Hi Angie, You are not thee only one that has stopped your TKI and felt that way. sometimes something that we take as far as any TKI's ends up being a crutch for us and we always seem to worry if this or that will come back to haunt us. It is a normal human response and we worry about it.
Angie, since your really feeling better without the Gleevec then you should learn to live your life in the best way that you can. I have seen this many times before. A man that both Zavie and I knew was on Alpha Interferon and suffered immensely from it's horrible side effects. He suffered for many years and when he was finally PCRU everyone told him to stop using it anymore but he still continued still suffering because it had become a crutch for him. He had the same feelings as you now have and after a lot of coaching from everyone he finally stopped it. He has been off of it for many years and no reoccurrence of CML ever came back to him. His system finally "burned out" his CML. Remember that everything in life has a double edged soared. If you do something will it come back to haunt you or if you don't do something will it come back to haunt you?? I just can't live my life that way, and if something does come back then I will deal with it. Remember me telling everyone that Leukemia is both a disease of not only the body but it also poisons the mind. Angie, why not start writing a diary and put everything in there that you have gone through the day? I do it and it lets me reflect about what I could have done better or worse during the day. I call it my frustrations and how to deal with them, and it really works for me as I am sure it will also work for you or anyone else. By the way I see that Giora sent you his response. read it if you haven't as yet. Here is something called "expect the best" Please read it and it will also help you with yourself. One last thing. I am not a doctor but have gone through a lot of things in my life health wise as you already know. Have you ever wondered why I am still alive? I did at one time but maybe it is because I try helping others as a promise that I once made to GOD and also received help myself from others. It is a two way street, or I am the luckiest son of a bitch on this planet ??? 18's, Marty *EXPECT THE BEST, MIND OVER MATTER. SUCCESS IS A FUNCTION OF SELF CONFIDENCE. TO HAVE SUCCESS AT ANYTHING YOU MUST FIRST LEARN TO BELIEVE IN YOURSELF. IF YOU EXPECT THE WORSE THEN THAT IS EXACTLY WHAT YOU WILL GET (MIND OVER MATTER) IF YOU EXPECT THE BEST THEN THAT IS WHAT YOU WILL GET.* *WHAT WE HAVE TO LEARN TO DO IS TO CHANGE OUR MENTAL HABITS, OUR STATES OF MIND. LEARN TO EXPECT AND NOT TO DOUBT. BY DOING THIS YOU BRING EVERYTHING INTO THE REALM OF POSSIBILITY. WHEN YOU LEARN TO BELIEVE THEN WHAT YOU THOUGHT TO BE IMPOSSIBLE THEN MOVES INTO THE AREA OF POSSIBILITY.* *EVERY GREAT THING EVENTUALLY BECOMES POSSIBLE FOR YOU. MY BELIEF AT THE BEGINNING OF A DOUBTFUL UNDERTAKING IS THE ONE THING THAT INSURES THE SUCCESSFUL OUTCOME...* *FOCUS...* 18's, Marty On Tue, Jun 16, 2015 at 9:02 PM, ANGELYN ESDERS <[email protected]> wrote: > I just received an email from my oncologist telling me that it is safe for > me to stop Gleevec for 3 months. > I started Gleevec in January 2001, and reached cytogenic remission in July > 2001. > I've continued on 300mg per day. > I was in the study for 12 years. > I feel like it is my safety net between wellness and reoccurrence of CML. > I am almost afraid to stop it. I no longer have any side effects from it. > Who has stopped Gleevec, and what have you experienced as a result of > doing so? > Thanking you all for your input... > Angie in Canada > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
