Richard, how close can we get? You and I are like blood relatives. I'll bet you that we even have the same brand of pace-makers. And I am very happy to be browbeating you, because I have been browbeaten by the best of them.. My wife. Let's hear it from the rest of you gal's and guy's. It is my pleasure because I have also branded you with 18's so your not leaving yet... Now a favorite saying... CAN YOU HEAR ME NOW.
Also, now that you remember about Cranberry juice let me direct you to, but choose the right one for your Diabetes: https://www.diabetes.co.uk /blog/2015/07/cranberry-juice-and-four-other-drinks-that-fight-diabetes/ Cranberry juice and other drinks... Stay away from Grapefruit mainly because of your medications. Now about Apple cider vinegar stay away from it because it taste like S*** Unless your eating a salad which also tastes like well you already know. Do you want me to sneak in that four letter S word? Richard do you remember when you were a kid and your mother gave you a dose of Caster Oil? Same taste occurred in your mouth but you had to swallow it didn't you. Don't tell me a mis-truth because I will know it... But from what you are writing, then you seem to be getting on that ball field again. Just take care of yourself, because do you know the best person that can do it? YOU... Now Richard what have you leaned today? Remember what my father once taught. When someone learn something new everyday then they become smarter, but if they refuse then they revert back to yesterday. So you have learned something about me. Am I unusual? You bet I am. Different things about Cranberry juice? Yep. Different thing about yourself that you may not have known before? Yup again. So since both you and I and everyone here has learned something new then we all good for another three days Richard you know what's coming next? 18's, Marty On Thu, Jul 12, 2018 at 12:12 AM, Richard H <rbhuffm...@gmail.com> wrote: > Thanks Marty. Yes you are correct. My ONC, My second Neurologist, and my > Heart Specialist are aware of this. I am on reduced Gleevec, Neurologist > is totally involved and if/when the counts become higher he will make his > recommendation, and Heart specialist has me on the latest . > anti-colonization medicine. She removed me from aspirin and when I was > told I had lost part of my vision see in formed all she could do was add > the aspirin and that would be the maximum she could/would do and also > replace the pacemaker with an upgrade.. I won over diabetics so that is > not a current problem. I still check blood counts every day. I had > forgotten about the cranberry juice but yes it does work. My wife drank > lots of it. > > Thanks for browbeating me, Drs time and our time sometimes a wee bit > different. At least they are all in the ballpark. I just need to hit > something that works to stay on the field. > > 18's > > Richard H. > > On Tuesday, July 10, 2018 at 11:47:01 PM UTC-5, wa2yyx wrote: >> >> Richard, now I know what your problem is. It is your kidney function >> being 3 what is your doctor doing about this? That is why your HGB is so >> low. Do you have a phrenologist near you? if so then go see him or her. Do >> it as soon as you can. Because it is not to late. When I had to go onto >> Dialysis my kidney function was already almost six. When I got my kidney >> transplant it went down to .97 and there it is now. >> >> Now you mentioned "Probably headed for a stroke or stints in my neck". >> Guess what? I already had a stroke. And have you discussed anything about >> anti coagulants (blood thinners) with you doctor? Hopefully a Cardiac >> doctor? And I now know how to take care of myself I also had a pace maker >> implanted in my upper chest and it made a world of difference. >> >> Move yourself on I know what I am talking about. Are you diabetic? If so >> do you take anything for it? Start drinking Cranberry juice if you can >> because it will hydrate and clean your kidneys very important. >> >> Am I right? Do you think that your doctor is doing the right things for >> you? I told you before get a second opinion. >> >> I can only give you suggestions but you are the one that carrys them out. >> If you want to speak to me personally just let me know. >> >> I am now going to tell you what my father told me a long time ago... If >> someone learns something new every day that will become smart, but if >> someone refuses to learn something every day then they revert back to >> being yesterday. Please listen to me. I am just a mortal man. I am no one >> special, but I have had so many things happen to me, but why am I still >> alive? Do you want to know why as well? It is because WE are still here. >> >> 17's >> >> Marty >> >> On Tue, Jul 10, 2018 at 11:58 PM, Richard H <rbhuf...