Hi Marty You are so right. I admire you so much for fighting bravely every hardship that life has handed you. I feel privileged to have met you and have learned so much from you. This thyroid problem is just another battle to go through. Thanks for everything. Love Jeanie
My Motto: Faith and Pills With Love Jeanie 🐠free Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired 0 CBL. ABL > On Jul 11, 2018, at 9:12 AM, Marty Gartenberg <[email protected]> wrote: > > Richard and all, just like Jeanie wrote. do you know what a THS level is all > about? Let me post an article: > Below I > I > I > Richard has your oncologist mentioned that you should be on a blood thinning > medication? Even 81mg baby aspirin? So why are you worried about a stroke > when you know that a simple medicine will probably prevent it. As Jeanie > stated and so did I... Listen to your body and do what you feel is right. > > I feel just like a Parrot Puppet with Jeanie pulling my strings because I > echo exactly what she squawks about because this makes me squawk about what > she says, and Richard we are right so let us do some squawking to you. And do > you know why? It is quite evident because she does it her way and I do it my > way... ❤️❤ 18's, Marty > Thyroxine, Triiodothyronine, and TSH Levels > > The main job of the thyroid gland is to make the hormone thyroxine, also > known as T4 because it has four iodine molecules. The thyroid also makes the > hormone triiodothyronine, known as T3 because it has three iodine molecules, > but in smaller amounts, explains Cathy Doria-Medina, MD, an endocrinologist > with HealthCare Partners Medical Group in Torrance, California. “The thyroid > gland makes mostly T4, [and] the T4 has to be converted to T3, because T3 is > the part of thyroxine that actually does the work," she says. > > The pituitary gland at the base of the brain controls hormone production in > your body. It makes thyroid-stimulating hormone, or TSH, which tells the > thyroid gland how much T4 and T3 to produce. The TSH level in your blood > reveals how much T4 your pituitary gland is asking your thyroid gland to > make. If your TSH levels are abnormally high, it could mean you have an > underactive thyroid, or hypothyroidism. > > “TSH levels go in the opposite direction of your thyroid hormone,” Dr. > Doria-Medina explains. “If you’re making too little thyroid hormone, your TSH > will go up. If you’re making too much thyroid hormone, your TSH will go down.” > > What’s normal can vary depending on a number of factors, including the > laboratory where your blood test is done, she adds. A normal range for TSH in > most laboratories is 0.4 milliunits per liter (mU/L) to 4.0 mU/L. > > If your TSH is higher than 4.0 mU/L on repeat tests, you probably have > hypothyroidism. > > Your doctor may also order a T4 test. Most of the T4 in your blood attaches > to a protein, and when it does, it can’t get into your cells. Only T4 that is > unattached or “free” can get into your cells to go to work. A blood test can > measure how much free T4 is available. > > > >> On Wed, Jul 11, 2018 at 6:32 AM, 'Jeanie' via CMLHope >> <[email protected]> wrote: >> Hi Richard and all >> I take Ponatinib and one of the main side effects is stroke and blood clots >> along with many more. I knew this going in and since I was in blast I knew I >> had to do something. >> My onc advised an aspirin daily which I take. So far it is all working. >> Blood counts are good however I was just diagnosed with a Thyroid problem. >> My tsh is 13. Anyone else have this? >> I am very tired with weight loss and sweats at any time. I am taking a >> small dose of thyroid med. >> when you are 80 you never know if it’s just old age or what. >> Listen to your body and do what you feel is right. My mother and >> grandmother both had strokes when they were my age. Also s sister and aunt. >> Prayers to you and all >> ❤️❤️ >> >> My Motto: >> Faith and Pills >> With Love >> Jeanie >> 🐠free >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 >> New Doctor--Dr Martine Extermann >> Moffitt Cancer center sept 2017 >> Dr Balducci retired >> >> 0 CBL. ABL >> >>> On Jul 11, 2018, at 12:46 AM, Marty Gartenberg <[email protected]> wrote: >>> >>> Richard, now I know what your problem is. It is your kidney function being >>> 3 what is your doctor doing about this? That is why your HGB is so low. Do >>> you have a nephroligist near you? if so then go see him or her. Do it as >>> soon as you can. Because it is not to late. When I had to go onto Dialysis >>> my kidney function was already almost six. When I got my kidney transplant >>> it went down to .97 and there it is now. >>> >>> Now you mentioned "Probably headed for a stroke or stints in my neck". >>> Guess what? I already had a stroke. And have you discussed anything about >>> anti coagulants (blood thinners) with you doctor? Hopefully a Cardiac >>> doctor? And I now know how to take care of myself I also had a pace maker >>> implanted in my upper chest and it made a world of difference. >>> >>> Move yourself on I know what I am talking about. Are you diabetic? If so do >>> you take anything for it? Start drinking Cranberry juice if you can because >>> it will hydrate and clean your kidneys very important. >>> >>> Am I right? Do you think that your doctor is doing the right things for >>> you? I told you before get a second opinion. >>> >>> I can only give you suggestions but you are the one that