Oh sorry Marty They are listed as C1535 k/ul Since he told me they were in the millions I assume this is millions. I hope the new med starts bringing them down. He lowered my allopurinol to 100 mgs daily. How are you?
Prayers & Blessings Jeanie 18's 🐠🐠 > On Jan 30, 2015, at 3:02 PM, Marty Gartenberg <wa2...@gmail.com> wrote: > > Hi Jeanie, > > Could you clarify something? Your platelets are ??? by chance did you leave > out the period? > > Your Creation is very good, I wish that mine were that low. Mine was at the > last count 9.8. That is why I am on dialysis. > > By the way, the rest of your counts are really not all that bad. > > 18's, > > Marty > >> On Fri, Jan 30, 2015 at 12:38 PM, 'Icandoallttc' via CMLHope >> <cmlhope@googlegroups.com> wrote: >> >> Hi all, >> The following counts were all high on latest blood test: >> >> RDW 62.5 >> Platelet counts 1535 >> Basophils Auto 0.30 k/ul >> Immature Gran Auto 0.34 k/ul >> Potassium 5.6 >> Bun 25 mg/dl >> Creatine 1.1 >> >> Prayers & Blessings Jeanie 18's >> >>> On Jan 30, 2015, at 8:00 AM, Icandoallttc <icandoall...@aol.com> wrote: >>> >>> Kk Greenie. >>> The doctor gave me Proclorperazine. It didn't help me that much but >>> meclizine did. We all have to find what works for us. Good luck and hang >>> in there. >>> >>> Prayers & Blessings Jeanie 18's >>> >>>> On Jan 30, 2015, at 7:48 AM, Myvety2k via CMLHope >>>> <cmlhope@googlegroups.com> wrote: >>>> >>>> Jeanie, I take promethazine 25mg but I cut them in 1/4 because if I take >>>> the hole pill in makes me sleepy. 1/2 works better but that puts me into >>>> low gear. But it does take away the nausea. >>>> >>>> greenie >>>> >>>> In a message dated 1/30/2015 7:44:52 A.M. Eastern Standard Time, >>>> cmlhope@googlegroups.com writes: >>>> Hi Greenie >>>> Sorry to hear you still have your nausea. >>>> Have you tried Meclizine ? I find it works better than compozine. My >>>> nausea is better since coming off hydrea. >>>> I am on my 5th day of ponatinib. I had blood work done yesterday. >>>> My WBC came down but the platelets keep going up. Still in the millions >>>> (1529) The doctor is baffled but dropped my ponatinib to 2 (15 mg) tablets >>>> daily. >>>> My skin is drying out and headaches have returned. This reminds me of >>>> Gleevec but it has many side effects. >>>> Just have to deal with them as usual. >>>> I hope everyone is good this morning. >>>> >>>> >>>> Prayers & Blessings Jeanie 18's >>>> >>>>> On Jan 30, 2015, at 7:07 AM, Myvety2k via CMLHope >>>>> <cmlhope@googlegroups.com> wrote: >>>>> >>>>> I all the good news was short termed, I woke up yesterday and the nausea >>>>> came back so I'm thinking I may have picked up some bug. Grace she's >>>>> O.K. time will tell. So far this morning I feel find but will see our the >>>>> rest of the day goes. >>>>> >>>>> greenie >>>>> >>>>> In a message dated 1/29/2015 9:51:44 P.M. Eastern Standard Time, >>>>> cmlhope@googlegroups.com writes: >>>>> YEAH FOR GOOD NEWS!!!! :) Beth >>>>> >>>>> >>>>> -----Original Message----- >>>>> From: Myvety2k via CMLHope <cmlhope@googlegroups.com> >>>>> To: cmlhope <cmlhope@googlegroups.com> >>>>> Sent: Tue, Jan 27, 2015 4:59 pm >>>>> Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? >>>>> >>>>> Well, I have good news. We both woke up today, Grace was O. K. and later >>>>> on into the day I'm feeling much better. Tomorrow well tell the truth. >>>>> I'll let you all know and Thanks for thinking of us both. We all are one >>>>> hell of a team, we should have our own Superbowl.. >>>>> >>>>> greenie >>>>> >>>>> In a message dated 1/27/2015 1:32:57 P.M. Eastern Standard Time, >>>>> cmlhope@googlegroups.com writes: >>>>> maybe you both have a bit of a virus or bug? Hope that's all it is and >>>>> you both will feel better soon. It does seem odd when all of a sudden >>>>> after so many years you get a symptom like nausea. >>>>> Be well...thinking of you and everyone else