I must say that I agree with Naomi's post about asking medical questions
here. But what you are describing is not something a doctor is going to be
able to figure out. You know your body by now so it is a process of
elimination. I know by first-hand experience.
The sweating that you describe could not have been said better! It is a
clammy sweat so it makes me cold. This has been happening to me after I get
into my wheelchair in the mornings but it goes away quite quickly. So it is
something mysterious (to me and my husband) of which we can not find the
source. Isn't that the worst feeling? Thank goodness I live in the
Southwest now where I can just go outside in the very dry air in the warm
sun until it dissipates.
About six months ago the clammy sweats were happening very very very badly
soon after getting in the w/c. I thought it HAD to be
A) My spine
B) My cushion
or
C) My hemmoroids
Believe it or not it was a pressure sore (albeit a tiny one) just on the
underside of my right foot. A very bad place to be seen. My home health
aide did not even notice it when she was washing my feet all those months.
And my husband is my primary caregiver but he had to be sitting in a chair
just right in our bedroom while I was in bed with naked feet for him to
catch a glimpse of it. MONTHS LATER!
I started propping my foot up on a pillow so there was *absolutely no
pressure* from the shoes that I have always worn. WALA -- clammy sweats
went bye-bye. It took us months to figure out that my profuse sweating
every day was caused by that itty bitty sore. Geeeeeeeez. And I know my
body best but it was something new to me after 28 years.
It sounds like something is bothering you in bed (not your chair or in a
shoe) but there is no apparent cause. To answer your question... I use an
alternating pressure air mattress right now.
In the past and I keep them on hand... are the waffle mattresses. They are
not alternating but are very very comfortable for me and never gave me a
problem. They are just a mattress overlay of air and they come with a
pump. You can see them at www.ehob.com . However, if you have been
following the threads for any length of time... the list member "W" goes to
many many medical shows whereby vendors come to show off their products. He
says that he can pick them up at around seven dollars apiece. Whereby ehob
ones about $70 for the mattress. Give it a try or contact your local vendor
to get an alternating air mattress.
Medicare pays for my alt pressure one (won't pay for waffle - go
figure) each month. They charge Medicare and arm and a leg and Medicare
fraud is outrageous but Medicare simply does not care.
WHAT mattress are you using now?
Lori Michaelson
Age - 43
C4/5 complete quad, 28 years post
Tucson, AZ
On Sun, Apr 20, 2008 at 6:42 AM, <[EMAIL PROTECTED]> wrote:
> I have a problem and I'm hoping somebody on the list can help me with. I
> have had problems with pressure sores since my injury 13 years ago. They
> never get really bad, mostly just to the blister stage but they are
> constant. The area where I get the sores all the time is always purple, I
> have asked doctors, nurses and people in the support groups that I attend an
> apparently I am the only one with a purple butt. Until recently I could lay
> on my side for a couple of days and they would go way. It seems like now
> whenever I lay on my side all I do is sweat. The more I sweat the more I
> want to cover myself up and the more I cover myself up the more I sweat. If
> I have somebody put the warm blow dryer on me it helps but only until they
> stop. I would love to hear what kind of mattress and what you guys do or
> don't do to prevent constant pressure sores? I have an SP tube so that also
> hinders lying on my side because my knee is always bent and it looks like
> it's pushing the tube.
>
> Take care and play nice Tammie Lou
> C6 complete quadriplegic
> 13 years post
> chippertue.com
> Chippertue's World <http://www.chippertue.com/>
>
> In a message dated 4/17/2008 12:02:44 P.M. Pacific Daylight Time,
> [EMAIL PROTECTED] writes:
>
> IT SOUNDS ODD. I'D TRY TO GET INTO THE DR SOONER.
>
> NICKI
>
> *Merrill Burghardt <[EMAIL PROTECTED]>* wrote:
>
> If I do not hold my arm up, a finger becomes red with a narrowing at the
> hand which then is a thin red line as if a vane. Does that sound
> suspicious? I have a doc appointment in a month but maybe I should go to
> Urgent Care.
>
> Merrill
>
> ------------------------------
> *From:* NICHOLE ROHLING [mailto:[EMAIL PROTECTED]
> *Sent:* Thursday, April 17, 2008 9:50 AM
> *To:* Lori Michaelson; QUADLIST
> *Subject:* Re: [QUAD-L] PAIN
>
> SOMETHING I LEARNED IS THERE IS A BLOOD TEST CALLED D-DIMER AND IF THE
> LEVEL IS ABOVE 445 (I THINK) IT INDICATES THEY NEED TO LOOK FOR CLOT. MY
> LEVEL WAS 2226!
