My e-mail below was sitting in my drafts folder so I did not really know if it actually got to the list or not. I think it did but in case it did not here it is again: Dan H., Ron & others,
Like I have said here probably 50 times or more - my syringomyelia makes quadriplegia look easy. However, unless I start to lose more movement or feeling - no one is going to fiddle around with my spinal cord again. Not even Dr. Falci at Craig Hospital. As far as going further and "untethering" - even Craig Hospital admits that the end result of the surgery has a 50% chance of helping. Good luck with whatever you decide to do! I am just hanging in there with the pain and the body hypersensitiveness. Lori Michaelson Age - 45 C4/5 complete quad, 29 years post Tucson, AZ On Wed, Aug 12, 2009 at 5:26 AM, Danny Hearn <[email protected]> wrote: > I'll let you know Ron, We are trying to decide if I should see Picker at > St.Johns or Wright, who you told us about. I saw picker after first being > diagnossed with a syrinx in about 1999 or 2000. But my daughter works for > Washington University as a medical Assistant and seems to think I should see > Wright, thinking he may have more experience. I think both may be pretty > good. Dr. Wice said it seems there may be 2 things going on and that the > Sirinx is definitly growing also, and said go see a neuro to see what they > think. It will be about a month to get in to see them. All the serious back > pain and problems have started getting real bad this year--- It is real > scary , I feel pain in area's of my back that used to have no feeling.I hope > I don't loose function or ability to be transfered or load myself in our > van. For years my thinking was---being paralyzed sucks, it can't get much > worse than this ! ( But believe me I wish I could go back to prior this > year--those were the good ole days, lol ) I take pain meds every day now and > even driving around my neighborhood in my wheelchair I need to go slow over > bumps and cracks or it makes the pains worse. ANYWAY-- I'll let you all know > when I see the neuro surgeon. Dan H. > > --- On *Wed, 8/12/09, RONALD L PRACHT <[email protected]>* wrote: > > > From: RONALD L PRACHT <[email protected]> > Subject: [QUAD-L] syrinx > To: [email protected] > Date: Wednesday, August 12, 2009, 1:22 AM > > Hey Dan H, > please let me know what you find out concerning your syrinx. Im going down > the same road as you.......will be going to wice to find out if mine has > grown. Im interested in what the surgeons tell you in regards to what to do > at this point. I truely wish the best results for you. > > ron c7 > > -Slate -- Lori C4/5 complete quad, 27 years post Tucson, AZ
