Hi Greenie Sorry to hear you still have your nausea. Have you tried Meclizine ? I find it works better than compozine. My nausea is better since coming off hydrea. I am on my 5th day of ponatinib. I had blood work done yesterday. My WBC came down but the platelets keep going up. Still in the millions (1529) The doctor is baffled but dropped my ponatinib to 2 (15 mg) tablets daily. My skin is drying out and headaches have returned. This reminds me of Gleevec but it has many side effects. Just have to deal with them as usual. I hope everyone is good this morning.
Prayers & Blessings Jeanie 18's 🐠🐠 > On Jan 30, 2015, at 7:07 AM, Myvety2k via CMLHope <cmlhope@googlegroups.com> > wrote: > > I all the good news was short termed, I woke up yesterday and the nausea came > back so I'm thinking I may have picked up some bug. Grace she's O.K. time > will tell. So far this morning I feel find but will see our the rest of the > day goes. > > greenie > > In a message dated 1/29/2015 9:51:44 P.M. Eastern Standard Time, > cmlhope@googlegroups.com writes: > YEAH FOR GOOD NEWS!!!! :) Beth > > > -----Original Message----- > From: Myvety2k via CMLHope <cmlhope@googlegroups.com> > To: cmlhope <cmlhope@googlegroups.com> > Sent: Tue, Jan 27, 2015 4:59 pm > Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? > > Well, I have good news. We both woke up today, Grace was O. K. and later on > into the day I'm feeling much better. Tomorrow well tell the truth. I'll > let you all know and Thanks for thinking of us both. We all are one hell of > a team, we should have our own Superbowl.. > > greenie > > In a message dated 1/27/2015 1:32:57 P.M. Eastern Standard Time, > cmlhope@googlegroups.com writes: > maybe you both have a bit of a virus or bug? Hope that's all it is and you > both will feel better soon. It does seem odd when all of a sudden after so > many years you get a symptom like nausea. > Be well...thinking of you and everyone else today... > > Beth > > -----Original Message----- > From: Myvety2k via CMLHope <cmlhope@googlegroups.com> > To: cmlhope <cmlhope@googlegroups.com> > Sent: Mon, Jan 26, 2015 5:09 pm > Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? > > Hi Beth, I'm starting to think it's not the Gleevec that's given me the > nausea because my wife started to get the nausea also. Could be Florida > weather, tree's, flowers, etc. > > greenie > > In a message dated 1/26/2015 6:05:17 P.M. Eastern Standard Time, > cmlhope@googlegroups.com writes: > Greenie, Remember, if you do need to swap a TKI....Lots of good options with > low doses because you have done so well for so long on Gleevec...you > are a warrior. My blood counts are O.K...but I appreciate the anxiety of all > this for all of us..it's one of the harder parts to manage well. Good luck to > you! Beth > > > -----Original Message----- > From: Joan <lilak...@gmail.com> > To: cmlhope <cmlhope@googlegroups.com> > Sent: Mon, Jan 26, 2015 5:01 pm > Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? > > Greenie, > I had to quit Gleevec because it was messing with my kidneys. Now I take > Tasinga. > Joan > >> On Saturday, January 24, 2015 at 9:56:22 AM UTC-6, greenie wrote: >> Hi to my friends in our group, well I've been on Gleevec for 15 years and >> 14 days all of a sudden for the last 4 days I'm having nausea problems. I'm >> taking some promethazine that helps some what but it's not a fun thing. I >> have no idea what started it either. I had this problem before when we >> lived in Springfield, MO. I got over heated and got hit with nausea every >> day for a little more then 2 years then I awoke one morning and it was like >> someone turned off the switch and it was gone. This time of the year it's >> not hot here so I know that's not what caused this problem. >> >> I'm going to take a Gleevec break for a week or two to clean out my system >> and hope that I get back to normal. I did this before about 6 years ago >> when I had a sinus infection and the doctor back in Indiana put me on and >> anabolic that interfered with my Gleevec so we stopped Gleevec for 26 days. >> After getting blood work some cancer cells did show back up in my blood work >> but after stating Gleevec again the next test showed that I was clean again. >> >> My doctor at that time was doctor Tallman and he gave me a call and said >> "well if it worked before it will work again" and that was that. So I have >> my fingers crossed to see what happens. I can't stand this nausea problem, >> my heart goes out to the women that have babies and have to put up with >> nausea. I just hope it's the Gleevec again and not something else. >> My blood counts are O. K. so I'm not worried about that. This does not >> help my anxiety problems >> >> Will keep you all up to date as how things go. >> >> greenie > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