@gmail.com> wrote: >> >>> Thanks Marty. Yes hemoglobin below 10. and himeric below 30 is >>> correct.. That is for time to allow it to start doing its work and then >>> will go toward normal. If I take it just over then the counts build over >>> the normal level. >>> Just trying to maintain that level just below normal according to his >>> specification. I do comment to the nurse giving me the results each time. >>> I do have my kidneys checked and am on a regular basis seeing him. I am >>> running close to 3 on kidney function. I am having more heart related >>> problems at this point. Probably headed for a stroke or stints in my neck. >>> >>> But like is still good when I wake up each morning >>> >>> 18's >>> Richard H. >>> >>> On Monday, July 9, 2018 at 9:21:42 AM UTC-5, wa2yyx wrote: >>>> >>>> Richard, first thing is when your hemoglobin drops to 10 or below then >>>> is the time that procrit generic Epoetin Alfa should start. It should >>>> increase your red/hemoglobin count. However it may take a week or two to >>>> start showing results. Why don't you mention this to your doctor. >>>> Also, have your kidney function checked as well. >>>> >>>> When my kidneys started to fail I was on Dialsys and found that my >>>> hemoglobin level started dropping. Kidney function has a lot to do with >>>> that. The reason why is because there is a hormone called Erythropoietin >>>> which is released in response to hypoxia (low levels of oxygen at >>>> tissue level) in the renal circulation. It stimulates erythropoiesis >>>> (production of red blood cells) in the bone marrow. I am writing >>>> this in bold font to make sure that it can be understood, it is that >>>> important! >>>> >>>> When I was on Diaysis sometimes my HGB would drop to from 7% to 9% and >>>> I felt like I coulden't even get out of bed. My wife would help me into her >>>> car and help me into the Dialysis center. I lived a horrible life until I >>>> had a kidney Transplant. >>>> >>>> I have heard a lot of people mentioning that they blame some of the TKI >>>> that they are taking. Perhaps that may be so, but what if it isn't that at >>>> all? That is why they need to consult with their doctors because that is >>>> his or her job. And if they feel that there is someone that can help as >>>> well then get a second opinion. Don't forget they won't be hurt or offended >>>> because they are all getting together to help you. >>>> >>>> Richard and everyone else, there was a time a very long time ago that >>>> my father tought me something. He said that everyone needs to learn >>>> something new everyday because it will make you smarter. If you refuse to >>>> learn something new everyday then you will revert back to yesterday. And he >>>> was right! >>>> >>>> 18's >>>> >>>> Marty >>>> >>>> On Sun, Jul 8, 2018 at 11:31 PM, Richard H <rbhuf...@gmail.com> wrote: >>>> >>>>> Yes, I have been struggling with this for years. I have had >>>>> Transfusions, and now check my CBC every month to see if I need to take >>>>> Procreate to bring my blood level back up. I am currently on 200 mg >>>>> Gleevec daily because my CML levels will rise if I don't use it as a >>>>> maintenance feature. I am approaching 16 1/2 years since diagnosis. >>>>> >>>>> Richard H. >>>>> >>>>> On Saturday, July 7, 2018 at 1:04:15 PM UTC-5, Vivi wrote: >>>>>> >>>>>> I suddenly became terribly anemic and my doctor cut my intake of >>>>>> 400mg Gleevec daily in half. It took five months but I am no longer >>>>>> anemic >>>>>> and the CML does not seem to have become visible as yet. Has anyone else >>>>>> had a problem like this? >>>>>> >>>>> -- >>>>> -- >>>>> [CMLHope] >>>>> A support group of http://cmlhope.com >>>>> ------------------------------------------------- >>>>> >>>>> You received this message because you are subscribed to the Google >>>>> Groups "CMLHope" group. >>>>> To post to this group, send email to cml...@googlegroups.com >>>>> To unsubscribe from this group, send email to >>>>> cmlhope-u...@googlegroups.com >>>>> For more options, visit this group at http://groups.google.com/group >>>>> /CMLHope >>>>> --- >>>>> You received this message because you are subscribed to the Google >>>>> Groups "CMLHope" group. >>>>> To unsubscribe from this group and stop receiving emails from it, send >>>>> an email to cmlhope+u...@googlegroups.com. >>>>> For more options, visit https://groups.google.com/d/optout. >>>>> >>>> >>>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To post to this group, send email to cml...@googlegroups.com >>> To unsubscribe from this group, send email to >>> cmlhope-u...@googlegroups.com >>> For more options, visit this group at http://groups.google.com/group >>> /CMLHope >>> --- >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send >>> an email to cmlhope+u...@googlegroups.com. >>> For more options, visit https://groups.google.com/d/optout. >>> >> >> -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to CMLHope-unsubscribe@ > googlegroups.com > For more options, visit this group at http://groups.google.com/ > group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
