Yes I had terrible cramps on Gleevec. Even had trigger finger. Had to get up in the middle if night to walk out leg cramps. I too was put on Sprycel. And yes I would look in mirror and not recognize myself. Just keep on fighting warriors. Blessings
My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On Sep 30, 2016, at 4:58 PM, lrc lrc <[email protected]> wrote: > > Gleevec has a big history of muscle cramps, especially in the hands and the > legs. Gleevec also has side affects that include skin that is thin, white > rings around the eyes, water retention around the eyes to name just a few. > I moved from Gleevec to Sprycel years ago and all the Gleevec issues > disappeared. It was a wonderful change. I suggest you review it with your > oncologist. I am under care of the University of Michigan Cancer Center, Dr. > Talpaz. > >> On Fri, Sep 30, 2016 at 12:42 PM, NICK WOODS <[email protected]> wrote: >> We're happy to hear you're on the mend, Marty. >> It's been good to read other persons updates in their lives of CML and >> family changes, etc. Sending sympathy to those whose family members have >> died within the past few months. It's been so tough on each CMLer as we age >> or our family members are diagnosed with other types of cancers. >> >> Nick's got a Zauve's O Club number, but it's been a while since we've posted >> it. Does anyone have a list? >> >> Wondered if any other persons with CML on Gleevec are experiencing multiple >> muscle cramps? >> Or have large muscle wasting? >> Thanks, Elizabeth Woods Nick's wife >> >> >> On Friday, September 30, 2016 5:18 AM, "[email protected]" >> <[email protected]> wrote: >> >> >> [email protected] Google Groups >> Topic digest >> View all topics >> Angie, your card - 2 Updates >> Angie, your card >> ANGELYN ESDERS <[email protected]>: Sep 30 12:20AM >> >> You are most welcome.I fractured my 9th vertebra a month ago. I have had to >> give up almost everything I do. I understand pain.May we BOTH be dancing on >> tabletops by this time next year!Angie >> >> From: Marty Gartenberg <[email protected]> >> To: [email protected] >> Sent: Thursday, September 29, 2016 12:05 AM >> Subject: [CMLHope] Angie, your card >> >> Hi Angie, you were so thoughtful to send me a get well card, and I wanted to >> thank you for your kindness. >> 18's, >> Marty-- >> -- >> [CMLHope] >> A support group of http://cmlhope.com/ >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> Marty Gartenberg <[email protected]>: Sep 29 08:45PM -0400 >> >> Angie, >> >> There is a saying in the Aramaic Hebrew language Alivay Meaning Thank you >> GOD for what you have done for me. >> >> Also I am not looking to dance on any tabletops because both of us would >> probably fall off and break something. Lets just both of us dance on the >> floor together. >> >> Oh Angie don't worry we will get there. >> >> 18's >> >> Marty >> >> Back to top >> You received this digest because you're subscribed to updates for this >> group. You can change your settings on the group membership page. >> To unsubscribe from this group and stop receiving emails from it send an >> email to [email protected]. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
