiped out the next day. My cramps are not so often now but will get one still in the arches of my foot if I forget and flex it....I don't do that too much anymore. Not so much diarrhea, either, but usually each morning I must be close to a restroom, :) but would rather have this than the alternative. Also seem to have more gas as well. I gained about 25 pounds......have taken it off and put it right back on. Have decided to try more healthy eating and doing a little more exercise and see if that helps.....I lost so much when first diagnosed that all I heard once beginning Gleevec was "Eat, Eat, Eat", so I did.LOL! Still have the edema around the eyes but not as bad as in the beginning. Nausea is the same way......comes and goes. I've just decided that this is what we have to live with, so accepted it and go on. Suizeq --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
