Re: [CMLHope] Stopping Gleevec

[L Clapp]

I was on Gleevec for about 6 years and then it stopped working.  They moved
me to Sprycel and many of the side affects, just as you mentioned, of
Gleevec went AWAY.  It was a wonderful change.  Now after 8 years on
Sprycel, they are moving me to Bosulif due to water around my heart and
lungs.  I enter a new journey but the one on Sprycel was much, much better
than Gleevec.

On Thu, Jan 25, 2018 at 11:35 AM, Jamie Tufariello 
wrote:

>
>
> On Saturday, August 5, 2017, Vivi  wrote:
>
>> After seventeen years on Gleevec, and considered "in remission," my
>> oncologist asked me if I would like to stop taking Gleevec.
>> At first glance, this sounded spectacular but then she said:
>> "you'll have to come in once a month to be tested."
>> After deep thought (about twenty seconds), I said, "Talk to me about this
>> again in ten years."
>> Has anyone else stopped taking Gleevec after years of being "in
>> remission?"  If so, how's it going?
>> What has changed in your life?  Have any of the obvious physical
>> side-effects (leg cramps, blood in the whites of your eyes, swollen eyelids,
>> abdominal fat) retreated or been reversed?
>> I'd appreciate any information other CMLers might have.
>> Best to all.
>>
>> --
>> --
>> [CMLHope]
>> A support group of http://cmlhope.com
>> -
>>
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>> /CMLHope
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>>
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Re: [CMLHope] Stopping Gleevec

[Jamie Tufariello]

On Saturday, August 5, 2017, Vivi  wrote:

> After seventeen years on Gleevec, and considered "in remission," my
> oncologist asked me if I would like to stop taking Gleevec.
> At first glance, this sounded spectacular but then she said:
> "you'll have to come in once a month to be tested."
> After deep thought (about twenty seconds), I said, "Talk to me about this
> again in ten years."
> Has anyone else stopped taking Gleevec after years of being "in
> remission?"  If so, how's it going?
> What has changed in your life?  Have any of the obvious physical
> side-effects (leg cramps, blood in the whites of your eyes, swollen eyelids,
> abdominal fat) retreated or been reversed?
> I'd appreciate any information other CMLers might have.
> Best to all.
>
> --
> --
> [CMLHope]
> A support group of http://cmlhope.com
> -
>
> You received this message because you are subscribed to the Google Groups
> "CMLHope" group.
> To post to this group, send email to CMLHope@googlegroups.com
> To unsubscribe from this group, send email to CMLHope-unsubscribe@
> googlegroups.com
> For more options, visit this group at http://groups.google.com/
> group/CMLHope
> ---
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> To unsubscribe from this group and stop receiving emails from it, send an
> email to cmlhope+unsubscr...@googlegroups.com.
> For more options, visit https://groups.google.com/d/optout.
>

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Re: [CMLHope] Stopping Gleevec

['Jeanie' via CMLHope]

Hi all 
Went to Moffitt today and blood is good. Dr recommending going off meds but 
I've always gone out of remission without my pills.  I have decided to cut back 
a few days at the time.  My playlets were borderline low.  
I tried to see dr pinila but the appointments got mixed up and my other onc 
recommended Balducci.  So I've been with him for 7 years.  I would go for 
Pinila because he is the head of the leukemia department there.   I've paid 
very little the whole time there.   I know it's hard to change but things will 
work out for you.  Good luck. Maybe they could do a story on your journey 
through Gleevec.  
I like Moffitt because you don't have to run around for tests-it's right there 
in the center.  It's not just leukemia. They have large departments for other 
sicknesses right there for you plus the hospital is connected to the department 
I go to. 
Don't worry everything will be ok and we are here for you if you need us.
Jeanie



My Motto:
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 

> On Aug 6, 2017, at 9:15 PM, 'Susan Zimmerman' via CMLHope 
>  wrote:
> 
> Greenie,
> 
> I recommend Moffitt also. You know I go to Dr. Altman becuz I'm up here in 
> Indiana. But my old doc was Pinilla that Jeanie recommended. They will help u 
> get your medicine. A lot less expensive to go there!!!
> 
> Blessings,
> 
> Susan F. Zimmerman
> 
> 
> 
> On Sunday, August 6, 2017 Myvety2k via CMLHope  
> wrote:
> 
> Jeanie thank you I wait and see what happens if things don't work out for me 
> I will go their.
>  
> greenie
>  
> In a message dated 8/6/2017 5:56:57 P.M. Eastern Daylight Time, 
> cmlhope@googlegroups.com writes:
> Hey Greenie,
> I would like to suggest Moffitt cancer center here in Tampa. They will do 
> everything to help you to get your meds. It's where I go and they have saved 
> my life twice.  They accept Medicare and medicate assignment.  If you need 
> help with copayment a there is a cancer copayment company called PSI. They 
> paid my copayment for several years. You just need to start making calls and 
> get the ball rolling.  However I pray they keep sending the meds. You and I 
> have been fighting this for years. 
> I go to dr Balducci head of senior oncology centerin Moffitt but the head 
> of leukemia is dr Pinnalla. Check spelling. It's great/ you go in an hour 
> ahead of Drs meeting for bloodwork right at hospital and by the time you meet 
> your dr your blood work is done for him.  Every three months they do a PCR.  
> They have vallet parking. 
> Praying for you. 
> Jeanie❤️❤️❤️❤️
> 
> My Motto:
> Faith and Pills
> With Love
> 18's
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/2015
> Doctor Balducci Moffitt Cancer Center 
> 
> On Aug 5, 2017, at 6:25 PM, Myvety2k via CMLHope  
> wrote:
> 
> Hi Rien,   I started a study the first week in Jan. 2000 at Northwestern 
> Hosp. in Chicago at 400 mg each day before it was approve my the FDA. They 
> changed it later to 300 mg because of the Gleevec rash.  I got sick in 2009 
> and stopped Gleevec for 26 days because of sinus infection and the Doctor at 
> home put me on an antibiotic which made me sick so I stopped for those 26 
> days.
>  
>  Then I started up again and had my blood work done at Northwestern and 
> started on a trip out west.  My Cancer Doctor called me while driving and 
> said," David your blood work showed that their are cancer cells back in your 
> blood".  I told him remember I quit for 26 days and he replied that's right I 
> forgot, did you start Gleevec again I told him yes and he said " well if it 
> worked before it will work again and hung up and I never heard from again.  I 
> later received a letter from him that he moved on to a different Hosp. in New 
> York, NY. and that was the end of that.
>  
> So, June 7th of this year I flew in from South Fort Myers. FL. to Chicago to 
> get my blood work see my new Doctor pick up my drugs and be on my way home.  
> But instead I was told their no longer a study and you won't be getting the 
> drug any longer.  That took my breath away.  Before I left they then told me 
> that they changed their mind and would give me the drug and 7 month supply 
> and would sent the rest later because they were short on Gleevec..
>  
> Last week I received a call telling me that for me to receive the drug that I 
> would have to fly in every 3 months, that's not going to happen with the cost 
> of flights, car rental, etc., not with my income at 78 years old.  They 
> called me last week and they are suppose to have a meeting and let me know.
>  
> When I started this study their were 8 of us out of 200 people nation way and 
> that I would receive the drug STI571 for as 

Re: [CMLHope] Stopping Gleevec

[Myvety2k via CMLHope]

Susan, your a sweetheart.  
 
greenie
 
 
In a message dated 8/7/2017 10:48:32 A.M. Eastern Daylight Time,  
cmlhope@googlegroups.com writes:

Dear Greenie,
I do sympathize with you so much about losing your  son. I remember when 
you had to go to the funeral without your lovely wife. It  must have been very 
hard on her, too. They say grief has no definite time  frame. Praying for 
you. 
So glad we were able to meet in New Carlisle that time. You helped  Roy and 
I with the shortcut through chicago. 
Love ya more later

Susan F. Zimmerman
"All who humble themselves before the Lord  shall be given every blessing, 
and shall have wonderful peace."  Ps.37:11


 

On Monday, August 7, 2017  Myvety2k via CMLHope   
wrote:


 
Thank you for the info Susan, hope all is well with  you.  I'm still 
waiting for a call from them to let me know  what they plan to do for me.  I'm 
sure I will here from them  within a week or so.  I'm hoping for the best after 
over 17 years in  their study.  For all you know I may be the last of the 8 
that started in  the study, I asked one time but they won't tell me. I can 
make it their ever 6  months but it would be hard for me every 3 months as 
my blood work here at  Quest is free with Humana.  The only reason I moved to 
Florida  because they made the change to once a year, Grace and I just 
could not take  the cold weather any more it was very hard on both of us.  
 
She had a stroke in Sept. of 2015 and then when Derek passed  away June 13 
of last year within 10 min. she had a heart attack after we  found out. So I 
went to the funnel by myself. I'm still having a very hard  time dealing 
with him gone their's not a day that goes by that I think about  him.  Very 
sad. I still can't look at a picture of him without breaking  down as they say 
time heals all wounds I'll just have to wait.
 
Thanks for the info.
greenie
 
 
In a message dated 8/6/2017 9:15:20 P.M. Eastern Daylight Time, 
cmlhope@googlegroups.com  writes:

Greenie, 
I recommend Moffitt also. You know I go to Dr. Altman becuz I'm  up here in 
Indiana. But my old doc was Pinilla that Jeanie recommended. They  will 
help u get your medicine. A lot less expensive to go there!!! 
Blessings, 
Susan F. Zimmerman

 

On Sunday, August 6, 2017  Myvety2k via CMLHope   
wrote:


 
Jeanie thank you I wait and see what happens if things  don't work out for 
me I will go their.
 
greenie
 
 
In a message dated 8/6/2017 5:56:57 P.M. Eastern Daylight Time, 
cmlhope@googlegroups.com  writes:

Hey Greenie,
I would like to suggest Moffitt cancer center  here in Tampa. They will do 
everything to help you to get your meds. It's  where I go and they have 
saved my life twice.  They accept Medicare  and medicate assignment.  If you 
need help with copayment a there is  a cancer copayment company called PSI. 
They paid my copayment for several  years. You just need to start making calls 
and get the ball rolling.  However I pray they keep sending the meds. You 
and I have been  fighting this for years. 
I go to dr Balducci head of senior oncology  center in Moffitt but the head 
of leukemia is dr Pinnalla. Check spelling.  It's great/ you go in an hour 
ahead of Drs meeting for bloodwork right at  hospital and by the time you 
meet your dr your blood work is done for him.  Every three months they do a 
PCR.  They have vallet  parking. 
Praying for you. 
Jeanie❤️❤️❤️❤️

My Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Aug 5, 2017, at 6:25 PM, Myvety2k via CMLHope  
 wrote:




Hi Rien,   I started a study the first week  in Jan. 2000 at Northwestern 
Hosp. in Chicago at 400 mg each day before  it was approve my the FDA. They 
changed it later to 300 mg because of  the Gleevec rash.  I got sick in 2009 
and stopped Gleevec for 26  days because of sinus infection and the Doctor 
at home put me on an  antibiotic which made me sick so I stopped for those 26 
 days.
 
 Then I started up again and  had my blood work done at Northwestern 
and started on a trip out  west.  My Cancer Doctor called me while driving and 
said," David  your blood work showed that their are cancer cells back in 
your  blood".  I told him remember I quit for 26 days and he replied  that's 
right I forgot, did you start Gleevec again I told him yes and he  said " 
well if it worked before it will work again and hung up and I  never heard from 
again.  I later received a letter from him that he  moved on to a different 
Hosp. in New York, NY. and that was the end of  that.
 
So, June 7th of this year I flew in from South Fort  Myers. FL. to Chicago 
to get my blood work see my new Doctor pick up my  drugs and be on my way 
home.  But instead I was told their 

Re: [CMLHope] Stopping Gleevec

[Myvety2k via CMLHope]

Thank you for the info Susan, hope all is well with you.   I'm still 
waiting for a call from them to let me know what they plan to  do for me.  I'm 
sure I will here from them within a week or so.   I'm hoping for the best after 
over 17 years in their study.  For all you  know I may be the last of the 8 
that started in the study, I asked one time but  they won't tell me. I can 
make it their ever 6 months but it would be hard for  me every 3 months as 
my blood work here at Quest is free with Humana.   The only reason I moved to 
Florida because they made the change to once a year,  Grace and I just 
could not take the cold weather any more it was very hard on  both of us.  
 
