Jon Patrick wrote:
> 
> I am working with the Breast Cancer Institute, NSW on a research project
> with their information system and as a side issue they would like to
> send their statutory data to the cancer registry automatically. Does
> anyone on the list have experience with sending information to any
> cancer registry and give some advice on pitfalls and difficulties.
> thanks
> jon

Jon,

Speak to Neville Board at the NSW cancer Institute, which runs the NSW
Central Cancer Registry (CCR) on behalf of the NSW Department of Health.
They did a trial of message-based notification of cancer cases last year
or in 2005, as I recall. The CCR has received batched data uploads in
elecronic form from public hospitals for many years, but still gets its
histopathology notifications (basically copies of the histopath reports
sent to requesting clinicians) on paper, I think.

Cancer is notifiable under the NSW Public Health Act, which also
stipulates that path labs, GPs, hospitals schools and child care centres
have to notify the Dept of Health of suspected cases of certain
communicable diseases. We are currently working on notification from
path labs using HL7 2.x-based messaging. Argus Connect is our preferred
secure transport mechanism, although we will accept others if labs don't
want to install Argus - but so far most are happy to gain Argus
capability as a side benefit of electronic statutory notification to the
DoH. Yes, there are plans to support electronic notifications from GPs,
ideally generated directly from GP clinical information systems, and
again, HL7 messaging via Argus Connect will probably be the preferred
modality, but again we'll accept others if it is necessary to do so.
Notification via a secure Web page will also be supported but only as an
interim measure or last resort for practices who can do HL7 messaging -
retyping or cut-and-pasting patient details into a Web page is not a
good solution. However, there is about a year's more work to get
electronic notification from the majority of path labs in NSW working
smoothly and reliably, and then we'll tackle e-notification from GPs,
which is of a much, much smaller volume. However, happy to talk to GPs
and/or software vendors about this in the meantime. We're already in
touch with almost all labs doing communicable disease work for NSW
residents. Best to contact Lina Persson at [EMAIL PROTECTED]
in the first instance if anyone does want to discuss electronic
statutory notification of communicable diseases in NSW (and yes, we are
urging our interstate colleagues to settle on the same HL7 specs, result
codes etc as we have, and it looks like they will).

Tim C

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