I've had a syrinx located at C1/C2 and because the doctors say that there
is a pretty good chance of me ending up on a vent, I have elected to avoid
surgery at this time.
For those of you males who might have a syrinx, do you experience a lot if
neuro-pathic pain between your shoulder blades and especially in the groin
area. I feel lie there is someone pushing on my groin. Every time I go to
push my manual wheelchair iI feel like my bladder is going to lose control
because of the pressure on it. And there are times that my body feels lie it
burning from the inside out.
David B.
