The purple area appears to be only on the left side right where the most  
pressure is while sitting.  I buy the material for my pants on eBay and I  
found 
somebody to make them for me so there are no pockets or zipper and as few  
seams as possible.  I also had my OT do the pressure mapping and I'm  seating 
just fine, it's very frustrating trying to figure out what's  wrong.  I will 
try 
the miracle mist, thank you for that advice.
 
Take care and play nice Tammie Lou
C6 complete quadriplegic
13  years post
chippertue.com
_Chippertue's World_ (http://www.chippertue.com/)   


There is a difference between sympathy and  empathy, sympathy is feeling for 
an empathy is feeling with.  

 
In a message dated 4/20/2008 8:56:35 A.M. Pacific Daylight Time,  
[EMAIL PROTECTED] writes:

where on your  butt?  are you always wearing the same brand of pants?  check 
the  seams.
have you been pressure  mapped for the right kind of cushion?
have you tried Miracle  mist.  There was an article @ in new mobility awhile 
back.  I'm  using it now for a stage I area that seems to be helping

 
____________________________________
 From: [EMAIL PROTECTED]  [mailto:[EMAIL PROTECTED] 
Sent: Sunday, April 20, 2008 9:42  AM
To: [email protected]
Subject: [QUAD-L] Continuous  pressure sore problems...



I have a problem and I'm hoping somebody on the list can help me  with.  I 
have had problems with pressure sores since my injury 13 years  ago.  They 
never 
get really bad, mostly just to the blister stage but  they are constant.  The 
area where I get the sores all the time is always  purple, I have asked 
doctors, nurses and people in the support groups that I  attend an apparently I 
am 
the only one with a purple butt.  Until  recently I could lay on my side for a 
couple of days and they would go  way.  It seems like now whenever I lay on 
my side all I do is  sweat.  The more I sweat the more I want to cover myself 
up and the more  I cover myself up the more I sweat.  If I have somebody put 
the warm blow  dryer on me it helps but only until they stop.  I would love to 
hear what  kind of mattress and what you guys do or don't do to prevent 
constant pressure  sores? I have an SP tube so that also hinders lying on my 
side 
because my knee  is always bent and it looks like it's pushing the tube.
 
Take care  and play nice Tammie Lou
C6 complete  quadriplegic
13 years  post
chippertue.com
_Chippertue's World_ (http://www.chippertue.com/)  
 
 
In a message dated 4/17/2008 12:02:44 P.M. Pacific Daylight Time,  
[EMAIL PROTECTED] writes:

IT SOUNDS ODD. I'D TRY TO GET INTO THE DR SOONER.
 
NICKI

Merrill Burghardt <[EMAIL PROTECTED]>  wrote:

 
If I do not hold  my arm up, a finger becomes red with a narrowing at the 
hand which then is  a thin red line as if a vane.  Does that sound suspicious?  
I 
 have a doc appointment in a month but maybe I should go to Urgent  Care.
 
Merrill
 
 
 
  
____________________________________
 
From:  NICHOLE ROHLING [mailto:[EMAIL PROTECTED] 
Sent: Thursday, April 17, 2008 9:50  AM
To: Lori Michaelson;  QUADLIST
Subject: Re:  [QUAD-L] PAIN

 
 
SOMETHING I LEARNED IS THERE IS A BLOOD TEST  CALLED D-DIMER AND IF THE LEVEL 
IS ABOVE 445 (I THINK) IT INDICATES THEY  NEED TO LOOK FOR  CLOT. MY LEVEL 
WAS  2226!

 


 
NICKI

 


 


Lori Michaelson  <[EMAIL PROTECTED]>  wrote:


 
I had a DVT (deep vein clot/thrombosis) in  1995 that was encouraged by 
surgeries.  I was also very, very, very  lucky to have survived it because I 
was 
telling doctors (my neurosurgeon  and his staff hours away) my symptoms and 
they 
were ignoring them even  though they were classic symptoms of a DVT!  
Hitherto ... I was not  familiar with clots of any type so I was in the dark.  
It was 
the  Internet that saved my life  essentially.

 


 
With what I described... they should have  wanted to at the very least 
eliminate the possibility of a clot since I  just had two surgeries with that 
doctor 
and that is a primary thing to  worry about after surgery.  But noooooo... I 
thought it was  probably just swelling and I should wear some of those tight 
hose.   QUACK, QUACK

 


 
I went around for about a month with my left  lower leg very swollen and very 
hard.  I finally read an article on  the net (I was very new to the Internet 
back then and only knew how to  look things up) and one doctor in Washington 
state had an article about  spinal cord injuries and folks with MS.  A sentence 
said "If one  leg is significantly larger than the other... it could indicate 
a  clot."  All I knew was that "a clot" was not good but I had no idea  that 
I had a DVT whereby all I had to do was move a certain way to have  it move 
directly to my lungs to kill  me.

 

The very next morning I called my primary care  physician and I went to see 
him.  He looked at it and said "I don't  know... I don't think it could be a 
clot but I will send you over to the  hospital to have an ultrasound done."  
Needless to say... I never  left the hospital because it was a lengthy clot and 
I 
was in immediate  danger.

 


 
DOCTORS!  QUACK,  QUACK!

 


 
I think I'm on my 95th life because of so many  negligent doctors.

 


 
Lori  Michaelson

 
Age - 43

 
C4/5 complete quad, 28 years  post

 
Tucson, AZ

 




On Sat, Apr 12, 2008 at 4:55 PM, NICHOLE ROHLING  <[EMAIL PROTECTED] 
(mailto:[EMAIL PROTECTED]) >  wrote:
 
YES, CLOTS TAKE 4-6 WEEKS TO DISSOLVE SO I'M ON  COUMADIN (?) TO THIN MY 
BLOOD. MY INR LEVEL NEEDS TO STAY BETWEEN 2.0  AND 3.0

 


 
MR  DR SAID THEY DO HAVE MEDS TO  BUST CLOTS BUT THE RISKS FOR ME OUTWEIGHED 
THE  BENEFITS.

 


 
I'M JUST THANKFUL TO BE  ALIVE.

 
NICKI

Quadius <[EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) >  wrote:


Thank  goodness you made it through it.  They send you home with blood  clots?
Quadius
 
On  4/12/08, NICHOLE ROHLING  <[EMAIL PROTECTED] 
(mailto:[EMAIL PROTECTED]) >  wrote: 
 
I HAVEN'T READ ALL THE RESPONSES BUT IT  WAS I HAD A DR AISEVERAL BLOOD CLOTS 
IN MY RIGHT  LUNG.

 


 
I HAD DR APPT TUES AT 1PM BUT CALLED THE  AMBULANCE AT 5AM.

 


 
THE ER DOC IMMEDIATELY ORDERED A CAT SCAN  WHICH SHOWED SEVERAL CLOTS IN MY 
RIGHT LUNG AND A FEW IN MY LEFT. I  WAS ADMITTED TO THE HOSPITAL AND MY DR HAD 
ULTRASOUND DONE ON MY LEGS  AND SURE ENOUGH I HAD A CLOT IN MY LFT LEFT BEHIND 
MY KNEE - NO  SWELLING REDNESS OR HEAT.

 


 
HE SAID THE SMALL CLOTS IN MY LUNGS WERE MOST  LIKELY FLOATERS WHICH BROKE 
OFF OF THE MAIN  CLOT.

 


 
I JUST GOT HOME AND AM FEELING REAL LUCKY TO  BE ALIVE

 


 
NICKI

 


 
 
__________________________________________________
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-- 
Lori 
C4/5  complete quad, 27 years post
Tucson, AZ  



  
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