She had a stroke in Sept. of 2015 and then when Derek passed  away June 13 
of last year within 10 min. she had a heart attack after we  found out. So I 
went to the funnel by myself. I'm still having a very hard time  dealing 
with him gone their's not a day that goes by that I think about  him.  Very 
sad. I still can't look at a picture of him without breaking  down as they say 
time heals all wounds I'll just have to wait.
 
Thanks for the info.
greenie
 
 
In a message dated 8/6/2017 9:15:20 P.M. Eastern Daylight Time,  
cmlhope@googlegroups.com writes:

Greenie, 
I recommend Moffitt also. You know I go to Dr. Altman becuz I'm up  here in 
Indiana. But my old doc was Pinilla that Jeanie recommended. They will  
help u get your medicine. A lot less expensive to go there!!! 
Blessings, 
Susan F. Zimmerman


 

On Sunday, August 6, 2017  Myvety2k via CMLHope   
wrote:


 
Jeanie thank you I wait and see what happens if things don't  work out for 
me I will go their.
 
greenie
 
 
In a message dated 8/6/2017 5:56:57 P.M. Eastern Daylight Time, 
cmlhope@googlegroups.com  writes:

Hey Greenie,
I would like to suggest Moffitt cancer center  here in Tampa. They will do 
everything to help you to get your meds. It's  where I go and they have 
saved my life twice.  They accept Medicare and  medicate assignment.  If you 
need help with copayment a there is a  cancer copayment company called PSI. 
They paid my copayment for several  years. You just need to start making calls 
and get the ball rolling.  However I pray they keep sending the meds. You 
and I have been  fighting this for years. 
I go to dr Balducci head of senior oncology  center in Moffitt but the head 
of leukemia is dr Pinnalla. Check spelling.  It's great/ you go in an hour 
ahead of Drs meeting for bloodwork right at  hospital and by the time you 
meet your dr your blood work is done for him.  Every three months they do a 
PCR.  They have vallet  parking. 
Praying for you. 
Jeanie❤️❤️❤️❤️

My Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Aug 5, 2017, at 6:25 PM, Myvety2k via CMLHope  
 wrote:




Hi Rien,   I started a study the first week in  Jan. 2000 at Northwestern 
Hosp. in Chicago at 400 mg each day before it  was approve my the FDA. They 
changed it later to 300 mg because of the  Gleevec rash.  I got sick in 2009 
and stopped Gleevec for 26 days  because of sinus infection and the Doctor 
at home put me on an antibiotic  which made me sick so I stopped for those 26 
days.
 
 Then I started up again and had  my blood work done at Northwestern 
and started on a trip out west.   My Cancer Doctor called me while driving and 
said," David your blood work  showed that their are cancer cells back in 
your blood".  I told him  remember I quit for 26 days and he replied that's 
right I forgot, did you  start Gleevec again I told him yes and he said " well 
if it worked before  it will work again and hung up and I never heard from 
again.  I later  received a letter from him that he moved on to a different 
Hosp. in New  York, NY. and that was the end of that.
 
So, June 7th of this year I flew in from South Fort  Myers. FL. to Chicago 
to get my blood work see my new Doctor pick up my  drugs and be on my way 
home.  But instead I was told their no longer  a study and you won't be 
getting the drug any longer.  That took my  breath away.  Before I left they 
then 
told me that they changed their  mind and would give me the drug and 7 month 
supply and would sent the rest  later because they were short on Gleevec..
 
Last week I received a call telling me that for me to  receive the drug 
that I would have to fly in every 3 months, that's not  going to happen with 
the cost of flights, car rental, etc., not with my  income at 78 years old.  
They called me last week and they are  suppose to have a meeting and let me 
know. 
 
When I started this study their were 8 of us out of 200  people nation way 
and that I would receive the drug STI571 for as long and  I could tolerated 
it or stay alive.  Well that changed.  I am  waiting 

Re: [CMLHope] Stopping Gleevec

['Susan Zimmerman' via CMLHope]

Greenie,

I recommend Moffitt also. You know I go to Dr. Altman becuz I'm up here in 
Indiana. But my old doc was Pinilla that Jeanie recommended. They will help u 
get your medicine. A lot less expensive to go there!!!

Blessings,

Susan F. Zimmerman

On Sunday, August 6, 2017 Myvety2k via CMLHope  wrote:

Jeanie thank you I wait and see what happens if things don't work out for me I 
will go their.

 

greenie

 

In a message dated 8/6/2017 5:56:57 P.M. Eastern Daylight Time, 
cmlhope@googlegroups.com writes:

Hey Greenie,

I would like to suggest Moffitt cancer center here in Tampa. They will do 
everything to help you to get your meds. It's where I go and they have saved my 
life twice.  They accept Medicare and medicate assignment.  If you need help 
with copayment a there is a cancer copayment company called PSI. They paid my 
copayment for several years. You just need to start making calls and get the 
ball rolling.  However I pray they keep sending the meds. You and I have been 
fighting this for years. 

I go to dr Balducci head of senior oncology center in Moffitt but the head of 
leukemia is dr Pinnalla. Check spelling. It's great/ you go in an hour ahead of 
Drs meeting for bloodwork right at hospital and by the time you meet your dr 
your blood work is done for him.  Every three months they do a PCR.  They have 
vallet parking. 

Praying for you. 

Jeanie❤️❤️❤️❤️


My Motto: 

Faith and Pills

With Love

18's

Dx 1/2004 CML Leukemia

Started Gleevec 2/2004

Started Tasigna 9/2009

Started Sprycel 11/2009

Started Ponatinib 1/2015

Doctor Balducci Moffitt Cancer Center 


On Aug 5, 2017, at 6:25 PM, Myvety2k via CMLHope  
wrote:

Hi Rien,   I started a study the first week in Jan. 2000 at Northwestern Hosp. 
in Chicago at 400 mg each day before it was approve my the FDA. They changed it 
later to 300 mg because of the Gleevec rash.  I got sick in 2009 and stopped 
Gleevec for 26 days because of sinus infection and the Doctor at home put me on 
an antibiotic which made me sick so I stopped for those 26 days.

 

 Then I started up again and had my blood work done at Northwestern and 
started on a trip out west.  My Cancer Doctor called me while driving and 
said," David your blood work showed that their are cancer cells back in your 
blood".  I told him remember I quit for 26 days and he replied that's right I 
forgot, did you start Gleevec again I told him yes and he said " well if it 
worked before it will work again and hung up and I never heard from again.  I 
later received a letter from him that he moved on to a different Hosp. in New 
York, NY. and that was the end of that.

 

So, June 7th of this year I flew in from South Fort Myers. FL. to Chicago to 
get my blood work see my new Doctor pick up my drugs and be on my way home.  
But instead I was told their no longer a study and you won't be getting the 
drug any longer.  That took my breath away.  Before I left they then told me 
that they changed their mind and would give me the drug and 7 month supply and 
would sent the rest later because they were short on Gleevec..

 

Last week I received a call telling me that for me to receive the drug that I 
would have to fly in every 3 months, that's not going to happen with the cost 
of flights, car rental, etc., not with my income at 78 years old.  They called 
me last week and they are suppose to have a meeting and let me know. 

 

When I started this study their were 8 of us out of 200 people nation way and 
that I would receive the drug STI571 for as long and I could tolerated it or 
stay alive.  Well that changed.  I am waiting for a phone call and I'm afraid 
it's not going to be good news,  So, my question is should I take a chance and 
stop the drug and get blood work in 3 months and see was happens with my blood 
count? I am a basket case waiting to see what happens.

 

If you have some answers please let met know.

 

Thank you,

 

David (greenie) Greenberg

South Fort Myers, Florida

 

 

 

In a message dated 8/5/2017 5:26:55 P.M. Eastern Daylight Time, 
rien16...@gmail.com writes:

Hello!


I stopped taking Gleevec after 13 years. I had my checkups every month, but 
only in the first year. In the second year every two months and from now on 
every three months for the rest of my life.

It seems that everybody reacts in a different way. I myself had more bonecramps 
after having stopped than while taking Gleevec; but after the first year it 
gradually went better and now I have these cramps only a few times per year 
during the night. The swallen eyelids completely disappeared and unfortunately, 
my face became a lot thinner. Another side-effect: my hair was not grey anymore 
after havinig stopped, it is still dark, which was not the case before. After 
all I am glad that I took the decision, the problems of the first year will 
disappear, so I strongly advise you to do like I did.

Feel free to contact me for 

Re: [CMLHope] Stopping Gleevec

[Myvety2k via CMLHope]

Jeanie thank you I wait and see what happens if things don't  work out for 
me I will go their.
 
greenie
 
 
In a message dated 8/6/2017 5:56:57 P.M. Eastern Daylight Time,  
cmlhope@googlegroups.com writes:

Hey Greenie,
I would like to suggest Moffitt cancer center here  in Tampa. They will do 
everything to help you to get your meds. It's where I  go and they have 
saved my life twice.  They accept Medicare and medicate  assignment.  If you 
need help with copayment a there is a cancer  copayment company called PSI. 
They paid my copayment for several years. You  just need to start making calls 
and get the ball rolling.  However I pray  they keep sending the meds. You 
and I have been fighting this for  years. 
I go to dr Balducci head of senior oncology center  in Moffitt but the head 
of leukemia is dr Pinnalla. Check spelling. It's  great/ you go in an hour 
ahead of Drs meeting for bloodwork right at hospital  and by the time you 
meet your dr your blood work is done for him.  Every  three months they do a 
PCR.  They have vallet parking. 
Praying for you. 
Jeanie❤️❤️❤️❤️

My Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Aug 5, 2017, at 6:25 PM, Myvety2k via CMLHope  
 wrote:



 
Hi Rien,   I started a study the first week in  Jan. 2000 at Northwestern 
Hosp. in Chicago at 400 mg each day before it was  approve my the FDA. They 
changed it later to 300 mg because of the Gleevec  rash.  I got sick in 2009 
and stopped Gleevec for 26 days because of  sinus infection and the Doctor 
at home put me on an antibiotic which made me  sick so I stopped for those 26 
days.
 
 Then I started up again and had  my blood work done at Northwestern 
and started on a trip out west.  My  Cancer Doctor called me while driving and 
said," David your blood work  showed that their are cancer cells back in 
your blood".  I told him  remember I quit for 26 days and he replied that's 
right I forgot, did you  start Gleevec again I told him yes and he said " well 
if it worked before it  will work again and hung up and I never heard from 
again.  I later  received a letter from him that he moved on to a different 
Hosp. in New  York, NY. and that was the end of that.
 
So, June 7th of this year I flew in from South Fort Myers.  FL. to Chicago 
to get my blood work see my new Doctor pick up my drugs and  be on my way 
home.  But instead I was told their no longer a study and  you won't be 
getting the drug any longer.  That took my breath  away.  Before I left they 
then 
told me that they changed their mind and  would give me the drug and 7 month 
supply and would sent the rest later  because they were short on Gleevec..
 
Last week I received a call telling me that for me to  receive the drug 
that I would have to fly in every 3 months, that's not  going to happen with 
the cost of flights, car rental, etc., not with my  income at 78 years old.  
They called me last week and they are suppose  to have a meeting and let me 
know. 
 
When I started this study their were 8 of us out of 200  people nation way 
and that I would receive the drug STI571 for as long and I  could tolerated 
it or stay alive.  Well that changed.  I am  waiting for a phone call and 
I'm afraid it's not going to be good  news,  So, my question is should I take 
a chance and stop the drug and  get blood work in 3 months and see was 
happens with my blood count? I am a  basket case waiting to see what happens.
 
If you have some answers please let met know.
 
Thank you,
 
David (greenie) Greenberg
South Fort Myers, Florida
 
 
 
 
In a message dated 8/5/2017 5:26:55 P.M. Eastern Daylight Time, 
rien16...@gmail.com writes:

 
Hello!


