Hi Marty 
You are so right. I admire you so much for fighting bravely every hardship that 
life has handed you. I feel privileged to have met you and have learned so much 
from you. 
This thyroid problem is just another battle to go through. Thanks for 
everything. 
Love
Jeanie

My Motto:
Faith and Pills
With Love
Jeanie
🐠free
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 

0 CBL. ABL

> On Jul 11, 2018, at 9:12 AM, Marty Gartenberg <wa2...@gmail.com> wrote:
> 
> Richard and all, just like Jeanie wrote. do you know what a THS level is all 
> about? Let me post an article:  
>  Below I
>             I
>             I
>  Richard has your oncologist mentioned that you should be on a blood thinning 
> medication? Even 81mg baby aspirin?  So why are you worried about a stroke 
> when you know that a simple medicine will probably prevent it. As Jeanie 
> stated and so did I... Listen to your body and do what you feel is right. 
> 
> I feel just like a Parrot Puppet with Jeanie pulling my strings because I 
> echo exactly what she squawks about because this makes me squawk about what 
> she says, and Richard we are right so let us do some squawking to you. And do 
> you know why? It is quite evident because she does it her way and I do it my 
> way...   ❤️❤  18's, Marty
> Thyroxine, Triiodothyronine, and TSH Levels
> 
> The main job of the thyroid gland is to make the hormone thyroxine, also 
> known as T4 because it has four iodine molecules. The thyroid also makes the 
> hormone triiodothyronine, known as T3 because it has three iodine molecules, 
> but in smaller amounts, explains Cathy Doria-Medina, MD, an endocrinologist 
> with HealthCare Partners Medical Group in Torrance, California. “The thyroid 
> gland makes mostly T4, [and] the T4 has to be converted to T3, because T3 is 
> the part of thyroxine that actually does the work," she says.
> 
> The pituitary gland at the base of the brain controls hormone production in 
> your body. It makes thyroid-stimulating hormone, or TSH, which tells the 
> thyroid gland how much T4 and T3 to produce. The TSH level in your blood 
> reveals how much T4 your pituitary gland is asking your thyroid gland to 
> make. If your TSH levels are abnormally high, it could mean you have an 
> underactive thyroid, or hypothyroidism.
> 
> “TSH levels go in the opposite direction of your thyroid hormone,” Dr. 
> Doria-Medina explains. “If you’re making too little thyroid hormone, your TSH 
> will go up. If you’re making too much thyroid hormone, your TSH will go down.”
> 
> What’s normal can vary depending on a number of factors, including the 
> laboratory where your blood test is done, she adds. A normal range for TSH in 
> most laboratories is 0.4 milliunits per liter (mU/L) to 4.0 mU/L.
> 
> If your TSH is higher than 4.0 mU/L on repeat tests, you probably have 
> hypothyroidism.
> 
> Your doctor may also order a T4 test. Most of the T4 in your blood attaches 
> to a protein, and when it does, it can’t get into your cells. Only T4 that is 
> unattached or “free” can get into your cells to go to work. A blood test can 
> measure how much free T4 is available.
> 
> 
> 
>> On Wed, Jul 11, 2018 at 6:32 AM, 'Jeanie' via CMLHope 
>> <cmlhope@googlegroups.com> wrote:
>> Hi Richard and all
>> I take Ponatinib and one of the main side effects is stroke and blood clots 
>> along with many more. I knew this going in and since I was in blast I knew I 
>> had to do something. 
>> My onc advised an aspirin daily which I take. So far it is all working. 
>> Blood counts are good however I was just diagnosed with a Thyroid problem. 
>> My tsh is 13. Anyone else have this?
>> I am very tired with weight loss and sweats at any time.   I am taking a 
>> small dose of thyroid med.  
>> when you are 80 you never know if it’s just old age or what. 
>> Listen to your body and do what you feel is right.  My mother and 
>> grandmother both had strokes when they were my age. Also s sister and aunt.  
>> Prayers to you and all 
>> ❤️❤️
>> 
>> My Motto:
>> Faith and Pills
>> With Love
>> Jeanie
>> 🐠free
>> Dx 1/2004 CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna 9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib 1/ 2015
>> New Doctor--Dr Martine Extermann
>> Moffitt Cancer  center sept 2017
>> Dr Balducci retired 
>> 
>> 0 CBL. ABL
>> 
>>> On Jul 11, 2018, at 12:46 AM, Marty Gartenberg <wa2...@gmail.com> wrote:
>>> 
>>> Richard, now I know what your problem is. It is your kidney function being 
>>> 3 what is your doctor doing about this? That is why your HGB is so low. Do 
>>> you have a nephroligist near you? if so then go see him or her. Do it as 
>>> soon as you can. Because it is not to late. When I had to go onto Dialysis 
>>> my kidney function was already almost six. When I got my kidney transplant 
>>> it went down to .97 and there it is now.
>>> 
>>> Now you mentioned "Probably headed for a stroke or stints in my neck". 
>>> Guess what? I already had a stroke. And have you discussed anything about 
