Hello Paul. I'm on the vac right now. I really don't know much about it, but I'll try to explain it. The purpose of it is to suck out all the blood and debris and nasty stuff and keep it healthy and clean and open. It is supposed to be very good for promoting healing and prepare you for eventually doing a flap, which somehow allows the wound to heal. I really don't know much about it. It's all the way over my head. I'm told this is the third and final attempt at getting one to work on in the same difficult spot. I'm prepared to do whatever I must within my abilities, otherwise I'm a goner.
As for the Clinitron, it is just what you said -- an alternating pressure ----- Original Message ----- From: Paul Jacobson To: Lori Michaelson ; [email protected] Sent: Monday, August 24, 2009 12:33 PM Subject: [QUAD-L] pressure wound....need help HI THERE.......I have a Stage 3 wound on the back of my leg. So no w/c.....just bed to keep pressure off. Has anyone used a wound-vac? Results? How about flap surgery? Also need to get a Clinitron alternating pressure bed....anyone ever use one? THANK YOU FOR YOUR HELP! Paul c5/6 ----- Original Message ----- From: Lori Michaelson To: [email protected] Sent: Monday, August 24, 2009 11:56 AM Subject: Re: [QUAD-L] Syrinx I agree totally with Tod below. And, even though I am not male, my symptoms began with lower abdominal PAIN whereby I could hardly think. SYRINGOMYELIA sux big time. Lori On Mon, Aug 24, 2009 at 10:44 AM, Tod E. Santee <[email protected]> wrote: Ron & David (mrpockets_2000): ... I *do* know very few neurosurgeons will will work on a high-cord syrinx solely because of pain. If loss of function begins and continues, that's a bit different. There are just far too many risks for doing cervical cord surgery just because of pain. They'd prefer narcotics and high pain tolerance. Lower thoracic and lumbar syrinxs are more likely to be treated surgically if pain is the issue... but still mostly as a last resort. Beware the doc who suggests surgery before anything else is tried!! David... as for the pain in the groin area.. OUCH! I know! I get it pretty bad, too, even though I've had the syrinx / cord-untethering surgery. I've explained it more like riding a seatless bike, sitting on just the seat post, while hitting several speed bumps. Does that sound like a familiar feeling? Man -- If ANYONE ever comes up with a cure, drug or treatment for that... sign me up! Best to All! --Tod ---- RONALD L PRACHT <[email protected]> wrote: > with a syrinx at c1 c2 neuros wont operate unless things get really bad, like function loss. the key is never operate above your level of injury. the syrinx can cause pain in abdomen and back , because yours is higher the neck area is probally affected. depnding on where you are in the states i would see out a specialist to give you an opinion. > > ron c7 > > --- On Sun, 8/23/09, David <[email protected]> wrote: > > > From: David <[email protected]> > Subject: [QUAD-L] Syrinx > To: [email protected] > Date: Sunday, August 23, 2009, 9:42 PM > > > > > > I've had a syrinx located at C1/C2 and because the doctors say that there > is a pretty good chance of me ending up on a vent, I have elected to avoid > surgery at this time. > > For those of you males who might have a syrinx, do you experience a lot if > neuro-pathic pain between your shoulder blades and especially in the groin area. I feel lie there is someone pushing on my groin. Every time I go to push my manual wheelchair iI feel like my bladder is going to lose control because of the pressure on it. And there are times that my body feels lie it burning from the inside out. > > > David B. > > -- Lori Age - 45 C4/5 complete quad, nearly 30 years post Tucson, AZ