>
> NICKI
>
>
>
> *Lori Michaelson <[EMAIL PROTECTED]>* wrote:
>
> I had a DVT (deep vein clot/thrombosis) in 1995 that was encouraged by
> surgeries. I was also very, very, very lucky to have survived it because I
> was telling doctors (my neurosurgeon and his staff hours away) my symptoms
> and they were ignoring them even though they were classic symptoms of a
> DVT! Hitherto ... I was not familiar with clots of any type so I was in the
> dark. It was the Internet that saved my life essentially.
>
> With what I described... they should have wanted to at the very least
> eliminate the possibility of a clot since I just had two surgeries with that
> doctor and that is a primary thing to worry about after surgery. But
> noooooo... I thought it was probably just swelling and I should wear some of
> those tight hose. QUACK, QUACK
>
> I went around for about a month with my left lower leg very swollen and
> very hard. I finally read an article on the net (I was very new to the
> Internet back then and only knew how to look things up) and one doctor in
> Washington state had an article about spinal cord injuries and folks with
> MS. A sentence said "If one leg is significantly larger than the other...
> it could indicate a clot." All I knew was that "a clot" was not good but I
> had no idea that I had a DVT whereby all I had to do was move a certain way
> to have it move directly to my lungs to kill me.
>
> The very next morning I called my primary care physician and I went to see
> him. He looked at it and said "I don't know... I don't think it could be a
> clot but I will send you over to the hospital to have an ultrasound done."
> Needless to say... I never left the hospital because it was a lengthy clot
> and I was in immediate danger.
>
> DOCTORS! QUACK, QUACK!
>
> I think I'm on my 95th life because of so many negligent doctors.
>
> Lori Michaelson
> Age - 43
> C4/5 complete quad, 28 years post
> Tucson, AZ
>
>
> On Sat, Apr 12, 2008 at 4:55 PM, NICHOLE ROHLING <
> [EMAIL PROTECTED]> wrote:
> YES, CLOTS TAKE 4-6 WEEKS TO DISSOLVE SO I'M ON COUMADIN (?) TO THIN MY
> BLOOD. MY INR LEVEL NEEDS TO STAY BETWEEN 2.0 AND 3.0
>
> MR DR SAID THEY DO HAVE MEDS TO BUST CLOTS BUT THE RISKS FOR ME
> OUTWEIGHED THE BENEFITS.
>
> I'M JUST THANKFUL TO BE ALIVE.
> NICKI
>
> *Quadius <[EMAIL PROTECTED]>* wrote:
>
> Thank goodness you made it through it. They send you home with blood
> clots?
> Quadius
> On 4/12/08, *NICHOLE ROHLING* <[EMAIL PROTECTED]> wrote:
> I HAVEN'T READ ALL THE RESPONSES BUT IT WAS I HAD A DR AISEVERAL BLOOD
> CLOTS IN MY RIGHT LUNG.
>
> I HAD DR APPT TUES AT 1PM BUT CALLED THE AMBULANCE AT 5AM.
>
> THE ER DOC IMMEDIATELY ORDERED A CAT SCAN WHICH SHOWED SEVERAL CLOTS IN
> MY RIGHT LUNG AND A FEW IN MY LEFT. I WAS ADMITTED TO THE HOSPITAL AND MY DR
> HAD ULTRASOUND DONE ON MY LEGS AND SURE ENOUGH I HAD A CLOT IN MY LFT LEFT
> BEHIND MY KNEE - NO SWELLING REDNESS OR HEAT.
>
> HE SAID THE SMALL CLOTS IN MY LUNGS WERE MOST LIKELY FLOATERS WHICH BROKE
> OFF OF THE MAIN CLOT.
>
> I JUST GOT HOME AND AM FEELING REAL LUCKY TO BE ALIVE
>
> NICKI
>
> __________________________________________________
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>
>
> --
> Lori
> C4/5 complete quad, 27 years post
> Tucson, AZ
>
>
>
> ------------------------------
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>
>
> ------------------------------
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>
>
>
> ------------------------------
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>
--
Lori
C4/5 complete quad, 27 years post
Tucson, AZ
--
Lori
C4/5 complete quad, 27 years post
Tucson, AZ