I stopped  taking Gleevec after 13 years. I had my checkups every month, 
but only in  the first year. In the second year every two months and from now 
on every  three months for the rest of my life.
It seems  that everybody reacts in a different way. I myself had more 
bonecramps  after having stopped than while taking Gleevec; but after the first 
year  it gradually went better and now I have these cramps only a few times 
per  year during the night. The swallen eyelids completely disappeared and  
unfortunately, my face became a lot thinner. Another side-effect: my hair  
was not grey anymore after havinig stopped, it is still dark, which was  not 
the case before. After all I am glad that I took the decision, the  problems 
of the first year will disappear, so I strongly advise you to do  like I did.
Feel free  to contact me for further information.
Greetings  from the Netherlands - and let's be grateful that Gleevec 
exisits!!


Rien


2017-08-05 19:18 GMT+02:00 Vivi :

After seventeen years on Gleevec, and considered "in  remission," my 
oncologist asked me if I would like to stop taking  Gleevec.  
At first 

Re: [CMLHope] Stopping Gleevec

['Jeanie' via CMLHope]

I mean Medicare assignment. 

My Motto:
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 

> On Aug 6, 2017, at 5:56 PM, Jeanie  wrote:
> 
> Hey Greenie,
> I would like to suggest Moffitt cancer center here in Tampa. They will do 
> everything to help you to get your meds. It's where I go and they have saved 
> my life twice.  They accept Medicare and medicate assignment.  If you need 
> help with copayment a there is a cancer copayment company called PSI. They 
> paid my copayment for several years. You just need to start making calls and 
> get the ball rolling.  However I pray they keep sending the meds. You and I 
> have been fighting this for years. 
> I go to dr Balducci head of senior oncology center in Moffitt but the head of 
> leukemia is dr Pinnalla. Check spelling. It's great/ you go in an hour ahead 
> of Drs meeting for bloodwork right at hospital and by the time you meet your 
> dr your blood work is done for him.  Every three months they do a PCR.  They 
> have vallet parking. 
> Praying for you. 
> Jeanie❤️❤️❤️❤️
> 
> My Motto:
> Faith and Pills
> With Love
> 18's
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/2015
> Doctor Balducci Moffitt Cancer Center 
> 
>> On Aug 5, 2017, at 6:25 PM, Myvety2k via CMLHope  
>> wrote:
>> 
>> Hi Rien,   I started a study the first week in Jan. 2000 at Northwestern 
>> Hosp. in Chicago at 400 mg each day before it was approve my the FDA. They 
>> changed it later to 300 mg because of the Gleevec rash.  I got sick in 2009 
>> and stopped Gleevec for 26 days because of sinus infection and the Doctor at 
>> home put me on an antibiotic which made me sick so I stopped for those 26 
>> days.
>>  
>>  Then I started up again and had my blood work done at Northwestern and 
>> started on a trip out west.  My Cancer Doctor called me while driving and 
>> said," David your blood work showed that their are cancer cells back in your 
>> blood".  I told him remember I quit for 26 days and he replied that's right 
>> I forgot, did you start Gleevec again I told him yes and he said " well if 
>> it worked before it will work again and hung up and I never heard from 
>> again.  I later received a letter from him that he moved on to a different 
>> Hosp. in New York, NY. and that was the end of that.
>>  
>> So, June 7th of this year I flew in from South Fort Myers. FL. to Chicago to 
>> get my blood work see my new Doctor pick up my drugs and be on my way home.  
>> But instead I was told their no longer a study and you won't be getting the 
>> drug any longer.  That took my breath away.  Before I left they then told me 
>> that they changed their mind and would give me the drug and 7 month supply 
>> and would sent the rest later because they were short on Gleevec..
>>  
>> Last week I received a call telling me that for me to receive the drug that 
>> I would have to fly in every 3 months, that's not going to happen with the 
>> cost of flights, car rental, etc., not with my income at 78 years old.  They 
>> called me last week and they are suppose to have a meeting and let me know.
>>  
>> When I started this study their were 8 of us out of 200 people nation way 
>> and that I would receive the drug STI571 for as long and I could tolerated 
>> it or stay alive.  Well that changed.  I am waiting for a phone call and I'm 
>> afraid it's not going to be good news,  So, my question is should I take a 
>> chance and stop the drug and get blood work in 3 months and see was happens 
>> with my blood count? I am a basket case waiting to see what happens.
>>  
>> If you have some answers please let met know.
>>  
>> Thank you,
>>  
>> David (greenie) Greenberg
>> South Fort Myers, Florida
>>  
>>  
>>  
>> In a message dated 8/5/2017 5:26:55 P.M. Eastern Daylight Time, 
>> rien16...@gmail.com writes:
>> Hello!
>> 
>> I stopped taking Gleevec after 13 years. I had my checkups every month, but 
>> only in the first year. In the second year every two months and from now on 
>> every three months for the rest of my life.
>> It seems that everybody reacts in a different way. I myself had more 
>> bonecramps after having stopped than while taking Gleevec; but after the 
>> first year it gradually went better and now I have these cramps only a few 
>> times per year during the night. The swallen eyelids completely disappeared 
>> and unfortunately, my face became a lot thinner. Another side-effect: my 
>> hair was not grey anymore after havinig stopped, it is still dark, which was 
>> not the case before. After all I am glad that I took the decision, the 
>> problems of the first year will disappear, so I strongly advise you to do 
>> like I did.
>> Feel free to contact me for further information.
>> Greetings from the 

Re: [CMLHope] Stopping Gleevec

['Jeanie' via CMLHope]

Hey Greenie,
I would like to suggest Moffitt cancer center here in Tampa. They will do 
everything to help you to get your meds. It's where I go and they have saved my 
life twice.  They accept Medicare and medicate assignment.  If you need help 
with copayment a there is a cancer copayment company called PSI. They paid my 
copayment for several years. You just need to start making calls and get the 
ball rolling.  However I pray they keep sending the meds. You and I have been 
fighting this for years. 
I go to dr Balducci head of senior oncology center in Moffitt but the head of 
leukemia is dr Pinnalla. Check spelling. It's great/ you go in an hour ahead of 
Drs meeting for bloodwork right at hospital and by the time you meet your dr 
your blood work is done for him.  Every three months they do a PCR.  They have 
vallet parking. 
Praying for you. 
Jeanie❤️❤️❤️❤️

My Motto:
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 

> On Aug 5, 2017, at 6:25 PM, Myvety2k via CMLHope  
> wrote:
> 
> Hi Rien,   I started a study the first week in Jan. 2000 at Northwestern 
> Hosp. in Chicago at 400 mg each day before it was approve my the FDA. They 
> changed it later to 300 mg because of the Gleevec rash.  I got sick in 2009 
> and stopped Gleevec for 26 days because of sinus infection and the Doctor at 
> home put me on an antibiotic which made me sick so I stopped for those 26 
> days.
>  
>  Then I started up again and had my blood work done at Northwestern and 
> started on a trip out west.  My Cancer Doctor called me while driving and 
> said," David your blood work showed that their are cancer cells back in your 
> blood".  I told him remember I quit for 26 days and he replied that's right I 
> forgot, did you start Gleevec again I told him yes and he said " well if it 
> worked before it will work again and hung up and I never heard from again.  I 
> later received a letter from him that he moved on to a different Hosp. in New 
> York, NY. and that was the end of that.
>  
> So, June 7th of this year I flew in from South Fort Myers. FL. to Chicago to 
> get my blood work see my new Doctor pick up my drugs and be on my way home.  
> But instead I was told their no longer a study and you won't be getting the 
> drug any longer.  That took my breath away.  Before I left they then told me 
> that they changed their mind and would give me the drug and 7 month supply 
> and would sent the rest later because they were short on Gleevec..
>  
> Last week I received a call telling me that for me to receive the drug that I 
> would have to fly in every 3 months, that's not going to happen with the cost 
> of flights, car rental, etc., not with my income at 78 years old.  They 
> called me last week and they are suppose to have a meeting and let me know.
>  
> When I started this study their were 8 of us out of 200 people nation way and 
> that I would receive the drug STI571 for as long and I could tolerated it or 
> stay alive.  Well that changed.  I am waiting for a phone call and I'm afraid 
> it's not going to be good news,  So, my question is should I take a chance 
> and stop the drug and get blood work in 3 months and see was happens with my 
> blood count? I am a basket case waiting to see what happens.
>  
> If you have some answers please let met know.
>  
> Thank you,
>  
> David (greenie) Greenberg
> South Fort Myers, Florida
>  
>  
>  
> In a message dated 8/5/2017 5:26:55 P.M. Eastern Daylight Time, 
> rien16...@gmail.com writes:
> Hello!
> 
> I stopped taking Gleevec after 13 years. I had my checkups every month, but 
> only in the first year. In the second year every two months and from now on 
> every three months for the rest of my life.
> It seems that everybody reacts in a different way. I myself had more 
> bonecramps after having stopped than while taking Gleevec; but after the 
> first year it gradually went better and now I have these cramps only a few 
> times per year during the night. The swallen eyelids completely disappeared 
> and unfortunately, my face became a lot thinner. Another side-effect: my hair 
> was not grey anymore after havinig stopped, it is still dark, which was not 
> the case before. After all I am gladthat I took the decision, the 
> problems of the first year will disappear, so I strongly advise you to do 
> like I did.
> Feel free to contact me for further information.
> Greetings from the Netherlands - and let's be grateful that Gleevec exisits!!
> 
> Rien
> 
> 2017-08-05 19:18 GMT+02:00 Vivi :
>> After seventeen years on Gleevec, and considered "in remission," my 
>> oncologist asked me if I would like to stop taking Gleevec.
>> At first glance, this sounded spectacular but then she said:
>> "you'll have to come in once a month to be tested."
>> After deep thought (about 

Re: [CMLHope] Stopping Gleevec

[Myvety2k via CMLHope]

Hi Rien,   I started a study the first week in Jan.  2000 at Northwestern 
Hosp. in Chicago at 400 mg each day before it was approve  my the FDA. They 
changed it later to 300 mg because of the Gleevec rash.  I  got sick in 2009 
and stopped Gleevec for 26 days because of sinus infection and  the Doctor 
at home put me on an antibiotic which made me sick so I stopped for  those 26 
days.
 
 Then I started up again and had my  blood work done at Northwestern 
and started on a trip out west.  My Cancer  Doctor called me while driving and 
said," David your blood work showed that  their are cancer cells back in 
your blood".  I told him remember I quit for  26 days and he replied that's 
right I forgot, did you start Gleevec again I told  him yes and he said " well 
if it worked before it will work again and hung up  and I never heard from 
again.  I later received a letter from him that he  moved on to a different 
Hosp. in New York, NY. and that was the end of  that.
 
So, June 7th of this year I flew in from South Fort Myers. FL.  to Chicago 
to get my blood work see my new Doctor pick up my drugs and be on my  way 
home.  But instead I was told their no longer a study and you won't be  
getting the drug any longer.  That took my breath away.  Before I left  they 
then 
told me that they changed their mind and would give me the drug and 7  month 
supply and would sent the rest later because they were short on  Gleevec..
 
Last week I received a call telling me that for me to receive  the drug 
that I would have to fly in every 3 months, that's not going to happen  with 
the cost of flights, car rental, etc., not with my income at 78 years  old.  
They called me last week and they are suppose to have a meeting and  let me 
know. 
 
When I started this study their were 8 of us out of 200 people  nation way 
and that I would receive the drug STI571 for as long and I could  tolerated 
it or stay alive.  Well that changed.  I am waiting for a  phone call and 
I'm afraid it's not going to be good news,  So, my question  is should I take 
a chance and stop the drug and get blood work in 3 months and  see was 
happens with my blood count? I am a basket case waiting to see what  happens.
 
If you have some answers please let met know.
 
Thank you,
 
David (greenie) Greenberg
South Fort Myers, Florida
 
 
 
 
In a message dated 8/5/2017 5:26:55 P.M. Eastern Daylight Time,  
rien16...@gmail.com writes:

 
Hello!


I stopped  taking Gleevec after 13 years. I had my checkups every month, 
but only in the  first year. In the second year every two months and from now 
on every three  months for the rest of my life.
It seems that  everybody reacts in a different way. I myself had more 
bonecramps after having  stopped than while taking Gleevec; but after the first 
year it gradually went  better and now I have these cramps only a few times 
per year during the night.  The swallen eyelids completely disappeared and 
unfortunately, my face became a  lot thinner. Another side-effect: my hair was 
not grey anymore after havinig  stopped, it is still dark, which was not 
the case before. After all I am glad  that I took the decision, the problems 
of the first year will disappear, so I  strongly advise you to do like I did.
Feel free to  contact me for further information.
Greetings  from the Netherlands - and let's be grateful that Gleevec 
exisits!!