today... >>>>> >>>>> Beth >>>>> >>>>> -----Original Message----- >>>>> From: Myvety2k via CMLHope <cmlhope@googlegroups.com> >>>>> To: cmlhope <cmlhope@googlegroups.com> >>>>> Sent: Mon, Jan 26, 2015 5:09 pm >>>>> Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? >>>>> >>>>> Hi Beth, I'm starting to think it's not the Gleevec that's given me the >>>>> nausea because my wife started to get the nausea also. Could be Florida >>>>> weather, tree's, flowers, etc. >>>>> >>>>> greenie >>>>> >>>>> In a message dated 1/26/2015 6:05:17 P.M. Eastern Standard Time, >>>>> cmlhope@googlegroups.com writes: >>>>> Greenie, Remember, if you do need to swap a TKI....Lots of good options >>>>> with low doses because you have done so well for so long on Gleevec...you >>>>> are a warrior. My blood counts are O.K...but I appreciate the anxiety of >>>>> all this for all of us..it's one of the harder parts to manage well. Good >>>>> luck to you! Beth >>>>> >>>>> >>>>> -----Original Message----- >>>>> From: Joan <lilak...@gmail.com> >>>>> To: cmlhope <cmlhope@googlegroups.com> >>>>> Sent: Mon, Jan 26, 2015 5:01 pm >>>>> Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? >>>>> >>>>> Greenie, >>>>> I had to quit Gleevec because it was messing with my kidneys. Now I take >>>>> Tasinga. >>>>> Joan >>>>> >>>>>> On Saturday, January 24, 2015 at 9:56:22 AM UTC-6, greenie wrote: >>>>>> Hi to my friends in our group, well I've been on Gleevec for 15 years >>>>>> and 14 days all of a sudden for the last 4 days I'm having nausea >>>>>> problems. I'm taking some promethazine that helps some what but it's >>>>>> not a fun thing. I have no idea what started it either. I had this >>>>>> problem before when we lived in Springfield, MO. I got over heated and >>>>>> got hit with nausea every day for a little more then 2 years then I >>>>>> awoke one morning and it was like someone turned off the switch and it >>>>>> was gone. This time of the year it's not hot here so I know that's not >>>>>> what caused this problem. >>>>>> >>>>>> I'm going to take a Gleevec break for a week or two to clean out my >>>>>> system and hope that I get back to normal. I did this before about 6 >>>>>> years ago when I had a sinus infection and the doctor back in Indiana >>>>>> put me on and anabolic that interfered with my Gleevec so we stopped >>>>>> Gleevec for 26 days. After getting blood work some cancer cells did >>>>>> show back up in my blood work but after stating Gleevec again the next >>>>>> test showed that I was clean again. >>>>>> >>>>>> My doctor at that time was doctor Tallman and he gave me a call and said >>>>>> "well if it worked before it will work again" and that was that. So I >>>>>> have my fingers crossed to see what happens. I can't stand this nausea >>>>>> problem, my heart goes out to the women that have babies and have to put >>>>>> up with nausea. I just hope it's the Gleevec again and not >>>>>> something else. My blood counts are O. K. so I'm not worried about >>>>>> that. This does not help my anxiety problems >>>>>> >>>>>> Will keep you all up to date as how things go. >>>>>> >>>>>> greenie >>>>> >>>>> -- >>>>> -- >>>>> [CMLHope] >>>>> A support group of http://cmlhope.com >>>>> ------------------------------------------------- >>>>> >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To post to this group, send email to CMLHope@googlegroups.com >>>>> To unsubscribe from this group, send email to >>>>> cmlhope-unsubscr...@googlegroups.com >>>>> For more options, visit this group at >>>>> http://groups.google.com/group/CMLHope >>>>> --- >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To unsubscribe from this group and stop receiving emails from it, send an >>>>> email to cmlhope+unsubscr...@googlegroups.com. >>>>> For more options, visit https://groups.google.com/d/optout. >>>>> -- >>>>> -- >>>>> [CMLHope] >>>>> A support group of 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