Hi Linda,
How could you be alone for so long? I would be on the phone every hour
calling them and trying to make a complaint to someone that was in charge of
their agency. That is so cruel and life-threatening, anything could happen.
Could you call anyone to check my view so you could eat?
I am so sorry Linda that you had to go through that. That agency should be
fined and I would probably see if I could find another one, is there any more
in your area? I remember you writing a while back that a couple of your
aides had problems, want an car accident and the other one was in some kind of
psychiatric rehab. How are they, did they come back?
Dana
Hi Lori,
Believe me, I thought that I was going to have a panic attack. I took little
sips of my water, just enough to wet my dry mouth & I didn't want to drink
too much, fear of filling my UDBag. Thankgoodness I have a 4000cc bag. Yes I
was afraid my bag was going to burst or I would have autonomic dysreflexia,
luckily I didn't. I am on M-W-F bowel program, so that wasn't a worry. Then
5pm Sunday a CNA showed up & brother was I pissed off!!! On Monday the Nursing
Agency was apologizing.
Lindaf
Dear Linda,
If I were left for that long alone I would be dead. In fact, I would not
make the first 24 hours because my urinary bags would be overfull leading to
autonomic dysreflexia leading to death in a short period of time.
Who helped you with urinating and/or bowel routines in that timeframe? Who
helped you get drinks and food?
Lori
PS-- please forward this to the list if you would like so that they will
know your answers if they have the same questions.
-------Original Message-------
From: _LINDA FERRELL_ (mailto:[EMAIL PROTECTED])
Date: 12/2/2006 1:03:54 PM
To: [EMAIL PROTECTED] (mailto:[email protected])
Subject: Re: [QUAD-L] Agency Help Over the Holidays
David
I agree with you, all states should hold these Agencies more responsible. I
know my last agency left me from Friday nite until Sunday with no help. I had
dropped my mouthstick & my lifeline button was not close enough to reach. I
just layed in bed & did a lot of meditating & singing.
Lindaf