Rien


2017-08-05 19:18 GMT+02:00 Vivi :

After seventeen years on Gleevec, and considered "in  remission," my 
oncologist asked me if I would like to stop taking Gleevec.  
At first glance, this sounded spectacular but then she said:
"you'll have to come in once a month to be tested."
After deep thought (about twenty seconds), I said, "Talk to me about  this 
again in ten years."
Has anyone else stopped taking Gleevec after years of being "in  
remission?"  If so, how's it going?
What has changed in your life?  Have any of the obvious physical  
side-effects (leg cramps, blood in the whites of your eyes, swollen  eyelids,
abdominal fat) retreated or been reversed?
I'd appreciate any information other CMLers might have.
Best to all.   

-- 
-- 
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Re: [CMLHope] Stopping Gleevec

[Rien Jonkers]

Hello!

I stopped taking Gleevec after 13 years. I had my checkups every month, but
only in the first year. In the second year every two months and from now on
every three months for the rest of my life.
It seems that everybody reacts in a different way. I myself had more
bonecramps after having stopped than while taking Gleevec; but after the
first year it gradually went better and now I have these cramps only a few
times per year during the night. The swallen eyelids completely disappeared
and unfortunately, my face became a lot thinner. Another side-effect: my
hair was not grey anymore after havinig stopped, it is still dark, which
was not the case before. After all I am glad that I took the decision, the
problems of the first year will disappear, so I strongly advise you to do
like I did.
Feel free to contact me for further information.
Greetings from the Netherlands - and let's be grateful that Gleevec
exisits!!

Rien

2017-08-05 19:18 GMT+02:00 Vivi :

> After seventeen years on Gleevec, and considered "in remission," my
> oncologist asked me if I would like to stop taking Gleevec.
> At first glance, this sounded spectacular but then she said:
> "you'll have to come in once a month to be tested."
> After deep thought (about twenty seconds), I said, "Talk to me about this
> again in ten years."
> Has anyone else stopped taking Gleevec after years of being "in
> remission?"  If so, how's it going?
> What has changed in your life?  Have any of the obvious physical
> side-effects (leg cramps, blood in the whites of your eyes, swollen eyelids,
> abdominal fat) retreated or been reversed?
> I'd appreciate any information other CMLers might have.
> Best to all.
>
> --
> --
> [CMLHope]
> A support group of http://cmlhope.com
> -
>
> You received this message because you are subscribed to the Google Groups
> "CMLHope" group.
> To post to this group, send email to CMLHope@googlegroups.com
> To unsubscribe from this group, send email to CMLHope-unsubscribe@
> googlegroups.com
> For more options, visit this group at http://groups.google.com/
> group/CMLHope
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-- 

*Dr. Marinus Jonkers*

*Ravenhoflaan 5*

*NL- 4706 WD Roosendaal*

*Tel. +31 165 8 22128*

*117 Bd de la 1ère Armée, no. 21*

*F – 83330 Le Beausset*

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*email: rien16...@gmail.com *

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Re: [CMLHope] Stopping Gleevec

['Jeanie' via CMLHope]

Hi all. This is Jeanie. I have lost remission 
4 times and really sick most of the times. I am on my 4 the and probably las 
tki , Ponatinib.   I get mutants.  So far not on Ponatinib.   Ive been taking 
Ponatinib for over 2 years. So far so good but worry every time I get blood 
work. My doctor says if it ain't broke why fix it.  It's just up to you.  Good 
luck and prayers. 
Jeanie
My Motto:
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 

> On Aug 5, 2017, at 1:18 PM, Vivi  wrote:
> 
> After seventeen years on Gleevec, and considered "in remission," my 
> oncologist asked me if I would like to stop taking Gleevec.
> At first glance, this sounded spectacular but then she said:
> "you'll have to come in once a month to be tested."
> After deep thought (about twenty seconds), I said, "Talk to me about this 
> again in ten years."
> Has anyone else stopped taking Gleevec after years of being "in remission?"  
> If so, how's it going?
> What has changed in your life?  Have any of the obvious physical side-effects 
> (leg cramps, blood in the whites of your eyes, swollen eyelids,
> abdominal fat) retreated or been reversed?
> I'd appreciate any information other CMLers might have.
> Best to all.   
> -- 
> -- 
> [CMLHope]
> A support group of http://cmlhope.com
> -
>  
> You received this message because you are subscribed to the Google Groups 
> "CMLHope" group.
> To post to this group, send email to CMLHope@googlegroups.com
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> cmlhope-unsubscr...@googlegroups.com
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Re: [CMLHope] Stopping Gleevec

[גיורא]

Hi
After 14 years on Glivec and being in deep remision 5MR i stopped treatment 
more than 3 years ago. Did monthly PCR for 1 year and now every 2-3 month. 
Feeling great. No zombi eyes, less cramps and living normal life.
Best
Giora

נשלח מה-iPhone שלי

‫ב-5 באוג׳ 2017, בשעה 20:59, ‏‏'Holly' via CMLHope ‏ 
כתב/ה:‬

> After 12 years on Gleevec(I was in the first trials at Siteman cancer center) 
> I switched to Tasigna and all of those symptoms you described went away and 
> I'm still molecularly cancer free. Maybe you should talk to your doctor about 
> switching meds. Made a world of difference for me. 
> Diagnosed: 3/2000
> Gleevec: 10/2000
> Remission: 1/2001
> 
> Sent from my iPhone
> 
>> On Aug 5, 2017, at 12:18 PM, Vivi  wrote:
>> 
>> After seventeen years on Gleevec, and considered "in remission," my 
>> oncologist asked me if I would like to stop taking Gleevec.
>> At first glance, this sounded spectacular but then she said:
>> "you'll have to come in once a month to be tested."
>> After deep thought (about twenty seconds), I said, "Talk to me about this 
>> again in ten years."
>> Has anyone else stopped taking Gleevec after years of being "in remission?"  
>> If so, how's it going?
>> What has changed in your life?  Have any of the obvious physical 
>> side-effects (leg cramps, blood in the whites of your eyes, swollen eyelids,
>> abdominal fat) retreated or been reversed?
>> I'd appreciate any information other CMLers might have.
>> Best to all.   
>> -- 
>> -- 
>> [CMLHope]
>> A support group of http://cmlhope.com
>> -
>>  
>> You received this message because you are subscribed to the Google Groups 
>> "CMLHope" group.
>> To post to this group, send email to CMLHope@googlegroups.com
>> To unsubscribe from this group, send email to 
>> cmlhope-unsubscr...@googlegroups.com
>> For more options, visit this group at http://groups.google.com/group/CMLHope
>> --- 
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>> email to cmlhope+unsubscr...@googlegroups.com.
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> -- 
> -- 
> [CMLHope]
> A support group of http://cmlhope.com
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Re: [CMLHope] Stopping Gleevec

['Holly' via CMLHope]

After 12 years on Gleevec(I was in the first trials at Siteman cancer center) I 
switched to Tasigna and all of those symptoms you described went away and I'm 
still molecularly cancer free. Maybe you should talk to your doctor about 
switching meds. Made a world of difference for me. 
Diagnosed: 3/2000
Gleevec: 10/2000
Remission: 1/2001

Sent from my iPhone

> On Aug 5, 2017, at 12:18 PM, Vivi  wrote:
> 
> After seventeen years on Gleevec, and considered "in remission," my 
> oncologist asked me if I would like to stop taking Gleevec.
> At first glance, this sounded spectacular but then she said:
> "you'll have to come in once a month to be tested."
> After deep thought (about twenty seconds), I said, "Talk to me about this 
> again in ten years."
> Has anyone else stopped taking Gleevec after years of being "in remission?"  
> If so, how's it going?
> What has changed in your life?  Have any of the obvious physical side-effects 
> (leg cramps, blood in the whites of your eyes, swollen eyelids,
> abdominal fat) retreated or been reversed?
> I'd appreciate any information other CMLers might have.
> Best to all.   
> -- 
> -- 
> [CMLHope]
> A support group of http://cmlhope.com
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Re: [CMLHope] Stopping Gleevec and BMB X4 !

['Icandoallttc' via CMLHope]

So sorry you had to go through that.  It hurts!!!
I had one without any pain killer when I was first dx.  It was in the doctors 
office in my first visit.  
My next BMA was in a hospital under sedation and my others ones were too.  
The ones done at Moffitt cancer center were the best. No hip pain later. 
Marty you are so right about mind set because we are all getting push back and 
forward 
My recent blood test was not good and it made me sad. I had been doing so well 
on ponatinib.  
My WBC were up 2 points 12 but what worried me most were my   Kidney counts.  
My PCD said I had chronic kidney disease but I have never had those high counts 
before.  It must be the new tki.  
So I must just hang in until my next test in sept. 
Blessings all

My Motto: Faith and Pills
Jeanie 18,s 
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center

 On Aug 10, 2015, at 4:10 PM, Marty Gartenberg wa2...@gmail.com wrote:
 
 Hi Angie,
 
 In my long list of my bucket list I have gone through seventeen bone marrow 
 gathering expeditions, BMB's or MBA's, to many to count so why not take 
 your pick? 
 
 But is each one of them they hurt but I had a name for them, A.R.P.I.T.A.
 (A real pain in the Azz) and so it was in the early days of the A.R.P.I.T.A. 
 But I got through it. By the way there was nothing about having any pain 
 killers only the four syringes of 2% lidocaine, which did nothing. At least 
 they only lasted for several seconds.
 
 I think that the longest amount of these needles were probably around 30 or 
 more. And that is still a close friend of mine Skip. Oh by the way he has 
 gone through I think about 30 years or more of CML without even taking and 
 TKI's or any bone marrow transplants. I believe we are looking for a Guiness  
 world book of  records.
 
 18's
 
 Marty 
 
 On Wed, Jun 17, 2015 at 8:35 AM, ANGELYN ESDERS esd...@rogers.com wrote:
 Thanks, Marty. I am having no great emotional upheaval over quitting 
 Gleevec. Whatever will be, will be, and everything is a learning experience. 
 It just feels strange after 14+ years.
 
 In other news, Monday a new platelet dr. decided to do a BMB.
 You won't believe this: It took him FOUR tries to get a viable sample. Never 
 had this happen before. Four crunching entries.
 Sort of like having four BMB's at the same time. Afterwards I was almost in 
 a state of shock and could not stand, nauseous, very stressed. (In Canada we 
 do not get sedation or morphine for this procedure.) It took me 90 minutes 
 to de-stress and had to drive myself home because he had not warned me that 
 he intended to do this and to bring a driver along. There's one doctor who 
 will NOT be doing another BMB on me!! I think he needs a few more lessons in 
 how to do it.
 
 Anyway, I am finestill low platelets. Life goes on.
 Angie
 
  
 From: Marty Gartenberg wa2...@gmail.com
 To: cmlhope@googlegroups.com 
 Sent: Wednesday, June 17, 2015 7:29 AM
 Subject: Re: [CMLHope] Stopping Gleevec
 
 Hi Angie,
 
 You are not thee only one that has stopped your TKI and felt that way. 
 sometimes something that we take as far as any TKI's ends up being a crutch 
 for us and we always seem to worry if this or that will come back to haunt 
 us. It is a normal human response and we worry about it.
 
 Angie, since your really feeling better without the Gleevec then you should 
 learn to live your life in the best way that you can.
 
 I have seen this many times before. A man that both Zavie and I knew was on 
 Alpha Interferon and suffered immensely from it's horrible side effects. He 
 suffered for many years and when he was finally PCRU everyone told him to 
 stop using it anymore but he still continued still suffering because it had 
 become a crutch for him. He had the same feelings as you now have and after 
 a lot of coaching from everyone he finally stopped it. 
 
 He has been off of it for many years and no reoccurrence of CML ever came 
 back to him. His system finally burned out his CML.
 
 Remember that everything in life has a double edged soared. If you do 
 something will it come back to haunt you or if you don't do something will 
 it come back to haunt you??
 
 I just can't live my life that way, and if something does come back then I 
 will deal with it.
 Remember me telling everyone that Leukemia is both a disease of not only the 
 body but it also poisons the mind.
 
