HI Elizabeth,
Just a note about muscle wasting and the TKI's. While they affect each of us differently, there is a clear connection between these meds and muscle wasting, cramping as well with Gleevec, sprycel and others. so, Nick is not alone...you might want to ask his doc to do a CPK blood test to see if it is elevated. There are meds, and things one can do and take to inhibit the inflammatory process. If muscle is wasting it is processed through the kidneys, so long term, this can effect the kidneys so they need to be watched as well... I like to be on the preventative side of things if possible...This is not meant to scare anyone, knowledge is power to us all, and it helps us to advocate for ourselves with our doctors.. Love and blessings to all, happy New Year to those who are celebrating. "'Shana Tova" to each one of you. We truly are blessed to still be here and to have one another.. I continue to go through hard times, like some others..just had angioplasty. They informed me at U of C that they are now studying the effects of TKI's on advancing coronary artery disease...I have normal cholesterol and I am young. But I do have a bad family history.. More later when I feel better.. Have a great weekend everyone.. 18's..Beth -----Original Message----- From: NICK WOODS <[email protected]> To: cmlhope <[email protected]> Sent: Fri, Sep 30, 2016 10:42 am Subject: Re: [CMLHope] Digest for [email protected] - 2 updates in 1 topic We're happy to hear you're on the mend, Marty. It's been good to read other persons updates in their lives of CML and family changes, etc. Sending sympathy to those whose family members have died within the past few months. It's been so tough on each CMLer as we age or our family members are diagnosed with other types of cancers. Nick's got a Zauve's O Club number, but it's been a while since we've posted it. Does anyone have a list? Wondered if any other persons with CML on Gleevec are experiencing multiple muscle cramps? Or have large muscle wasting? Thanks, Elizabeth Woods Nick's wife On Friday, September 30, 2016 5:18 AM, "[email protected]" <[email protected]> wrote: [email protected] Google Groups Topic digest View all topics Angie, your card - 2 Updates Angie, your card ANGELYN ESDERS <[email protected]>: Sep 30 12:20AM You are most welcome.I fractured my 9th vertebra a month ago. I have had to give up almost everything I do. I understand pain.May we BOTH be dancing on tabletops by this time next year!Angie From: Marty Gartenberg <[email protected]> To: [email protected] Sent: Thursday, September 29, 2016 12:05 AM Subject: [CMLHope] Angie, your card Hi Angie, you were so thoughtful to send me a get well card, and I wanted to thank you for your kindness. 18's, Marty-- -- [CMLHope] A support group of http://cmlhope.com/ ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout. Marty Gartenberg <[email protected]>: Sep 29 08:45PM -0400 Angie, There is a saying in the Aramaic Hebrew language Alivay Meaning Thank you GOD for what you have done for me. Also I am not looking to dance on any tabletops because both of us would probably fall off and break something. Lets just both of us dance on the floor together. Oh Angie don't worry we will get there. 18's Marty Back to top You received this digest because you're subscribed to updates for this group. You can change your settings on the group membership page. To unsubscribe from this group and stop receiving emails from it send an email to [email protected]. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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