Hi Tammie Lou, I, too, am a c5/6 complete with an SP tube, I'm 44 and my injury was 4.5 years ago. I have not had to deal with butt sores but am acquainted with the random sweating....usually a result of a bladder contraction or spasm.
My bed is a Select Comfort. The head and feet raise up and down and there is a massage mode.........good for blood flow. So far so good. Any questions, let me know. I wish you well. Paul San Diego, CA ----- Original Message ----- From: [EMAIL PROTECTED] To: [email protected] Sent: Sunday, April 20, 2008 6:42 AM Subject: [QUAD-L] Continuous pressure sore problems... I have a problem and I'm hoping somebody on the list can help me with. I have had problems with pressure sores since my injury 13 years ago. They never get really bad, mostly just to the blister stage but they are constant. The area where I get the sores all the time is always purple, I have asked doctors, nurses and people in the support groups that I attend an apparently I am the only one with a purple butt. Until recently I could lay on my side for a couple of days and they would go way. It seems like now whenever I lay on my side all I do is sweat. The more I sweat the more I want to cover myself up and the more I cover myself up the more I sweat. If I have somebody put the warm blow dryer on me it helps but only until they stop. I would love to hear what kind of mattress and what you guys do or don't do to prevent constant pressure sores? I have an SP tube so that also hinders lying on my side because my knee is always bent and it looks like it's pushing the tube. Take care and play nice Tammie Lou C6 complete quadriplegic 13 years post chippertue.com Chippertue's World In a message dated 4/17/2008 12:02:44 P.M. Pacific Daylight Time, [EMAIL PROTECTED] writes: IT SOUNDS ODD. I'D TRY TO GET INTO THE DR SOONER. NICKI Merrill Burghardt <[EMAIL PROTECTED]> wrote: If I do not hold my arm up, a finger becomes red with a narrowing at the hand which then is a thin red line as if a vane. Does that sound suspicious? I have a doc appointment in a month but maybe I should go to Urgent Care. Merrill -------------------------------------------------------------------------- From: NICHOLE ROHLING [mailto:[EMAIL PROTECTED] Sent: Thursday, April 17, 2008 9:50 AM To: Lori Michaelson; QUADLIST Subject: Re: [QUAD-L] PAIN SOMETHING I LEARNED IS THERE IS A BLOOD TEST CALLED D-DIMER AND IF THE LEVEL IS ABOVE 445 (I THINK) IT INDICATES THEY NEED TO LOOK FOR CLOT. MY LEVEL WAS 2226! NICKI Lori Michaelson <[EMAIL PROTECTED]> wrote: I had a DVT (deep vein clot/thrombosis) in 1995 that was encouraged by surgeries. I was also very, very, very lucky to have survived it because I was telling doctors (my neurosurgeon and his staff hours away) my symptoms and they were ignoring them even though they were classic symptoms of a DVT! Hitherto ... I was not familiar with clots of any type so I was in the dark. It was the Internet that saved my life essentially. With what I described... they should have wanted to at the very least eliminate the possibility of a clot since I just had two surgeries with that doctor and that is a primary thing to worry about after surgery. But noooooo... I thought it was probably just swelling and I should wear some of those tight hose. QUACK, QUACK I went around for about a month with my left lower leg very swollen and very hard. I finally read an article on the net (I was very new to the Internet back then and only knew how to look things up) and one doctor in Washington state had an article about spinal cord injuries and folks with MS. A sentence said "If one leg is significantly larger than the other... it could indicate a clot." All I knew was that "a clot" was not good but I had no idea that I had a DVT whereby all I had to do was move a certain way to have it move directly to my lungs to kill me. The very next morning I called my primary care physician and I went to see him. He looked at it and said "I don't know... I don't think it could be a clot but I will send you over to the hospital to have an ultrasound done." Needless to say... I never left the hospital because it was a lengthy clot and I was in immediate danger. DOCTORS! QUACK, QUACK! I think I'm on my 95th life because of so many negligent doctors. Lori Michaelson Age - 43 C4/5 complete quad, 28 years post Tucson, AZ On Sat, Apr 12, 2008 at 4:55 PM, NICHOLE ROHLING <[EMAIL PROTECTED]> wrote: YES, CLOTS TAKE 4-6 WEEKS TO DISSOLVE SO I'M ON COUMADIN (?) TO THIN MY BLOOD. MY INR LEVEL NEEDS TO STAY BETWEEN 2.0 AND 3.0 MR DR SAID THEY DO HAVE MEDS TO BUST CLOTS BUT THE RISKS FOR ME OUTWEIGHED THE BENEFITS. I'M JUST THANKFUL TO BE ALIVE. NICKI Quadius <[EMAIL PROTECTED]> wrote: Thank goodness you made it through it. They send you home with blood clots? Quadius On 4/12/08, NICHOLE ROHLING <[EMAIL PROTECTED]> wrote: I HAVEN'T READ ALL THE RESPONSES BUT IT WAS I HAD A DR AISEVERAL BLOOD CLOTS IN MY RIGHT LUNG. I HAD DR APPT TUES AT 1PM BUT CALLED THE AMBULANCE AT 5AM. THE ER DOC IMMEDIATELY ORDERED A CAT SCAN WHICH SHOWED SEVERAL CLOTS IN MY RIGHT LUNG AND A FEW IN MY LEFT. I WAS ADMITTED TO THE HOSPITAL AND MY DR HAD ULTRASOUND DONE ON MY LEGS AND SURE ENOUGH I HAD A CLOT IN MY LFT LEFT BEHIND MY KNEE - NO SWELLING REDNESS OR HEAT. HE SAID THE SMALL CLOTS IN MY LUNGS WERE MOST LIKELY FLOATERS WHICH BROKE OFF OF THE MAIN CLOT. I JUST GOT HOME AND AM FEELING REAL LUCKY TO BE ALIVE NICKI __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com -- Lori C4/5 complete quad, 27 years post Tucson, AZ -------------------------------------------------------------------------- Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. ---------------------------------------------------------------------------- Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. ------------------------------------------------------------------------------ Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos.
