Good morning Paul
Thank you so much for your response. I'm going to look into the select
comfort bed, do you turn from side to side or are you always on your butt? I
hope you never have to deal with but sores.
Take care and play nice Tammie Lou
C6 complete quadriplegic
13 years post
chippertue.com
_Chippertue's World_ (http://www.chippertue.com/)
There is a difference between sympathy and empathy, sympathy is feeling for
an empathy is feeling with.
In a message dated 4/20/2008 8:10:16 A.M. Pacific Daylight Time,
[EMAIL PROTECTED] writes:
Hi Tammie Lou,
I, too, am a c5/6 complete with an SP tube, I'm 44 and my
injury was 4.5 years ago. I have not had to deal with butt
sores but am acquainted with the random sweating....usually
a result of a bladder contraction or spasm.
My bed is a Select Comfort. The head and feet raise up and
down and there is a massage mode.........good for blood flow.
So far so good.
Any questions, let me know. I wish you well.
Paul
San Diego, CA
----- Original Message -----
From: [EMAIL PROTECTED] (mailto:[EMAIL PROTECTED])
To: [EMAIL PROTECTED] (mailto:[email protected])
Sent: Sunday, April 20, 2008 6:42 AM
Subject: [QUAD-L] Continuous pressure sore problems...
I have a problem and I'm hoping somebody on the list can help me with. I
have had problems with pressure sores since my injury 13 years ago. They
never
get really bad, mostly just to the blister stage but they are constant. The
area where I get the sores all the time is always purple, I have asked
doctors, nurses and people in the support groups that I attend an apparently I
am
the only one with a purple butt. Until recently I could lay on my side for a
couple of days and they would go way. It seems like now whenever I lay on
my side all I do is sweat. The more I sweat the more I want to cover myself
up and the more I cover myself up the more I sweat. If I have somebody put
the warm blow dryer on me it helps but only until they stop. I would love to
hear what kind of mattress and what you guys do or don't do to prevent
constant pressure sores? I have an SP tube so that also hinders lying on my
side
because my knee is always bent and it looks like it's pushing the tube.
Take care and play nice Tammie Lou
C6 complete quadriplegic
13 years post
chippertue.com
_Chippertue's World_ (http://www.chippertue.com/)
In a message dated 4/17/2008 12:02:44 P.M. Pacific Daylight Time,
[EMAIL PROTECTED] writes:
IT SOUNDS ODD. I'D TRY TO GET INTO THE DR SOONER.
NICKI
Merrill Burghardt <[EMAIL PROTECTED]> wrote:
If I do not hold my arm up, a finger becomes red with a narrowing at the
hand which then is a thin red line as if a vane. Does that sound suspicious?
I have a doc appointment in a month but maybe I should go to Urgent Care.
Merrill
____________________________________
From: NICHOLE ROHLING [mailto:[EMAIL PROTECTED]
Sent: Thursday, April 17, 2008 9:50 AM
To: Lori Michaelson; QUADLIST
Subject: Re: [QUAD-L] PAIN
SOMETHING I LEARNED IS THERE IS A BLOOD TEST CALLED D-DIMER AND IF THE LEVEL
IS ABOVE 445 (I THINK) IT INDICATES THEY NEED TO LOOK FOR CLOT. MY LEVEL
WAS 2226!
NICKI
Lori Michaelson <[EMAIL PROTECTED]> wrote:
I had a DVT (deep vein clot/thrombosis) in 1995 that was encouraged by
surgeries. I was also very, very, very lucky to have survived it because I
was
telling doctors (my neurosurgeon and his staff hours away) my symptoms and
they
were ignoring them even though they were classic symptoms of a DVT!
Hitherto ... I was not familiar with clots of any type so I was in the dark.
It
was the Internet that saved my life essentially.
With what I described... they should have wanted to at the very least
eliminate the possibility of a clot since I just had two surgeries with that
doctor
and that is a primary thing to worry about after surgery. But noooooo... I
thought it was probably just swelling and I should wear some of those tight
hose. QUACK, QUACK
I went around for about a month with my left lower leg very swollen and very
hard. I finally read an article on the net (I was very new to the Internet
back then and only knew how to look things up) and one doctor in Washington
state had an article about spinal cord injuries and folks with MS. A sentence
said "If one leg is significantly larger than the other... it could
indicate a clot." All I knew was that "a clot" was not good but I had no idea
that
I had a DVT whereby all I had to do was move a certain way to have it move
directly to my lungs to kill me.
The very next morning I called my primary care physician and I went to see
him. He looked at it and said "I don't know... I don't think it could be a
clot but I will send you over to the hospital to have an ultrasound done."
Needless to say... I never left the hospital because it was a lengthy clot and
I
was in immediate danger.
DOCTORS! QUACK, QUACK!
I think I'm on my 95th life because of so many negligent doctors.
Lori Michaelson
Age - 43
C4/5 complete quad, 28 years post
Tucson, AZ
On Sat, Apr 12, 2008 at 4:55 PM, NICHOLE ROHLING <[EMAIL PROTECTED]
(mailto:[EMAIL PROTECTED]) > wrote:
YES, CLOTS TAKE 4-6 WEEKS TO DISSOLVE SO I'M ON COUMADIN (?) TO THIN MY
BLOOD. MY INR LEVEL NEEDS TO STAY BETWEEN 2.0 AND 3.0
MR DR SAID THEY DO HAVE MEDS TO BUST CLOTS BUT THE RISKS FOR ME OUTWEIGHED
THE BENEFITS.
I'M JUST THANKFUL TO BE ALIVE.
NICKI
Quadius <[EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) > wrote:
Thank goodness you made it through it. They send you home with blood clots?
Quadius
On 4/12/08, NICHOLE ROHLING <[EMAIL PROTECTED]
(mailto:[EMAIL PROTECTED]) > wrote:
I HAVEN'T READ ALL THE RESPONSES BUT IT WAS I HAD A DR AISEVERAL BLOOD CLOTS
IN MY RIGHT LUNG.
I HAD DR APPT TUES AT 1PM BUT CALLED THE AMBULANCE AT 5AM.
THE ER DOC IMMEDIATELY ORDERED A CAT SCAN WHICH SHOWED SEVERAL CLOTS IN MY
RIGHT LUNG AND A FEW IN MY LEFT. I WAS ADMITTED TO THE HOSPITAL AND MY DR HAD
ULTRASOUND DONE ON MY LEGS AND SURE ENOUGH I HAD A CLOT IN MY LFT LEFT BEHIND
MY KNEE - NO SWELLING REDNESS OR HEAT.
HE SAID THE SMALL CLOTS IN MY LUNGS WERE MOST LIKELY FLOATERS WHICH BROKE
OFF OF THE MAIN CLOT.
I JUST GOT HOME AND AM FEELING REAL LUCKY TO BE ALIVE
NICKI
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Lori
C4/5 complete quad, 27 years post
Tucson, AZ
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