Meri, I was told several times on the board in the past to see a neuroendocrinologists. I remember thinking... I did see neuroendocrinologists because these were doctors recommended on the PTNA site. I thought maybe I was wrong about this and I even went back and checked and they were both listed as neuroendocrinologists. But neither was interested in my low pituitary hormones. I don't understand why they weren't interested. All of them were low. I even had a blood cortisol levels that were the opposite of what they were suppose to be at that certain time of day. They ignored that. My ACTH, GH, IGF-1 and Prolactin are all low at least they were last spring. No one has checked them since. I know they were random but most barely make it in the normal range. I had about 4 Prolactin levels and it progressively lowered until it went below normal the last time. I wonder about the cortisol. I absolutely hate mornings when I wake up. Though I am grateful to wake up! I'm nauseated, severely hot, weak, feel hungry but can't tolerate to eat. It's horrible. Then I continue my day going from hot to cold, being so weak I shake. I usually can eat better later in the day but it's a real ordeal what to eat as I won't eat any restaurant food and most foods repulse me to think about eating them plus what can I tolerate. I'm living on rice cakes, cream cheese and grilled cheese. But those are dairy. I wonder if you can tolerate something at the time you eat it but in the long run it's not good for you. Just a thought. The oatmeal is something that I tolerate sometimes and not other times. One of the reasons I'm spending so much time deciding where to go is because these other doctors weren't interested in my pituitary and they also both were in clinics and saw diabetic and thyroid patients. That's why I asked the question, what confused me so much about the regular endo and a neuroendocrinologist, the neuroendo's I saw didn't seem to be "specialist" in the pituitary only, which is the impression I had. I'm not critisizing anyone I'm just trying to understand. I'm so sick I had to have my 74yr old mother drive me to the reproductive endo the other day so deciding on traveling is a big decision for me but, if I could find one who I thought would take me seriously I'd go in a minute. My husband is just waiting for me to say lets go. I don't fly so I'm limited to how far I can travel. I have gotten two names I'm interested in besides the CC, which I originally was not going to go to. But when I read they have the 3 Tesla I reconsidered. But it's not going to help me if they won't use it for me. I don't have to have treatment there I'm really just interested in testing and diagnosis right now. As far as eating. The reproductive endo found my insulin level is somewhat low so she gave me Avandia to take. I'm scared to take it because I can hardly eat. If I take this medicine I have to eat. If my GTT wasn't positive for Diabetes 2 years ago you'd never know I was a diabetic by my glucose levels. I'm eating so little at a time I can hardly keep my blood sugar up! I've thought about lactose intolerance, also about gluten intolerance. I wonder if they're connected in anyway. I'll have to check that out. If I eat oatmeal for instance, and I make it thin, it sometimes just sits in my stomach and I feel nauseated for an hour after I eat. Sometimes, I can eat certain foods then I'll eat it another time and it will bother me. I've haven't drinkin milk since I was a kid. I hate it. But, I also remembered awhile back why I hated drinking it as a kid because it always gave me a stomach ache. I can't eat eggs that aren't totally cooked. I used to always get bad cramping after I'd have a over easy egg then I figured out it was the uncooked part. I can eat scrambled eggs and hard boiled only. I don't know if that has anything to do with lactose intolerance or not? Pudding bothers me and I think that's made with milk so maybe there is something to that. Well, sorry so long. As far as CC the lady in Dr. Maybergs office said to send the MRI and get an opinion on that first then make an appt with the Neuroendocrine Center. I'm thinking about making an appt with the neuroendo and just taking my films and leaving them for Dr. Mayberg. I'm going to call and see how long it will take me to get in. If it's too long I'll go ahead and mail my MRI. I'll check it out tomorrow. Well, thanks again for listening...see what I mean by how wordy I am! Lisa | 