carrys them out. >>> If you want to speak to me personally just let me know. >>> >>> I am now going to tell you what my father told me a long time ago... If >>> someone learns something new every day that will become smart, but if >>> someone refuses to learn something every day then they revert back to >>> being yesterday. Please listen to me. I am just a mortal man. I am no one >>> special, but I have had so many things happen to me, but why am I still >>> alive? Do you want to know why as well? It is because WE are still here. >>> >>> 17's >>> >>> Marty >>> >>>> On Tue, Jul 10, 2018 at 11:58 PM, Richard H <[email protected]> wrote: >>>> Thanks Marty. Yes hemoglobin below 10. and himeric below 30 is correct.. >>>> That is for time to allow it to start doing its work and then will go >>>> toward normal. If I take it just over then the counts build over the >>>> normal level. >>>> Just trying to maintain that level just below normal according to his >>>> specification. I do comment to the nurse giving me the results each time. >>>> I do have my kidneys checked and am on a regular basis seeing him. I am >>>> running close to 3 on kidney function. I am having more heart related >>>> problems at this point. Probably headed for a stroke or stints in my neck. >>>> >>>> But like is still good when I wake up each morning >>>> >>>> 18's >>>> Richard H. >>>> >>>>> On Monday, July 9, 2018 at 9:21:42 AM UTC-5, wa2yyx wrote: >>>>> Richard, first thing is when your hemoglobin drops to 10 or below then is >>>>> the time that procrit generic Epoetin Alfa should start. It should >>>>> increase your red/hemoglobin count. However it may take a week or two to >>>>> start showing results. Why don't you mention this to your doctor. >>>>> Also, have your kidney function checked as well. >>>>> >>>>> When my kidneys started to fail I was on Dialsys and found that my >>>>> hemoglobin level started dropping. Kidney function has a lot to do with >>>>> that. The reason why is because there is a hormone called Erythropoietin >>>>> which is released in response to hypoxia (low levels of oxygen at tissue >>>>> level) in the renal circulation. It stimulates erythropoiesis (production >>>>> of red blood cells) in the bone marrow. I am writing this in bold font >>>>> to make sure that it can be understood, it is that important! >>>>> >>>>> When I was on Diaysis sometimes my HGB would drop to from 7% to 9% and I >>>>> felt like I coulden't even get out of bed. My wife would help me into her >>>>> car and help me into the Dialysis center. I lived a horrible life until I >>>>> had a kidney Transplant. >>>>> >>>>> I have heard a lot of people mentioning that they blame some of the TKI >>>>> that they are taking. Perhaps that may be so, but what if it isn't that >>>>> at all? That is why they need to consult with their doctors because that >>>>> is his or her job. And if they feel that there is someone that can help >>>>> as well then get a second opinion. Don't forget they won't be hurt or >>>>> offended because they are all getting together to help you. >>>>> >>>>> Richard and everyone else, there was a time a very long time ago that my >>>>> father tought me something. He said that everyone needs to learn >>>>> something new everyday because it will make you smarter. If you refuse to >>>>> learn something new everyday then you will revert back to yesterday. And >>>>> he was right! >>>>> >>>>> 18's >>>>> >>>>> Marty >>>>> >>>>>> On Sun, Jul 8, 2018 at 11:31 PM, Richard H <[email protected]> wrote: >>>>>> Yes, I have been struggling with this for years. I have had >>>>>> Transfusions, and now check my CBC every month to see if I need to take >>>>>> Procreate to bring my blood level back up. I am currently on 200 mg >>>>>> Gleevec daily because my CML levels will rise if I don't use it as a >>>>>> maintenance feature. I am approaching 16 1/2 years since diagnosis. >>>>>> >>>>>> Richard H. >>>>>> >>>>>>> On Saturday, July 7, 2018 at 1:04:15 PM UTC-5, Vivi wrote: >>>>>>> I suddenly became terribly anemic and my doctor cut my intake of 400mg >>>>>>> Gleevec daily in half. It took five months but I am no longer anemic >>>>>>> and the CML does not seem to have become visible as yet. Has anyone >>>>>>> else had a problem like this? >>>>>> >>>>>> -- >>>>>> -- >>>>>> [CMLHope] >>>>>> A support group of http://cmlhope.com >>>>>> ------------------------------------------------- >>>>>> >>>>>> You received this message because you are subscribed to the Google >>>>>> Groups "CMLHope" group. >>>>>> To post to this group, send email to [email protected] >>>>>> To unsubscribe from this group, send email to >>>>>> [email protected] >>>>>> For more options, visit this group at >>>>>> http://groups.google.com/group/CMLHope >>>>>> --- >>>>>> You received this message because you are subscribed to the Google >>>>>> Groups "CMLHope" group. >>>>>> To unsubscribe from this group and stop receiving emails from it, send >>>>>> an email to [email protected]. >>>>>> For more options, visit https://groups.google.com/d/optout. >>>>> >>>> >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To post to this group, send email to [email protected] >>>> To unsubscribe from this group, send email to >>>> [email protected] >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send an >>>> email to [email protected]. >>>> For more options, visit https://groups.google.com/d/optout. >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
