YEAH FOR GOOD NEWS!!!! :) Beth


-----Original Message-----
From: Myvety2k via CMLHope <[email protected]>
To: cmlhope <[email protected]>
Sent: Tue, Jan 27, 2015 4:59 pm
Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis?



Well, I have good news.  We both woke up today, Grace was O. K. and later on 
into the day I'm feeling much better.  Tomorrow well tell the truth.  I'll let 
you all know and Thanks for thinking of us both.  We all are one hell of a 
team, we should have our own Superbowl..
 
greenie
 

In a message dated 1/27/2015 1:32:57 P.M. Eastern Standard Time, 
[email protected] writes:
maybe you both have a bit of a virus or bug?   Hope that's all it is and you 
both will feel better soon. It does seem odd   when all of a sudden after so 
many years you get a symptom like nausea.
Be   well...thinking of you and everyone else today...   


  
Beth

  
-----Original   Message-----
From: Myvety2k via CMLHope   <[email protected]>
To: cmlhope   <[email protected]>
Sent: Mon, Jan 26, 2015 5:09   pm
Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on   tkis?

  
  
  
Hi Beth, I'm starting to think it's not the Gleevec that's   given me the 
nausea because my wife started to get the nausea also.    Could be Florida 
weather, tree's, flowers, etc. 
  
 
  
greenie
  
 
  
  
In a message dated 1/26/2015 6:05:17 P.M. Eastern Standard Time, 
[email protected]   writes:
  
Greenie, Remember, if you do need to swap a     TKI....Lots of good options 
with low doses because you have done so well for     so long on Gleevec...you 
are a warrior. My blood counts are O.K...but I     appreciate the anxiety of 
all this for all of us..it's one of the harder     parts to manage well. Good 
luck to you! Beth


    
-----Original     Message-----
From: Joan <[email protected]>
To: cmlhope     <[email protected]>
Sent:     Mon, Jan 26, 2015 5:01 pm
Subject: Re: [CMLHope] My Update anyone had     relapse after 5 years on tkis?

    
    
    
Greenie,
I had to quit Gleevec because it was messing with my     kidneys. Now I take 
Tasinga.     
Joan

On Saturday, January 24, 2015 at 9:56:22 AM UTC-6, greenie     wrote:     
      
Hi to my friends in our group,  well I've been on       Gleevec for 15 years 
and 14 days all of a sudden for the last 4 days I'm       having nausea 
problems.  I'm taking some promethazine that helps some       what but it's not 
a fun thing.  I have no idea what started it       either.  I had this problem 
before when we lived in Springfield, MO.       I got over heated and got hit 
with nausea every day for a little more then       2 years then I awoke one 
morning and it was like someone turned off the       switch and it was gone.  
This time of the year it's not hot here so I       know that's not what caused 
this problem.
      
 
      
I'm going to take a Gleevec break for a week or two to       clean out my 
system and hope that I get back to normal.  I did this       before about 6 
years ago when I had a sinus infection and the doctor back       in Indiana put 
me on and anabolic that interfered with my Gleevec so we       stopped Gleevec 
for 26 days.  After getting blood work some cancer       cells did show back up 
in my blood work but after stating Gleevec again       the next test showed 
that I was clean again.  
      
 
      
My doctor at that time was doctor Tallman and he gave me       a call and said 
"well if it worked before it will work again" and that was       that.  So I 
have my fingers crossed to see what happens.  I       can't stand this nausea 
problem, my heart goes out to the women that have       babies and have to put 
up with nausea.  I just hope it's the Gleevec       again and not something 
else.  My blood counts are O. K. so I'm not       worried about that.  This 
does not help my anxiety       problems
      
 
      
Will keep you all up to date as how things       go.
      
 
      
greenie
      
 

    
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