 Angie, why not start writing a diary and put everything in there that you 
 have gone through the day? I do it and it lets me reflect about what I could 
 have done better or worse during the day. I call it my frustrations and how 
 to deal with them, and it really works for me as I am sure it will also work 
 for you or anyone else. By the way I see that Giora sent you his response. 
 read it if you haven't as yet.
 
 Here is something called expect the best Please read it and it will also 
 help

Re: [CMLHope] Stopping Gleevec and BMB X4 !

['Icandoallttc' via CMLHope]

Hi Greenie and good to hear from you.  
That's a lot of tests. 
I think Moffitt depends on the PCR test.  I had one in jan. 
I only had 2 with my first onc and I was with him for 5 years. 
My onc at Moffitt will probably want another one soon. 

My Motto: Faith and Pills
Jeanie 18,s 
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center

 On Aug 11, 2015, at 5:32 PM, Myvety2k via CMLHope cmlhope@googlegroups.com 
 wrote:
 
 Hi my CML friends and care takers,  just want to add to the BMB's that when I 
 received my first one was two weeks before Xmas that was 1998.  If I were to 
 count all of them their would be around 27 to 28 of them.  Now that they use 
 all blood to get the results that makes me a happy camper.  Blood tests I 
 can't begin to keep count and their was a time I couldn't stand to get one, I 
 remember you had to get one to get married almost kept me from doing that.
  
 I was on active duty with the Navy for over a year before they caught up to 
 me and I received all of my shoots at one time, two very sore arms from that.
  
 greenie
  
 In a message dated 8/11/2015 5:20:55 P.M. Eastern Daylight Time, 
 cmlhope@googlegroups.com writes:
 So sorry you had to go through that.  It hurts!!!
 I had one without any pain killer when I was first dx.  It was in the doctors 
 office in my first visit.  
 My next BMA was in a hospital under sedation and my others ones were too. 
 The ones done at Moffitt cancer center were the best. No hip pain later. 
 Marty you are so right about mind set because we are all getting push back 
 and forward 
 My recent blood test was not good and it made me sad. I had been doing so 
 well on ponatinib.  
 My WBC were up 2 points 12 but what worried me most were my   Kidney counts.  
 My PCD said I had chronic kidney disease but I have never had those high 
 counts before.  It must be the new tki.  
 So I must just hang in until my next test in sept.  
 Blessings all
 
 My Motto: Faith and Pills
 Jeanie 18,s 
 Dx 1/2004. CML Leukemia
 Started Gleevec 2/2004
 Started Tasigna  9/2009
 Started Sprycel 11/2009
 Started Ponatinib January 2015
 Dr Balducci Moffitt Cancer Center
 
 On Aug 10, 2015, at 4:10 PM, Marty Gartenberg wa2...@gmail.com wrote:
 
 Hi Angie,
 
 In my long list of my bucket list I have gone through seventeen bone marrow 
 gathering expeditions, BMB's or MBA's, to many to count so why not take 
 your pick? 
 
 But is each one of them they hurt but I had a name for them, A.R.P.I.T.A.
 (A real pain in the Azz) and so it was in the early days of the A.R.P.I.T.A. 
 But I got through it. By the way there was nothing about having any pain 
 killers only the four syringes of 2% lidocaine, which did nothing. At least 
 they only lasted for several seconds.
 
 I think that the longest amount of these needles were probably around 30 or 
 more. And that is still a close friend of mine Skip. Oh by the way he  
 has gone through I think about 30 years or more of CML without even taking 
 and TKI's or any bone marrow transplants. I believe we are looking for a 
 Guiness  world book of  records.
 
 18's
 
 Marty 
 
 On Wed, Jun 17, 2015 at 8:35 AM, ANGELYN ESDERS esd...@rogers.com wrote:
 Thanks, Marty. I am having no great emotional upheaval over quitting 
 Gleevec. Whatever will be, will be, and everything is a learning 
 experience. It just feels strange after 14+ years.
 
 In other news, Monday a new platelet dr. decided to do a BMB.
 You won't believe this: It took him FOUR tries to get a viable sample. 
 Never had this happen before. Four crunching entries.
 Sort of like having four BMB's at the same time. Afterwards I was almost in 
 a state of shock and could not stand, nauseous, very stressed. (In Canada 
 we do not get sedation or morphine for this procedure.) It took me 90 
 minutes to de-stress and had to drive myself home because he had not warned 
 me that he intended to do this and to bring a driver along. There's one 
 doctor who will NOT be doing another BMB on me!! I think he needs a few 
 more lessons in how to do it.
 
 Anyway, I am finestill low platelets. Life goes on.
 Angie
 
  
 From: Marty Gartenberg wa2...@gmail.com
 To: cmlhope@googlegroups.com 
 Sent: Wednesday, June 17, 2015 7:29 AM
 Subject: Re: [CMLHope] Stopping Gleevec
 
 Hi Angie,
 
 You are not thee only one that has stopped your TKI and felt that way. 
 sometimes something that we take as far as any TKI's ends up being a crutch 
 for us and we always seem to worry if this or that will come back to haunt 
 us. It is a normal human response and we worry about it.
 
 Angie, since your really feeling better without the Gleevec then you should 
 learn to live your life in the best way that you can.
 
 I have seen this many times before. A man that both Zavie and I knew was on 
 Alpha Interferon and suffered immensely from it's horrible side effects. He 
 suffered

Re: [CMLHope] Stopping Gleevec and BMB X4 !

['Icandoallttc' via CMLHope]

I meant I had a Bma in jan.  They put me to sleep so I don't mind it. 

My Motto: Faith and Pills
Jeanie 18,s 
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center

 On Aug 11, 2015, at 6:01 PM, 'Icandoallttc' via CMLHope 
 cmlhope@googlegroups.com wrote:
 
 Hi Greenie and good to hear from you.  
 That's a lot of tests. 
 I think Moffitt depends on the PCR test.  I had one in jan. 
 I only had 2 with my first onc and I was with him for 5 years. 
 My onc at Moffitt will probably want another one soon. 
 
 My Motto: Faith and Pills
 Jeanie 18,s 
 Dx 1/2004. CML Leukemia
 Started Gleevec 2/2004
 Started Tasigna  9/2009
 Started Sprycel 11/2009
 Started Ponatinib January 2015
 Dr Balducci Moffitt Cancer Center
 
 On Aug 11, 2015, at 5:32 PM, Myvety2k via CMLHope cmlhope@googlegroups.com 
 wrote:
 
 Hi my CML friends and care takers,  just want to add to the BMB's that when 
 I received my first one was two weeks before Xmas that was 1998.  If I were 
 to count all of them their would be around 27 to 28 of them.  Now that they 
 use all blood to get the results that makes me a happy camper.  Blood tests 
 I can't begin to keep count and their was a time I couldn't stand to get 
 one, I remember you had to get one to get married almost kept me from doing 
 that.
  
 I was on active duty with the Navy for over a year before they caught up to 
 me and I received all of my shoots at one time, two very sore arms from that.
  
 greenie
  
 In a message dated 8/11/2015 5:20:55 P.M. Eastern Daylight Time, 
 cmlhope@googlegroups.com writes:
 So sorry you had to go through that.  It hurts!!!
 I had one without any pain killer when I was first dx.  It was in the 
 doctors office in my first visit.  
 My next BMA was in a hospital under sedation and my others ones were too.  
 The ones done at Moffitt cancer center were the best. No hip pain later. 
 Marty you are so right about mind set because we are all getting push back 
 and forward 
 My recent blood test was not good and it made me sad. I had been doing so 
 well on ponatinib.  
 My WBC were up 2 points 12 but what worried me most were my   Kidney counts. 
  My PCD said I had chronic kidney disease but I have never had those high 
 counts before.  It must be the new tki.  
 So I must just hang in until my next test in sept.  
 Blessings all
 
 My Motto: Faith and Pills
 Jeanie 18,s 
 Dx 1/2004. CML Leukemia
 Started Gleevec 2/2004
 Started Tasigna  9/2009
 Started Sprycel 11/2009
 Started Ponatinib January 2015
 Dr Balducci Moffitt Cancer Center
 
 On Aug 10, 2015, at 4:10 PM, Marty Gartenberg wa2...@gmail.com wrote:
 
 Hi Angie,
 
 In my long list of my bucket list I have gone through seventeen bone  
 marrow gathering expeditions, BMB's or MBA's, to many to count so why not 
 take your pick? 
 
 But is each one of them they hurt but I had a name for them, A.R.P.I.T.A.
 (A real pain in the Azz) and so it was in the early days of the 
 A.R.P.I.T.A. But I got through it. By the way there was nothing about 
 having any pain killers only the four syringes of 2% lidocaine, which did 
 nothing. At least they only lasted for several seconds.
 
 I think that the longest amount of these needles were probably around 30 or 
 more. And that is still a close friend of mine Skip. Oh by the way he has 
 gone through I think about 30 years or more of CML without even taking and 
 TKI's or any bone marrow transplants. I believe we are looking for a 
 Guiness  world book of  records.
 
 18's
 
 Marty 
 
 On Wed, Jun 17, 2015 at 8:35 AM, ANGELYN ESDERS esd...@rogers.com wrote:
 Thanks, Marty. I am having no great emotional upheaval over quitting 
 Gleevec. Whatever will be, will be, and everything is a learning 
 experience. It just feels strange after 14+ years.
 
 In other news, Monday a new platelet dr. decided to do a BMB.
 You won't believe this: It took him FOUR tries to get a viable sample. 
 Never had this happen before. Four crunching entries.
 Sort of like having four BMB's at the same time. Afterwards I was almost 
 in a state of shock and could not stand, nauseous, very stressed. (In 
 Canada we do not get sedation or morphine for this procedure.) It took me 
 90 minutes to de-stress and had to drive myself home because he had not 
 warned me that he intended to do this and to bring a driver along. There's 
 one doctor who will NOT be doing another BMB on me!! I think he needs a 
 few more lessons in how to do it.
 
 Anyway, I am finestill low platelets. Life goes on.
 Angie
 
  
 From: Marty Gartenberg wa2...@gmail.com
 To: cmlhope@googlegroups.com 
 Sent: Wednesday, June 17, 2015 7:29 AM
 Subject: Re: [CMLHope] Stopping Gleevec
 
 Hi Angie,
 
 You are not thee only one that has stopped your TKI and felt that way. 
 sometimes something that we take as far as any TKI's ends up being a 
 crutch for us and we always seem to worry

Re: [CMLHope] Stopping Gleevec and BMB X4 !

[Richard H]

I hear you loud and clear Greenie.  My first day at Navy boot camp was on 2 
hours was get in line, eat breakfast, THEN ALL THE SHOTS, dentist etc.  As 
I stepped to the dentist table I tried to pass out, but no--they waved 
something under my nose and kept me awake and just pushed me on down the 
line.  Later we were issued our piece(gun) and had to do exercises.  Then I 
could feel those sore arms.  


Richard H.

On Tuesday, August 11, 2015 at 4:33:01 PM UTC-5, greenie wrote:

 Hi my CML friends and care takers,  just want to add to the BMB's that 
 when I received my first one was two weeks before Xmas that was 1998.  If I 
 were to count all of them their would be around 27 to 28 of them.  Now that 
 they use all blood to get the results that makes me a happy camper.  Blood 
 tests I can't begin to keep count and their was a time I couldn't stand to 
 get one, I remember you had to get one to get married almost kept me from 
 doing that.
  
 I was on active duty with the Navy for over a year before they caught up 
 to me and I received all of my shoots at one time, two very sore arms from 
 that.
  
 greenie
  
 In a message dated 8/11/2015 5:20:55 P.M. Eastern Daylight Time, 
 cml...@googlegroups.com javascript: writes:

 So sorry you had to go through that.  It hurts!!!
 I had one without any pain killer when I was first dx.  It was in the 
 doctors office in my first visit.  
 My next BMA was in a hospital under sedation and my others ones were too.  
 The ones done at Moffitt cancer center were the best. No hip pain later. 
 Marty you are so right about mind set because we are all getting push back 
 and forward 
 My recent blood test was not good and it made me sad. I had been doing so 
 well on ponatinib.  
 My WBC were up 2 points 12 but what worried me most were my   Kidney 
 counts.  My PCD said I had chronic kidney disease but I have never had 
 those high counts before.  It must be the new tki.  
 So I must just hang in until my next test in sept.  
 Blessings all

 My Motto: Faith and Pills 
 Jeanie 18,s  
 Dx 1/2004. CML Leukemia
 Started Gleevec 2/2004
 Started Tasigna  9/2009
 Started Sprycel 11/2009
 Started Ponatinib January 2015
 Dr Balducci Moffitt Cancer Center

 On Aug 10, 2015, at 4:10 PM, Marty Gartenberg wa2...@gmail.com 
 javascript: wrote:

 Hi Angie, 

 In my long list of my bucket list I have gone through seventeen bone 
 marrow gathering expeditions, BMB's or MBA's, to many to count so why not 
 take your pick? 

