Gleevec gave me and still dose give me cramps, I use a bar of  Dial Gold 
soap and put it down along my legs.  It dose help.
 
greenie
 
 
In a message dated 10/17/2016 5:21:17 P.M. Eastern Daylight Time,  
[email protected] writes:

Yes I had terrible cramps on Gleevec.  Even had trigger finger. Had  to get 
up in the middle if night to walk out leg cramps. I too was put on  
Sprycel.   And yes I would look in mirror and not recognize myself.  Just keep 
on 
fighting warriors.  Blessings 

My Motto:  
Faith and Pills
With Love
🐠18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Sep 30, 2016, at 4:58 PM, lrc lrc <[email protected]_ 
(mailto:[email protected]) >  wrote:




Gleevec has a big history of muscle cramps, especially in the  hands and 
the legs.   Gleevec also has side affects that include skin  that is thin, 
white rings around the eyes, water retention around the eyes  to name just a 
few.   I moved from Gleevec to Sprycel years ago and all  the Gleevec issues 
disappeared.  It was a wonderful change.  I  suggest you review it with your 
oncologist.  I am under care of the  University of Michigan Cancer Center, 
Dr. Talpaz.  

On Fri, Sep 30, 2016 at 12:42 PM, NICK WOODS <[email protected]_ 
(mailto:[email protected]) > wrote:


 
We're  happy to hear you're on the mend, Marty.  
It's been good to read other persons updates in their lives of CML  and 
family changes, etc.  Sending sympathy to those whose family  members have died 
within the past few months.  It's been so tough on  each CMLer as we age or 
our family members are diagnosed with other types  of cancers.


Nick's  got a Zauve's O Club number, but it's been a while since we've 
posted  it.  Does anyone have a list?


Wondered if  any other persons with CML on Gleevec are experiencing 
multiple muscle  cramps?
Or  have large muscle wasting?
Thanks,  Elizabeth Woods Nick's wife




 
 
On Friday, September 30, 2016 5:18  AM, "[email protected]_ 
(mailto:[email protected]) " <[email protected]_ 
(mailto:[email protected]) >  wrote:




 
 
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    *   _Angie, your card_ 
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ANGELYN ESDERS <[email protected]_ (mailto:[email protected]) >: Sep 30 
12:20AM  

You are most welcome.I fractured my 9th vertebra a  month ago. I have had 
to give up almost everything I do. I  understand pain.May we BOTH be dancing 
on tabletops by this time  next year!Angie

From: Marty Gartenberg <[email protected]_ (mailto:[email protected]) >
To: [email protected]_ (mailto:[email protected])  
Sent: Thursday,  September 29, 2016 12:05 AM
Subject: [CMLHope] Angie, your  card

Hi Angie, you were so thoughtful to send me a get well  card, and I wanted 
to thank you for your  kindness.
18's,
Marty-- 
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Marty Gartenberg <[email protected]_ (mailto:[email protected]) >: Sep 29 
08:45PM -0400  

Angie,

There is a saying in the Aramaic  Hebrew language Alivay Meaning Thank you
GOD for what you have  done for me.

Also I am not looking to dance on any  tabletops because both of us would
probably fall off and break  something. Lets just both of us dance on the
floor  together.

Oh Angie don't worry we will get  there.

18's

Marty

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