From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: To TammieDate: Sun, 20 Apr 2008 
19:52:10 -0400


Tammie, I suffered those sweats for years with the exact symptoms. The cure? 
Ditropan. It dries your mouth out terribly, but stops the sweats. It has been a 
blessing to me. Larry Willis


From: [EMAIL PROTECTED]: Sun, 20 Apr 2008 09:42:22 -0400To: [EMAIL PROTECTED]: 
[QUAD-L] Continuous pressure sore problems...
I have a problem and I'm hoping somebody on the list can help me with.  I have 
had problems with pressure sores since my injury 13 years ago.  They never get 
really bad, mostly just to the blister stage but they are constant.  The area 
where I get the sores all the time is always purple, I have asked doctors, 
nurses and people in the support groups that I attend an apparently I am the 
only one with a purple butt.  Until recently I could lay on my side for a 
couple of days and they would go way.  It seems like now whenever I lay on my 
side all I do is sweat.  The more I sweat the more I want to cover myself up 
and the more I cover myself up the more I sweat.  If I have somebody put the 
warm blow dryer on me it helps but only until they stop.  I would love to hear 
what kind of mattress and what you guys do or don't do to prevent constant 
pressure sores? I have an SP tube so that also hinders lying on my side because 
my knee is always bent and it looks like it's pushing the tube.
 
Take care and play nice Tammie Lou
C6 complete quadriplegic
13 years postchippertue.comChippertue's World 
 

In a message dated 4/17/2008 12:02:44 P.M. Pacific Daylight Time, [EMAIL 
PROTECTED] writes:

IT SOUNDS ODD. I'D TRY TO GET INTO THE DR SOONER.
 
NICKIMerrill Burghardt <[EMAIL PROTECTED]> wrote:








If I do not hold my arm up, a finger becomes red with a narrowing at the hand 
which then is a thin red line as if a vane.  Does that sound suspicious?  I 
have a doc appointment in a month but maybe I should go to Urgent Care.
 
Merrill
 





From: NICHOLE ROHLING [mailto:[EMAIL PROTECTED] Sent: Thursday, April 17, 2008 
9:50 AMTo: Lori Michaelson; QUADLISTSubject: Re: [QUAD-L] PAIN
 

SOMETHING I LEARNED IS THERE IS A BLOOD TEST CALLED D-DIMER AND IF THE LEVEL IS 
ABOVE 445 (I THINK) IT INDICATES THEY NEED TO LOOK FOR  CLOT. MY LEVEL WAS 2226!

 

NICKI

 

Lori Michaelson <[EMAIL PROTECTED]> wrote:


I had a DVT (deep vein clot/thrombosis) in 1995 that was encouraged by 
surgeries.  I was also very, very, very lucky to have survived it because I was 
telling doctors (my neurosurgeon and his staff hours away) my symptoms and they 
were ignoring them even though they were classic symptoms of a DVT!  Hitherto 
... I was not familiar with clots of any type so I was in the dark.  It was the 
Internet that saved my life essentially.

 

With what I described... they should have wanted to at the very least eliminate 
the possibility of a clot since I just had two surgeries with that doctor and 
that is a primary thing to worry about after surgery.  But noooooo... I thought 
it was probably just swelling and I should wear some of those tight hose.  
QUACK, QUACK

 

I went around for about a month with my left lower leg very swollen and very 
hard.  I finally read an article on the net (I was very new to the Internet 
back then and only knew how to look things up) and one doctor in Washington 
state had an article about spinal cord injuries and folks with MS.  A sentence 
said "If one leg is significantly larger than the other... it could indicate a 
clot."  All I knew was that "a clot" was not good but I had no idea that I had 
a DVT whereby all I had to do was move a certain way to have it move directly 
to my lungs to kill me.

The very next morning I called my primary care physician and I went to see him. 
 He looked at it and said "I don't know... I don't think it could be a clot but 
I will send you over to the hospital to have an ultrasound done."  Needless to 
say... I never left the hospital because it was a lengthy clot and I was in 
immediate danger.

 

DOCTORS!  QUACK, QUACK!

 

I think I'm on my 95th life because of so many negligent doctors.

 

Lori Michaelson

Age - 43

C4/5 complete quad, 28 years post

Tucson, AZ

 

On Sat, Apr 12, 2008 at 4:55 PM, NICHOLE ROHLING <[EMAIL PROTECTED]> wrote:

YES, CLOTS TAKE 4-6 WEEKS TO DISSOLVE SO I'M ON COUMADIN (?) TO THIN MY BLOOD. 
MY INR LEVEL NEEDS TO STAY BETWEEN 2.0 AND 3.0

 

MR DR SAID THEY DO HAVE MEDS TO BUST CLOTS BUT THE RISKS FOR ME OUTWEIGHED THE 
BENEFITS.

 

I'M JUST THANKFUL TO BE ALIVE.

NICKIQuadius <[EMAIL PROTECTED]> wrote:

Thank goodness you made it through it.  They send you home with blood 
clots?Quadius

On 4/12/08, NICHOLE ROHLING <[EMAIL PROTECTED]> wrote: 

I HAVEN'T READ ALL THE RESPONSES BUT IT WAS I HAD A DR AISEVERAL BLOOD CLOTS IN 
MY RIGHT LUNG.

 

I HAD DR APPT TUES AT 1PM BUT CALLED THE AMBULANCE AT 5AM.

 

THE ER DOC IMMEDIATELY ORDERED A CAT SCAN WHICH SHOWED SEVERAL CLOTS IN MY 
RIGHT LUNG AND A FEW IN MY LEFT. I WAS ADMITTED TO THE HOSPITAL AND MY DR HAD 
ULTRASOUND DONE ON MY LEGS AND SURE ENOUGH I HAD A CLOT IN MY LFT LEFT BEHIND 
MY KNEE - NO SWELLING REDNESS OR HEAT.

 

HE SAID THE SMALL CLOTS IN MY LUNGS WERE MOST LIKELY FLOATERS WHICH BROKE OFF 
OF THE MAIN CLOT.

 

I JUST GOT HOME AND AM FEELING REAL LUCKY TO BE ALIVE

 

NICKI

 


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-- Lori C4/5 complete quad, 27 years postTucson, AZ 
 
  



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