>>> anti coagulants (blood thinners) with you doctor? Hopefully a Cardiac 
>>> doctor? And I now know how to take care of myself I also had a pace maker 
>>> implanted in my upper chest and it made a world of difference.
>>> 
>>> Move yourself on I know what I am talking about. Are you diabetic? If so do 
>>> you take anything for it? Start drinking Cranberry juice if you can because 
>>> it will hydrate and clean your kidneys very important.
>>> 
>>> Am I right? Do you think that your doctor is doing the right things for 
>>> you? I told you before get a second opinion.
>>> 
>>> I can only give you suggestions but you are the one that carrys them out. 
>>> If you want to speak to me personally just let me know.
>>> 
>>> I am now going to tell you what my father told me a long time ago... If 
>>> someone learns something new every day that will become smart, but if 
>>> someone refuses to learn something every day then they revert  back to 
>>> being yesterday. Please listen to me. I am just a mortal man. I am no one 
>>> special, but I have had so many things happen to me, but why am I still 
>>> alive? Do you want to know why as well? It is because WE are still here.
>>> 
>>> 17's
>>> 
>>> Marty
>>> 
>>>> On Tue, Jul 10, 2018 at 11:58 PM, Richard H <rbhuffm...@gmail.com> wrote:
>>>> Thanks Marty.  Yes hemoglobin below 10. and himeric below 30 is correct..  
>>>> That is for time to allow it to start doing its work and then will go 
>>>> toward normal.  If I take it  just over then the counts build over the 
>>>> normal level.  
>>>> Just trying to maintain that level just below normal according to his 
>>>> specification.  I do comment to the nurse giving me the results each time. 
>>>>  I do have my kidneys checked and am on a regular basis seeing him.  I am 
>>>> running close to 3 on kidney function.  I am having more heart related 
>>>> problems at this point.  Probably headed for a stroke or stints in my neck.
>>>> 
>>>> But like is still good when I wake up each morning 
>>>> 
>>>> 18's
>>>> Richard H.
>>>> 
>>>>> On Monday, July 9, 2018 at 9:21:42 AM UTC-5, wa2yyx wrote:
>>>>> Richard, first thing is when your hemoglobin drops to 10 or below then is 
>>>>> the time that procrit generic Epoetin Alfa should start. It should 
>>>>> increase your red/hemoglobin count. However it may take a week or two to 
>>>>> start showing results. Why don't you mention this to your doctor. 
>>>>> Also, have your kidney function checked as well. 
>>>>> 
>>>>> When my kidneys started to fail I was on Dialsys and found that my 
>>>>> hemoglobin level started dropping. Kidney function has a lot to do with 
>>>>> that. The reason why is because there is a hormone called Erythropoietin  
>>>>> which  is released in response to hypoxia (low levels of oxygen at tissue 
>>>>> level) in the renal circulation. It stimulates erythropoiesis (production 
>>>>> of red blood cells) in the bone marrow.   I am writing this in bold font 
>>>>> to make sure that it can be understood, it is that important!
>>>>> 
>>>>> When I was on Diaysis sometimes my HGB would drop to from 7% to 9% and I 
>>>>> felt like I coulden't even get out of bed. My wife would help me into her 
>>>>> car and help me into the Dialysis center. I lived a horrible life until I 
>>>>> had a kidney Transplant.
>>>>> 
>>>>> I have heard a lot of people mentioning that they blame some of the TKI 
>>>>> that they are taking. Perhaps that may be so, but what if it isn't that 
>>>>> at all? That is why they need to consult with their doctors because that 
>>>>> is his or her job. And if they feel that there is someone that can help 
>>>>> as well then get a second opinion. Don't forget they won't be hurt or 
>>>>> offended because they are all getting together to help you.
>>>>> 
>>>>> Richard and everyone else, there was a time a very long time ago that my 
>>>>> father tought me something. He said that everyone needs to learn 
>>>>> something new everyday because it will make you smarter. If you refuse to 
>>>>> learn something new everyday then you will revert back to yesterday. And 
>>>>> he was right!
>>>>> 
>>>>> 18's
>>>>> 
>>>>> Marty
>>>>> 
>>>>>> On Sun, Jul 8, 2018 at 11:31 PM, Richard H <rbhuf...@gmail.com> wrote:
>>>>>> Yes, I have been struggling with this for years.  I have had 
>>>>>> Transfusions, and now check my CBC every month to see if I need to take 
>>>>>> Procreate to bring my blood level back up.  I am currently on 200 mg 
>>>>>> Gleevec daily because my CML levels will rise if I don't use it as a 
>>>>>> maintenance feature.  I am approaching 16 1/2 years since diagnosis.
>>>>>> 
>>>>>> Richard H. 
>>>>>> 
>>>>>>> On Saturday, July 7, 2018 at 1:04:15 PM UTC-5, Vivi wrote:
>>>>>>> I suddenly became terribly anemic and my doctor cut my intake of 400mg 
>>>>>>> Gleevec daily in half.  It took five months but I am no longer anemic 
>>>>>>> and the CML does not seem to have become visible as yet.  Has anyone 
>>>>>>> else had a problem like this?
>>>>>> 
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