Marty, when did that happen? I hope you are feeling well and I'll be saying prayers for you. Please take good care. Hugs to you.
18s Marcie Sent from my iPad > On Jul 2, 2015, at 9:47 PM, Marty Gartenberg <[email protected]> wrote: > > Hi. Susan > > unfortunately i had a stroke. getting better. > > 18's > > Marty > > > > > > > > > > > > > >> On Mon, Jun 29, 2015 at 2:18 PM, 'Susan Zimmerman' via CMLHope >> <[email protected]> wrote: >> Pete, >> When I was at Moffitt from 2005 til 2007, I saw Dr. Javier Panilla. He is >> GREAT!!! >> >> 18'S, >> Susan F. Zimmerman >> >> >> -----Original Message----- >> From: Pete Pabon <[email protected]> >> To: cmlhope <[email protected]> >> Sent: Mon, Jun 15, 2015 12:36 am >> Subject: RE: [CMLHope] Platelets >> >> Jeanie,who do you see at Moffitt? >> >> >> >> Date: Sun, 14 Jun 2015 20:23:18 -0700 >> From: [email protected] >> To: [email protected] >> Subject: Re: [CMLHope] Platelets >> >> I do understand Skip. I have a sister that has been anemic all her life, >> and she is doing fine at 5. I have been having problems every time I get >> close 7.9. Just again shows how we each find our spot that works for us. >> >> Richard H. >> >> On Sunday, June 14, 2015 at 8:08:33 AM UTC-5, easyskip_2002 wrote: >> >> I have had very low platelets and ANC and RBC and plus some others plus high >> Ferritin counts over 7000 most weeks I have critical platelets and white >> counts of 1.2 or up to 2.01 neut 0.20 yet with no meds I have 0.8 log >> reduction. I fell fine been doing this for 37 years I tell you this as I >> want all to know Low counts should looked but not to spoil your day Zevie >> was astounded when I send him on of my blood reports with 1.0 white 88 RBC >> 0zero platelets ANC of 0.20 >> hooe this helps >> Skip Dx 1977 >> Sent from Yahoo Mail on Android >> From:"'Icandoallttc' via CMLHope" < [email protected]> >> Date:Tue, May 19, 2015 at 9:01 AM >> Subject:Re: [CMLHope] Platelets >> >> I also have problems with platelets and WBC. They go way too high. Only >> on Tasigna did they drop too Lowe. Go figure. We are all unique in how we >> respond to the tkis. >> Moffitt tomorrow. I am hoping for good results. >> 5 months on ponatinib. >> >> Prayers & Blessings Jeanie 18,s >> Dx 1/2004 >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib January 2015 >> >> On May 17, 2015, at 7:08 AM, Gopalsamy Ragavan < [email protected]> wrote: >> >> I have problems with platelet count. Diagnosed in 2012 Started with Gleevec. >> Now with Sprycel. With Sprycel, platelet counts go down. Started with 140mg >> per day and now taking 50mg per day. One moth of Sprycel medication and two >> months rest for platelet recovery. This is how current medication is going >> on. I take papaya leaf tea everyday to improve platelets. >> >> On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS <[email protected]> wrote: >> Does anyone have problems maintaining their platelet level? >> Mine fall down to almost ZERO, which is a dangerous place to be. I am >> covered with big purple bruises and petechiae and look like I have been in a >> bar fight. Even a light scratch on my skin brings the blood to the surface. >> It is called Thrombocytopenia. My red cells also plummet and I had 6 blood >> transfusions last week. >> My confidence waivers a little as it seems they don't really know what to do >> about me. I have lots of complications. More specialists on the horizon, but >> every step forward is followed by 3 steps back. I am on massive prednisone >> for the moment. >> Can anyone share info on this? >> Angie in Canada.... >> Gleevec pioneer since 2001 >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------ ------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------ ------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
