Jeff, In fact, the side effects depends not only by the drug but by the person. The rule of thumb is if you're fine with your drug just keep going. There are a lot of people that deal fine with gleevec ( like my son) - for these cases I think that the good advice is just keep going. But there are some that have serious side effects and should change.
You are a lucky guy for getting along with tasigna, because. like gleevec, there are a lot of people with serious side effects as well. God bless you and just keep going, Ricardo. check this site: http://www.us.tasigna.com/index.jsp?usertrack.filter_applied=true&NovaId=2229645031290439701 TASIGNA is sometimes associated with serious side effects, with symptoms that include: - Irregularity in heartbeat or fainting - Unexplained bleeding or bruising - Blood in urine or stool - Unexplained weakness - Yellow skin and eyes - Shortness of breath - Swelling of hands, ankles, feet, or face - Sudden stomach area pain with nausea and vomiting Common side effects Most patients experience side effects at some time. Some common side effects you may experience include: - Low blood count - Rash - Nausea - Headache - Itching - Tiredness - Diarrhea - Constipation On 4/16/09, Jeff Balsam <[email protected]> wrote: > > > Hi everyone! My name is jeff and though I've never posted before I > really feel like it is time to speak up. I was diagnosed with CML > about 4 months ago and I've been monitoring this site ever since. > Because of all the posts regarding Gleevec side effects, I decided to > be proactive, do some research on my own and not listen to my > oncologists advice to "just take Gleevec". > > Instead I found a clinical trial where I was assured of getting > tasigna which is more powerful than Gleevec but with far fewer side > effects. I've been on tasigna for several months now and am in > hematological remission with no side effects at all! So everytime I > read about someone saying "sure Gleevec gives me horrible aide effects > but at least it's keeping me alive", I say how about trying tasigna > and maybe you can stay alive and have a great quality of life too! > > Nobody knows I have CML and in fact other than remembering to take the > meds, I barely remember either. Why?no side effects, no pain, nothing > but my normal life. > > So please look into this fabulous drug and maybe it will work for you > too! Good luck! > > Sent from my iPhone > > On Apr 16, 2009, at 5:36 AM, bikercub <[email protected]> wrote: > > > > > I also have a hard time losing weight. I gained quite a bit when I > > first started gleevec at 600 mg, the side effects were worse than they > > are now and was taking 8 potassium pills a day with the dirutics for > > the edema. Lost some weight when my dose was reduced to 400 mg and > > now take 4 postassium pills a day. I've been the same weight pretty > > much for the past 4 or 5 years, which is still too much weight! > > > > Yes, diarrhea is better than the constipation, and I guess it would be > > described more like very loose stool than diarrhea. I also have gas > > more than I used to. > > > > It's nice to know that I am not "faking it"! I used to be a person > > who wouldn't even take an aspirin for a headache until it got really > > bad and now I take so many medications/supplements/vitamins, some > > because of the side effects. > > > > Thanks for all the responses! > > > > > > > > On Apr 16, 4:48 am, "Jody Capik" <[email protected]> wrote: > >> one more side effect...I have a really hard time losing weight! > >> > >> Jody > >> > >> > >> > >> -----Original Message----- > >> From: [email protected] [mailto:[email protected]] On > >> Behalf > >> > >> Of [email protected] > >> Sent: Thursday, April 16, 2009 12:34 AM > >> To: [email protected] > >> Subject: [CMLHope] Re: Gleevec Side Effects > >> > >> almost exactly my list... > >> Patrick > >> > >> --- On Wed, 4/15/09, bikercub <[email protected]> wrote: > >> > >>> From: bikercub <[email protected]> > >>> Subject: [CMLHope] Gleevec Side Effects > >>> To: "CMLHope" <[email protected]> > >>> Date: Wednesday, April 15, 2009, 11:54 PM > >>> I was diagnosed with CML in May of 1992. I've been on > >>> Gleevec going > >>> on my 7th year. I was on Interferon for 10 years before > >>> that. I > >>> still have some effects of the Interferon, but I think most > >>> of my side > >>> effects are from the Gleevec and was wondering how many > >>> others out > >>> there have these. > >> > >>> I know there are newer drugs available, but Gleevec seems > >>> to be > >>> working for me and I don't want to mess with that! > >> > >>> I've always ran on the "warm" side, but > >>> really feel warm all the time > >>> now. I still have night sweats (which was one of the > >>> things that took > >>> me to the doctor 17 years ago!). > >> > >>> Sometimes I think that my co-workers feel that I am taking > >>> advantage > >>> of having a day off in the middle of the week to > >>> "rest". I still work > >>> full time and have pretty much since this all started. I > >>> also "look > >>> healthy" so I think that may throw them off! > >> > >>> I've read a lot of posts and read about various side > >>> effects, but most > >>> of those posts were a couple years back....unless I'm > >>> looking in the > >>> wrong place???? Is it because most people are starting on > >>> the newer > >>> drugs for CML now? I'm actually wanting to know how > >>> people who have > >>> been on Gleevec for a few years are feeling. > >> > >>> So here is my list of problems: > >>> Fatigue, especially if I do too much > >>> Day and night sweats > >>> Muscle cramps, especially at night in the calves and arch > >>> of foot > >>> Frequent Diarrhea > >>> Some edema > >>> Nausea on rare occassions > >> > >>> So, am I crazy? Or are you guys out there dealing with > >>> these too? If > >>> so, how often? > >> > >>> Thanks- Hide quoted text - > >> > >> - Show quoted text - > > > > > > > --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
