> Dan H., Ron & others, > > Like I have said here probably 50 times or more - my syringomyelia makes > quadriplegia look easy. However, unless I start to lose more movement or > feeling - no one is going to fiddle around with my spinal cord again. Not > even Dr. Falci at Craig Hospital. As far as going further and "untethering" > - even Craig Hospital admits that the end result of the surgery has a 50% > chance of helping. > > Good luck with whatever you decide to do! I am just hanging in there with > the pain and the body hypersensitiveness. > > Lori Michaelson > Age - 45 > C4/5 complete quad, 29 years post > Tucson, AZ > > > On Wed, Aug 12, 2009 at 5:26 AM, Danny Hearn <[email protected]> wrote: > >> I'll let you know Ron, We are trying to decide if I should see Picker >> at St.Johns or Wright, who you told us about. I saw picker after first being >> diagnossed with a syrinx in about 1999 or 2000. But my daughter works for >> Washington University as a medical Assistant and seems to think I should see >> Wright, thinking he may have more experience. I think both may be pretty >> good. Dr. Wice said it seems there may be 2 things going on and that the >> Sirinx is definitly growing also, and said go see a neuro to see what they >> think. It will be about a month to get in to see them. All the serious back >> pain and problems have started getting real bad this year--- It is real >> scary , I feel pain in area's of my back that used to have no feeling.I hope >> I don't loose function or ability to be transfered or load myself in our >> van. For years my thinking was---being paralyzed sucks, it can't get much >> worse than this ! ( But believe me I wish I could go back to prior this >> year--those were the good ole days, lol ) I take pain meds every day now and >> even driving around my neighborhood in my wheelchair I need to go slow over >> bumps and cracks or it makes the pains worse. ANYWAY-- I'll let you all know >> when I see the neuro surgeon. Dan H. >> >> --- On *Wed, 8/12/09, RONALD L PRACHT <[email protected]>* wrote: >> >> >> From: RONALD L PRACHT <[email protected]> >> Subject: [QUAD-L] syrinx >> To: [email protected] >> Date: Wednesday, August 12, 2009, 1:22 AM >> >> Hey Dan H, >> please let me know what you find out concerning your syrinx. Im going down >> the same road as you.......will be going to wice to find out if mine has >> grown. Im interested in what the surgeons tell you in regards to what to do >> at this point. I truely wish the best results for you. >> >> ron c7 >> >> > > > -Slate
-- Lori C4/5 complete quad, 27 years post Tucson, AZ
