Hi all, The following counts were all high on latest blood test: RDW 62.5 Platelet counts 1535 Basophils Auto 0.30 k/ul Immature Gran Auto 0.34 k/ul Potassium 5.6 Bun 25 mg/dl Creatine 1.1
Prayers & Blessings Jeanie 18's 🐠🐠 > On Jan 30, 2015, at 8:00 AM, Icandoallttc <[email protected]> wrote: > > Kk Greenie. > The doctor gave me Proclorperazine. It didn't help me that much but > meclizine did. We all have to find what works for us. Good luck and hang > in there. > > Prayers & Blessings Jeanie 18's 🐠🐠 > >> On Jan 30, 2015, at 7:48 AM, Myvety2k via CMLHope <[email protected]> >> wrote: >> >> Jeanie, I take promethazine 25mg but I cut them in 1/4 because if I take the >> hole pill in makes me sleepy. 1/2 works better but that puts me into low >> gear. But it does take away the nausea. >> >> greenie >> >> In a message dated 1/30/2015 7:44:52 A.M. Eastern Standard Time, >> [email protected] writes: >> Hi Greenie >> Sorry to hear you still have your nausea. >> Have you tried Meclizine ? I find it works better than compozine. My >> nausea is better since coming off hydrea. >> I am on my 5th day of ponatinib. I had blood work done yesterday. >> My WBC came down but the platelets keep going up. Still in the millions >> (1529) The doctor is baffled but dropped my ponatinib to 2 (15 mg) tablets >> daily. >> My skin is drying out and headaches have returned. This reminds me of >> Gleevec but it has many side effects. >> Just have to deal with them as usual. >> I hope everyone is good this morning. >> >> >> Prayers & Blessings Jeanie 18's 🐠🐠 >> >>> On Jan 30, 2015, at 7:07 AM, Myvety2k via CMLHope >>> <[email protected]> wrote: >>> >>> I all the good news was short termed, I woke up yesterday and the nausea >>> came back so I'm thinking I may have picked up some bug. Grace she's O.K. >>> time will tell. So far this morning I feel find but will see our the rest >>> of the day goes. >>> >>> greenie >>> >>> In a message dated 1/29/2015 9:51:44 P.M. Eastern Standard Time, >>> [email protected] writes: >>> YEAH FOR GOOD NEWS!!!! :) Beth >>> >>> >>> -----Original Message----- >>> From: Myvety2k via CMLHope <[email protected]> >>> To: cmlhope <[email protected]> >>> Sent: Tue, Jan 27, 2015 4:59 pm >>> Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? >>> >>> Well, I have good news. We both woke up today, Grace was O. K. and later >>> on into the day I'm feeling much better. Tomorrow well tell the truth. >>> I'll let you all know and Thanks for thinking of us both. We all are one >>> hell of a team, we should have our own Superbowl.. >>> >>> greenie >>> >>> In a message dated 1/27/2015 1:32:57 P.M. Eastern Standard Time, >>> [email protected] writes: >>> maybe you both have a bit of a virus or bug? Hope that's all it is and you >>> both will feel better soon. It does seem odd when all of a sudden after so >>> many years you get a symptom like nausea. >>> Be well...thinking of you and everyone else today... >>> >>> Beth >>> >>> -----Original Message----- >>> From: Myvety2k via CMLHope <[email protected]> >>> To: cmlhope <[email protected]> >>> Sent: Mon, Jan 26, 2015 5:09 pm >>> Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? >>> >>> Hi Beth, I'm starting to think it's not the Gleevec that's given me the >>> nausea because my wife started to get the nausea also. Could be Florida >>> weather, tree's, flowers, etc. >>> >>> greenie >>> >>> In a message dated 1/26/2015 6:05:17 P.M. Eastern Standard Time, >>> [email protected] writes: >>> Greenie, Remember, if you do need to swap a TKI....Lots of good options >>> with low doses because you have done so well for so long on Gleevec...you >>> are a warrior. My blood counts are O.K...but I appreciate the anxiety of >>> all this for all of us..it's one of the harder parts to manage well. Good >>> luck to you! Beth >>> >>> >>> -----Original Message----- >>> From: Joan <[email protected]> >>> To: cmlhope <[email protected]> >>> Sent: Mon, Jan 26, 2015 5:01 pm >>> Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? >>> >>> Greenie, >>> I had to quit Gleevec because it was messing with my kidneys. Now I take >>> Tasinga. >>> Joan >>> >>>> On Saturday, January 24, 2015 at 9:56:22 AM UTC-6, greenie wrote: >>>> Hi to my friends in our group, well I've been on Gleevec for 15 years and >>>> 14 days all of a sudden for the last 4 days I'm having nausea problems. >>>> I'm taking some promethazine that helps some what but it's not a fun >>>> thing. I have no idea what started it either. I had this problem before >>>> when we lived in Springfield, MO. I got over heated and got hit with >>>> nausea every day for a little more then 2 years then I awoke one morning >>>> and it was like someone turned off the switch and it was gone. This time >>>> of the year it's not hot here so I know that's not what caused this >>>> problem. >>>> >>>> I'm going to take a Gleevec break for a week or two to clean out my system >>>> and hope that I get back to normal. I did this before about 6 years ago >>>> when I had a sinus infection and the doctor back in Indiana put me on and >>>> anabolic that interfered with my Gleevec so we stopped Gleevec for 26 >>>> days. After getting blood work some cancer cells did show back up in my >>>> blood work but after stating Gleevec again the next test showed that I was >>>> clean again. >>>> >>>> My doctor at that time was doctor Tallman and he gave me a call and said >>>> "well if it worked before it will work again" and that was that. So I >>>> have my fingers crossed to see what happens. I can't stand this nausea >>>> problem, my heart goes out to the women that have babies and have to put >>>> up with nausea. I just hope it's the Gleevec again and not something >>>> else. My blood counts are O. K. so I'm not worried about that. This does >>>> not help my anxiety problems >>>> >>>> Will keep you all up to date as how things go. >>>> >>>> greenie >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message 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unsubscribe from this group and stop receiving emails from it, send an >>> email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You 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