 But is each one of them they hurt but I had a name for them, A.R.P.I.T.A.
 (A real pain in the Azz) and so it was in the early days of the 
 A.R.P.I.T.A. But I got through it. By the way there was nothing about 
 having any pain killers only the four syringes of 2% lidocaine, which did 
 nothing. At least they only lasted for several seconds.

 I think that the longest amount of these needles were probably around 30 
 or more. And that is still a close friend of mine Skip. Oh by the way he 
 has gone through I think about 30 years or more of CML without even taking 
 and TKI's or any bone marrow transplants. I believe we are looking for 
 a Guiness  world book of  records.

 18's

 Marty 

 On Wed, Jun 17, 2015 at 8:35 AM, ANGELYN ESDERS esd...@rogers.com 
 javascript: wrote:

 Thanks, Marty. I am having no great emotional upheaval over quitting 
 Gleevec. Whatever will be, will be, and everything is a learning 
 experience. It just feels strange after 14+ years.

 In other news, Monday a new platelet dr. decided to do a BMB. 
 You won't believe this: It took him FOUR tries to get a viable sample. 
 Never had this happen before. Four crunching entries. 
 Sort of like having four BMB's at the same time. Afterwards I was almost 
 in a state of shock and could not stand, nauseous, very stressed. (In 
 Canada we do not get sedation or morphine for this procedure.) It took me 
 90 minutes to de-stress and had to drive myself home because he had not 
 warned me that he intended to do this and to bring a driver along. There's 
 one doctor who will NOT be doing another BMB on me!! I think he needs a few 
 more lessons in how to do it.

 Anyway, I am finestill low platelets. Life goes on.
 Angie

   
 --
 *From:* Marty Gartenberg wa2...@gmail.com javascript:
 *To:* cml...@googlegroups.com javascript: 
 *Sent:* Wednesday, June 17, 2015 7:29 AM
 *Subject:* Re: [CMLHope] Stopping Gleevec

 Hi Angie,

 You are not thee only one that has stopped your TKI and felt that way. 
 sometimes something that we take as far as any TKI's ends up being a crutch 
 for us and we always seem to worry if this or that will come back to haunt 
 us. It is a normal human response and we worry about it.

 Angie, since your really feeling better without the Gleevec then you 
 should learn to live your life in the best way that you can.

 I have seen this many times before. A man that both Zavie and I knew was 
 on Alpha Interferon and suffered immensely

Re: [CMLHope] Stopping Gleevec and BMB X4 !

['Icandoallttc' via CMLHope]

Great video Marty.  
Thanks 

My Motto: Faith and Pills
Jeanie 18,s 
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center

 On Aug 10, 2015, at 10:24 AM, Marty Gartenberg wa2...@gmail.com wrote:
 
 Dear Angie, and everyone else for that matter.
 
 Please don't ever be disappointed in whatever your problems may be. I have 
 said this time and time again, and you know what? Just look at what happened 
 to me. 
 
 Now I don't profess to be a man of 9 lives but only to be a human being 
 that has been through a great deal but I just take everything in stride one 
 day at a time and have been doing this until now for the past 71 years.
 
  And I guess that I must know what I am talking about, or hopefully I do? Of 
 course not since I was a child, but the was the time for having fun and 
 growing up, and to see what everyone around me was teaching me.
 
 You know what, things haven't really changed that much because life is a 
 learning experience 
 
 I have seen many things in my life, but there is and has been something in my 
 life as of age 45 years old/young? And that is I just know that there WILL be 
 a cure for Leukemia!!! You just have to sit down and keep this in your minds.
 
 I would like you to see something that tugs at me heart strings and 
 basically has little to do with Leukemia but has a lot of things to do with 
 two events that I had to do through in my life, and after these I sill am 
 living proof that so far I have survived. And by the way so far. so have you.
 
 This video has brought some tears as well as some joy to myself. It just 
 shows what one human can do for each other, and then for good luck add in a 
 dog. Yes GOD has a way of sorting in a dog, if you so should spell dog 
 backwards it comes up with GOD. I always wondered about that.
 
 www.youtube.com/watch?v=mz2kDH0MCn4
 
 18's,
 
 Marty
  
 
  
 
 On Wed, Jun 17, 2015 at 11:48 AM, 'Icandoallttc' via CMLHope 
 cmlhope@googlegroups.com wrote:
 Not every one gets to pcr on tkis.  I never did on gleevec.   It quit on me 
 instead of me quitting.  
 I finally reached pcr on sprycel.   If you do quit keep a close check on 
 your counts. 
 Remember there are more tkis you can take if you have problems on down the 
 line. 
 I am now on the newest one out.  
 Live each day for that day and enjoy it to its fullest. I have been taking 
 tkis for 11 years as of last January and I'm still here. 
 
 
 Prayers  Blessings Jeanie 18,s
 Dx 1/2004
 Started Gleevec 2/2004
 Started Tasigna  9/2009
 Started Sprycel 11/2009
 Started Ponatinib January 2015
 Dr Balducci Moffitt Cancer Center
 
 On Jun 17, 2015, at 8:35 AM, ANGELYN ESDERS esd...@rogers.com wrote:
 
 Thanks, Marty. I am having no great emotional upheaval over quitting 
 Gleevec. Whatever will be, will be, and everything is a learning 
 experience. It just feels strange after 14+ years.
 
 In other news, Monday a new platelet dr. decided to do a BMB.
 You won't believe this: It took him FOUR tries to get a viable sample. 
 Never had this happen before. Four crunching entries.
 Sort of like having four BMB's at the same time. Afterwards I was almost in 
 a state of shock and could not stand, nauseous, very stressed. (In Canada 
 we do not get sedation or morphine for this procedure.) It took me 90 
 minutes to de-stress and had to drive myself home because he had not warned 
 me that he intended to do this and to bring a driver along. There's one 
 doctor who will NOT be doing another BMB on me!! I think he needs a few 
 more lessons in how to do it.
 
 Anyway, I am finestill low platelets. Life goes on.
 Angie
 
  
 From: Marty Gartenberg wa2...@gmail.com
 To: cmlhope@googlegroups.com 
 Sent: Wednesday, June 17, 2015 7:29 AM
 Subject: Re: [CMLHope] Stopping Gleevec
 
 Hi Angie,
 
 You are not thee only one that has stopped your TKI and felt that way. 
 sometimes something that we take as far as any TKI's ends up being a crutch 
 for us and we always seem to worry if this or that will come back to haunt 
 us. It is a normal human response and we worry about it.
 
 Angie, since your really feeling better without the Gleevec then you should 
 learn to live your life in the best way that you can.
 
 I have seen this many times before. A man that both Zavie and I knew was on 
 Alpha Interferon and suffered immensely from it's horrible side effects. He 
 suffered for many years and when he was finally PCRU everyone told him to 
 stop using it anymore but he still continued still suffering because it had 
 become a crutch for him. He had the same feelings as you now have and after 
 a lot of coaching from everyone he finally stopped it. 
 
 He has been off of it for many years and no reoccurrence of CML ever came 
 back to him. His system finally burned out his CML.
 
 Remember that everything in life has a double edged soared. If you do 
 something will it come back

Re: [CMLHope] Stopping Gleevec and BMB X4 !

[Marty Gartenberg]

Hi Angie,

In my long list of my bucket list I have gone through seventeen bone marrow
gathering expeditions, BMB's or MBA's, to many to count so why not take
your pick?

But is each one of them they hurt but I had a name for them, A.R.P.I.T.A.
(A real pain in the Azz) and so it was in the early days of the
A.R.P.I.T.A. But I got through it. By the way there was nothing about
having any pain killers only the four syringes of 2% lidocaine, which did
nothing. At least they only lasted for several seconds.

I think that the longest amount of these needles were probably around 30 or
more. And that is still a close friend of mine Skip. Oh by the way he has
gone through I think about 30 years or more of CML without even taking and
TKI's or any bone marrow transplants. I believe we are looking for
a Guiness  world book of  records.

18's

Marty

On Wed, Jun 17, 2015 at 8:35 AM, ANGELYN ESDERS esd...@rogers.com wrote:

 Thanks, Marty. I am having no great emotional upheaval over quitting
 Gleevec. Whatever will be, will be, and everything is a learning
 experience. It just feels strange after 14+ years.

 In other news, Monday a new platelet dr. decided to do a BMB.
 You won't believe this: It took him FOUR tries to get a viable sample.
 Never had this happen before. Four crunching entries.
 Sort of like having four BMB's at the same time. Afterwards I was almost
 in a state of shock and could not stand, nauseous, very stressed. (In
 Canada we do not get sedation or morphine for this procedure.) It took me
 90 minutes to de-stress and had to drive myself home because he had not
 warned me that he intended to do this and to bring a driver along. There's
 one doctor who will NOT be doing another BMB on me!! I think he needs a few
 more lessons in how to do it.

 Anyway, I am finestill low platelets. Life goes on.
 Angie


 --
 *From:* Marty Gartenberg wa2...@gmail.com
 *To:* cmlhope@googlegroups.com
 *Sent:* Wednesday, June 17, 2015 7:29 AM
 *Subject:* Re: [CMLHope] Stopping Gleevec

 Hi Angie,

 You are not thee only one that has stopped your TKI and felt that way.
 sometimes something that we take as far as any TKI's ends up being a crutch
 for us and we always seem to worry if this or that will come back to haunt
 us. It is a normal human response and we worry about it.

 Angie, since your really feeling better without the Gleevec then you
 should learn to live your life in the best way that you can.

 I have seen this many times before. A man that both Zavie and I knew was
 on Alpha Interferon and suffered immensely from it's horrible side effects.
 He suffered for many years and when he was finally PCRU everyone told him
 to stop using it anymore but he still continued still suffering because it
 had become a crutch for him. He had the same feelings as you now have and
 after a lot of coaching from everyone he finally stopped it.

 He has been off of it for many years and no reoccurrence of CML ever came
 back to him. His system finally burned out his CML.

 Remember that everything in life has a double edged soared. If you do
 something will it come back to haunt you or if you don't do something will
 it come back to haunt you??

 I just can't live my life that way, and if something does come back then I
 will deal with it.
 Remember me telling everyone that Leukemia is both a disease of not only
 the body but it also poisons the mind.

 Angie, why not start writing a diary and put everything in there that you
 have gone through the day? I do it and it lets me reflect about what I
 could have done better or worse during the day. I call it my frustrations
 and how to deal with them, and it really works for me as I am sure it will
 also work for you or anyone else. By the way I see that Giora sent you his
 response. read it if you haven't as yet.

 Here is something called expect the best Please read it and it will also
 help you with yourself.

 One last thing. I am not a doctor but have gone through a lot of things in
 my life health wise as you already know. Have you ever wondered why I am
 still alive? I did at one time but maybe it is because I try helping others
 as a promise that I once made to GOD and also received help myself from
 others. It is a two way street, or I am the luckiest son of a bitch on this
 planet ???
 18's,

 Marty


 *EXPECT THE BEST, MIND OVER MATTER. SUCCESS IS A FUNCTION OF SELF
 CONFIDENCE. TO HAVE SUCCESS AT ANYTHING YOU MUST FIRST LEARN TO BELIEVE IN
 YOURSELF. IF YOU EXPECT THE WORSE THEN THAT IS EXACTLY WHAT YOU WILL GET
 (MIND OVER MATTER) IF YOU EXPECT THE BEST THEN THAT IS WHAT YOU WILL GET.*
 *WHAT WE HAVE TO LEARN TO DO IS TO CHANGE OUR MENTAL HABITS, OUR STATES OF
 MIND. LEARN TO EXPECT AND NOT TO DOUBT. BY DOING THIS YOU BRING EVERYTHING
 INTO THE REALM OF POSSIBILITY. WHEN YOU LEARN TO BELIEVE THEN WHAT YOU
 THOUGHT TO BE IMPOSSIBLE THEN MOVES INTO THE AREA OF POSSIBILITY.*
 *EVERY GREAT THING EVENTUALLY BECOMES POSSIBLE FOR YOU. MY

Re: [CMLHope] Stopping Gleevec and BMB X4 !

