Thanks Marty. Yes you are correct. My ONC, My second Neurologist, and my Heart Specialist are aware of this. I am on reduced Gleevec, Neurologist is totally involved and if/when the counts become higher he will make his recommendation, and Heart specialist has me on the latest . anti-colonization medicine. She removed me from aspirin and when I was told I had lost part of my vision see in formed all she could do was add the aspirin and that would be the maximum she could/would do and also replace the pacemaker with an upgrade.. I won over diabetics so that is not a current problem. I still check blood counts every day. I had forgotten about the cranberry juice but yes it does work. My wife drank lots of it.
Thanks for browbeating me, Drs time and our time sometimes a wee bit different. At least they are all in the ballpark. I just need to hit something that works to stay on the field. 18's Richard H. On Tuesday, July 10, 2018 at 11:47:01 PM UTC-5, wa2yyx wrote: > > Richard, now I know what your problem is. It is your kidney function being > 3 what is your doctor doing about this? That is why your HGB is so low. Do > you have a phrenologist near you? if so then go see him or her. Do it as > soon as you can. Because it is not to late. When I had to go onto Dialysis > my kidney function was already almost six. When I got my kidney transplant > it went down to .97 and there it is now. > > Now you mentioned "Probably headed for a stroke or stints in my neck". > Guess what? I already had a stroke. And have you discussed anything about > anti coagulants (blood thinners) with you doctor? Hopefully a Cardiac > doctor? And I now know how to take care of myself I also had a pace maker > implanted in my upper chest and it made a world of difference. > > Move yourself on I know what I am talking about. Are you diabetic? If so > do you take anything for it? Start drinking Cranberry juice if you can > because it will hydrate and clean your kidneys very important. > > Am I right? Do you think that your doctor is doing the right things for > you? I told you before get a second opinion. > > I can only give you suggestions but you are the one that carrys them out. > If you want to speak to me personally just let me know. > > I am now going to tell you what my father told me a long time ago... If > someone learns something new every day that will become smart, but if > someone refuses to learn something every day then they revert back to > being yesterday. Please listen to me. I am just a mortal man. I am no one > special, but I have had so many things happen to me, but why am I still > alive? Do you want to know why as well? It is because WE are still here. > > 17's > > Marty > > On Tue, Jul 10, 2018 at 11:58 PM, Richard H <[email protected] > <javascript:>> wrote: > >> Thanks Marty. Yes hemoglobin below 10. and himeric below 30 is >> correct.. That is for time to allow it to start doing its work and then >> will go toward normal. If I take it just over then the counts build over >> the normal level. >> Just trying to maintain that level just below normal according to his >> specification. I do comment to the nurse giving me the results each time. >> I do have my kidneys checked and am on a regular basis seeing him. I am >> running close to 3 on kidney function. I am having more heart related >> problems at this point. Probably headed for a stroke or stints in my neck. >> >> But like is still good when I wake up each morning >> >> 18's >> Richard H. >> >> On Monday, July 9, 2018 at 9:21:42 AM UTC-5, wa2yyx wrote: >>> >>> Richard, first thing is when your hemoglobin drops to 10 or below then >>> is the time that procrit generic Epoetin Alfa should start. It should >>> increase your red/hemoglobin count. However it may take a week or two to >>> start showing results. Why don't you mention this to your doctor. >>> Also, have your kidney function checked as well. >>> >>> When my kidneys started to fail I was on Dialsys and found that my >>> hemoglobin level started dropping. Kidney function has a lot to do with >>> that. The reason why is because there is a hormone called Erythropoietin >>> which is released in response to hypoxia (low levels of oxygen at >>> tissue level) in the renal circulation. It stimulates erythropoiesis >>> (production of red blood cells) in the bone marrow. I am writing this >>> in bold font to make sure that it can be understood, it is that important! >>> >>> When I was on Diaysis sometimes my HGB would drop to from 7% to 9% and I >>> felt like I coulden't even get out of bed. My wife would help me into her >>> car and help me into the Dialysis center. I lived a horrible life until I >>> had a kidney Transplant. >>> >>> I have heard a lot of people mentioning that they blame some of the TKI >>> that they are taking. Perhaps that may be so, but what if it isn't that at >>> all? That is why they need to consult with their doctors because that is >>> his or her job. And if they feel that there is someone that can help as >>> well then get a second opinion. Don't forget they won't be hurt or offended >>> because they are all getting together to help you. >>> >>> Richard and everyone else, there was a time a very long time ago that my >>> father tought me something. He said that everyone needs to learn something >>> new everyday because it will make you smarter. If you refuse to learn >>> something new everyday then you will revert back to yesterday. And he was >>> right! >>> >>> 18's >>> >>> Marty >>> >>> On Sun, Jul 8, 2018 at 11:31 PM, Richard H <[email protected]> wrote: >>> >>>> Yes, I have been struggling with this for years. I have had >>>> Transfusions, and now check my CBC every month to see if I need to take >>>> Procreate to bring my blood level back up. I am currently on 200 mg >>>> Gleevec daily because my CML levels will rise if I don't use it as a >>>> maintenance feature. I am approaching 16 1/2 years since diagnosis. >>>> >>>> Richard H. >>>> >>>> On Saturday, July 7, 2018 at 1:04:15 PM UTC-5, Vivi wrote: >>>>> >>>>> I suddenly became terribly anemic and my doctor cut my intake of 400mg >>>>> Gleevec daily in half. It took five months but I am no longer anemic and >>>>> the CML does not seem to have become visible as yet. Has anyone else had >>>>> a >>>>> problem like this? >>>>> >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google >>>> Groups "CMLHope" group. >>>> To post to this group, send email to [email protected] >>>> To unsubscribe from this group, send email to >>>> [email protected] >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google >>>> Groups "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send >>>> an email to [email protected]. >>>> For more options, visit https://groups.google.com/d/optout. >>>> >>> >>> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> <javascript:> >> To unsubscribe from this group, send email to >> [email protected] <javascript:> >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected] <javascript:>. >> For more options, visit https://groups.google.com/d/optout. >> > > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
