Marty could probably give the best info on it but Zavie Miller from Canada started a group conference call. Zavie regretfully passed away maybe a year and a half ago, not from CML. I don't recall how it worked because I only participated in one call before Zavie had a stroke. But we all got to talk to one another. Now with Skype, we can actually see the others.
This group is truly like long lost family for me. Everyone gets it whereas people who don't live with chronic illness just don't. My husband, who is very loving and supportive, really doesn't understand some of the things I experience. Hair loss - that is a wig I am wearing. I learned early on that it is a huge no no to cook with your wig on, even worse, to open a hot oven. Ruined the first wig pretty quickly. I love to cook and have people over but #1, I am too tired (I have a full time job) to cook for a crowd, #2, I feel uncomfortable wearing a scarf or turban with some people and #3, bald thinning hair doesn't look so good on me. My husband thinks I'm being silly. How do you explain the bone pain we all live with? The fatigue? The Gleevec stomach? The memory loss? No explanations are necessary with our group. We just care about each other and I doubt few of us have ever personally met. I know I can ask anything and I'll get tons of answers. When one of the Warriors is having a tough time, as you are now, it hurts us as well because we've got each other's back. I'm making an album of the photos so that every night before I go to sleep I can look at my new Warrior family and say prayers for them. And a thank you, too, for being so wonderful to me. God Bless you Millie. Hope some good news is headed your way. Marcie Sent from my iPad On Jul 12, 2013, at 7:45 PM, "C.M. Houtz" <ho...@ptd.net> wrote: > Tell me about the phone club..I never have heard of it, but sounds > interesting. I think it's wonderful that we can all correspond the way we > do, and it certainly helps me, and I'm sure the others. We all understand > what the others are dealing with. It helps to have someone to talk to. > Thanks for caring, Marcie.....I love being able to see you. To bad I don't > live in Maryland anymore. It would be nice to see you in person. We lived > in Clinton which is south of D.C. but it wasn't that far to Baltimore. You > take care....Hugs, Millie > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/groups/opt_out. > > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