[Marty Gartenberg]

Dear Angie, and everyone else for that matter.

Please don't ever be disappointed in whatever your problems may be. I have
said this time and time again, and you know what? Just look at what
happened to me.

Now I don't profess to be a man of 9 lives but only to be a human being
that has been through a great deal but I just take everything in stride one
day at a time and have been doing this until now for the past 71 years.

 And I guess that I must know what I am talking about, or hopefully I do?
Of course not since I was a child, but the was the time for having fun and
growing up, and to see what everyone around me was teaching me.

You know what, things haven't really changed that much because life is a
learning experience

I have seen many things in my life, but there is and has been something in
my life as of age 45 years old/young? And that is I just know that there
WILL be a cure for Leukemia!!! You just have to sit down and keep this in
your minds.

I would like you to see something that tugs at me heart strings and
basically has little to do with Leukemia but has a lot of things to do with
two events that I had to do through in my life, and after these I sill am
living proof that so far I have survived. And by the way so far. so have
you.

This video has brought some tears as well as some joy to myself. It just
shows what one human can do for each other, and then for good luck add in a
dog. Yes GOD has a way of sorting in a dog, if you so should spell dog
backwards it comes up with GOD. I always wondered about that.

*www.youtube.com/watch?v=mz2kDH0MCn4
http://www.youtube.com/watch?v=mz2kDH0MCn4*

18's,

Marty




On Wed, Jun 17, 2015 at 11:48 AM, 'Icandoallttc' via CMLHope 
cmlhope@googlegroups.com wrote:

 Not every one gets to pcr on tkis.  I never did on gleevec.   It quit on
 me instead of me quitting.
 I finally reached pcr on sprycel.   If you do quit keep a close check on
 your counts.
 Remember there are more tkis you can take if you have problems on down the
 line.
 I am now on the newest one out.
 Live each day for that day and enjoy it to its fullest. I have been taking
 tkis for 11 years as of last January and I'm still here.


 Prayers  Blessings Jeanie 18,s
 Dx 1/2004
 Started Gleevec 2/2004
 Started Tasigna  9/2009
 Started Sprycel 11/2009
 Started Ponatinib January 2015
 Dr Balducci Moffitt Cancer Center

 On Jun 17, 2015, at 8:35 AM, ANGELYN ESDERS esd...@rogers.com wrote:

 Thanks, Marty. I am having no great emotional upheaval over quitting
 Gleevec. Whatever will be, will be, and everything is a learning
 experience. It just feels strange after 14+ years.

 In other news, Monday a new platelet dr. decided to do a BMB.
 You won't believe this: It took him FOUR tries to get a viable sample.
 Never had this happen before. Four crunching entries.
 Sort of like having four BMB's at the same time. Afterwards I was almost
 in a state of shock and could not stand, nauseous, very stressed. (In
 Canada we do not get sedation or morphine for this procedure.) It took me
 90 minutes to de-stress and had to drive myself home because he had not
 warned me that he intended to do this and to bring a driver along. There's
 one doctor who will NOT be doing another BMB on me!! I think he needs a few
 more lessons in how to do it.

 Anyway, I am finestill low platelets. Life goes on.
 Angie


 --
 *From:* Marty Gartenberg wa2...@gmail.com
 *To:* cmlhope@googlegroups.com
 *Sent:* Wednesday, June 17, 2015 7:29 AM
 *Subject:* Re: [CMLHope] Stopping Gleevec

 Hi Angie,

 You are not thee only one that has stopped your TKI and felt that way.
 sometimes something that we take as far as any TKI's ends up being a crutch
 for us and we always seem to worry if this or that will come back to haunt
 us. It is a normal human response and we worry about it.

 Angie, since your really feeling better without the Gleevec then you
 should learn to live your life in the best way that you can.

 I have seen this many times before. A man that both Zavie and I knew was
 on Alpha Interferon and suffered immensely from it's horrible side effects.
 He suffered for many years and when he was finally PCRU everyone told him
 to stop using it anymore but he still continued still suffering because it
 had become a crutch for him. He had the same feelings as you now have and
 after a lot of coaching from everyone he finally stopped it.

 He has been off of it for many years and no reoccurrence of CML ever came
 back to him. His system finally burned out his CML.

 Remember that everything in life has a double edged soared. If you do
 something will it come back to haunt you or if you don't do something will
 it come back to haunt you??

 I just can't live my life that way, and if something does come back then I
 will deal with it.
 Remember me telling everyone that Leukemia is both a disease of not only
 the body but it also poisons the mind.

 Angie, why not start writing a diary and put

Re: [CMLHope] Stopping Gleevec

['Susan Zimmerman' via CMLHope]

Dear Angie,


I stopped gleevec after being on 400 mg for 2 yrs and 2 mos.  It was because I 
had a brain bleed, then another.  I decided back in 2007 before it was popular 
that I'd rather take my chances and keep myself monitored by blood tests than 
die of a stroke.  I did have a big stroke then in 2010.  So I went for 7 yrs 
without a tki, and my IS numbers were up to 23 when my doc and I decided to 
start bosulif at 100 mg.  This was at Northwestern Medical in Chicago.  I am 
doing fine on it.  It took about 9 mos. to come into remission and my doc would 
have preferred to have me on a higher dose.  I am convinced they are all 
finding out that many patients don't need the high dosages they are 
prescribing.  Don't be afraid to go off!!!  They can monitor you and do 
something quick if you go up fast, which you probably will not.  Trust me, the 
benefits outweigh any fear.  No fear, Angie, no fear!


18's,

Susan F. Zimmerman




-Original Message-
From: Giora Sharf gio...@inter.net.il
To: cmlhope cmlhope@googlegroups.com
Sent: Wed, Jun 17, 2015 2:35 am
Subject: RE: [CMLHope] Stopping Gleevec


 
  
Hi Angie
  
We have similar story. I started Glivec on 14.2.2001 and was on 400 mg till 
10.6.2014 when I agreed to my Dr's advise to stop. I am now 1 year without 
treatment doing very well, monthly PCR are all in deep MR4.5 response.
  
I fully understand your concern, I had the same issues and didn’t agree to stop 
for couple of years. When I saw the data indicating that all the patients who 
stop and relapse (about 50-60 %) respond well when they restart treatment, I 
agreed to stop. I also didn’t have severe side effects on Glivec, but I am 
happy to be drug free and do very strict monthly or 6 weeks monitoring. Please 
remember if you decide to stop- the most important thing is a very strict 
monthly PCR on international scale. (IS)
  
Good luck whatever you decide
  
Giora
  
 
  
   

From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] On Behalf Of 
ANGELYN ESDERS
Sent: Wednesday, June 17, 2015 4:03 AM
To: cmlhope@googlegroups.com
Subject: [CMLHope] Stopping Gleevec
   
  
  
 
  
   

I just received an email from my oncologist telling me that it is safe for me 
to stop Gleevec for 3 months.
   
   

I started Gleevec in January 2001, and reached cytogenic remission in July 
2001. 
   
   

I've continued on 300mg per day.
   
   

I was in the study for 12  years.
   
   

I feel like it is my safety net between wellness and reoccurrence of CML.
   
   

I am almost afraid to stop it. I no longer have any side effects from it.
   
   

Who has stopped Gleevec, and what have you experienced as a result of doing so?
   
   

Thanking you all for your input...
   
   

Angie in Canada
   
  
  
-- 
-- 
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Re: [CMLHope] Stopping Gleevec

[Marty Gartenberg]

Hi Angie,

You are not thee only one that has stopped your TKI and felt that way.
sometimes something that we take as far as any TKI's ends up being a crutch
for us and we always seem to worry if this or that will come back to haunt
us. It is a normal human response and we worry about it.

Angie, since your really feeling better without the Gleevec then you should
learn to live your life in the best way that you can.

I have seen this many times before. A man that both Zavie and I knew was on
Alpha Interferon and suffered immensely from it's horrible side effects. He
suffered for many years and when he was finally PCRU everyone told him to
stop using it anymore but he still continued still suffering because it had
become a crutch for him. He had the same feelings as you now have and after
a lot of coaching from everyone he finally stopped it.

He has been off of it for many years and no reoccurrence of CML ever came
back to him. His system finally burned out his CML.

Remember that everything in life has a double edged soared. If you do
something will it come back to haunt you or if you don't do something will
it come back to haunt you??

I just can't live my life that way, and if something does come back then I
will deal with it.
Remember me telling everyone that Leukemia is both a disease of not only
the body but it also poisons the mind.

Angie, why not start writing a diary and put everything in there that you
have gone through the day? I do it and it lets me reflect about what I
could have done better or worse during the day. I call it my frustrations
and how to deal with them, and it really works for me as I am sure it will
also work for you or anyone else. By the way I see that Giora sent you his
response. read it if you haven't as yet.

Here is something called expect the best Please read it and it will also
help you with yourself.

One last thing. I am not a doctor but have gone through a lot of things in
my life health wise as you already know. Have you ever wondered why I am
still alive? I did at one time but maybe it is because I try helping others
as a promise that I once made to GOD and also received help myself from
others. It is a two way street, or I am the luckiest son of a bitch on this
planet ???
18's,

Marty



*EXPECT THE BEST, MIND OVER MATTER. SUCCESS IS A FUNCTION OF SELF
CONFIDENCE. TO HAVE SUCCESS AT ANYTHING YOU MUST FIRST LEARN TO BELIEVE IN
YOURSELF. IF YOU EXPECT THE WORSE THEN THAT IS EXACTLY WHAT YOU WILL GET
(MIND OVER MATTER) IF YOU EXPECT THE BEST THEN THAT IS WHAT YOU WILL GET.*

*WHAT WE HAVE TO LEARN TO DO IS TO CHANGE OUR MENTAL HABITS, OUR STATES OF
MIND. LEARN TO EXPECT AND NOT TO DOUBT. BY DOING THIS YOU BRING EVERYTHING
INTO THE REALM OF POSSIBILITY. WHEN YOU LEARN TO BELIEVE THEN WHAT YOU
THOUGHT TO BE IMPOSSIBLE THEN MOVES INTO THE AREA OF POSSIBILITY.*

*EVERY GREAT THING EVENTUALLY BECOMES POSSIBLE FOR YOU. MY BELIEF AT THE
BEGINNING OF A DOUBTFUL UNDERTAKING IS THE ONE THING THAT INSURES THE
SUCCESSFUL OUTCOME...*

*FOCUS...*

 18's,

Marty

On Tue, Jun 16, 2015 at 9:02 PM, ANGELYN ESDERS esd...@rogers.com wrote:

 I just received an email from my oncologist telling me that it is safe for
 me to stop Gleevec for 3 months.
 I started Gleevec in January 2001, and reached cytogenic remission in July
 2001.
 I've continued on 300mg per day.
 I was in the study for 12  years.
 I feel like it is my safety net between wellness and reoccurrence of CML.
 I am almost afraid to stop it. I no longer have any side effects from it.
 Who has stopped Gleevec, and what have you experienced as a result of
 doing so?
 Thanking you all for your input...
 Angie in Canada

 --
 --
 [CMLHope]
 A support group of http://cmlhope.com
 -

 You received this message because you are subscribed to the Google Groups
 CMLHope group.
 To post to this group, send email to CMLHope@googlegroups.com
 To unsubscribe from this group, send email to
 cmlhope-unsubscr...@googlegroups.com
 For more options, visit this group at
 http://groups.google.com/group/CMLHope
 ---
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 CMLHope group.
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 email to cmlhope+unsubscr...@googlegroups.com.
 For more options, visit https://groups.google.com/d/optout.


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to 

Re: [CMLHope] Stopping Gleevec and BMB X4 !

