Well, I have good news.  We both woke up today, Grace was  O. K. and later 
on into the day I'm feeling much better.  Tomorrow well  tell the truth.  
I'll let you all know and Thanks for thinking of us  both.  We all are one 
hell of a team, we should have our own  Superbowl..
 
greenie
 
 
In a message dated 1/27/2015 1:32:57 P.M. Eastern Standard Time,  
cmlhope@googlegroups.com writes:

maybe you both have a bit of a virus or bug?  Hope that's all it is and you 
both will feel better soon. It does seem odd  when all of a sudden after so 
many years you get a symptom like nausea.
Be  well...thinking of you and everyone else today...  


Beth

-----Original  Message-----
From: Myvety2k via CMLHope  <cmlhope@googlegroups.com>
To: cmlhope  <cmlhope@googlegroups.com>
Sent: Mon, Jan 26, 2015 5:09  pm
Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on  tkis?


 
Hi Beth, I'm starting to think it's not the Gleevec that's  given me the 
nausea because my wife started to get the nausea also.   Could be Florida 
weather, tree's, flowers, etc. 
 
greenie
 
 
In a message dated 1/26/2015 6:05:17 P.M. Eastern Standard Time, 
_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com)   writes:

Greenie, Remember, if you do need to swap a  TKI....Lots of good options 
with low doses because you have done so well for  so long on Gleevec...you are 
a warrior. My blood counts are O.K...but I  appreciate the anxiety of all 
this for all of us..it's one of the harder  parts to manage well. Good luck 
to you! Beth


-----Original  Message-----
From: Joan <_lilako19@gmail.com_ (mailto:lilak...@gmail.com) >
To: cmlhope  <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) >
Sent:  Mon, Jan 26, 2015 5:01 pm
Subject: Re: [CMLHope] My Update anyone had  relapse after 5 years on tkis?


 
Greenie,
I had to quit Gleevec because it was messing with my  kidneys. Now I take 
Tasinga.  
Joan

On Saturday, January 24, 2015 at 9:56:22 AM UTC-6, greenie  wrote:  
Hi to my friends in our group,  well I've been on  Gleevec for 15 years and 
14 days all of a sudden for the last 4 days I'm  having nausea problems.  
I'm taking some promethazine that helps some  what but it's not a fun thing.  
I have no idea what started it  either.  I had this problem before when we 
lived in Springfield, MO.  I got over heated and got hit with nausea every 
day for a little more then  2 years then I awoke one morning and it was like 
someone turned off the  switch and it was gone.  This time of the year it's 
not hot here so I  know that's not what caused this problem.
 
I'm going to take a Gleevec break for a week or two to  clean out my system 
and hope that I get back to normal.  I did this  before about 6 years ago 
when I had a sinus infection and the doctor back  in Indiana put me on and 
anabolic that interfered with my Gleevec so we  stopped Gleevec for 26 days.  
After getting blood work some cancer  cells did show back up in my blood 
work but after stating Gleevec again  the next test showed that I was clean 
again.  
 
My doctor at that time was doctor Tallman and he gave me  a call and said 
"well if it worked before it will work again" and that was  that.  So I have 
my fingers crossed to see what happens.  I  can't stand this nausea problem, 
my heart goes out to the women that have  babies and have to put up with 
nausea.  I just hope it's the Gleevec  again and not something else.  My blood 
counts are O. K. so I'm not  worried about that.  This does not help my 
anxiety  problems
 
Will keep you all up to date as how things  go.
 
greenie
 




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