Hi Marty. Are you in the hospital? My Motto: Faith and Pills Jeanie 🐟🐟18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center
> On Jul 3, 2015, at 3:19 PM, Marty Gartenberg <[email protected]> wrote: > > Hi, everyone, > > I did have a stroke on Friday the 26 i am slowly getting better. > just affected my speech but still working through it. > > 18's > > Marty > >> On Thu, Jul 2, 2015 at 9:54 PM, 'Marcie Goodman' via CMLHope >> <[email protected]> wrote: >> Marty, when did that happen? I hope you are feeling well and I'll be saying >> prayers for you. Please take good care. Hugs to you. >> >> 18s >> >> Marcie >> >> Sent from my iPad >> >>> On Jul 2, 2015, at 9:47 PM, Marty Gartenberg <[email protected]> wrote: >>> >>> Hi. Susan >>> >>> unfortunately i had a stroke. getting better. >>> >>> 18's >>> >>> Marty >>> >>> >>> >>> >>> >>> >>> >>> >>> >>> >>> >>> >>> >>>> On Mon, Jun 29, 2015 at 2:18 PM, 'Susan Zimmerman' via CMLHope >>>> <[email protected]> wrote: >>>> Pete, >>>> When I was at Moffitt from 2005 til 2007, I saw Dr. Javier Panilla. He is >>>> GREAT!!! >>>> >>>> 18'S, >>>> Susan F. Zimmerman >>>> >>>> >>>> -----Original Message----- >>>> From: Pete Pabon <[email protected]> >>>> To: cmlhope <[email protected]> >>>> Sent: Mon, Jun 15, 2015 12:36 am >>>> Subject: RE: [CMLHope] Platelets >>>> >>>> Jeanie,who do you see at Moffitt? >>>> >>>> >>>> >>>> Date: Sun, 14 Jun 2015 20:23:18 -0700 >>>> From: [email protected] >>>> To: [email protected] >>>> Subject: Re: [CMLHope] Platelets >>>> >>>> I do understand Skip. I have a sister that has been anemic all her life, >>>> and she is doing fine at 5. I have been having problems every time I get >>>> close 7.9. Just again shows how we each find our spot that works for us. >>>> >>>> Richard H. >>>> >>>> On Sunday, June 14, 2015 at 8:08:33 AM UTC-5, easyskip_2002 wrote: >>>> >>>> I have had very low platelets and ANC and RBC and plus some others plus >>>> high Ferritin counts over 7000 most weeks I have critical platelets and >>>> white counts of 1.2 or up to 2.01 neut 0.20 yet with no meds I have 0.8 >>>> log reduction. I fell fine been doing this for 37 years I tell you this as >>>> I want all to know Low counts should looked but not to spoil your day >>>> Zevie was astounded when I send him on of my blood reports with 1.0 white >>>> 88 RBC 0zero platelets ANC of 0.20 >>>> hooe this helps >>>> Skip Dx 1977 >>>> Sent from Yahoo Mail on Android >>>> From:"'Icandoallttc' via CMLHope" < [email protected]> >>>> Date:Tue, May 19, 2015 at 9:01 AM >>>> Subject:Re: [CMLHope] Platelets >>>> >>>> I also have problems with platelets and WBC. They go way too high. Only >>>> on Tasigna did they drop too Lowe. Go figure. We are all unique in how >>>> we respond to the tkis. >>>> Moffitt tomorrow. I am hoping for good results. >>>> 5 months on ponatinib. >>>> >>>> Prayers & Blessings Jeanie 18,s >>>> Dx 1/2004 >>>> Started Gleevec 2/2004 >>>> Started Tasigna 9/2009 >>>> Started Sprycel 11/2009 >>>> Started Ponatinib January 2015 >>>> >>>> On May 17, 2015, at 7:08 AM, Gopalsamy Ragavan < [email protected]> >>>> wrote: >>>> >>>> I have problems with platelet count. Diagnosed in 2012 Started with >>>> Gleevec. Now with Sprycel. With Sprycel, platelet counts go down. Started >>>> with 140mg per day and now taking 50mg per day. One moth of Sprycel >>>> medication and two months rest for platelet recovery. This is how current >>>> medication is going on. I take papaya leaf tea everyday to improve >>>> platelets. >>>> >>>> On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS <[email protected]> wrote: >>>> Does anyone have problems maintaining their platelet level? >>>> Mine fall down to almost ZERO, which is a dangerous place to be. I am >>>> covered with big purple bruises and petechiae and look like I have been in >>>> a bar fight. Even a light scratch on my skin brings the blood to the >>>> surface. It is called Thrombocytopenia. My red cells also plummet and I >>>> had 6 blood transfusions last week. >>>> My confidence waivers a little as it seems they don't really know what to >>>> do about me. I have lots of complications. More specialists on the >>>> horizon, but every step forward is followed by 3 steps back. I am on >>>> massive prednisone for the moment. >>>> Can anyone share info on this? >>>> Angie in Canada.... >>>> Gleevec pioneer since 2001 >>>> >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------ ------------------- >>>> >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To post to this group, send email to [email protected] >>>> To unsubscribe from this group, send email to >>>> [email protected] >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send an >>>> email to [email protected]. >>>> For more options, visit https://groups.google.com/d/optout. >>>> >>>> >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> 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unsubscribe from this group and stop receiving emails from it, send an >>>> email to [email protected]. >>>> For more options, visit https://groups.google.com/d/optout. >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To post to this group, send email to [email protected] >>>> To unsubscribe from this group, send email to >>>> [email protected] >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send an >>>> email to [email protected]. >>>> For more options, visit https://groups.google.com/d/optout. >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, 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