I all the good news was short termed, I woke up yesterday and  the nausea 
came back so I'm thinking I may have picked up some bug.  Grace  she's O.K. 
time will tell. So far this morning I feel find but will see our the  rest of 
the day goes.
 
greenie
 
 
In a message dated 1/29/2015 9:51:44 P.M. Eastern Standard Time,  
[email protected] writes:

YEAH FOR GOOD NEWS!!!! :) Beth


-----Original  Message-----
From: Myvety2k via CMLHope  <[email protected]>
To: cmlhope  <[email protected]>
Sent: Tue, Jan 27, 2015 4:59  pm
Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on  tkis?


 
Well, I have good news.  We both woke up today, Grace  was O. K. and later 
on into the day I'm feeling much better.  Tomorrow  well tell the truth.  
I'll let you all know and Thanks for thinking of us  both.  We all are one 
hell of a team, we should have our own  Superbowl..
 
greenie
 
 
In a message dated 1/27/2015 1:32:57 P.M. Eastern Standard Time, 
[email protected]_ (mailto:[email protected])   writes:

maybe you both have a bit of a virus or bug?  Hope that's all it is and you 
both will feel better soon. It does seem odd  when all of a sudden after so 
many years you get a symptom like  nausea.
Be well...thinking of you and everyone else today...  


Beth

-----Original  Message-----
From: Myvety2k via CMLHope <[email protected]_ 
(mailto:[email protected]) >
To:  cmlhope <[email protected]_ (mailto:[email protected]) >
Sent:  Mon, Jan 26, 2015 5:09 pm
Subject: Re: [CMLHope] My Update anyone had  relapse after 5 years on tkis?


 
Hi Beth, I'm starting to think it's not the Gleevec that's  given me the 
nausea because my wife started to get the nausea also.   Could be Florida 
weather, tree's, flowers, etc. 
 
greenie
 
 
In a message dated 1/26/2015 6:05:17 P.M. Eastern Standard Time, 
[email protected]_ (mailto:[email protected])   writes:

Greenie, Remember, if you  do need to swap a TKI....Lots of good options 
with low doses because you  have done so well for so long on Gleevec...you are 
a warrior. My blood  counts are O.K...but I appreciate the anxiety of all 
this for all of  us..it's one of the harder parts to manage well. Good luck 
to you!  Beth


-----Original  Message-----
From: Joan <[email protected]_ (mailto:[email protected]) >
To: cmlhope  <[email protected]_ (mailto:[email protected]) >
Sent:  Mon, Jan 26, 2015 5:01 pm
Subject: Re: [CMLHope] My Update anyone had  relapse after 5 years on tkis?


 
Greenie,
I had to quit Gleevec because it was messing with my  kidneys. Now I take 
Tasinga.  
Joan

On Saturday, January 24, 2015 at 9:56:22 AM UTC-6,  greenie wrote:  
Hi to my friends in our group,  well I've been on  Gleevec for 15 years and 
14 days all of a sudden for the last 4 days I'm  having nausea problems.  
I'm taking some promethazine that helps  some what but it's not a fun thing.  
I have no idea what started it  either.  I had this problem before when we 
lived in Springfield,  MO. I got over heated and got hit with nausea every 
day for a little  more then 2 years then I awoke one morning and it was like 
someone  turned off the switch and it was gone.  This time of the year it's  
not hot here so I know that's not what caused this problem.
 
I'm going to take a Gleevec break for a week or two to  clean out my system 
and hope that I get back to normal.  I did this  before about 6 years ago 
when I had a sinus infection and the doctor  back in Indiana put me on and 
anabolic that interfered with my Gleevec  so we stopped Gleevec for 26 days.  
After getting blood work some  cancer cells did show back up in my blood 
work but after stating Gleevec  again the next test showed that I was clean 
again.  
 
My doctor at that time was doctor Tallman and he gave  me a call and said 
"well if it worked before it will work again" and  that was that.  So I have 
my fingers crossed to see what  happens.  I can't stand this nausea problem, 
my heart goes out to  the women that have babies and have to put up with 
nausea.  I just  hope it's the Gleevec again and not something else.  My blood 
 counts are O. K. so I'm not worried about that.  This does not help  my 
anxiety problems
 
Will keep you all up to date as how things  go.
 
greenie
 




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