On Wed, Mar 14, 2018 at 11:28:28AM +0100, Philippe Ameline wrote:

> because MD
> keep seeing information systems as "back office" components, also
> because they are often individualists very at ease in silos (practice
> and specialty))

Practitioners need to be able to control their space for, at
a minimum, liability concerns, which are brought about by the
amount of implicit trust that is put forword towards them
(and then happily withdrawn at the slightest chance of
litigation).  It is only natural that most MDs will resist
"change for no good reason" and be *very* conservative.

> and they are still fully organized for acute care (to
> put it simply, the medical system is fully upside down and the GP should
> become an orchestra conductor (what she often dreams she already is) but
> is stuck in the one-man band role).

~70% of _all_ reasons for encounter are fully solvable inside
the GP "domain". But that goes counter to what most patients
want and believe they need. Which is the biggest obstacle for
primary care based healthcare. At least in Germany.

"Chronic care" is nothing new, it has been the
mainstay of General Practice for, what, centuries ?

(not that any noticeable number of IT solutions had fostered
that approach so far)

> the dynamic team of the
> contributors around a given individual).

That, of course, is a vision in need of better application.

> The most important point to consider here is that, when considering the
> person's bubble, it is really mandatory to be plainly holistic, that's
> to say to consider health as a project among many other projects
> (education, employment, social issues, ordinary life projects, etc). It
> is a place where the term "patient" is prohibited.

If we remove the term "patient" we will remove the very last
trace of what it means to fall ill - to endure, with the
necessary patience. Only "clients" remain, believing that
healthcare can work like a business process, getting
themselves repaired as needed.

While I fully support the process of informed shared decision
making, and embrace it to the extent possible, 15 years of
daily face-to-face encounters with literally many thousands of
patients painfully teaches that the majority is not currently
able to take matters into their own hands AND live with the
consequences.

So, yes, let's build systems to be open and to enable
caretakers and caregivers, but let's not expect those systems
to be used that way by the great majority.

Karsten

(speaking from a German healthcare perspective only)
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