Meri, Hi, thank you so much for your story. I wish I was talented enough to write my story in such a clear concise manner. I wanted so much to help Sharon with her book by sending my story but I just can't write well. I'm wordy and my history is so intertwined with other problems I'm afraid it will just be too confusing. I tried a few times but as I said I get wordy try to fix it then get too exhausted to continue. I have a problem sitting for long periods as I have bad nerve damage in my buttocks and hip areas so I just gave up because of that to on top of being so sick during the summer I was hardly out of bed. We had family get togethers when I couldn't come out of my room. I've been sick a year and a half. It really helps me to know others symptoms as I have so many diagnosis with nothing being treated I'm trying to figure things out. I'm ready to lose my mind. I think sometimes if my body temperature changes one more time I just can't stand it anymore. One thing I've really been confused about is endocrinologists and neuroendocrinologists. Is there really a difference. I go to doctors who say they're neuroendocrinologists and have gotten no more help from them. One of the more distressing symptoms to start was this strange nausea problem I have. I will be able to eat but only certain foods and obviously not enough as I've lost another 8 pounds in the last three weeks since it started up again. I lost twelve pounds during the summer/fall. At least for the first year I could eat normally. One thing I've found interesting is I had a short spell of feeling slightly better..the main difference was my body temperature was more stable. Then everything came back at the same time, hot/cold changes, nausea, weakness, body fatigue (not tiredness). I'm so weak it's hard to even fix anything to eat. My reproductive endo gave me Avandia for my low insulin level and diabetes but I'm afraid to take it because I can't eat enough. Well, anyway thanks for your post. I was ready to give up on pursuing the pituitary situation because my DHEAS was normal now reading some of your symptoms I'm rethinking that. I called Cleveland Clinic and of course they want my MRI which was already read as having a microadenoma but the neurosurgeon disagreed and I tried to tell them I want a new MRI not an opinion on this one. I called them only for the fact that they have the 3 TeslaMRI machine. She said they would look at my old one and tell me if I'm a candidate for surgery. Heck, I'm just trying to get a newer MRI (this was from last spring) and an opinion on that one not the one I have. Thanks again, Lisa | 