I have a problem and I'm hoping somebody on the list can help me  with.  I 
have had problems with pressure sores since my injury 13 years  ago.  They 
never 
get really bad, mostly just to the blister stage but they  are constant.  The 
area where I get the sores all the time is always  purple, I have asked 
doctors, nurses and people in the support groups that I  attend an apparently I 
am 
the only one with a purple butt.  Until recently  I could lay on my side for a 
couple of days and they would go way.  It  seems like now whenever I lay on 
my side all I do is sweat.  The more I  sweat the more I want to cover myself 
up and the more I cover myself up the more  I sweat.  If I have somebody put 
the warm blow dryer on me it helps but  only until they stop.  I would love to 
hear what kind of mattress and what  you guys do or don't do to prevent 
constant pressure sores? I have an SP tube so  that also hinders lying on my 
side 
because my knee is always bent and it looks  like it's pushing the tube.
 
Take care and play nice Tammie Lou
C6 complete quadriplegic
13 years post
chippertue.com
_Chippertue's World_ (http://www.chippertue.com/)  
 
 
In a message dated 4/17/2008 12:02:44 P.M. Pacific Daylight Time,  
[EMAIL PROTECTED] writes:

IT SOUNDS ODD. I'D TRY TO GET INTO THE DR SOONER.
 
NICKI

Merrill Burghardt <[EMAIL PROTECTED]>  wrote:

 
If I do not hold my  arm up, a finger becomes red with a narrowing at the 
hand which then is a  thin red line as if a vane.  Does that sound suspicious?  
I 
have a  doc appointment in a month but maybe I should go to Urgent  Care.
 
Merrill
 
 
 
  
____________________________________
 
From:  NICHOLE ROHLING [mailto:[EMAIL PROTECTED] 
Sent: Thursday, April 17, 2008 9:50  AM
To: Lori Michaelson;  QUADLIST
Subject: Re:  [QUAD-L] PAIN

 
 
SOMETHING I LEARNED IS THERE IS A BLOOD TEST CALLED  D-DIMER AND IF THE LEVEL 
IS ABOVE 445 (I THINK) IT INDICATES THEY NEED TO  LOOK FOR  CLOT. MY LEVEL 
WAS 2226!

 


 
NICKI

 


 


Lori Michaelson  <[EMAIL PROTECTED]>  wrote:


 
I had a DVT (deep vein clot/thrombosis) in 1995  that was encouraged by 
surgeries.  I was also very, very, very lucky  to have survived it because I 
was 
telling doctors (my neurosurgeon and his  staff hours away) my symptoms and 
they 
were ignoring them even though they  were classic symptoms of a DVT!  
Hitherto ... I was not familiar with  clots of any type so I was in the dark.  
It was 
the Internet that  saved my life essentially.

 


 
With what I described... they should have wanted  to at the very least 
eliminate the possibility of a clot since I just had  two surgeries with that 
doctor 
and that is a primary thing to worry about  after surgery.  But noooooo... I 
thought it was probably just  swelling and I should wear some of those tight 
hose.  QUACK,  QUACK

 


 
I went around for about a month with my left  lower leg very swollen and very 
hard.  I finally read an article on  the net (I was very new to the Internet 
back then and only knew how to  look things up) and one doctor in Washington 
state had an article about  spinal cord injuries and folks with MS.  A sentence 
said "If one leg  is significantly larger than the other... it could indicate 
a clot."   All I knew was that "a clot" was not good but I had no idea that I 
had a  DVT whereby all I had to do was move a certain way to have it move  
directly to my lungs to kill me.

 

The very next morning I called my primary care  physician and I went to see 
him.  He looked at it and said "I don't  know... I don't think it could be a 
clot but I will send you over to the  hospital to have an ultrasound done."  
Needless to say... I never  left the hospital because it was a lengthy clot and 
I 
was in immediate  danger.

 


 
DOCTORS!  QUACK,  QUACK!

 


 
I think I'm on my 95th life because of so many  negligent doctors.

 


 
Lori  Michaelson

 
Age - 43

 
C4/5 complete quad, 28 years  post

 
Tucson, AZ

 




On Sat, Apr 12, 2008 at 4:55 PM, NICHOLE ROHLING  <[EMAIL PROTECTED] 
(mailto:[EMAIL PROTECTED]) >  wrote:
 
YES, CLOTS TAKE 4-6 WEEKS TO DISSOLVE SO I'M ON  COUMADIN (?) TO THIN MY 
BLOOD. MY INR LEVEL NEEDS TO STAY BETWEEN 2.0 AND  3.0

 


 
MR  DR SAID THEY DO HAVE MEDS TO BUST  CLOTS BUT THE RISKS FOR ME OUTWEIGHED 
THE BENEFITS.

 


 
I'M JUST THANKFUL TO BE  ALIVE.

 
NICKI

Quadius <[EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) >  wrote:


Thank  goodness you made it through it.  They send you home with blood  clots?
Quadius
 
On 4/12/08, NICHOLE ROHLING <[EMAIL PROTECTED] 
(mailto:[EMAIL PROTECTED]) >  wrote: 
 
I HAVEN'T READ ALL THE RESPONSES BUT IT WAS  I HAD A DR AISEVERAL BLOOD CLOTS 
IN MY RIGHT  LUNG.

 


 
I HAD DR APPT TUES AT 1PM BUT CALLED THE  AMBULANCE AT 5AM.

 


 
THE ER DOC IMMEDIATELY ORDERED A CAT SCAN WHICH  SHOWED SEVERAL CLOTS IN MY 
RIGHT LUNG AND A FEW IN MY LEFT. I WAS  ADMITTED TO THE HOSPITAL AND MY DR HAD 
ULTRASOUND DONE ON MY LEGS AND  SURE ENOUGH I HAD A CLOT IN MY LFT LEFT BEHIND 
MY KNEE - NO SWELLING  REDNESS OR HEAT.

 


 
HE SAID THE SMALL CLOTS IN MY LUNGS WERE MOST  LIKELY FLOATERS WHICH BROKE 
OFF OF THE MAIN  CLOT.

 


 
I JUST GOT HOME AND AM FEELING REAL LUCKY TO BE  ALIVE

 


 
NICKI

 


 
 
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-- 
Lori 
C4/5  complete quad, 27 years post
Tucson, AZ  



  
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