[ANGELYN ESDERS]

Thanks, Marty. I am having no great emotional upheaval over quitting Gleevec. 
Whatever will be, will be, and everything is a learning experience. It just 
feels strange after 14+ years.
In other news, Monday a new platelet dr. decided to do a BMB. You won't believe 
this: It took him FOUR tries to get a viable sample. Never had this happen 
before. Four crunching entries. Sort of like having four BMB's at the same 
time. Afterwards I was almost in a state of shock and could not stand, 
nauseous, very stressed. (In Canada we do not get sedation or morphine for this 
procedure.) It took me 90 minutes to de-stress and had to drive myself home 
because he had not warned me that he intended to do this and to bring a driver 
along. There's one doctor who will NOT be doing another BMB on me!! I think he 
needs a few more lessons in how to do it.
Anyway, I am finestill low platelets. Life goes on.Angie
   From: Marty Gartenberg wa2...@gmail.com
 To: cmlhope@googlegroups.com 
 Sent: Wednesday, June 17, 2015 7:29 AM
 Subject: Re: [CMLHope] Stopping Gleevec
   
Hi Angie,
You are not thee only one that has stopped your TKI and felt that way. 
sometimes something that we take as far as any TKI's ends up being a crutch for 
us and we always seem to worry if this or that will come back to haunt us. It 
is a normal human response and we worry about it.
Angie, since your really feeling better without the Gleevec then you should 
learn to live your life in the best way that you can.
I have seen this many times before. A man that both Zavie and I knew was on 
Alpha Interferon and suffered immensely from it's horrible side effects. He 
suffered for many years and when he was finally PCRU everyone told him to stop 
using it anymore but he still continued still suffering because it had become a 
crutch for him. He had the same feelings as you now have and after a lot of 
coaching from everyone he finally stopped it. 
He has been off of it for many years and no reoccurrence of CML ever came back 
to him. His system finally burned out his CML.
Remember that everything in life has a double edged soared. If you do something 
will it come back to haunt you or if you don't do something will it come back 
to haunt you??
I just can't live my life that way, and if something does come back then I will 
deal with it.Remember me telling everyone that Leukemia is both a disease of 
not only the body but it also poisons the mind.
Angie, why not start writing a diary and put everything in there that you have 
gone through the day? I do it and it lets me reflect about what I could have 
done better or worse during the day. I call it my frustrations and how to deal 
with them, and it really works for me as I am sure it will also work for you or 
anyone else. By the way I see that Giora sent you his response. read it if you 
haven't as yet.
Here is something called expect the best Please read it and it will also help 
you with yourself.
One last thing. I am not a doctor but have gone through a lot of things in my 
life health wise as you already know. Have you ever wondered why I am still 
alive? I did at one time but maybe it is because I try helping others as a 
promise that I once made to GOD and also received help myself from others. It 
is a two way street, or I am the luckiest son of a bitch on this planet ???18's,
Marty 
   EXPECT THE BEST, MINDOVER MATTER. SUCCESS IS A FUNCTION OF SELF CONFIDENCE. 
TO HAVE SUCCESS ATANYTHING YOU MUST FIRST LEARN TO BELIEVE IN YOURSELF. IF YOU 
EXPECT THE WORSETHEN THAT IS EXACTLY WHAT YOU WILL GET (MIND OVER MATTER) IF 
YOU EXPECT THEBEST THEN THAT IS WHAT YOU WILL GET.WHAT WE HAVE TO LEARNTO DO IS 
TO CHANGE OUR MENTAL HABITS, OUR STATES OF MIND. LEARN TO EXPECT ANDNOT TO 
DOUBT. BY DOING THIS YOU BRING EVERYTHING INTO THE REALM OF POSSIBILITY.WHEN 
YOU LEARN TO BELIEVE THEN WHAT YOU THOUGHT TO BE IMPOSSIBLE THEN MOVESINTO THE 
AREA OF POSSIBILITY.EVERY GREAT THINGEVENTUALLY BECOMES POSSIBLE FOR YOU. MY 
BELIEF AT THE BEGINNING OF A DOUBTFULUNDERTAKING IS THE ONE THING THAT INSURES 
THE SUCCESSFUL OUTCOME...FOCUS... 18's,Marty


On Tue, Jun 16, 2015 at 9:02 PM, ANGELYN ESDERS esd...@rogers.com wrote:

I just received an email from my oncologist telling me that it is safe for me 
to stop Gleevec for 3 months.I started Gleevec in January 2001, and reached 
cytogenic remission in July 2001. I've continued on 300mg per day.I was in the 
study for 12  years.I feel like it is my safety net between wellness and 
reoccurrence of CML.I am almost afraid to stop it. I no longer have any side 
effects from it.Who has stopped Gleevec, and what have you experienced as a 
result of doing so?Thanking you all for your input...Angie in Canada-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-
 
You received this message because you are subscribed to the Google Groups 
CMLHope group.
To post to this group, send email to CMLHope@googlegroups.com

RE: [CMLHope] Stopping Gleevec

[Giora Sharf]

Dear Angie

I am living in a beautiful beach city named Netanya, 30 Kms north of Tel Aviv. 
We have few oldies on this list and it is always nice to hear how well we are 
doing. It is not easy for the new patients to understand that it wasn’t like 
this when we were diagnosed 15 years ago.

Here is to health and life

Giora

 

From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] On Behalf Of 
ANGELYN ESDERS
Sent: Wednesday, June 17, 2015 1:12 PM
To: cmlhope@googlegroups.com
Subject: Re: [CMLHope] Stopping Gleevec

 

Thank you for your kind letter, Giora. I remember you from years back. You live 
in Tel Aviv? I am so happy to hear that you are doing so well. I feel 
encouraged.

Angie
  

  _  

From: Giora Sharf gio...@inter.net.il
To: cmlhope@googlegroups.com 
Sent: Wednesday, June 17, 2015 2:35 AM
Subject: RE: [CMLHope] Stopping Gleevec

 

Hi Angie

We have similar story. I started Glivec on 14.2.2001 and was on 400 mg till 
10.6.2014 when I agreed to my Dr's advise to stop. I am now 1 year without 
treatment doing very well, monthly PCR are all in deep MR4.5 response.

I fully understand your concern, I had the same issues and didn’t agree to stop 
for couple of years. When I saw the data indicating that all the patients who 
stop and relapse (about 50-60 %) respond well when they restart treatment, I 
agreed to stop. I also didn’t have severe side effects on Glivec, but I am 
happy to be drug free and do very strict monthly or 6 weeks monitoring. Please 
remember if you decide to stop- the most important thing is a very strict 
monthly PCR on international scale. (IS)

Good luck whatever you decide

Giora

 

 

From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] On Behalf Of 
ANGELYN ESDERS
Sent: Wednesday, June 17, 2015 4:03 AM
To: cmlhope@googlegroups.com
Subject: [CMLHope] Stopping Gleevec

 

I just received an email from my oncologist telling me that it is safe for me 
to stop Gleevec for 3 months.

I started Gleevec in January 2001, and reached cytogenic remission in July 
2001. 

I've continued on 300mg per day.

I was in the study for 12  years.

I feel like it is my safety net between wellness and reoccurrence of CML.

I am almost afraid to stop it. I no longer have any side effects from it.

Who has stopped Gleevec, and what have you experienced as a result of doing so?

Thanking you all for your input...

Angie in Canada

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Re: [CMLHope] Stopping Gleevec and BMB X4 !

['Icandoallttc' via CMLHope]

Not every one gets to pcr on tkis.  I never did on gleevec.   It quit on me 
instead of me quitting.  
I finally reached pcr on sprycel.   If you do quit keep a close check on your 
counts. 
Remember there are more tkis you can take if you have problems on down the 
line. 
I am now on the newest one out.  
Live each day for that day and enjoy it to its fullest. I have been taking tkis 
for 11 years as of last January and I'm still here. 


Prayers  Blessings Jeanie 18,s
Dx 1/2004
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center

 On Jun 17, 2015, at 8:35 AM, ANGELYN ESDERS esd...@rogers.com wrote:
 
 Thanks, Marty. I am having no great emotional upheaval over quitting Gleevec. 
 Whatever will be, will be, and everything is a learning experience. It just 
 feels strange after 14+ years.
 
 In other news, Monday a new platelet dr. decided to do a BMB.
 You won't believe this: It took him FOUR tries to get a viable sample. Never 
 had this happen before. Four crunching entries.
 Sort of like having four BMB's at the same time. Afterwards I was almost in a 
 state of shock and could not stand, nauseous, very stressed. (In Canada we do 
 not get sedation or morphine for this procedure.) It took me 90 minutes to 
 de-stress and had to drive myself home because he had not warned me that he 
 intended to do this and to bring a driver along. There's one doctor who will 
 NOT be doing another BMB on me!! I think he needs a few more lessons in how 
 to do it.
 
 Anyway, I am finestill low platelets. Life goes on.
 Angie
 
  
 From: Marty Gartenberg wa2...@gmail.com
 To: cmlhope@googlegroups.com 
 Sent: Wednesday, June 17, 2015 7:29 AM
 Subject: Re: [CMLHope] Stopping Gleevec
 
 Hi Angie,
 
 You are not thee only one that has stopped your TKI and felt that way. 
 sometimes something that we take as far as any TKI's ends up being a crutch 
 for us and we always seem to worry if this or that will come back to haunt 
 us. It is a normal human response and we worry about it.
 
 Angie, since your really feeling better without the Gleevec then you should 
 learn to live your life in the best way that you can.
 
 I have seen this many times before. A man that both Zavie and I knew was on 
 Alpha Interferon and suffered immensely from it's horrible side effects. He 
 suffered for many years and when he was finally PCRU everyone told him to 
 stop using it anymore but he still continued still suffering because it had 
 become a crutch for him. He had the same feelings as you now have and after a 
 lot of coaching from everyone he finally stopped it. 
 
 He has been off of it for many years and no reoccurrence of CML ever came 
 back to him. His system finally burned out his CML.
 
 Remember that everything in life has a double edged soared. If you do 
 something will it come back to haunt you or if you don't do something will it 
 come back to haunt you??
 
 I just can't live my life that way, and if something does come back then I 
 will deal with it.
 Remember me telling everyone that Leukemia is both a disease of not only the 
 body but it also poisons the mind.
 
 Angie, why not start writing a diary and put everything in there that you 
 have gone through the day? I do it and it lets me reflect about what I could 
 have done better or worse during the day. I call it my frustrations and how 
 to deal with them, and it really works for me as I am sure it will also work 
 for you or anyone else. By the way I see that Giora sent you his response. 
 read it if you haven't as yet.
 
 Here is something called expect the best Please read it and it will also 
 help you with yourself.
 
 One last thing. I am not a doctor but have gone through a lot of things in my 
 life health wise as you already know. Have you ever wondered why I am still 
 alive? I did at one time but maybe it is because I try helping others as a 
 promise that I once made to GOD and also received help myself from others. It 
 is a two way street, or I am the luckiest son of a bitch on this planet ???
 18's,
 
 Marty 
 

 EXPECT THE BEST, MIND OVER MATTER. SUCCESS IS A FUNCTION OF SELF CONFIDENCE. 
 TO HAVE SUCCESS AT ANYTHING YOU MUST FIRST LEARN TO BELIEVE IN YOURSELF. IF 
 YOU EXPECT THE WORSE THEN THAT IS EXACTLY WHAT YOU WILL GET (MIND OVER 
 MATTER) IF YOU EXPECT THE BEST THEN THAT IS WHAT YOU WILL GET.
 WHAT WE HAVE TO LEARN TO DO IS TO CHANGE OUR MENTAL HABITS, OUR STATES OF 
 MIND. LEARN TO EXPECT AND NOT TO DOUBT. BY DOING THIS YOU BRING EVERYTHING 
 INTO THE REALM OF POSSIBILITY. WHEN YOU LEARN TO BELIEVE THEN WHAT YOU 
 THOUGHT TO BE IMPOSSIBLE THEN MOVES INTO THE AREA OF POSSIBILITY.
 EVERY GREAT THING EVENTUALLY BECOMES POSSIBLE FOR YOU. MY BELIEF AT THE 
 BEGINNING OF A DOUBTFUL UNDERTAKING IS THE ONE THING THAT INSURES THE 
 SUCCESSFUL OUTCOME...
 FOCUS...
  18's,
 Marty
 
 
 
 On Tue, Jun 16, 2015 at 9:02 PM, ANGELYN ESDERS esd...@rogers.com